Thomas Lovell Beddoes’s ‘Fictitious Condition’

Author(s):  
Brittany Pladek

Chapter six reads Thomas Lovell Beddoes’s 1849 gothic drama Death’s Jest-Book as a cynical insider’s take on Romantic medicine’s approach to death. A graduate of Göttingen and Würzburg medical schools, Beddoes harbored early hopes that medicine might solve the mystery of death. But he was disappointed by medicine’s failure to deliver on this promise and disillusioned by doctors who turned a profit in the burgeoning palliative care market. As doctors became more regular presences at the deathbed, patients worried that they were sacrificing agency over their own deaths for the sake of palliative ease. Beddoes satirizes these developments through a harrowing portrait of a failed suicide, denied his chosen death by the imperious decision of a medical professional. Looking ahead to health humanists who advocate for patients’ control over the stories that survive them, Beddoes offers writing as a way to preserve agency over life’s end when death cannot be prevented. When death is a ‘fictitious condition’, it cannot be coopted by rapacious physicians. Beddoes’s critique of managed death is a forward-looking defense of patients’ narrative sovereignty.

With the publication of Flexner report in 1910 and implementation in 1913, with the Rockefeller Foundation and Carnegie Foundation behind it, all medical schools on the main continents of the planet (America, Europe, and Asia) had to adapt to follow the new model of a so-called scientific school. Schools that did not meet the Flexner criteria had to be closed, such as those teaching herbal medicine, naturopathy, homeopathy, etc and only 20% of the schools maintain working. The history of medicine in USA was written by King (1984) in the article entitled XX. The Flexner Report of 1910 [1].


Author(s):  
Andrea Augusta Castro ◽  
Stella Regina Taquette ◽  
Natan Iório Marques

Abstract: Introduction: The palliative care (PC) approach is a care modality recommended by the World Health Organization. Suffering and the process of dying are present in everyday clinical practice, affecting people with life-threatening diseases. However, the predominant model of teaching in Brazilian medical schools does not include palliative care. Objectives: The aim of the study was to get to know the Brazilian medical schools that include PC in their curriculum, and how it has been taught. Methods: Descriptive and exploratory study, carried out by searching for medical schools with disciplines in PC, through the analysis of the course syllabi available in the curricular matrices on the official websites of higher education institutions from August to December 2018. They were analyzed considering the offered period of the PC content, workload, scenario, and type of discipline (elective or mandatory). Results: 315 schools registered with the Ministry of Education were found, and only 44 of them (14%) offer courses in PC. These schools are distributed throughout 11 Brazilian states, of which 52% are located in the Southeast region, 25% in the Northeast, 18% in the South, 5% in the Midwest, and none in the North region. The predominant modality of the type of discipline in PC was mandatory in 61% of schools. Most Brazilian medical schools are private entities (57%), a similar percentage to the total number of medical schools identified with the teaching of PC. This course takes place in the 3rd and 4th years of the course; in most schools, the workload was 46,9 hours. The predominant scenario is the classroom, while some institutions provide integration between teaching community service and medical practice. The program contents are diverse, including thanatology, geriatrics and finitude, humanization, bioethics, pain, oncology and chronic diseases. Conclusion: PC education in Brazil is insufficient, which represents a barrier to the training of doctors in line with the recommendations of international entities, the National Curriculum Guidelines and legal frameworks within the scope of SUS. Investments by medical entities and government agencies are necessary to increase teaching in PC and the consequent qualification of medical training.


Author(s):  
Viviana Dávalos-Batallas ◽  
Vinita Mahtani-Chugani ◽  
Carla López-Núñez ◽  
Víctor Duque ◽  
Fatima Leon-Larios ◽  
...  

Background: The worldwide need for palliative care is high, especially in mid- income countries like Ecuador, where the percentage of patients receiving such care is very small due to the scarcity of infrastructure and specialized personnel and to the unequal distribution in the country. The objective of this study is to explore the knowledge, attitudes and expectations related to palliative care of the physicians in Ecuador. Methods: A qualitative study based on 28 semi-structured interviews, from March 2014 to November 2016, with physicians working in four cities in Ecuador recruited through the snowball technique. Thematic analysis was developed supported by the ATLAS.ti software. Results: Five core themes were identified: (1) training, (2) health policy, (3) professionals’ activities, (4) health services and (5) development of palliative care in Ecuador. Conclusions: Strategies are needed which intensify the training of medical professional in palliative care, as well as avail the human resources and materials for providing it.


2014 ◽  
Vol 4 (Suppl 1) ◽  
pp. A31.1-A31
Author(s):  
Steven Walker ◽  
Jane Gibbins ◽  
Mandy Burnett ◽  
Astrid Adams ◽  
Paul Paes ◽  
...  

Author(s):  
Melissa Contreras-Nourse

The interpreting profession has long used metaphors or rule statements to describe and teach the ways in which practitioners make decisions (Dean & Pollard, 2011, 2018). Interpreting students are also often taught that the context of an encounter will dictate their decision-making by way of statements such as “it depends”. Such pedagogical statements can make talk between a practitioner and a medical professional about the responsibilities of an interpreter during medical encounters difficult. This study is based on the work of Dean and Pollard (2011, 2018) on value-based decision-making and is guided by the four principles of biomedical ethics (respect for autonomy, non-maleficence, beneficence and justice). It has sought to provide evidence of the existence, applicability and usability of these frameworks through a single case study of a real-life appointment in which a parent of a palliative care outpatient and a medical professional communicated during a consultation, aided by a medical interpreter.


2019 ◽  
Vol 42 (2) ◽  
pp. 156-171
Author(s):  
Salvador Morales Ferrer

Desde o início do século XXI, os hospitais espanhóis praticam os cuidados paliativos às pessoas doentes em uma fase terminal, para que estas no último momento de sua vida não sofram, todo o caso, é importante registrar que não existe regulamentação legal muito específica sobre essa matéria na Espanha. Assim, resta a possibilidade de autorizar possibilidade ao enfermo terminal, seus familiares, ou o médico. O que pretende o legislador Socialista na proposta de Lei Orgânica da Eutanásia consiste na possibilidade de que essa prática realizada seja por profissional médico ou por familiar do enfermo, desde que mediante o consentimento do doente ou de seus familiares sem que seja considerada crime. Compreende-se que essa proposta é um grande avanço legislativo para a Espanha e para os seus países vizinhos. Resumen Desde principios del siglo XXI, siempre en los Hospitales Españoles sea practicado los cuidados paliativos a las personas enfermas en fase terminal, para que estas en su último momento de su vida no sufran, a todo esto, cabe mencionar que no existe una regulación legal muy específica sobre esta materia en España, sin embargo, cabe la posibilidad tanto del enfermo terminal o, sus familiares incluso el médico que pueda permitir su aplicación. Lo que intenta el legislador Socialista en la Proposición de Ley Orgánica de la Eutanasia consiste en la práctica directa de quién la practica ya sea un profesional de la medicina o incluso un familiar al enfermo terminal sin carácter punitivo mediante el consentimiento tanto del paciente o, sus familiares que están a cargo de la persona enferma que ésta en fase terminal. Por lo que, se entiende que es un gran avance legislativo para España e incluso para los países del entorno. Abstract Since the beginning of the 21st century, always in the Spanish Hospitals palliative care is practiced to the sick people in the terminal phase, so that at the last moment of their life they do not suffer, to all this, it is possible to mention that there is not a very legal regulation specific on this matter in Spain, however, it is possible for the terminally ill or their relatives even the doctor who can allow its application. What the Socialist legislator intends in the Organic Law Proposal of Euthanasia consists in the direct practice of those who practice it either a medical professional or even a relative to the terminal patient without punitive character through the consent of either the patient or their relatives who are in charge of the sick person who is in the terminal phase. Therefore, it is understood that it is a great legislative advance for Spain and even for the surrounding countries.


2017 ◽  
Vol 8 (3) ◽  
pp. 299-306 ◽  
Author(s):  
Steven Walker ◽  
Jane Gibbins ◽  
Paul Paes ◽  
Stephen Barclay ◽  
Astrid Adams ◽  
...  

BackgroundEffective training at medical school is essential to prepare new doctors to safely manage patients with palliative care (PC) and end of life care (EOLC) needs. The contribution of undergraduate PC course organisers is central but their collective views regarding role are unknown.ObjectiveTo survey attitudes of PC course organisers regarding their course, organisation, the adequacy of training provided and level of personal satisfaction.MethodsAn anonymised, multifactorial, web-based questionnaire was devised, tested, modified and then sent to lead PC course organisers at all UK medical schools.ResultsData were obtained from all 30 UK medical schools. Organisers agreed/strongly agreed (=agreed) that their PC course was highly rated by students (26, 87%). 25 (83%) agreed their course ‘enabled misconceptions and fears about PC, death, dying and bereavement to be addressed’, ‘delivered quality PC training’ (23, 77%), ‘fulfilled General Medical Council requirements’ (19, 63%), ‘prepared students well to care for patients with PC/EOLC needs’ (18, 60%) and ‘enabled students to visit a hospice and see the role of doctors in caring for the dying’ (17, 57%). Concerns were limited capacity to accommodate students (agreed 20, 66%) and variability in teaching according to location (15, 50%). Most agreed their institution recognised PC training as important (22, 73%), they felt supported by colleagues (21, 70%) and experienced cooperation between stakeholders (20, 67%). All agreed that PC training was essential for undergraduates, while 29 (97%) supported inclusion of a hospice visit in the curriculum. 27 agreed that their role was satisfying (90%), 3 disagreed (10%).ConclusionsApproximately two-thirds of organisers were generally positive about their PC course, institution and role. A minority expressed concerns; these may reflect suboptimal PC training at their medical school and poor preparation of new doctors.


2020 ◽  
Vol 20 (1) ◽  
Author(s):  
Thais Ioshimoto ◽  
Danielle Ioshimoto Shitara ◽  
Gilmar Fernades do Prado ◽  
Raymon Pizzoni ◽  
Rafael Hennemann Sassi ◽  
...  

Abstract Background According to the Latin America Association for palliative care, Brazil offers only 0.48 palliative care services per 1 million inhabitants. In 2012, no accredited physicians were working in palliative care, while only 1.1% of medical schools included palliative care education in their undergraduate curricula. As a reflection of the current scenario, little research about end-of-life care has been published so that studies addressing this subject in the Brazilian setting are crucial. Methods A cross-sectional study study conducted with students applying for the medical residency of the Federal University of São Paulo were invited to voluntarily participate in an anonymous and self-administered questionnaire survey. The latter included demographic information, attitudes, prior training in end-of-life care, prior end-of-life care experience, the 20-item Palliative Care Knowledge Test (PCKT) and a consent term. Results Of the 3086 subjects applying for residency, 2349 (76%) answered the survey, 2225 were eligible for analysis while 124 were excluded due to incomplete data. Although the majority (99,2%) thought it was important to have palliative care education in the medical curriculum, less than half of them (46,2%) reported having received no education on palliative care. The overall performance in the PCKT was poor, with a mean score of 10,79 (± 3). While philosophical questions were correctly answered (81,8% of correct answers), most participants lacked knowledge in symptom control (50,7% for pain, 57,3% for dyspnea, 52,2% for psychiatric problems and 43,4% for gastrointestinal problems). Doctors that had already concluded a prior residency program and the ones that had prior experience with terminal patients performed better in the PCKT (p < 0,001). The high-performance group (more than 50% of correct answers) had received more training in end-of-life care, showed more interest in learning more about the subject, had a better sense of preparedness, as well as a higher percentage of experience in caring for terminal patients (p < 0,001). Conclusions Our study showed that Brazilian physicians lack not only the knowledge, but also training in end-of-life medicine. Important factors to better knowledge in end-of-life care were prior training, previous contact with dying patients and prior medical residency. Corroborating the literature, for this group, training showed to be a key factor in overall in this area of knowledge. Therefore, Brazilian medical schools and residency programs should focus on improving palliative training, especially those involving contact with dying patients.


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