Aspects of motor development and quality of life in the  context of child obesity

Introduction: Child development is a period of progressive and complex transformations related to growth, maturation, learning, motor skills, and psychosocial issues. Objective: Analyze the influence of obesity on the aspects of motor development and quality of life of children aged three to eight years, and and their mothers’ levels of anxiety and depression. Methods: Cross-sectional descriptive and quantitative approach study with children enrolled and attended at a pediatric endocrinology in Fortaleza, CE, in the period between June and November 2017. The study sample consisted of 24 children from three to eight years of age. We used the anthropometric quantification, the Motor Development Scale, and the Pediatric Quality of Life Inventory (PedsQL™) for children. We applied the Beck anxiety and depression questionnaires for mothers. Results: 16 were female, and 17 were severely obese. Most of the sample showed motor development changes 42,85% classified as “inferior” in the obesity category, and 41.17% in the severely obese category. Both groups revealed”complete right-handed” and “undefined” laterality in around 40% of the individuals. The quality of life had a low mean score. The majority of mothers from both groups presented minimal anxiety and depression. Conclusions: Obesity interferes negatively with the overall motor development, determination of laterality, and quality of life of children, perceiving more severe levels of anxiety and depression in mothers of children severely obesity.

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The Pediatric Quality of Life Inventory 4.0: A Study on Normal Children and Adolescents in India−A Cross-Sectional Study

Critical Reviews in Physical and Rehabilitation Medicine ◽

10.1615/critrevphysrehabilmed.v22.i1-4.50 ◽

2010 ◽

Vol 22 (1-4) ◽

pp. 61-69

Author(s):

Prayash Rath ◽

Sailakshmi Ganesan ◽

Amitesh Narayan

Keyword(s):

Quality Of Life ◽

Children And Adolescents ◽

Cross Sectional Study ◽

Sectional Study ◽

Normal Children ◽

Cross Sectional ◽

Quality Of Life Inventory ◽

Life Inventory

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Quality of life of children with spinal muscular atrophy and their caregivers from the perspective of caregivers : a Chinese cross-sectional study

10.21203/rs.3.rs-50728/v3 ◽

2020 ◽

Author(s):

Mei Yao ◽

Ying Ma ◽

Ruiying Qian ◽

Yu Xia ◽

Changzheng Yuan ◽

...

Keyword(s):

Quality Of Life ◽

Muscular Atrophy ◽

Cross Sectional Study ◽

Type I ◽

Type Ii ◽

Cross Sectional ◽

Type Iii ◽

Quality Of Life Inventory ◽

Life Inventory

Abstract Background: Spinal muscular atrophy (SMA) is an autosomal-recessive motor neuron disease leading to dysfunction of multiple organs. SMA can impair the quality of life (QoL) of patients and family. We aimed to evaluate the QoL of children with SMA and their caregivers and to identify the factors associated with QoL in a cross-sectional study conducted in China.Methods: We recruited 101 children aged 0-17 years with SMA and their caregivers from a children’s hospital in China. Twenty-six children had type I SMA, 56 type II and 19 type III. Each child’s QoL was measured by the Pediatric Quality of Life Inventory 3.0 Neuromuscular Module (PedsQL NMM), which was completed by the child’s caregivers. The caregiver’s QoL was measured by the Pediatric Quality of Life Inventory Family Impact Module (PedsQL FIM). Information on sociodemographic characteristics, disease-specific characteristics, and treatments were collected using the proxy-reported questionnaire. Two-sample t-tests and one-way ANOVA were used to compare differences in average scores of QoL across subgroups.Results: Children with type III SMA had a higher average Total score of PedsQL NMM and higher average scores in domains Neuromuscular disease and Family resources than children with type I or type II SMA (p < 0.001). Caregivers of children with type III SMA reported higher average scores in the domains of Physical, Emotional, Social, and Cognitive functioning of the PedsQL FIM than those of children with types I or II SMA (p < 0.05). In addition, disease-related characteristics (e.g. limited mobility, stable course of disease, skeleton deformity, and digestive system dysfunction) and respiratory support were associated with lower average scores of PedsQL NMM and PedsQL FIM (p < 0.05). Exercise training, multidisciplinary team management and use of the medication Nusinersen were each associated with higher average scores in both PedsQL NMM and FIM (p < 0.05). Conclusion: Our study has demonstrated factors that may impair or improve QoL of children patients with SMA and their parents. Particularly, QoL was relatively poor in children with type I and type II SMA as well as in their caregivers compared to those with type III SMA. We strongly recommend that standard of care in a multidisciplinary team (MDT) be strengthened to improve the QoL of SMA patients. Our study called for increased attention from clinical physicians on measuring QoL in their clinical practices in order to enhance the understanding of impacts of SMA and to make better decisions regarding treatment.

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Quality of life of children with spinal muscular atrophy and their caregivers from the perspective of caregivers : a Chinese cross-sectional study

10.21203/rs.3.rs-50728/v2 ◽

2020 ◽

Author(s):

Mei Yao ◽

Ying Ma ◽

Ruiying Qian ◽

Yu Xia ◽

Changzheng Yuan ◽

...

Keyword(s):

Quality Of Life ◽

Muscular Atrophy ◽

Cross Sectional Study ◽

Type I ◽

Type Ii ◽

Cross Sectional ◽

Type Iii ◽

Quality Of Life Inventory ◽

Life Inventory

Abstract Background: Spinal muscular atrophy (SMA) is an autosomal-recessive motor neuron disease leading to dysfunction of multiple organs. SMA can impair the quality of life (QoL) of patients and family. We aimed to evaluate the QoL of children with SMA and their caregivers and to identify the factors associated with QoL in a cross-sectional study conducted in China.Methods: We recruited 101 children aged 0-17 years with SMA and their caregivers from a children’s hospital in China. Twenty-six children had type I SMA, 56 type II and 19 type III. Each child’s QoL was measured by the Pediatric Quality of Life Inventory 3.0 Neuromuscular Module (PedsQL NMM), which was completed by the child’s caregivers. The caregiver’s QoL was measured by the Pediatric Quality of Life Inventory Family Impact Module (PedsQL FIM). Information on sociodemographic characteristics, disease-specific characteristics, and treatments were collected using the proxy-reported questionnaire. Two-sample t-tests and one-way ANOVA were used to compare differences in average scores of QoL across subgroups.Results: Children with type III SMA had a higher average Total score of PedsQL NMM and higher average scores in domains Neuromuscular disease and Family resources than children with type I or type II SMA (p < 0.001). Caregivers of children with type III SMA reported higher average scores in the domains of Physical, Emotional, Social, and Cognitive functioning of the PedsQL FIM than those of children with types I or II SMA (p < 0.05). In addition, disease-related characteristics (e.g. limited mobility, motor degeneration, skeleton deformity, and digestive system dysfunction) and respiratory support were associated with lower average scores of PedsQL NMM and PedsQL FIM (p < 0.05). Exercise training, multidisciplinary team management and use of the medication Nusinersen were each associated with higher average scores in both PedsQL NMM and FIM (p < 0.05).Conclusion: Our study has demonstrated factors that may impair or improve QoL of children patients with SMA and their parents. Particularly, QoL was relatively poor in children with type I and type II SMA as well as in their caregivers compared to those with type III SMA. We strongly recommend that standard of care in a multidisciplinary team (MDT) be strengthened to improve the QoL of SMA patients. Our study called for increased attention from clinical physicians on measuring QoL in their clinical practices in order to enhance the understanding of impacts of SMA and to make better decisions regarding treatment.

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Validation of the Quality of Life Inventory for patients with anxiety and depression

Comprehensive Psychiatry ◽

10.1016/j.comppsych.2005.09.003 ◽

2006 ◽

Vol 47 (4) ◽

pp. 307-314 ◽

Cited By ~ 45

Author(s):

Niamh M. McAlinden ◽

Tian P.S. Oei

Keyword(s):

Quality Of Life ◽

Anxiety And Depression ◽

Quality Of Life Inventory ◽

Life Inventory

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Kualitas Hidup Penderita Talasemia berdasarkan Instrumen Pediatric Quality of Life Inventory 4.0 Generic Core Scales di Ruang Rawat Anak Rumah Sakit Umum Cut Meutia Aceh Utara

Sari Pediatri ◽

10.14238/sp20.1.2018.11-6 ◽

2018 ◽

Vol 20 (1) ◽

pp. 11

Author(s):

Muhsinun Nikmah ◽

Mauliza Mauliza

Keyword(s):

Quality Of Life ◽

Cross Sectional ◽

Quality Of Life Inventory ◽

Pedsql 4.0 ◽

Life Inventory

Latar belakang. Talasemia merupakan kelainan genetik yang diderita seumur hidup dan akan menimbulkan banyak masalah akibat proses penyakit itu sendiri maupun karena pengobatannya. Hal ini akan memengaruhi kualitas hidup anak.Tujuan. Mengetahui kualitas hidup penderita talasemia berdasarkan instrumen Pediatric Quality of Life Inventory (PedsQL) 4.0 Generic Core Scales di Ruang Rawat Anak Rumah Sakit Umum Cut Meutia Aceh Utara.Metode. Penelitian deskriptif dengan desain penelitian cross sectional dengan besar sampel sebanyak 41 orang anak.Hasil. Hasil analisis univariat didapatkan rerata kualitas hidup subjek penelitian adalah 60,48. Kualitas hidup paling tinggi terdapat pada kelompok usia 13-18 tahun (68,42), jenis kelamin laki-laki (62,86), pendidikan SMA/Sederajat (81,52), kadar Hb pre-transfusi <9 g/dL (60,51), mendapat transfusi 3 bulan terakhir (61,60), lama sakit >5 tahun (65,74), dan pendapatan orangtua per bulan > Rp.3.5.000.000 (68,59).Kesimpulan. Rerata kualitas hidup penderita talasemia di Rumah Sakit Umum Cut Meutia Aceh Utara adalah buruk, khususnya pada fungsi sekolah.

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Quality of life of children with spinal muscular atrophy and their caregivers from the perspective of caregivers: a Chinese cross-sectional study

Orphanet Journal of Rare Diseases ◽

10.1186/s13023-020-01638-8 ◽

2021 ◽

Vol 16 (1) ◽

Author(s):

Mei Yao ◽

Ying Ma ◽

Ruiying Qian ◽

Yu Xia ◽

Changzheng Yuan ◽

...

Keyword(s):

Quality Of Life ◽

Muscular Atrophy ◽

Cross Sectional Study ◽

Type I ◽

Type Ii ◽

Cross Sectional ◽

Type Iii ◽

Quality Of Life Inventory ◽

Life Inventory

Abstract Background Spinal muscular atrophy (SMA) is an autosomal-recessive motor neuron disease leading to dysfunction of multiple organs. SMA can impair the quality of life (QoL) of patients and family. We aimed to evaluate the QoL of children with SMA and their caregivers and to identify the factors associated with QoL in a cross-sectional study conducted in China. Methods We recruited 101 children aged 0–17 years with SMA and their caregivers from a children’s hospital in China. Twenty-six children had type I SMA, 56 type II and 19 type III. Each child’s QoL was measured by the Pediatric Quality of Life Inventory 3.0 Neuromuscular Module (PedsQL NMM), which was completed by the child’s caregivers. The caregiver’s QoL was measured by the Pediatric Quality of Life Inventory Family Impact Module (PedsQL FIM). Information on sociodemographic characteristics, disease-specific characteristics, and treatments were collected using the proxy-reported questionnaire. Two-sample t tests and one-way ANOVA were used to compare differences in average scores of QoL across subgroups. Results Children with type III SMA had a higher average Total score of PedsQL NMM and higher average scores in domains Neuromuscular disease and Family resources than children with type I or type II SMA (p < 0.001). Caregivers of children with type III SMA reported higher average scores in the domains of Physical, Emotional, Social, and Cognitive functioning of the PedsQL FIM than those of children with types I or II SMA (p < 0.05). In addition, disease-related characteristics (e.g. limited mobility, stable course of disease, skeleton deformity, and digestive system dysfunction) and respiratory support were associated with lower average scores of PedsQL NMM and PedsQL FIM (p < 0.05). Exercise training, multidisciplinary team management and use of the medication Nusinersen were each associated with higher average scores in both PedsQL NMM and FIM (p < 0.05). Conclusion Our study has demonstrated factors that may impair or improve QoL of children patients with SMA and their parents. Particularly, QoL was relatively poor in children with type I and type II SMA as well as in their caregivers compared to those with type III SMA. We strongly recommend that standard of care in a multidisciplinary team be strengthened to improve the QoL of SMA patients. Our study called for increased attention from clinical physicians on measuring QoL in their clinical practices in order to enhance the understanding of impacts of SMA and to make better decisions regarding treatment.

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Quality of Life of Children With Spinal Muscular Atrophy and Their Caregivers: A Chinese Cross-sectional Study

10.21203/rs.3.rs-50728/v1 ◽

2020 ◽

Author(s):

Mei Yao ◽

Ying Ma ◽

Ruiying Qian ◽

Yu Xia ◽

Changzheng Yuan ◽

...

Keyword(s):

Quality Of Life ◽

Muscular Atrophy ◽

Cross Sectional Study ◽

Type I ◽

Type Ii ◽

Cross Sectional ◽

Type Iii ◽

Quality Of Life Inventory ◽

Life Inventory

Abstract Background: Spinal muscular atrophy (SMA) is an autosomal recessive motor neuron disease leading to multiple organs dysfunction, which can impair the quality of life (QoL) of patients and family. We aimed to evaluate QoL of children with SMA and their caregivers, and to assess the associated factors in a Chinese cross-sectional study.Methods: 101 caregivers and children aged 0-14 years with SMA were recruited from a children hospital. 26 children had type I SMA, 56 type II and 19 type III. Children’s QoL was measured by the Pediatric Quality of Life Inventory 3.0 Neuromuscular Module (PedsQL NMM) that was filled by caregivers. Caregiver’s QoL was measured by the Pediatric Quality of Life Inventory Family Impact Module (PedsQL FIM). Information on sociodemographic, disease-specific characteristics, and treatments were collected by the proxy-reported questionnaire. Two independent t-tests and one-way ANOVA were applied to compare differences in scores of QoL across subgroups.Results: Children with type III SMA had higher total score of PedsQL NMM, and scores in neuromuscular disease and family resources domain than those with type I and type II SMA (p < 0.001). Caregivers of children with type III SMA reported higher scores in domains of physical, emotional, social, and cognitive function of PedsQL FIM than those of children with types I and II (p < 0.05). In addition, disease-related characteristics (e.g. limited mobility, motor degeneration, skeleton deformity, and digestive system dysfunction) and respiratory support were associated with lower scores of PedsQL NMM and PedsQL FIM (p < 0.05). Exercise training, multidisciplinary team management and using the medication nusinersen were associated with higher scores of QoL in both PedsQL NMM and FIM (p < 0.05). Conclusion: Our study has demonstrated the factors that may impair or improve QoL of children patients with SMA and their parents. Particularly, QoL was relatively poor in children with type I and type II SMA as well as in their caregivers than those with type III SMA. Our study called for attention from clinical physicians on measuring QoL in their clinical practices in order to enhance the understanding of impacts of SMA and make better decisions regarding treatment.

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Associations of Age, Gender, and Family Income with Quality of Life in Children With Advanced Cancer

Journal of Pediatric Oncology Nursing ◽

10.1177/1043454221992321 ◽

2021 ◽

pp. 104345422199232

Author(s):

Piera C. Robson ◽

Mary S. Dietrich ◽

Terrah Foster Akard

Keyword(s):

Quality Of Life ◽

Advanced Cancer ◽

Family Income ◽

Hematologic Malignancy ◽

Secondary Analysis ◽

Quality Of Life Inventory ◽

Younger Age ◽

Self Reports ◽

Life Inventory

Background: Children with cancer often experience decreased quality of life (QOL) throughout the illness trajectory. The purpose of this study was to explore the associations of demographic characteristics with QOL in children with advanced cancer. Methods: This secondary analysis was part of a larger randomized clinical trial that evaluated the efficacy of a legacy intervention for children (7–17 years) with relapsed/refractory cancer and their primary parent caregivers. Assessments included child self-reports on the Pediatric Quality of Life Inventory (PedsQL) Cancer Module. Researchers used descriptive and linear regression statistical methods. Results: Children ( n = 128) averaged 10.9 years (SD = 3.0). The majority were female ( n = 68, 53%), white ( n = 107, 84%), had a hematologic malignancy ( n = 67, 52%), with family incomes of $50,000 or less ( n = 81, 63.3%). Statistically significant positive associations of both age and income level with PedsQL scores were observed ( p < .05) but not gender ( p > .05). The strongest correlations for age were with the procedural anxiety ( beta = 0.42), treatment anxiety ( beta = 0.26), and total ( beta = 0.28) scores (all p < .01). In general, there was a positive correlation between family income levels and PedsQL scores ( p < .05). The strongest correlations for income were with nausea ( R = 0.49), appearance ( R = 0.44), pain, and treatment anxiety (both R = 0.42) (all p < .01). Associations adjusted for age remained essentially the same (all p < .01). Discussion: Children with advanced cancer with lower family income and younger age are at high risk for poorer QOL. Oncology nurses should seek to identify families who may benefit from additional resources to promote QOL.

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