Designing Participatory Research Projects

Author(s):  
Helen Vallianatos
Author(s):  
Ana María Seifert ◽  
Karen Messing

A session at the 2005 Delhi Congress on Women, Work and Health was entitled “Social movements and research on women, work and health: How can researchers and community members work together on current problems?” and described researcher-worker collaboration to gain recognition for the constraints and requirements of women's jobs. Suffering in the workplace may appear to come primarily from such visible aggressors as toxins and heavy weights, but its ultimate cause is the powerlessness, isolation, and denigration that sap workers’ ability to fight back. Participatory research projects described here have promoted solidarity and encouraged the transformation of working conditions.


2020 ◽  
pp. 146879412096537
Author(s):  
Alastair Roy ◽  
Jacqueline Kennelly ◽  
Harriet Rowley ◽  
Cath Larkins

The focus of this paper is on the complex and sometimes contradictory effects of generating films with and about young people who have experienced homelessness, through participatory research. Drawing on two projects – one in Ottawa, Canada, and the other in Manchester, UK – we scrutinise two key aspects of participatory research projects that use film: first, how to appropriately communicate the complexity of already-stigmatised lives to different publics, and second, which publics we prioritise, and how this shapes the stories that are told. Through a theoretical framework that combines Pierre Bourdieu’s account of authorised language with Arthur Frank’s socio-narratology, we analyse the potential for generating justice versus reproducing symbolic violence through participatory research and film with homeless young people. In particular, we scrutinise the distinct role played by what we are calling first, second and third publics – each with their own level of distance and relationship to the participatory research process.


2017 ◽  
Vol 5 (3) ◽  
pp. 219-227 ◽  
Author(s):  
Catherine Wilkinson ◽  
Samantha Wilkinson

This article adopts a reflexive stance as the authors look back on their doctoral research projects; the first author exploring young people’s relationships with community radio, and the second author studying young people’s alcohol consumption practices and experiences, both in the North West of England, UK. The authors discuss the methods of data collection they employed, which enabled young people the opportunity to participate in meaningful ways. However, drawing on snapshots from their PhD theses, the authors question whether decisions made when writing up related to protecting anonymity, (re)presenting speech characteristics, and editing, independently of participants, potentially undid some of the hard work exerted in creating an equitable space for young people’s contributions, resultantly perpetuating the regulation of young people and keeping them ‘in their place’. The authors propose some recommendations for facilitating the inclusion of young people in the writing up of participatory research.


2021 ◽  
Author(s):  
David J.T. Campbell ◽  
Rachel B. Campbell ◽  
Anna DiGiandomenico ◽  
Matthew Larsen ◽  
Marleane A. Davidson ◽  
...  

AbstractIntroductionParticipatory research is a study method that engages patient partners in research programs from study design through to completion. It has seldom been used in diabetes health services research. Our objectives were to describe the process and challenges of conducting a patient-engagement project and to highlight the experiences of patient participants and academic researchers.Research Design & MethodsWe recruited PWLEH and diabetes in Toronto, Canada to be patient partners. Group members were asked to commit to attending biweekly meetings. We undertook two major research projects: Concept mapping to choose a research focus; and photovoice to explore accessing healthy food while homeless. We used a convergent mixed methods design to evaluate their experience.ResultsA diverse group of 8 PWLEH had an average attendance of 82% over 21 meetings – despite this success, we encountered a number of challenges to conducting this research. Group members reported that participation improved their ability to be self-advocates in their diabetes care and provided them with tangible skills and social benefits. Group members stated that they valued being involved in all aspects of the research, in particular knowledge translation activities, including advocating for nutritious food at shelters; presenting to stakeholders; and meeting with policy makers.ConclusionsThe use of participatory patient engagement research methods enables academic researchers to support community members in pursuing research that is pertinent to them and which has a positive impact. In our study, group members contributed in meaningful ways and also valued the experience.What is already known about this subject?Patient oriented research is important to public health research as it helps with the development of relevant interventions and knowledge translation.Participatory research is a form of research that maximally involves patients in all phases of the research.Participatory research has rarely been used in research on diabetes and diabetes-related interventions.What are the new findings?Patient engagement is important for studies involving socially disadvantaged populations with diabetes.Community members involved in research contribute substantially to research projects but also find the experience to be enriching and valuable.How might these results change the focus of research or clinical practice?Those who conduct research with and develop programs to provide diabetes care, especially to socially disadvantaged populations, should involve community members through all phases of the process to ensure the intervention is maximally useful for patients.


2017 ◽  
Vol 55 ◽  
pp. 169-176
Author(s):  
Terri Doughty

This review assesses Justyna Deszcz-Tryhubczak’s Yes to Solidarity, No to Oppression: Radical Fantasy Fiction and Its Young Readers. Deszcz-Tryhubczak has two agendas in this volume: first, to explore the capacity of Radical Fantasy fiction to model for young readers the agency of youth forming collaborative, cross-generational, and possibly cross-cultural alliances to address glocal socio-political and/or environmental issues spawned by the injustices and inequities of late-stage capitalism; second, to model a new approach to participatory research, involving child readers not as subjects of study but as collaborative readers of texts. Deszcz-Tryhubczak provides a thorough examination of the problem of adult critics speculating about child readers based on constructed implied child readers rather than on actual children, then proceeds to identify how Childhood Studies may offer some productive means of thinking about and, more important, engaging with real children. She provides a clear definition of Radical Fantasy and brief readings of both core and marginal ex­amples of the genre. This contextualizes her description of her methodology and discussion of results from two research projects collaborating with young readers. Finally, Deszcz-Tryhubczak contends that participatory research is a way to move forward in children’s literature scholarship in a more democratic manner, and moreover that applying this methodology to Radical Fantasy is potentially also a means of engaging children in important debates on issues that are shaping their futures. I find this book a stimulating contribution to our understanding of youth reading that offers intriguing possibilities for further research.


2019 ◽  
Vol 3 (Supplement_1) ◽  
pp. S405-S405
Author(s):  
Deanna Dragan ◽  
Jermaine Mitchell ◽  
Rebecca S Allen ◽  
Pamela Payne-Foster ◽  
JoAnn Oliver ◽  
...  

Abstract Sharing Opinions and Advice about Research (Project SOAR), funded by PCORI, trained individuals living in under-resourced and underserved communities how to evaluate and provide advice to scientists about recruitment procedures, survey items, and intervention components for implementation in their communities. Moreover, graduate students learned community-based participatory research (CBPR) procedures and interacted with communities in implementing their own research projects. Students worked with the urban Holt community in western Alabama on issues of food insecurity due to pollution and concerns about growing vegetables and herbs in the soil. Students participated in the Potted Plant Project and plant give away, collecting questionnaire and health data. Students reported finding the fluid nature of research during this community event both stressful and rewarding. Students also identified how familiarity with CBPR procedures enhanced their clinical service provision in the community. Discussion will focus on future graduate training needs in implementation of CBPR.


Author(s):  
Diana Baird N’Diaye

This chapter focuses on the participatory research projects African Immigrant Folklife and Will to Adorn: African American Style, Community, Identity, which provided fieldwork training that has yielded documentation for the planning of Smithsonian Folklife Festivals and other projects. The author reflects on the applied aspects of public folklore, describing a curatorial approach that prioritizes commitment to community self-determination and building reciprocal research-learning relationships between Smithsonian staff and community-based cultural researchers.


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