scholarly journals The Norwegian Diabetes Register for Adults – an overview of the first years

2013 ◽  
Vol 23 (1) ◽  
Author(s):  
John G. Cooper ◽  
Geir Thue ◽  
Tor Claudi ◽  
Karianne Løvaas ◽  
Siri Carlsen ◽  
...  
Keyword(s):  
General Interest ◽  
Care Services ◽  
Primary Health ◽  
Quality Register ◽  
Specialist Services ◽  
National Quality ◽  
Patients With Diabetes ◽  
Diabetes Register ◽  
National Quality Register

The Norwegian Diabetes Register for Adults (NDR-A) was granted status as a consent-based National Quality Register by the Ministry of Health and Care Services and approved by the Data Inspectorate in 2005. The main aim of the register is to improve the quality of the treatment of people with diabetes in hospitals and primary care. NDR-A is the first national quality register in Norway to capture all data electronically, and it is also the first register to collect data from both primary health care and hospital/specialist services. We therefore think that experiences gained from developing and promoting the register will be of general interest. In this paper we describe the reasons for establishing the register, the register population and dataset, the electronic tools used for data capture, how recruitment is progressing, how we think the register can improve the care of patients with diabetes, and possibilities for future epidemiological research.

Developing a national quality register in end-of-life care: The Swedish experience

2011 ◽  
Vol 26 (4) ◽  
pp. 313-321 ◽  
Author(s):  
Staffan Lundström ◽  
Bertil Axelsson ◽  
Per-Anders Heedman ◽  
Greger Fransson ◽  
Carl Johan Fürst
Keyword(s):  
End Of Life ◽  
End Of Life Care ◽  
Nursing Facilities ◽  
Life Care ◽  
Quality Register ◽  
Dying Patients ◽  
National Quality ◽  
Hospital Wards ◽  
National Quality Register

Background: The complexity of end-of-life care, represented by a large number of units caring for dying patients, different types of organizations and difficulties in identification and prognostication, signifies the importance of finding ways to measure the quality of end-of-life care. Aim: To establish, test and manage a national quality register for end-of-life care. Design: Two questionnaires were developed with an attempt to retrospectively identify important aspects of the care delivered during the last week in life. An internet-based IT platform was created, enabling the physician and/or nurse responsible for the care during the last week in life to register answers online. Setting: Units caring for dying people, such as hospital wards, home care units, palliative in-patient care units and nursing facilities. Results: The register received status as a National Quality Register in 2006. More than 30,000 deaths in nursing facilities, hospital wards, palliative in-patient units and private homes were registered during 2010, representing 34% of all deaths in Sweden and 58% of the cancer deaths. Conclusions: We have shown that it is feasible to establish a national quality register in end-of-life care and collect data through a web-based system. Ongoing data analyses will show in what way this initiative can lead to improved quality of life for patients and their families. There is an ongoing process internationally to define relevant outcome measures for quality of care at the end-of-life in different care settings; the registry has a potentially important role in this development.

Prospective sensemaking of a national quality register in health care and elderly care

2018 ◽  
Vol 31 (4) ◽  
pp. 398-408 ◽  
Author(s):  
Annika Maria Margareta Nordin ◽  
Boel Andersson Gäre ◽  
Ann-Christine Andersson
Keyword(s):  
Health Care ◽  
Health Care Professionals ◽  
Elderly Care ◽  
Content Type ◽  
Sensemaking Theory ◽  
Quality Register ◽  
Novel Approach ◽  
Quality Aspects ◽  
National Quality ◽  
National Quality Register

Purpose The purpose of this paper is to examine how external change agents (ECAs) engaged to disseminate a national quality register (NQR) called Senior alert nationwide in the Swedish health care and elderly care sectors interpret their work. To study this, sensemaking theories are used. Design/methodology/approach This is a qualitative inductive interview study including eight ECAs. To analyze the data, a thematic analysis is carried out. Findings Well-disseminated NQRs support health care organizations’ possibility to work with quality improvement and to improve care for patient groups. NQRs function as artifacts that can influence how health care professionals make sense of their work. In this paper, a typology depicting how the ECAs make sense of their dissemination work has been developed. The ECAs are engaged in prospective sensemaking. They describe their work as being about creating future good results, both for patients and affiliated organizations, and they can balance different quality aspects. Originality/value The number of NQRs increased markedly in Sweden and elsewhere, but there are few reports on how health care professionals working with the registers interpret their work. The use of ECAs to disseminate NQRs is a novel approach. This paper describes how the ECAs are engaged in prospective sensemaking – an under-researched perspective of the sensemaking theory.

scholarly journals Community perception of quality of (primary) health care services in a rural area of Limpopo Province, South Africa: a qualitative study

Curationis ◽  
2005 ◽  
Vol 28 (2) ◽  
Author(s):  
T-AB Mashego ◽  
K Peltzer
Keyword(s):  
Health Care ◽  
Primary Health Care ◽  
Health Care Services ◽  
Preventive Health Care ◽  
Perceived Quality ◽  
Limpopo Province ◽  
Care Services ◽  
Primary Health ◽  
Primary Health Care Services

The aim of the study was to survey perceptions of quality of (primary) health care services provided in rural communities in the Limpopo province. Ten focus groups discussions were held with community members chosen by convenience from public places from four villages in the central region of the Limpopo Province. The sample included 42 women and 34 men (76 participants). Results indicated perceived quality discussed within the following categories: (1) conduct of staff (reception, communication, discrimination, care and compassion, respect for privacy), (2) technical care (examination, explanation of treatment, responsiveness, treatment outcomes), (3) health care facility, (4) health care organisation, (5) drugs (availability, explanation, effectiveness, payment), and (6) waiting time. The findings suggest some satisfaction with free basic and preventive health care and social services provided but there is a need to look closely into the interpersonal dimension of the services provided, provision of medication with adequate explanation to patients on the medication given, and on structural aspects, there is need for the government to give support to the clinics to provide adequate services. Improving drug availability, interpersonal skills (including attitudes towards patients) and technical care have been identified as the three main priorities for enhancing perceived quality of primary health care and health policy action.

Riks-Stroke – A Swedish National Quality Register for Stroke Care

2003 ◽  
Vol 15 (1) ◽  
pp. 5-7 ◽  
Author(s):  
Kjell Asplund ◽  
Kerstin Hulter Åsberg ◽  
Bo Norrving ◽  
Birgitta Stegmayr ◽  
Andreas Terént
Keyword(s):  
Stroke Care ◽  
Quality Register ◽  
National Quality ◽  
National Quality Register

Care-limiting decisions in acute stroke and association with survival: analyses of UK national quality register data

2016 ◽  
Vol 11 (3) ◽  
pp. 321-331 ◽  
Author(s):  
Adrian R Parry-Jones ◽  
Lizz Paley ◽  
Benjamin D Bray ◽  
Alex M Hoffman ◽  
Martin James ◽  
...  
Keyword(s):  
Acute Stroke ◽  
Register Data ◽  
Survival Analyses ◽  
Quality Register ◽  
National Quality ◽  
National Quality Register
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