Digital Media in Rare Diseases or “Knowledge Is Power”

2021 ◽

pp. 75-94

Author(s):

Célia Felícia Belim Rodrigues

Keyword(s):

Digital Media ◽

Rare Diseases ◽

Promotional Video ◽

Factual Data

This chapter focuses on the use of digital media by EURORDIS-Rare Diseases Europe and is specifically committed to understand its contribution to the awareness and diagnosis of rare diseases. To perceive the use of digital media and role in creating awareness of rare diseases, the contents of its website and Facebook page were analyzed. In specific, a promotional video of EURORDIS and a collection of 12 videographically documented stories from 2018 and 2019. The results show the use of various types of content and inherently practices, such as information, clarification, personalization, support, appeal, and empowerment, and of several rhetorical resources. In the dimension of pathos, the author finds elements that motivate awareness and inspire the receiver. Some elements of the logos used are credibility of sender(ethos), testimony (ethos), description of disease and identification of symptoms, exemplification and personalization, factual data, statistic data, and the use of metaphors and repetition.

Download Full-text

KLINIK PEMASARAN DIGITAL BAGI DOSEN BERWIRAUSAHA

SELAPARANG Jurnal Pengabdian Masyarakat Berkemajuan ◽

10.31764/jpmb.v4i2.4408 ◽

2021 ◽

Vol 4 (2) ◽

pp. 443

Author(s):

Alin Liana ◽

Sulfaidah Sulfaidah ◽

Maisya Zahra Al Banna

Keyword(s):

Social Media ◽

Digital Media ◽

Waste Treatment ◽

Electronic Devices ◽

Digital Marketing ◽

Goods And Services ◽

Second Stage ◽

Promotional Video ◽

Two Stages ◽

The Web

ABSTRAKPemasaran digital merupakan strategi promosi produk barang dan jasa dengan memanfaatkan media digital yang terintegrasi pada perangkat elektronik dan menggunakan koneksi jaringan internet. Terdapat 6% dosen STKIP Pembangunan Indonesia mengelola usaha mikro secara mandiri, yang bergerak dalam bidang kuliner, kosmetik, pakaian, pemanfaatan sagu, budidaya tanaman dan usaha pengolahan limbah plastik. Usaha mikro yang digeluti oleh dosen masih cenderung konvensional, dan belum memanfaatkan peluang digitalisasi dalam pemasaran produknya, sehingga perlu dilakukan pelatihan pemasaran digital untuk mengimbangi besarnya tantangan persaingan usaha saat ini. Kegiatan ini dibagi menjadi dua tahap, tahap pertama merupakan pemberian materi marketing digital yang terdiri atas (i) pemanfaatan website dan media sosial sebagai media promosi produk, (ii) penguasaan teknik dasar iklan, dan (iii) pemanfaatan video untuk iklan. Sedangkan tahap kedua merupakan praktek pemanfaatan web atau media sosial oleh peserta untuk mempromosikan produk yang dijual. Dari hasil pelatihan ini seluruh peserta dapat menerapkan pemasaran digital dalam mempromosikan produk yang dijual, dan terdapat satu orang peserta yang telah berhasil memanfaatkan video promosi untuk meningkatkan jumlah produk yang terjual. Kepuasan peserta terhadap pelatihan diukur menggunakan kuesioner, yang menunjukkan bahwa 88% peserta menyatakan puas terhadap pelatihan ini. Kata kunci: pemasaran digital; dosen; STKIP Pembangunan Indonesia. ABSTRACTDigital marketing is a strategy to promoting goods and services products by utilizing digital media integrated in electronic devices and using internet network connections. There are 6% lecturers of STKIP Pembangunan Indonesia managing micro businesses independently, engaged in culinary, cosmetics, clothing, sago, decorative plants and plastic waste treatment business. Micro businesses pursued by lecturers still tend to be conventional, and have not taken advantage of digitalization opportunities in the marketing of their products, so it is necessary to conduct digital marketing training to offset the magnitude of the challenges of business competition today. This activity is divided into two stages, the first stage is the provision of digital marketing materials consisting of (i) the utilization of websites and social media as a product promotional media, (ii) mastery of basic advertising techniques, and (iii) the utilization of video for advertising. While the second stage is the practice of using the web or social media by participants to promote the products sold. From the results of this training all participants can apply digital marketing in promoting their products, and there is one participant who has successfully utilized the promotional video to increase the number of products sold. Participants' satisfaction with the training was measured using a questionnaire, which showed that 88% of participants expressed satisfaction with the training. Keywords: digital marketing; lecturer; STKIP Pembangunan Indonesia.

Download Full-text

PROMOTIONAL INNOVATION OF GIRILOYO BATIK THROUGH DIGITAL STORYTELLING

RSF Conference Series: Business, Management and Social Sciences ◽

10.31098/bmss.v1i4.313 ◽

2021 ◽

Vol 1 (4) ◽

pp. 104-108

Author(s):

Yenni Sri Utami ◽

Nur Heri Cahyana

Keyword(s):

Digital Media ◽

Basic Assumption ◽

Digital Storytelling ◽

Direct Selling ◽

Persuasive Power ◽

Promotional Video

This study aims to explore the use of the Giriloyo Batik promotion model by using the storytelling method in digital media. So far, Batik marketing has been carried out by direct selling, so that during the Covid-19 pandemic, batik sales fell very significantly. The basic assumption of this research is that narrative selling has persuasive power. The method used in this research is the exploratory method. The materials explored are various stories, myths and local wisdom of the Giriloyo community. This local wisdom is then transformed into a narrative associated with batik for marketing purposes. The results showed that (a) The audience who watched the promotional video was interested in the storyline which contained batik's connection with the legend of Giriloyo; (b) the audience is interested in the philosophical story of batik motifs; (c) Audience is interested in visiting Giriloyo.

Download Full-text

The Collaborative Network Approach: a model for advancing patient-centric research for Castleman disease and other rare diseases

Emerging Topics in Life Sciences ◽

10.1042/etls20180178 ◽

2019 ◽

Vol 3 (1) ◽

pp. 97-105

Author(s):

Mary Zuccato ◽

Dustin Shilling ◽

David C. Fajgenbaum

Keyword(s):

Rare Diseases ◽

Treatment Options ◽

Castleman Disease ◽

High Impact ◽

Collaborative Network ◽

Network Approach ◽

Grant Applications ◽

Research Questions ◽

Novel Strategy ◽

Patient Centric

Abstract There are ∼7000 rare diseases affecting 30 000 000 individuals in the U.S.A. 95% of these rare diseases do not have a single Food and Drug Administration-approved therapy. Relatively, limited progress has been made to develop new or repurpose existing therapies for these disorders, in part because traditional funding models are not as effective when applied to rare diseases. Due to the suboptimal research infrastructure and treatment options for Castleman disease, the Castleman Disease Collaborative Network (CDCN), founded in 2012, spearheaded a novel strategy for advancing biomedical research, the ‘Collaborative Network Approach’. At its heart, the Collaborative Network Approach leverages and integrates the entire community of stakeholders — patients, physicians and researchers — to identify and prioritize high-impact research questions. It then recruits the most qualified researchers to conduct these studies. In parallel, patients are empowered to fight back by supporting research through fundraising and providing their biospecimens and clinical data. This approach democratizes research, allowing the entire community to identify the most clinically relevant and pressing questions; any idea can be translated into a study rather than limiting research to the ideas proposed by researchers in grant applications. Preliminary results from the CDCN and other organizations that have followed its Collaborative Network Approach suggest that this model is generalizable across rare diseases.

Download Full-text