scholarly journals Neverland: A Critical Autoethnography of Aging with Cystic Fibrosis

Author(s):  
Alexandra Nowakowski

In this autoethnography, I analyze stereotypes and misconceptions about people with cystic fibrosis (CF). I examine these illness representations and their social underpinnings through critical analysis of my journey to conclusive diagnosis with CF after first being tested for the disease in early life, and the events that have followed from that turning point. Using experiential data and prior research, I explore and refute harmful misconceptions about life with CF. I challenge the notion that people with CF never grow old. I also contest the idea that people who receive conclusive diagnoses during adulthood only then transition into patient identities. In doing so, I compare and contrast my own experiences with evidence from other patient narratives. I engage lived experiences from both outside and within the CF community to explore intersectional perceptions of aging. By giving voice to the diverse realities of aging with CF, I illuminate larger gaps in the illness management literature and the health care services it informs. I conclude that narrow representations of illness experience can ultimately impede quality health care and social support for people aging with CF, and that centering diverse patient voices can positively transform both clinical and community experiences.

2019 ◽  
pp. 291-300
Author(s):  
Leslie Mikkelsen ◽  
Rea Pañares ◽  
Larry Cohen

This chapter looks at prevention and public health. Preventing illness and injury in the first place has the potential to be a powerful component of a country's strategy to improve population health while strengthening access to quality health care and reducing costs. The chapter looks at the Community-Centered Health Home (CCHH) term, which is used to describe health care organizations that take an active role, in partnership, to improve community conditions that impact patients' health (for example, supporting rental housing code enforcement, building septic systems, and improving community access to healthy food and places for physical activity). The chapter looks at ways to test the CCHH initiative. The chapter concludes by stating that CCHH contributes to the US's journey toward a system of health by highlighting the value of health care in partnering with its surrounding community and offering a systematic approach to partnering with community groups to improve community conditions, while continuing to meet the daily priority of delivering high-quality health care.


2019 ◽  
pp. 301-314
Author(s):  
Peter Long ◽  
Brittany Imwalle

This chapter presents a case study from the Blue Shield of California Foundation (BSCF) which in 2016 achieved considerable success in its work to expand access to high-quality health care and to end domestic violence in California. The case of BSCF demonstrates how to integrate disparate health care services, such as primary care and specialty care, and behavioral health and primary care, to improve access and quality while potentially lowering costs. BSCF created networks of established leaders within the health care and domestic violence safety nets in California and influenced safety net systems in California to think and act differently. However, despite these notable successes, BSCF struggled to sustain, scale, and spread these innovations to other organizations and systems or to embed them into policy changes. The chapter analyses why.


Curationis ◽  
1996 ◽  
Vol 19 (4) ◽  
Author(s):  
S. S. Visser ◽  
A. H. Nel

The worldwide economic recession and the concomitant limited stock of finances have had an influence on the available money of every household and have also inhibited the improvement of socio-economic conditions and medicine. The Reconstruction and Development Programme (RDP) has the objective of improving the living conditions of the people with regard to housing, education, training and health care. The latter seems to be a major problem which has to be addressed with the emphasis on the preventive and promotional aspects of health care. A comprehensive health care system did not come into being properly in the past because of the maldistribution of health care services, personnel and differences in culture and health care beliefs and values. The question that now arises, is how to render a quality health care service within the constraints of inadequate financing and resources. A comprehensive literature study has been done with reference to quality health care and financing followed by a survey of existing health services and finances.


2019 ◽  
Vol 7 (1) ◽  
pp. 39-45
Author(s):  
Chriswardani Suryawati ◽  
Nurhasmadiar Nandini ◽  
Novia Handayani

Primary Health Centre (PHC) is one of the public institution which have important role to provide health care services to the community. According to Regulation of Semarang Major no. 13 year 2016 about  Governance Pattern of  Local Public Service Institution  (BLUD) of Puskesmas, since 2017 PHC in Semarang transformed into BLUD PHC which enable PHC to be more flexible, productive, efficient, and effective on managing their resources and finance. This research objective was to identify patient satisfaction of BLUD PHC in Semarang. This was quantitative research with cross-sectional design and research variables are tangible, reliability, responsiveness, assurance, empaty, dan patient’s satisfaction. Respondents were 140 patients of BLUD PHC in Semarang City: Bulu Lor, Gayamsari, Pudakpayung, Bangetayu, Halmahera, Kedungmundu, dan Mangkang. Result showed that most of the patient satisfied with the health care services in PHC. From all of the indicators, more than 80% respondents stated that they were satisfied with the services in PHC. The highest score was on responsiveness aspect, which 95.0% patient scored high on the PHC responsiveness. It could be because PHC already maximize their resources to provide high quality health care services. 


Author(s):  
Nick T. Matlala ◽  
Rambelani N. Malema ◽  
Mamare A. Bopape ◽  
Peter M. Mphekgwana

Background: Despite many initiatives made by the National Department of Health through the Minister of Health, the provision of quality health care services remains a serious challenge in South Africa, especially in public rural clinics.Aim: The study aims to determine the perceptions of professional nurses on the factors affecting the provision of quality health care services at selected public primary health care clinics in rural areas of the Capricorn District, Limpopo Province.Setting: The study was conducted at selected public primary health care clinics in rural areas of the Capricorn District, Limpopo Province.Methods: This study utilised a quantitative method, descriptive and a cross-sectional study conducted for three months at the selected public primary health care clinics. A structured self-administered questionnaire was used to collect data from 155 professional nurses who met the selection criteria. Data were analysed using Statistical Package for Social Sciences programme version 26.0.Results: The results of 155 professional nurses were only 116 (74%) and reported that the use of modern technology such as electronic blood pressure, sonar machines and pulse reading computers improves the quality of health care services. Also 129 (84%), 124 (77%) and 118 (76%) reported that they were overwhelmed by the workload, the staff attitude and cleanliness of the clinic, respectively, which all affect the quality of health care services rendered. Moreover, only about 29 (19%) were satisfied with the salary they earned.Conclusion: Despite the effort and interventions put in place by the Department of Health with regard to the Ideal Clinic Realisation and Maintenance in response to the current deficiencies in the quality of primary health care services and to lay a strong foundation for the implementation of National Health Insurance. The quality of health care services is still hindered by several factors such as an overwhelming workload, the attitude of the staff and cleanliness in the work environment, poor infrastructure and the professional nurses perceive the environment as lacking equipment.


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