scholarly journals Building health knowledge online: Parents’ online information searching on congenital heart defects

2017 ◽  
Vol 25 (1) ◽  
pp. 4-19 ◽  
Author(s):  
Theres Bellander ◽  
Zoe Nikolaidou
Keyword(s):  
Health Literacy ◽  
Congenital Heart Defects ◽  
Congenital Heart ◽  
Health Knowledge ◽  
Literacy Practices ◽  
Meaning Making ◽  
Heart Defects ◽  
Digital Health ◽  
Online Information ◽  
Heart Defect

The study examines online searching as a digital health literacy practice and focuses on parents of children with congenital heart defects. Over the period of four years, we have conducted interviews with couples at different stages of pregnancy or parenthood and have encouraged them to reflect on their literacy practices when receiving a heart defect diagnosis, during the remaining time of their pregnancy and when living with a child with a heart defect. We have also read and analysed health blogs written by parents and focused on extracts where literacy events are described. Searching for information and support online is one of the most frequent practices amongst the participants in the study. The aim of this paper is therefore to highlight the complexity of looking for information online in order to take health decisions and provide care to a child with congenital illness. Based on what parents say they do when searching online, we focus on three main paths to knowledge: looking for medical facts, looking for other parents’ experiences and looking for practical information. We discuss digital health literacy practices as complex activities that often involve parents in the diagnosis and in the child’s medical care to such an extent that parents build up knowledge and become experts, not only in finding information and support but in talking and writing about their child’s illness. We also problematise the notion of trustworthy health information and show how facts and opinions often go hand in hand in platforms where health issues are discussed. Finally, we show some of the affordances and restrictions inherent in using the internet as a source for meaning making and learning about children’s health. The results reinforce our understanding of the socially framed nature of health literacy and make us focus on the digital as an additional important aspect in the practice of health literacy.

scholarly journals Oral corticosteroids during pregnancy and offspring risk of congenital heart defects: a nationwide cohort study

2019 ◽  
Vol 49 (2) ◽  
pp. 638-647
Author(s):  
Amalie Bøggild Schmidt ◽  
Marie Lund ◽  
Giulia Corn ◽  
Nina Øyen ◽  
Jan Wohlfahrt ◽  
...  
Keyword(s):  
Propensity Score ◽  
Confidence Interval ◽  
Congenital Heart Defects ◽  
Congenital Heart ◽  
Oral Corticosteroid ◽  
Heart Defects ◽  
Prevalence Ratio ◽  
Heart Defect ◽  
Causal Pathway ◽  
Oral Corticosteroids

Abstract Background Pre-pregnancy diabetes is a strong risk factor for congenital heart defects (CHDs), suggesting a role for glucose in the causal pathway. Oral corticosteroids may cause hyperglycemia and maternal use could affect embryonic heart development. The objective of this study was to determine the association between maternal intake of oral corticosteroids 0–8 weeks after conception and CHDs in offspring. Methods A register-based nationwide prevalence study including all live singleton births in Denmark, 1996–2016, was conducted. In total, 1 194 687 individuals and their mothers were identified and linked with information on offspring CHDs and the mothers’ use of oral corticosteroids in early pregnancy. Corticosteroid use was defined as a filled prescription for maternal use of oral corticosteroid 0–8 weeks after conception. CHDs were identified through International Classification of Diseases codes. The association was estimated by prevalence (odds) ratios using logistic regression and propensity score-matched analyses. Results Among 1 194 687 live births, 2032 had a mother who had used oral corticosteroids 0–8 weeks from conception. Of these offspring, 32 had a heart defect. Among the offspring of never-users of oral corticosteroids, 10 534 had a heart defect. The adjusted prevalence ratio was 1.29 (95% confidence interval, 0.90–1.84) comparing offspring prevalence of heart defects in oral corticosteroid users with that in oral corticosteroid never-users. Propensity score-matched analysis yielded similar results (prevalence ratio 1.38; 95% confidence interval, 0.95–2.02). Conclusions This study supports that there is no association between maternal use of oral corticosteroids in the first 8 weeks after conception and CHDs.

scholarly journals Maternal Hypertension-Related Genotypes and Congenital Heart Defects

2020 ◽  
Author(s):  
Yunping Lei ◽  
Katherine L Ludorf ◽  
Xiao Yu ◽  
Renata H Benjamin ◽  
Xue Gu ◽  
...  
Keyword(s):  
Congenital Heart Defects ◽  
Congenital Heart Defect ◽  
Genetic Risk ◽  
Congenital Heart ◽  
Heart Defects ◽  
Hispanic Women ◽  
Genetic Risk Score ◽  
Heart Defect ◽  
Maternal Hypertension ◽  
The Relationship

Abstract BACKGROUND Maternal hypertension has been associated with congenital heart defect occurrence in several studies. We assessed whether maternal genotypes associated with this condition were also associated with congenital heart defect occurrence. METHODS We used data from the National Birth Defects Prevention Study to identify non-Hispanic white (NHW) and Hispanic women with (cases) and without (controls) a pregnancy in which a select simple, isolated heart defect was present between 1999 and 2011. We genotyped 29 hypertension-related single nucleotide polymorphisms (SNPs). We conducted logistic regression analyses separately by race/ethnicity to assess the relationship between the presence of any congenital heart defect and each SNP and an overall blood pressure genetic risk score (GRS). All analyses were then repeated to assess 4 separate congenital heart defect subtypes. RESULTS Four hypertension-related variants were associated with congenital heart defects among NHW women (N = 1,568 with affected pregnancies). For example, 1 intronic variant in ARHGAP2, rs633185, was associated with conotruncal defects (odds ratio [OR]: 1.3, 95% confidence interval [CI]: 1.1–1.6). Additionally, 2 variants were associated with congenital heart defects among Hispanic women (N = 489 with affected pregnancies). The GRS had a significant association with septal defects (OR: 2.1, 95% CI: 1.2–3.5) among NHW women. CONCLUSIONS We replicated a previously reported association between rs633185 and conotruncal defects. Although additional hypertension-related SNPs were also associated with congenital heart defects, more work is needed to better understand the relationship between genetic risk for maternal hypertension and congenital heart defects occurrence.

scholarly journals Hyperactivity and Inattention in Young Patients Born With an Atrial Septal or Ventricular Septal Defect

2021 ◽  
Vol 9 ◽  
Author(s):  
Sara Hirani Lau-Jensen ◽  
Benjamin Asschenfeldt ◽  
Lars Evald ◽  
Vibeke E. Hjortdal
Keyword(s):  
Congenital Heart Defects ◽  
Congenital Heart Defect ◽  
Adhd Symptom ◽  
Congenital Heart ◽  
Rating Scales ◽  
Heart Defects ◽  
Close Relative ◽  
Adhd Symptoms ◽  
Heart Defect ◽  
Inattention And Hyperactivity

Background: Patients with congenital heart defects have a well-established risk of neuropsychiatric comorbidities. Inattention and hyperactivity are three to four times more frequent in children with complex congenital heart defects. We have previously shown a higher burden of overall attention deficit/hyperactivity disorder (ADHD) symptoms in adults with simple congenital heart defects as well. However, it is unknown whether the higher burden of ADHD symptoms is mainly driven by hyperactivity, inattention, or both.Methods: The participants [simple congenital heart defect = 80 (26.6 years old), controls = 36 (25.3 years old)] and a close relative for each (n = 107) responded to the long version of the Conners' Adults ADHD Rating Scales questionnaire. Our primary and secondary outcomes are mean T-scores in the ADHD scores and symptom sub-scores.Results: Patients with simple congenital heart defects reported a higher mean T-score at all three DSM-IV ADHD scores (ADHD—combined: 52.8 vs. 44.9, p = 0.007, ADHD—inattention: 55.5 vs. 46.4, p = 0.002, and ADHD—hyperactivity: 49.4 vs. 44.0, p = 0.03) and in all four ADHD symptom sub-scores (inattention/memory problems: 50.3 vs. 44.2, p = 0.001, hyperactivity/restlessness: 49.7 vs. 45.9, p = 0.03, impulsivity/emotional lability: 50.0 vs. 41.3, p = 0.001, and self-esteem problems: 53.8 vs. 46.3, p = 0.003). The results were maintained after the removal of outliers (incongruent responses), albeit the hyperactivity/restlessness ADHD symptom sub-score lost significance. Self- and informant ratings differed significantly on the ADHD—inattention score for the congenital heart defect group, where informants rated the ADHD—inattention scores better than the congenital heart defect patients rated themselves.Conclusions: Patients with a simple congenital heart defect have a higher symptom burden across all ADHD scores and all symptom sub-scores. The higher burden of ADHD is driven by both inattention and hyperactivity symptoms, though the inattention symptoms seem more prominent. Close relatives were less aware of the inattention symptoms than the congenital heart defect patients themselves. Routine screening for ADHD symptoms may be warranted to facilitate adequate help and guidance as these symptoms are easily overlooked.Clinical Trial Registration:www.ClinicalTrials.gov, identifier: NCT03871881.

scholarly journals Prevalence of Congenital Heart Defects in Neonates of Drug Abusing Mothers

2021 ◽  
Vol 10 (1) ◽  
Author(s):  
Mohammad Radgoodarzi ◽  
Elahe Norouzi ◽  
Zahra Vahedi ◽  
Mitra Salavati ◽  
Ameneh Yaghoubi ◽  
...  
Keyword(s):  
Congenital Heart Defects ◽  
Congenital Heart Defect ◽  
Congenital Heart ◽  
Heart Defects ◽  
Normal Population ◽  
Color Doppler ◽  
Newborn Infants ◽  
Teaching Hospitals ◽  
Heart Defect ◽  
Significant Difference

Background: Congenital heart defects (CHDs) are the most common congenital malformations at birth. Substance abuse has increased dramatically over the past two decades. It also can affect neonates of drug-abusing mothers. Objectives: This study aimed to elucidate the possible association of maternal drug abuse with CHDs in their newborn infants. Patients and Methods: In this study, 72 neonates who were born during 6 years in three teaching hospitals are studied. Echocardiography was performed by a single pediatric cardiologist using two-dimensional and color Doppler echocardiography. The data were analyzed using descriptive statistics. Results: 1) Of 72 included cases, 38 (52.78%) had abnormal echocardiographic findings; 2) from 38 abnormal echocardiography, 35 (48.61% of total and 92.11% of abnormal echoes) had mild congenital heart defect (CHD), and 3 had complex CHD; 3) There was no significant difference in the prevalence of neonatal congenital heart defect with the type of misused drugs (opiates or methamphetamines). Conclusions: In our study, the prevalence of CHD in newborns of drug abuser mothers was significantly higher than the normal population of infants. Hence, echocardiographic screening of these newborns seems to be logical.

scholarly journals Mouth Preparation Pada Anak Dengan Kelainan Jantung Kongenital Tetralogi of Fallot, Pre-operatif Kardiovaskuler

2007 ◽  
Vol 6 (2) ◽  
pp. 85
Author(s):  
Muhammad Harun Achmad ◽  
Maryanne Susanti
Keyword(s):  
Right Ventricle ◽  
Congenital Heart Defects ◽  
Congenital Heart ◽  
Heart Defects ◽  
Fatal Complication ◽  
Care Clinic ◽  
Heart Defect ◽  
Heart Operation ◽  
The Right ◽  
Fatal Complications

Teeth dimension is the factor influenced the incidence of toothimpaction. The most The congenital figure of the heart defect incidentin several educational hospitals in Indonesia almost reached 9 per1,000 born babies who survive to live (0.8-1.2%). Tetralogi of Fallotwas one of the cyanotic congenital heart defects that were often foundto children. This situation had four forms of the deviation: defect of theventricle septum, overriding aorta, stenosis infundibuler, andhypertrophy of the right ventricle. As in the case of other congenitalheart defect, in Tetralogi Fallot often happened fatal complication suchas endocarditis bacterialis that had tight relationship to the infection inteeth. In dentistry, the treatment for children with cardiovasculardisease needs holistic handling to prevent the occurrence endocarditisbacterialis. This paper discussed the teeth and the mouth conditionsas well as the therapy in two cases of the child with tetralogi of Fallot.Two female patients came to the Special Dental Care clinic, RSHSBandung with the congenital Tetralogi of Fallot heart defect to undergomouth preparation prior to the heart operation in Jakarta. Theconclusion is as in the case of the congenital heart other defectcyanotic, in Tetralogi Fallot fatal complications such as endocarditisbacterialis could happen. Endocarditis bacterialis was caused by the '':bacterial infection in the heart valve or endocardium.

Implementing Artificial Intelligence and Digital Health in Resource-Limited Settings? Top 10 Lessons We Learned in Congenital Heart Defects and Cardiology

2020 ◽  
Vol 24 (5) ◽  
pp. 264-277 ◽  
Author(s):  
Nicholas Ekow Thomford ◽  
Christian Domilongo Bope ◽  
Francis Edem Agamah ◽  
Kevin Dzobo ◽  
Richmond Owusu Ateko ◽  
...  
Keyword(s):  
Artificial Intelligence ◽  
Congenital Heart Defects ◽  
Congenital Heart ◽  
Heart Defects ◽  
Digital Health ◽  
Resource Limited Settings ◽  
Resource Limited

scholarly journals Retrospective Analysis of Preterm Neonates with Congenital Heart Defects Delivered by Cesarean Section: Unfavourable Outcomes a Necessity for Fetal Cardiology Education During Obstetrical Training?

2017 ◽  
Vol 7 (1) ◽  
pp. 50-57 ◽  
Author(s):  
Iwona Strzelecka ◽  
Maciej Słodki ◽  
Katarzyna Zych-Krekora ◽  
Michał Krekora ◽  
Mariusz Grzesiak ◽  
...  
Keyword(s):  
Cesarean Section ◽  
Retrospective Analysis ◽  
Congenital Heart Defects ◽  
Congenital Heart ◽  
Heart Defects ◽  
Multiple Pregnancy ◽  
Preterm Neonates ◽  
Data Set ◽  
Average Hospital ◽  
Heart Defect

Abstract Introduction: Congenital heart defects are the most frequent reason for deaths during the neonatal and early infancy periods. The aim of this study was to retrospectively analyze singleton pregnancy outcomes of premature neonates with congenital cardiac defects delivered by Cesarean section. Materials and methods: A retrospective analysis was performed on 10,800 fetuses evaluated in our referral fetal cardiac center between 2010 and 2016. A group of 58 singleton pregnancies was selected with the following criteria: fetal heart defect, Cesarean section (C-section), and gestation of 37 weeks or less. Exclusion criteria included labor outside of our hospital and multiple pregnancy. Results: Isolated heart defects constituted 74,1% (43 cases) of the analysed data set. The majority of newborns were delivered at 36 weeks of gestation (43,1%), with an average of 33,6 weeks. In one case (1,7%), C-section took place at 22nd week. Birth weight of newborns < 2500g constituted 51,7% (30 cases). Neonatal deaths occurred in 60,3% (35 cases). Conclusions: Preterm neonates with congenital heart defect, delivered by C-section in our reference centre, during 2010 to 2016, had generally poor outcomes and high mortality rate. The average hospital stay of surviving neonates was approximately two months. An improvement of knowledge about prenatal cardiology is necessary in obstetrician management with fetuses with congenital heart diseases.

scholarly journals Congenital heart diseases: A review of echocardiogram records

KYAMC Journal ◽  
2018 ◽  
Vol 9 (1) ◽  
pp. 35-38
Author(s):  
Md Saiful Islam ◽  
Md Moniruzzaman
Keyword(s):  
Blood Flow ◽  
Congenital Heart Defects ◽  
Congenital Heart ◽  
Heart Diseases ◽  
Heart Defects ◽  
Congenital Defects ◽  
Intrauterine Development ◽  
Heart Defect ◽  
Great Vessels ◽  
Normal Blood Flow

Congenital heart defect (CHD) means an anatomic malformation of the heart or great vessels which occurs during intrauterine development, irrespective of the age at presentation. They can disrupt the normal blood flow through the heart. The blood flow can slow down, go in the wrong direction or to the wrong place, or be blocked completely. Broadly congenital heart defects can be acyanotic and cyanotic. We have reviewed retrospectively from echocardiogram record nearly two years of period & collected total 404 patients with congenital heart defects. Among them 329 (81.43%) was acyanotic and 75 (18.57%) was cyanotic congenital defects with variety of diagnosis. Ventricular septal defect was the most common acyanotic heart defect and Tetralogy of Fallot was the most common cyanotic heart defect. There was no significant gender deference.KYAMC Journal Vol. 9, No.-1, April 2018, Page 35-38

Illuminating (digital) health literacy practices using applied linguistics

2020 ◽  
Vol 30 (Supplement_5) ◽  
Author(s):  
S Harsch ◽  
U Bittlingmayer
Keyword(s):  
Second Language ◽  
Health Literacy ◽  
Everyday Life ◽  
Conceptual Model ◽  
Health Knowledge ◽  
Literacy Practices ◽  
Qualitative Content Analysis ◽  
Digital Health ◽  
Organizational Contexts ◽  
Language Courses

Abstract Background Health literacy (HL) is key to making well-informed health decision in analogous and virtual social situations and organizational contexts. Multiple models and instruments of HL exist, but an in-depth understanding of the various HL-related everyday life situations and their digital and linguistic requirements are scarce. Here, the expertise of second language courses (SLC) can be of great value as they support newcomers acquiring the necessary skills for everyday communication, including health. In the project SCURA, funded by the German Federal Ministry for Education and Research, we explored the German SLC, attended by 2.1 million migrants and refugees since 2005, and developed interventions to promote HL in it. The aim is to understand what everyday situations require (digital) HL skills, what characterizes them and what can we learn for HL models and interventions. Methods We conducted a qualitative content analysis (Bowen 2009) of the 8 newest, approved German second language textbooks series, identified all tasks related to HL, analyzed the situation, topic, language skills, analogue/digital and HL dimension and compared the findings with the HLS-EU conceptual model of HL. Results We identified 180 HL-related communication situations, including 33 tasks related to digital HL. Compared to the HLS-EU conceptual model, the HL activities in SLC reveal a broad understanding of HL including physical, mental and social aspects of HL, linguistic, cultural and digital skills and even critical HL. 5 HL-related dimensions emerged: communication for health, health literacy, health knowledge, health behaviour and life-skills. The differentiation and activities can help to develop further models and interventions that target specific situations requiring digital HL more effectively. Conclusions The analysis of the SLC curricula specified the various (digital) HL-related everyday life situations and! the differentiated model helps to develop promising interventions.

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