A Community-Based Participatory Research Process in a Poor Swedish Neighbourhood

Striking cardiovascular health disparities exist among African-Americans in Minnesota compared to Whites; however, community-based interventions to address cardiovascular disease risk are lacking. This study explored participant perceptions of a culturally tailored, cardiovascular disease prevention program developed using a community-based participatory research process. Research participation perceptions, program benefits, and program satisfaction/acceptability were analyzed using a mixed-methods approach. Overall, acceptability was high. Findings highlight the favorable inclusion of African-Americans (research perception), knowledge gained about healthy lifestyle practices (benefits), and quality of the curriculum/speakers (satisfaction). Community-based participatory research may be useful in fostering the acceptability of behavior change interventions among marginalized African-American communities.

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Community-Based Participatory Research

Encyclopedia of Social Work ◽

10.1093/acrefore/9780199975839.013.69 ◽

2013 ◽

Author(s):

Tracey Marie Barnett

Keyword(s):

Action Research ◽

Participatory Research ◽

Community Based Participatory Research ◽

Research Process ◽

Collaborative Action Research ◽

Participatory Action ◽

Community Members ◽

Community Based ◽

Community Based Research ◽

Partnership Approach

Community-based participatory research (CBPR) embraces a partnership approach to research that equitably involves community members, organizational representatives, social workers, and researchers in all aspects of the research process. CBPR begins with a research topic of importance to the community and has the aim of combining knowledge with action and achieving social change. It is community based in the sense that community members become part of the research team and researchers become engaged in the activities of the community. Community–researcher partnerships allow for a blending of values and expertise, promoting co-learning and capacity building among all partners, and integrating and achieving a balance between research and action for the mutual benefit of all partners. Various terms have been used to describe this research, including participatory action research (PAR), action research (AR), community based research (CBR), collaborative action research (CAR), anti-oppressive research, and feminist research.

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Ethical Issues in Conducting Community-Based Participatory Research: A Narrative Review of the Literature

The Qualitative Report ◽

10.46743/2160-3715/2018.3331 ◽

2018 ◽

Author(s):

Crystal Kwan ◽

Christine Walsh

Keyword(s):

Action Research ◽

Participatory Research ◽

Social Action ◽

Ethical Issues ◽

Community Based Participatory Research ◽

Research Process ◽

Narrative Review ◽

Institutional Review Boards ◽

Review Of The Literature ◽

Community Based

Community-based participatory research (CBPR) is a methodology increasingly used within the social sciences. CBPR is an umbrella term that encompasses a variety of research methodologies, including participatory research, participatory action research, feminist participatory research, action research, and collaborative inquiry. At its core, they share five key attributes: (i) community as a unit of identity; (ii) an approach for the vulnerable and marginalized; (iii) collaboration and equal partnership throughout the entire research process; (iv) an emergent, flexible, and iterative process; and (v) the research process is geared toward social action. While there is no shortage of literature that highlights the benefits and potential of CBPR, relatively little discussion exists on the ethical issues associated with the methodology. In particular, current gaps within the literature include ethical guidance in (i) balancing community values, needs, and identity with those of the individual; (ii) negotiating power dynamics and relationships; (iii) working with stigmatized populations; (iv) negotiating conflicting ethical requirements and expectations from Institutional Review Boards (IRBs); and (v) facilitating social action emerging from the findings. For CBPR’s commendable goals and potential to be realized, it is necessary to have a more fulsome discussion of the ethical issues encountered while implementing a CBPR study. Further, a lack of awareness and critical reflection on such ethical considerations may perpetuate the very same problems this methodology seeks to address, namely, inequality, oppression, and marginalization. The purpose of this article is to provide a narrative review of the literature that identifies ethical issues that may arise from conducting CBPR studies, and the recommendations by researchers to mitigate such challenges.

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Community-based participatory health research: principles and practice

European Journal of Public Health ◽

10.1093/eurpub/ckz185.762 ◽

2019 ◽

Vol 29 (Supplement_4) ◽

Author(s):

H Unger

Keyword(s):

Lived Experience ◽

Participatory Research ◽

Health Research ◽

Community Based Participatory Research ◽

Active Role ◽

Research Process ◽

Community Based ◽

Research Fields ◽

Participatory Health Research ◽

Trust And Reciprocity

Abstract Community-based participatory research (CBPR) is a collaborative approach to research that aims to improve the health of marginalized communities and reduce health disparities. It starts with a topic of concern for the community and involves iterative cycles of action and reflection to initiate change. Community members are involved as partners and trained as peer researchers to take an active role in the research process. Processes of capacity building and empowerment play a prominent role. As a general principle, participatory research does not primarily focus on health problems, but pays at least equal attention to the resources and capacities of communities. It places a strong focus on developing trust and reciprocity in research relationships. Regarding methodology, various empirical research methods are used in CBPR study designs, including qualitative, quantitative, mixed-methods and arts-based methods. Arts-based methods such as photovoice, digital storytelling, mapping and drawings facilitate the expression of lived experience, including sensitive aspects, through creative verbal and non-verbal means. These methods expand the available means of expression and as such are highly valuable in research fields where verbal communication is challenged by language barriers and diverse cultural backgrounds as well as sensitive topics and experiences. Participatory health research has been conducted with diverse migrant and refugee groups internationally. Due to legal and other reasons, refugees may be limited in their capacities for participation. The presentation will discuss the strengths and limitations of CBPR including structural obstacles to equitable partnerships.

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Student Engagement with Community-Based Participatory Food Security Research: Exploring Reflections through Photovoice

Canadian Journal of Dietetic Practice and Research ◽

10.3148/cjdpr-2020-017 ◽

2020 ◽

Vol 81 (4) ◽

pp. 210-214

Author(s):

Nadia Pabani ◽

Daphne Lordly ◽

Irena Knezevic ◽

Patricia L. Williams

Keyword(s):

Food Security ◽

Student Learning ◽

Participatory Research ◽

Food Systems ◽

Community Based Participatory Research ◽

Research Process ◽

Student Experiences ◽

Community Food Security ◽

Community Based ◽

Sustainable Food

FoodARC is a research hub for community-based participatory research (CBPR) contributing to healthy, just, and sustainable food systems for all. University students, largely from dietetics programs, are engaged as co-learners and research partners. This study explores the contribution of CBPR to student learning on household food insecurity (HFI) and community food security (CFS) and ways to address these issues through practice. Photovoice, an arts-informed 3-phase participatory research process, was used to take pictures that reflected student experiences and insights regarding CBPR. Through a half-day guided discussion, 5 participants shared and discussed their photos and the meanings behind them with other participants and then collectively analyzed and interpreted common themes. Three overarching themes reflecting student learning and development associated with CBPR experiences were identified: students’ expanded understandings of HFI and CFS as well as potential solutions to address these issues, their modeling of participatory ways of working, and applications to future professional practices. Student understandings about HFI and CFS through the integration of a community-engaged learning environment like CBPR results in important learning and personal and professional development. Learning is enriched and students are able to imagine their roles in addressing these issues through practice.

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Best practices for community-engaged participatory research with Pacific Islander communities in the USA and USAPI: protocol for a scoping review

BMJ Open ◽

10.1136/bmjopen-2017-019653 ◽

2018 ◽

Vol 8 (1) ◽

pp. e019653 ◽

Cited By ~ 3

Author(s):

Pearl Anna McElfish ◽

Britni L Ayers ◽

Rachel S Purvis ◽

Christopher R Long ◽

Ka’imi Sinclair ◽

...

Keyword(s):

Best Practices ◽

Participatory Research ◽

Scoping Review ◽

Data Extraction ◽

Community Based Participatory Research ◽

Research Process ◽

Study Data ◽

Pacific Islanders ◽

Community Based ◽

The Usa

IntroductionCommunity-based participatory research is a partnership approach to research that seeks to equally involve community members, organisational representatives and academic partners throughout the research process in a coequal and mutually beneficial partnership. To date, no published article has synthesised the best practices for community-based participatory research practices with Pacific Islanders.Methods and analysisThe reviewers will examine studies’ titles, abstracts and full text, comparing eligibility to address discrepancies. For each eligible study, data extraction will be executed by two reviewers and one confirmation coder, comparing extracted data to address any discrepancies. Eligible data will be synthesised and reported in a narrative review assessing coverage and gaps in existing literature related to community-based participatory research with Pacific Islanders.Discussion and disseminationThe purpose of this review is to identify best practices used when conducting community-based participatory research with Pacific Islanders; it will also extrapolate where the gaps are in the existing literature. This will be the first scoping review on community-based participatory research with Pacific Islanders. To facilitate dissemination, the results of this scoping review will be submitted for publication to a peer-reviewed journal, presented at conferences and shared with community-based participatory research stakeholders.

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Lessons from a community-based participatory research study with transgender and gender nonconforming youth and their families

Action Research ◽

10.1177/1476750318818875 ◽

2018 ◽

Vol 17 (2) ◽

pp. 186-207 ◽

Cited By ~ 2

Author(s):

Sabra L Katz-Wise ◽

Annie Pullen Sansfaçon ◽

Laura M Bogart ◽

Milagros C Rosal ◽

Diane Ehrensaft ◽

...

Keyword(s):

Participatory Research ◽

Community Based Participatory Research ◽

Well Being ◽

Research Process ◽

Lessons Learned ◽

Community Partner ◽

Community Members ◽

Community Based ◽

Gender Nonconforming ◽

And Gender

Community-based participatory research (CBPR) involves community members collaborating with academic investigators in each step of the research process. CBPR may be especially useful for research involving marginalized populations with unique perspectives and needs. In this paper, we discuss successes and challenges of using a CBPR approach for the Trans Teen and Family Narratives Project, a longitudinal mixed-methods study to examine how the family environment affects the health and well-being of transgender and gender nonconforming youth. We describe considerations for using a CBPR approach with this population, including defining the community of transgender and gender nonconforming youth and families, engaging the community in the research process, managing conflicting agendas for community partner meetings, addressing insider/outsider status of the researchers, resolving researcher/community tensions regarding data collection tools, integrating academic and community members into a cohesive research team, developing safety plans to address participant suicidality disclosures, and differentiating the role of academics as researchers vs. advocates. We conclude by sharing lessons learned, which can inform future research to address the needs of transgender and gender nonconforming youth and families.

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Graduate Education Grounded in Community-Based Participatory Research

Practicing Anthropology ◽

10.17730/praa.29.3.90n21t12716g5807 ◽

2007 ◽

Vol 29 (3) ◽

pp. 18-21 ◽

Cited By ~ 2

Author(s):

Megan Sheehan ◽

Brian Burke ◽

Jeremy Slack

Keyword(s):

Graduate Students ◽

Participatory Research ◽

Participant Observation ◽

Community Based Participatory Research ◽

Research Process ◽

Research Projects ◽

Community Based ◽

Field Notes ◽

Ambos Nogales ◽

The Cost

Research projects at the University of Arizona's Bureau of Applied Research in Anthropology (BARA) have provided graduate students an opportunity to engage in anthropological inquiry and application, often in teams, and with guidance from experienced researchers. In this paper, we focus on our experiences as graduate students working on two community-based environmental anthropology research projects in the sister cities of Nogales, Sonora, and Nogales, Arizona (known collectively as Ambos Nogales). In choosing to participate in these projects, we hoped to develop our skills with specific anthropological research methods (interviews, participant-observation, surveys, focus groups, and the writing of field notes), gain experience with a community-based participatory research (CBPR) model (including strategies for prioritizing community decision-making and incorporating local knowledge and interests throughout the research process), improve our Spanish skills, and learn to integrate research and action in a mutually-enriching way. Of course, having a job that reduced the cost of school was beneficial, but our main goal was to become anthropologists capable of contributing to academic, policy, and community-based action.

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A chair at the table: a scoping review of the participation of refugees in community-based participatory research in healthcare

Globalization and Health ◽

10.1186/s12992-021-00756-7 ◽

2021 ◽

Vol 17 (1) ◽

Author(s):

Tali Filler ◽

Pardeep Kaur Benipal ◽

Nazi Torabi ◽

Ripudaman Singh Minhas

Keyword(s):

Participatory Research ◽

Scoping Review ◽

Scale Up ◽

Community Based Participatory Research ◽

Final Analysis ◽

Well Being ◽

Research Process ◽

Healthcare Research ◽

Community Based ◽

Healthcare Needs

Abstract Background Refugees often face psychosocial complexity and multi-dimensional healthcare needs. Community-Based Participatory Research (CBPR) methods have been previously employed in designing health programs for refugee communities and in building strong research partnerships in refugee communities. However, the extent to which these communities are involved remains unknown. Objective To review the evidence on the involvement of refugees in CBPR processes to inform healthcare research. Methods A scoping review was performed, using Arksey & O’Malley’s methodological framework. A literature search in Medline, PubMed, PsycINFO, CINAHL, Embase, Global Health, Scopus, and Policy File Index for articles published until August 2020 was conducted. Articles were included if they focused on CBPR, had refugee involvement, and discussed healthcare/health policy. Results 4125 articles were identified in the database searches. After removal of duplicates, 2077 articles underwent title and abstract review by two authors, yielding an inter-reviewer kappa-statistic of 0.85. 14 studies were included in the final analysis. The purpose of CBPR use for 6 (42.9%) of the articles was developing and implementing mental health/social support interventions, 5 (35.7%) focused on sexual and reproductive health interventions, 1 (7.1%) focused on domestic violence interventions, 1 (7.1%) focused on cardiovascular disease prevention and 1 (7.1%) focused on parenting interventions. In terms of refugee involvement in the various stages in the research process, 9 (64.3%) articles reported refugees having a role in the inception of the research, no articles reported including refugees in obtaining funding, all articles included refugees in the design of the research study, 10 (71.4%) articles reported having refugees involved in community engagement/recruitment, 8 (57.1%) articles reported involvement throughout the data collection process, 4 (28.6%) articles reported involvement in data analysis, 6 (42.9%) articles reported having refugees involved in knowledge translation/dissemination and 1 article (7.1%) reported having refugees contribute to scale up initiatives. Conclusions CBPR has been identified as a methodology with the potential to make substantial contributions to improving health and well-being in traditionally disenfranchised populations. As the needs of refugee communities are so diverse, efforts should be made to include refugees as partners in all stages of the research process.

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Applying Community-Based Participatory Research Partnership Principles to Public Health Practice-Based Research Networks

SAGE Open ◽

10.1177/2158244016679211 ◽

2016 ◽

Vol 6 (4) ◽

pp. 215824401667921 ◽

Cited By ~ 11

Author(s):

Nancy L. Winterbauer ◽

Betty Bekemeier ◽

Lisa VanRaemdonck ◽

Anna G. Hoover

Keyword(s):

Public Health ◽

Participatory Research ◽

Real World ◽

Public Health Practice ◽

Community Based Participatory Research ◽

Research Process ◽

Dissemination And Implementation ◽

Research Networks ◽

Community Based ◽

Practice Based Research

With real-world relevance and translatability as important goals, applied methodological approaches have arisen along the participatory continuum that value context and empower stakeholders to partner actively with academics throughout the research process. Community-based participatory research (CBPR) provides the gold standard for equitable, partnered research in traditional communities. Practice-based research networks (PBRNs) also have developed, coalescing communities of practice and of academics to identify, study, and answer practice-relevant questions. To optimize PBRN potential for expanding scientific knowledge, while bridging divides across knowledge production, dissemination, and implementation, we elucidate how PBRN partnerships can be strengthened by applying CBPR principles to build and maintain research collaboratives that empower practice partners. Examining the applicability of CBPR partnership principles to public health (PH) PBRNs, we conclude that PH-PBRNs can serve as authentic, sustainable CBPR partnerships, ensuring the co-production of new knowledge, while also improving and expanding the implementation and impact of research findings in real-world settings.

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