scholarly journals Ethical Issues in Conducting Community-Based Participatory Research: A Narrative Review of the Literature

2018 ◽  
Author(s):  
Crystal Kwan ◽  
Christine Walsh
Keyword(s):  
Action Research ◽  
Participatory Research ◽  
Social Action ◽  
Ethical Issues ◽  
Community Based Participatory Research ◽  
Research Process ◽  
Narrative Review ◽  
Institutional Review Boards ◽  
Review Of The Literature ◽  
Community Based

Community-based participatory research (CBPR) is a methodology increasingly used within the social sciences. CBPR is an umbrella term that encompasses a variety of research methodologies, including participatory research, participatory action research, feminist participatory research, action research, and collaborative inquiry. At its core, they share five key attributes: (i) community as a unit of identity; (ii) an approach for the vulnerable and marginalized; (iii) collaboration and equal partnership throughout the entire research process; (iv) an emergent, flexible, and iterative process; and (v) the research process is geared toward social action. While there is no shortage of literature that highlights the benefits and potential of CBPR, relatively little discussion exists on the ethical issues associated with the methodology. In particular, current gaps within the literature include ethical guidance in (i) balancing community values, needs, and identity with those of the individual; (ii) negotiating power dynamics and relationships; (iii) working with stigmatized populations; (iv) negotiating conflicting ethical requirements and expectations from Institutional Review Boards (IRBs); and (v) facilitating social action emerging from the findings. For CBPR’s commendable goals and potential to be realized, it is necessary to have a more fulsome discussion of the ethical issues encountered while implementing a CBPR study. Further, a lack of awareness and critical reflection on such ethical considerations may perpetuate the very same problems this methodology seeks to address, namely, inequality, oppression, and marginalization. The purpose of this article is to provide a narrative review of the literature that identifies ethical issues that may arise from conducting CBPR studies, and the recommendations by researchers to mitigate such challenges.

Navigating Ethical Issues in Photovoice: Balancing the Principles of Community-Based Participatory Research Ethics with Institutional Review Board Requirements

2021 ◽  
pp. 155626462110327
Author(s):  
Lauren E. McDonald ◽  
Moshoula Capous-Desyllas
Keyword(s):  
Participatory Research ◽  
Cultural Context ◽  
Ethical Issues ◽  
Community Based Participatory Research ◽  
Research Process ◽  
Critical Discussion ◽  
Institutional Review Boards ◽  
Collaborative Relationships ◽  
Community Based ◽  
Institutional Review

This article reflects on ethical issues that arose during the course of two different evaluation projects that used photovoice method to engage with marginalized populations. The evaluations serve as case studies for a critical discussion about potential barriers that researchers may face when employing photovoice method while trying to balance the principles of community-based participatory research with the requirements of Institutional Review Boards. We reflect on ethical dilemmas related to the meaning of photography within the cultural context of participants’ lives, the compensation of participants as collaborators, and the representation and dissemination of participant photos. We conclude by examining how researchers may approach ethical requirements without compromising the important collaborative relationships central to photovoice method. We additionally call on researchers to engage with ethics review committees to create a new “participant–researcher” category with its own set of protocols that recognizes the nuanced role members of disenfranchised communities play in the research process.

Community-Based Participatory Research

2013 ◽  
Author(s):  
Tracey Marie Barnett
Keyword(s):  
Action Research ◽  
Participatory Research ◽  
Community Based Participatory Research ◽  
Research Process ◽  
Collaborative Action Research ◽  
Participatory Action ◽  
Community Members ◽  
Community Based ◽  
Community Based Research ◽  
Partnership Approach

Community-based participatory research (CBPR) embraces a partnership approach to research that equitably involves community members, organizational representatives, social workers, and researchers in all aspects of the research process. CBPR begins with a research topic of importance to the community and has the aim of combining knowledge with action and achieving social change. It is community based in the sense that community members become part of the research team and researchers become engaged in the activities of the community. Community–researcher partnerships allow for a blending of values and expertise, promoting co-learning and capacity building among all partners, and integrating and achieving a balance between research and action for the mutual benefit of all partners. Various terms have been used to describe this research, including participatory action research (PAR), action research (AR), community based research (CBR), collaborative action research (CAR), anti-oppressive research, and feminist research.

scholarly journals Preventing cardiovascular disease: Participant perspectives of the FAITH! Program

2017 ◽  
Vol 24 (12) ◽  
pp. 1710-1723 ◽  
Author(s):  
LaPrincess C Brewer ◽  
Eleshia J Morrison ◽  
Joyce E Balls-Berry ◽  
Patrick Dean ◽  
Kandace Lackore ◽  
...  
Keyword(s):  
Cardiovascular Disease ◽  
African Americans ◽  
Participatory Research ◽  
Disease Risk ◽  
Cardiovascular Disease Risk ◽  
Community Based Participatory Research ◽  
Research Process ◽  
Community Based Interventions ◽  
Community Based ◽  
Behavior Change Interventions

Striking cardiovascular health disparities exist among African-Americans in Minnesota compared to Whites; however, community-based interventions to address cardiovascular disease risk are lacking. This study explored participant perceptions of a culturally tailored, cardiovascular disease prevention program developed using a community-based participatory research process. Research participation perceptions, program benefits, and program satisfaction/acceptability were analyzed using a mixed-methods approach. Overall, acceptability was high. Findings highlight the favorable inclusion of African-Americans (research perception), knowledge gained about healthy lifestyle practices (benefits), and quality of the curriculum/speakers (satisfaction). Community-based participatory research may be useful in fostering the acceptability of behavior change interventions among marginalized African-American communities.

scholarly journals Community-based participatory health research: principles and practice

2019 ◽  
Vol 29 (Supplement_4) ◽  
Author(s):  
H Unger
Keyword(s):  
Lived Experience ◽  
Participatory Research ◽  
Health Research ◽  
Community Based Participatory Research ◽  
Active Role ◽  
Research Process ◽  
Community Based ◽  
Research Fields ◽  
Participatory Health Research ◽  
Trust And Reciprocity

Abstract Community-based participatory research (CBPR) is a collaborative approach to research that aims to improve the health of marginalized communities and reduce health disparities. It starts with a topic of concern for the community and involves iterative cycles of action and reflection to initiate change. Community members are involved as partners and trained as peer researchers to take an active role in the research process. Processes of capacity building and empowerment play a prominent role. As a general principle, participatory research does not primarily focus on health problems, but pays at least equal attention to the resources and capacities of communities. It places a strong focus on developing trust and reciprocity in research relationships. Regarding methodology, various empirical research methods are used in CBPR study designs, including qualitative, quantitative, mixed-methods and arts-based methods. Arts-based methods such as photovoice, digital storytelling, mapping and drawings facilitate the expression of lived experience, including sensitive aspects, through creative verbal and non-verbal means. These methods expand the available means of expression and as such are highly valuable in research fields where verbal communication is challenged by language barriers and diverse cultural backgrounds as well as sensitive topics and experiences. Participatory health research has been conducted with diverse migrant and refugee groups internationally. Due to legal and other reasons, refugees may be limited in their capacities for participation. The presentation will discuss the strengths and limitations of CBPR including structural obstacles to equitable partnerships.

Student Engagement with Community-Based Participatory Food Security Research: Exploring Reflections through Photovoice

2020 ◽  
Vol 81 (4) ◽  
pp. 210-214
Author(s):  
Nadia Pabani ◽  
Daphne Lordly ◽  
Irena Knezevic ◽  
Patricia L. Williams
Keyword(s):  
Food Security ◽  
Student Learning ◽  
Participatory Research ◽  
Food Systems ◽  
Community Based Participatory Research ◽  
Research Process ◽  
Student Experiences ◽  
Community Food Security ◽  
Community Based ◽  
Sustainable Food

FoodARC is a research hub for community-based participatory research (CBPR) contributing to healthy, just, and sustainable food systems for all. University students, largely from dietetics programs, are engaged as co-learners and research partners. This study explores the contribution of CBPR to student learning on household food insecurity (HFI) and community food security (CFS) and ways to address these issues through practice. Photovoice, an arts-informed 3-phase participatory research process, was used to take pictures that reflected student experiences and insights regarding CBPR. Through a half-day guided discussion, 5 participants shared and discussed their photos and the meanings behind them with other participants and then collectively analyzed and interpreted common themes. Three overarching themes reflecting student learning and development associated with CBPR experiences were identified: students’ expanded understandings of HFI and CFS as well as potential solutions to address these issues, their modeling of participatory ways of working, and applications to future professional practices. Student understandings about HFI and CFS through the integration of a community-engaged learning environment like CBPR results in important learning and personal and professional development. Learning is enriched and students are able to imagine their roles in addressing these issues through practice.

scholarly journals Best practices for community-engaged participatory research with Pacific Islander communities in the USA and USAPI: protocol for a scoping review

BMJ Open ◽  
2018 ◽  
Vol 8 (1) ◽  
pp. e019653 ◽  
Author(s):  
Pearl Anna McElfish ◽  
Britni L Ayers ◽  
Rachel S Purvis ◽  
Christopher R Long ◽  
Ka’imi Sinclair ◽  
...  
Keyword(s):  
Best Practices ◽  
Participatory Research ◽  
Scoping Review ◽  
Data Extraction ◽  
Community Based Participatory Research ◽  
Research Process ◽  
Study Data ◽  
Pacific Islanders ◽  
Community Based ◽  
The Usa

IntroductionCommunity-based participatory research is a partnership approach to research that seeks to equally involve community members, organisational representatives and academic partners throughout the research process in a coequal and mutually beneficial partnership. To date, no published article has synthesised the best practices for community-based participatory research practices with Pacific Islanders.Methods and analysisThe reviewers will examine studies’ titles, abstracts and full text, comparing eligibility to address discrepancies. For each eligible study, data extraction will be executed by two reviewers and one confirmation coder, comparing extracted data to address any discrepancies. Eligible data will be synthesised and reported in a narrative review assessing coverage and gaps in existing literature related to community-based participatory research with Pacific Islanders.Discussion and disseminationThe purpose of this review is to identify best practices used when conducting community-based participatory research with Pacific Islanders; it will also extrapolate where the gaps are in the existing literature. This will be the first scoping review on community-based participatory research with Pacific Islanders. To facilitate dissemination, the results of this scoping review will be submitted for publication to a peer-reviewed journal, presented at conferences and shared with community-based participatory research stakeholders.

Lessons from a community-based participatory research study with transgender and gender nonconforming youth and their families

2018 ◽  
Vol 17 (2) ◽  
pp. 186-207 ◽  
Author(s):  
Sabra L Katz-Wise ◽  
Annie Pullen Sansfaçon ◽  
Laura M Bogart ◽  
Milagros C Rosal ◽  
Diane Ehrensaft ◽  
...  
Keyword(s):  
Participatory Research ◽  
Community Based Participatory Research ◽  
Well Being ◽  
Research Process ◽  
Lessons Learned ◽  
Community Partner ◽  
Community Members ◽  
Community Based ◽  
Gender Nonconforming ◽  
And Gender

Community-based participatory research (CBPR) involves community members collaborating with academic investigators in each step of the research process. CBPR may be especially useful for research involving marginalized populations with unique perspectives and needs. In this paper, we discuss successes and challenges of using a CBPR approach for the Trans Teen and Family Narratives Project, a longitudinal mixed-methods study to examine how the family environment affects the health and well-being of transgender and gender nonconforming youth. We describe considerations for using a CBPR approach with this population, including defining the community of transgender and gender nonconforming youth and families, engaging the community in the research process, managing conflicting agendas for community partner meetings, addressing insider/outsider status of the researchers, resolving researcher/community tensions regarding data collection tools, integrating academic and community members into a cohesive research team, developing safety plans to address participant suicidality disclosures, and differentiating the role of academics as researchers vs. advocates. We conclude by sharing lessons learned, which can inform future research to address the needs of transgender and gender nonconforming youth and families.

Community-Based Participatory Research: A Review of the Literature With Strategies for Community Engagement

2009 ◽  
Vol 30 (4) ◽  
pp. 350-361 ◽  
Author(s):  
Madeleine U. Shalowitz ◽  
Anthony Isacco ◽  
Nora Barquin ◽  
Elizabeth Clark-Kauffman ◽  
Patti Delger ◽  
...  
Keyword(s):  
Community Engagement ◽  
Participatory Research ◽  
Community Based Participatory Research ◽  
Review Of The Literature ◽  
Community Based
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