Public and Private Intersections in Housing and Personal Care Needs

Purpose: We analyzed the effects of COVID-19 as well as its accompanying epidemiological control measures on health-related outcomes (physical and mental health) and unmet care needs of both caregivers and care recipients across Europe and Israel by taking into account country differences.Methods: We applied comparisons of adjusted predictions, controlling for a large set of relevant respondent characteristics, to investigate changes in the physical and mental health of caregivers and care recipients due to COVID-19. Furthermore, multilevel regression models were used to analyze the effect of individual and contextual indicators on the probability of reporting difficulties in receiving care. For the analyses, we used data from 26 countries with 51,983 respondents over 50 years based on the eighth wave of the Survey of Health, Aging and Retirement in Europe (SHARE), which had to be suspended in March 2020, and the SHARE Corona Survey fielded from June to August 2020.Results: During the first phase of the pandemic in spring/summer 2020, the frequency of providing personal care to parents increased in almost all European countries, while care to children, in turn, decreased. Parental caregivers who increased the frequency of providing personal care reported significantly more mental health strains, that is, feeling sad/depressed and anxious/nervous more often since the outbreak of the pandemic. With respect to receiving care, about one out of five care recipients had difficulty in obtaining adequate care from outside the household during the pandemic. The perception of unmet care needs was significantly associated with country differences regarding the duration of the stay-at-home orders. In contrast, the number of confirmed deaths did not have a significant effect on perceiving difficulties related to receiving care.Conclusions: Our findings show the extent of the burden to which caregivers and care recipients were exposed with respect to the unintended consequences of COVID-19-related epidemiological control measures. There is a great need within this population for interventions, which effectively reduce the burden as well as the symptoms of anxiety or depression for caregivers as well as care recipients. This should be recognized by (health) policymakers and social organizations.

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Measuring the Personal Care Needs of Children Seeking Medicaid Services

PsycEXTRA Dataset ◽

10.1037/e608612010-001 ◽

2010 ◽

Author(s):

Charles D. Phillips ◽

Catherine Hawes ◽

Constance Fournier

Keyword(s):

Personal Care ◽

Care Needs

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Modelling ageing populations to 2030: financing long-term care in England

The New Dynamics of Ageing Volume 1 ◽

10.1332/policypress/9781447314721.003.0002 ◽

2018 ◽

Author(s):

Michael Murphy ◽

Ruth Hancock ◽

Raphael Wittenberg ◽

Bo Hu ◽

Marcello Morciano ◽

...

Keyword(s):

Older People ◽

Long Term Care ◽

Care Needs ◽

Term Care ◽

Public And Private ◽

Care Services ◽

Private Expenditure ◽

The Impact ◽

Care Costs

This chapter presents some findings from the research project ‘Modelling Needs and Resources of Older People to 2030’ (MAP2030). The project developed a set of projection models to estimate future family circumstances, incomes, pensions, savings, disability and care needs of older people in England. These projections included public and private expenditure on pensions, disability benefits and care services under different scenarios for reform of pensions and long-term care funding under a range of alternative population futures. The chapter focuses on the projected future costs and impacts for the different income quintiles of the older population of proposed reforms to the system of funding adult social care, in particular the impact of a cap on individual liability to meet care costs.

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Cancer caregivers unmet needs and emotional states across cancer treatment phases

PLoS ONE ◽

10.1371/journal.pone.0255901 ◽

2021 ◽

Vol 16 (8) ◽

pp. e0255901

Author(s):

Winson Fu Zun Yang ◽

Rachael Zhi Yi Lee ◽

Sangita Kuparasundram ◽

Terina Tan ◽

Yiong Huak Chan ◽

...

Keyword(s):

Cancer Treatment ◽

Family Caregivers ◽

Chronic Treatment ◽

Treatment Phase ◽

Emotional States ◽

Personal Care ◽

Care Needs ◽

Depression Anxiety Stress Scale ◽

Stress Scale ◽

Role Management

Study objective To investigate the association between family cancer caregivers’ unmet daily needs and emotional states of depression, anxiety and stress across their care recipient’s treatment phases. Method A cross-sectional study design and self-report questionnaires were used. Family caregivers (N = 237) of cancer patients in ambulatory cancer clinics were recruited from May to December 2017, and completed a sociodemographic and medical questionnaire, the Depression Anxiety Stress Scale and Needs Assessment of Family Caregivers-Cancer Scale. Hierarchical linear regression was conducted to examine the influence of each predictor (sociodemographic variables, unmet personal care and role management needs, cancer treatment phase) on the Depression Anxiety Stress Scale total score, depression subscale, anxiety subscale, and the stress subscale. Results Family caregivers’ unmet daily activity needs, in particular higher unmet personal care needs, during the intermediate phase (6–9 months), were significantly associated (ps<0.05) with overall distress (b = 4.93) and stress (b = 2.26). In the chronic treatment phase (>9 months), the significant association of unmet personal care needs was with overall distress (b = 5.91), anxiety (b = 1.97) and stress (b = 2.53). After completing treatment, unmet role management needs were only significantly associated with stress (b = -1.59). Caregivers’ higher depression was also associated with greater unmet role management needs, regardless of treatment phases. Conclusions Intermediate and chronic cancer treatment phases were identified as having greatest effect on caregivers’ unmet daily activity needs and emotions. Unmet personal care needs played the major effect on overall negative emotional states in the intermediate treatment phase and stress in the chronic treatment phase. Close attention to caregivers needs in intermediate and chronic treatment phases, would be highly beneficial in alleviating negative emotional disturbances.

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Understanding the Care Needs and Profile of People Living at Home With Moderate to Advanced Stage Parkinson Disease

Journal of Geriatric Psychiatry and Neurology ◽

10.1177/0891988718788680 ◽

2018 ◽

Vol 31 (5) ◽

pp. 237-247 ◽

Cited By ~ 6

Author(s):

Annette Hand ◽

Lloyd L. Oates ◽

William K. Gray ◽

Richard W. Walker

Keyword(s):

Parkinson Disease ◽

Functional Disability ◽

Informal Carer ◽

Formal Care ◽

Atypical Parkinsonism ◽

Advanced Stage ◽

Personal Care ◽

Care Needs ◽

Prospective Longitudinal ◽

Domestic Care

Background: In the United Kingdom, people with Parkinson disease (PD) and atypical parkinsonism will require more support with their care needs as the condition progresses. There are few data on the nature of care input required and the amount of informal and formal care needed by people with PD to enable them to remain within their own home. Method: All people with moderate to advanced stage (Hoehn and Yahr III-V) idiopathic PD and atypical parkinsonism under the care of the Northumbria Healthcare NHS Foundation Trust PD service and living in their own home were invited to take part in The Northumbria Care Needs Project, a 10-year prospective longitudinal study. At baseline, data regarding formal (paid) personal and domestic care input and use of respite care, sitting services, and day centers were collected. We also collected data on patient cognitive disability, functional disability, and disease severity and informal carer tasks. Results: Of 162 people with PD included in the study, only 25.2% accessed formal domestic care and the same proportion formal personal care. In contrast, 80.2% identified an informal carer who helped with these tasks. Despite greater level of functional disability in those with an informal carer, levels of formal personal care input were similar to those with and without a formal carer. Levels of formal domestic carer input were higher in those without an informal carer. Conclusions: Use of formal care services was relatively uncommon in our cohort and much of the burden of caring appears to be being met by informal carers.

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