scholarly journals Online Educational Tools for Caregivers of People with Dementia: A Scoping Literature Review

2021 ◽  
Vol 24 (4) ◽  
pp. 351-366
Author(s):  
Richard Sztramko ◽  
Anthony J. Levinson ◽  
Andrea E. Wurster ◽  
Rita Jezrawi ◽  
Branavan Sivapathasundaram ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Health Care Professionals ◽  
Self Efficacy ◽  
Informal Caregivers ◽  
Educational Interventions ◽  
Specific Information ◽  
Educational Tools ◽  
People With Dementia ◽  
Online Tools

Background  Informal caregivers of people with dementia provide the majority of health-based care to people with dementia. Providing this care requires knowledge and access to resources, which caregivers often do not receive. We set out to evaluate the effect of online educational tools on informal caregiver self-efficacy, quality of life, burden/stress, depression, and anxiety, and to identify effective processes for online educational tool development.  Methods  We conducted a scoping review of articles on online educational interventions for informal caregivers of people with dementia searching CINAHL, MEDLINE, EMBASE, and PubMed from 1990 to March 2018, with an updated search conducted in 2020. The identified articles were screened and the data were charted.  Results  33 articles that reported on 24 interventions were included. There is some evidence that online interventions improve caregiver-related outcomes such as self-efficacy, depression, dementia knowledge, and quality of life; and decrease caregiver burden. Common findings across the studies included the need for tailored, stage-specific information applicable to the caregiver’s situation and the use of psychosocial techniques to develop the knowledge components of the interventions.  Conclusion  We demonstrate the importance of having caregivers and health-care professionals involved at all stages of tool conceptualization and development. Online tools should be evaluated with robust trials that focus on how increased knowledge and development approaches affect caregiver-related outcomes. 

Online Educational Tools for Caregivers of People with Dementia: A Scoping Literature Review (Preprint)

2020 ◽  
Author(s):  
Richard Sztramko ◽  
Anthony J Levinson ◽  
Andrea Wurster ◽  
Rita Jezrawi ◽  
Branavan Sivapathasundaram ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Health Care Professionals ◽  
Self Efficacy ◽  
A Priori ◽  
Primary Objective ◽  
Educational Tools ◽  
People With Dementia ◽  
Online Tools ◽  
The Impact

BACKGROUND Over one million Canadians are affected directly or indirectly by dementia. Informal caregivers (CGs) of people with dementia (PwD) provide the majority of health-based care to PwD. Providing this care requires knowledge and access to resources, which CGs often do not receive. CGs are looking online for dementia education and support. OBJECTIVE The primary objective was to evaluate the impact of online educational tools on informal CG self-efficacy. Secondary outcomes of interest are CG quality of life, CG burden/distress, CG stress, CG depression, CG anxiety, and identifying effective processes for online educational tool development. METHODS The search protocol, inclusion and exclusion criteria, and methods of analysis were all specified a priori. A systematic search of CINAHL, MEDLINE, EMBASE, and PubMed was performed to March 2018. The literature was periodically surveyed post-initial search to account for newly published articles. 32 articles were included. RESULTS Despite some studies reporting mixed perceived value for CG, multiple studies reported encouraging results. There is some evidence in the literature that online interventions improve CG self-efficacy, depression, dementia knowledge, and quality of life; and decrease caregiver burden. CONCLUSIONS : Online educational tools appear to be effective at improving CG-related outcomes. Developers are encouraged to involve CGs and health care professionals at all stages of tool conceptualization and development; and evaluate the effectiveness of online tools with robust RCTs that focus on how increased knowledge modifies CG-related outcomes.

Dementia from the inside: how people with early-stage dementia evaluate their quality of life

2005 ◽  
Vol 25 (2) ◽  
pp. 197-214 ◽  
Author(s):  
TOWAKO KATSUNO
Keyword(s):  
Quality Of Life ◽  
Health Care Professionals ◽  
Early Stage ◽  
Structured Interviews ◽  
Psychosocial Wellbeing ◽  
People With Dementia ◽  
Quality Of Life Scale ◽  
Quality Of Life Index ◽  
Item Quality

The purposes of this study were to explore the self-rated and objectively measured quality of life of people with early-stage dementia and to describe their personal experiences and reactions to the negative public view of dementia. Information was collected from 23 participants who lived in a mid-western United States metropolitan area. Self-ratings were collected by semi-structured and structured interviews, and the objective measures were the Quality of Life Index (QLI) and the Single Item Quality of Life Scale (SIQLS). It was found that 21 of the participants perceived their current QOL as ‘good’ or better, and that the mean scores for the QLI and the SIQLS were 22.8 and 7.3 respectively. Triangulation of the subjective and objective data established their congruence. The QLI scores suggested that people with early-stage dementia often perceived their current life as good and that the participants were as satisfied with their life as the general population. Their accounts also revealed that many had experienced stigma and that this appreciably affected their psychosocial wellbeing. The findings of this study provide new insights into the ways in which health-care professionals and the general public can and should view and treat people with dementia.

Self-Efficacy and Health-Related Quality of Life Among Heart Failure Patients in Singapore: A Descriptive Correlational Study

2017 ◽  
Vol 29 (4) ◽  
pp. 326-334 ◽  
Author(s):  
Rajasekaram Suresh ◽  
Wenru Wang ◽  
Karen W. L. Koh ◽  
Shefaly Shorey ◽  
Violeta Lopez
Keyword(s):  
Quality Of Life ◽  
Heart Failure ◽  
Health Care Professionals ◽  
Self Efficacy ◽  
Smoking Status ◽  
Health Related Quality ◽  
Education Levels ◽  
Related Quality ◽  
Health Related

Introduction: Heart failure (HF) accounts for 30% of all global deaths and Asians are likely to suffer from HF 10 years earlier than their Western counterparts. Low self-efficacy and poor health-related quality of life (HRQoL) have been reported in patients with HF. Methodology: A descriptive correlational design was adopted to investigate the associations between self-efficacy and HRQoL in 91 patients with HF in Singapore. Results: Patients with HF demonstrated moderately good self-efficacy ( M = 3.05, SD = 0.61) and HRQoL ( M = 22.48, SD = 18.99). Significant differences were found between total self-efficacy scores and education levels ( p = .05), and between overall HRQoL and smoking status ( p < .05). Self-efficacy was not significantly correlated to HRQoL. Smoking status, HF classification, and self-efficacy in maintaining function predicted HRQoL. Discussion: Health care professionals should assess each patient’s demographics, smoking status, and clinical condition before delivering individualized education to enhance their self-efficacy and, in turn, overall HRQoL.

scholarly journals Quality of Life of Older People with Dementia in Thailand

2020 ◽  
Vol 17 (10) ◽  
pp. 1066-1076
Author(s):  
Linchong POTHIBAN ◽  
Rojanee CHINTANAWAT ◽  
Nahathai WONGPAKARAN ◽  
Chomphoonut SRIRAT ◽  
Khanokporn SUCAMWANG
Keyword(s):  
Quality Of Life ◽  
Older People ◽  
Health Care Professionals ◽  
Homes For The Aged ◽  
Cross Sectional ◽  
Living Situation ◽  
Care Environment ◽  
People With Dementia ◽  
Family And Marriage

The quality of life (QOL) of older people with dementia may depend on their care environment.  This cross-sectional descriptive study aims to investigate the QOL of Thai older people with dementia in homes for the aged and those living in their own homes in the community, as well as the discrepancy between the QOL rated by the older people and by caregivers. The samples included 342 participants who met the inclusion criteria. Data were collected using the Quality of Life-Alzheimer’s Disease Scale (QOL-AD) and the EuroQol 5 Dimensions (EQ-5D) Questionnaire Thai Version Scale. Data were analyzed using descriptive statistics, t test, and Pearson’s correlation. The findings revealed that the overall QOL scores of participants in both groups were at a moderate level. Compared with participants in homes for the aged, those living in the community showed higher scores in 7 aspects of QOL-AD, including physical health, energy, living situation, memory, self as a whole, ability to do chores, and ability to make life fun, but lower scores in the aspects of family/members and marriage/closed persons. Self-rated and caregiver-rated scores were significantly different in the aspects of living situation, memory, relationship with family, and marriage/closed persons. The findings imply that health care professionals can also assess the QOL of older people with dementia through self-rating. Further research to find the most effective method for enhancing older peoples’ QOL is needed.

Quality of life for people with dementia: approaches to the challenge of measurement

1999 ◽  
Vol 19 (5) ◽  
pp. 561-579 ◽  
Author(s):  
JOHN BOND
Keyword(s):  
Quality Of Life ◽  
Outcome Measures ◽  
Research Agenda ◽  
Informal Caregivers ◽  
Cost Utility ◽  
Therapeutic Interventions ◽  
Models Of Disability ◽  
People With Dementia ◽  
Pluralistic Approach

With the development of possible therapeutic interventions for people with dementia there is an increasing realisation among clinical and health service researchers of the paucity of appropriate outcome measures for people with dementia and their informal caregivers. The different perspectives on dementia within the biomedical, psychological and social models of disability lead to radically different meanings of the concept ‘quality of life’ and approaches to its assessment. This paper examines these different approaches and proposes a broad research agenda which is underpinned by two key principles. First, people with dementia and their informal caregivers should be involved in the development of usable outcome measures relevant to their needs and circumstances. Second, the scientific community in partnership with those directly affected should develop a pluralistic approach to the assessment of outcome taking account of both the meaning of the condition to people with dementia and their informal caregivers and cost utility from a societal perspective.

Sign in / Sign up

Export Citation Format

Share Document