Addressing the Ethical Challenges for Young Adults, from a Rights-Based Perspective

This chapter lays out the ethical challenges and proactive strategies involved in balancing the rights of adolescents and young adults (AYAs) with intellectual disability (ID) to participate in clinical research with the obligation to protect a potentially vulnerable population from research harms. The chapter presents an illustrative case study involving a young adult research participant with Down syndrome whose capacity and legal authority to consent to participate in a study was questioned after an exchange with a staff member aroused suspicion about potential misconduct. Techniques to enhance participation, especially in the consent or assent processes, of AYAs with ID in research are outlined. Both individual-level and structural-level protections to ensure ongoing voluntary participation, relevant for both study teams and institutional review boards, are recommended.

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Collegiate Recovery Programs and Treatment Providers: Supporting Outcomes, Not Admissions

Journal of Recovery Science ◽

10.31886/jors.12.2018.26 ◽

2018 ◽

Vol 1 (2) ◽

pp. 9

Author(s):

Sierra Castedo ◽

Nico Doorn

Keyword(s):

Young Adults ◽

Referral Source ◽

Mutual Benefit ◽

Ethical Challenges ◽

Treatment Providers ◽

Recovery Programs ◽

Slow Moving ◽

Age Profile ◽

The Continuum

Collegiate Recovery Programs (CRPs), rooted in slow-moving academic institutions, can be contrasted with relatively fast-moving private treatment entities, and this contrast has great potential for both conflict and mutual benefit. Conflict may arise from a misunderstanding about the role of CRPs in the continuum of care - frequently thought to be a referral source, when, in fact, they work best as a post-treatment resource, improving outcomes for students in recovery. Young adults are the fastest growing demographic seeking treatment for substance use disorders, and, because of this changing age profile, more treatment entities are seeking to serve young adults and coming into contact with CRPs. This presentation explores the nuances and ethical challenges facing those interactions and describes the benefits of collaboration when pursued thoughtfully. The experiences of a CRP and a sober living/IOP facility in Austin, Texas will also be presented as a framework for collaboration.

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Psychotherapy with College Students

Handbook of Private Practice ◽

10.1093/med:psych/9780190272166.003.0063 ◽

2017 ◽

pp. 725-730

Author(s):

Rachel G. Smook

Keyword(s):

Mental Health ◽

College Students ◽

Young Adults ◽

Young Adult ◽

Mental Health Professionals ◽

Health Professionals ◽

Adult Population ◽

Ethical Challenges ◽

Adult Mental Health ◽

Young Adult Population

Psychotherapy with college students and young adults is an important and dynamic niche practice option for mental health professionals. Young adults are navigating crucial human development tasks, and the range of mental health services they often require as they do so is varied and dynamic. Mental health professionals who choose to specialize with the college and young adult population can expect a steady stream of clients in need of services, and with appropriate training and marketing, it is possible to build a busy, successful practice around this clientele. This chapter describes the niche practice area of college and young adult mental health, the author’s history in training and working with this population, and the business and ethical challenges associated with a practice in young adult mental health. Guidance in developing a young adult mental health specialty niche and resources for doing so are also included.

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Continuum of Care Following Sports-Related Concussion

American Journal of Speech-Language Pathology ◽

10.1044/2020_ajslp-19-00131 ◽

2020 ◽

Vol 29 (3) ◽

pp. 1389-1403

Author(s):

Jessica Brown ◽

Kelly Knollman-Porter

Keyword(s):

Young Adults ◽

Life Span ◽

Sports Injuries ◽

Continuum Of Care ◽

Medical Professional ◽

Structured Interviews ◽

Youth Athletes ◽

Speech Language Pathologist ◽

History Of ◽

Injury Reporting

Purpose Although guidelines have changed regarding federally mandated concussion practices since their inception, little is known regarding the implementation of such guidelines and the resultant continuum of care for youth athletes participating in recreational or organized sports who incur concussions. Furthermore, data regarding the role of speech-language pathologists in the historic postconcussion care are lacking. Therefore, the purpose of this retrospective study was to investigate the experiences of young adults with history of sports-related concussion as it related to injury reporting and received follow-up care. Method Participants included 13 young adults with history of at least one sports-related concussion across their life span. We implemented a mixed-methods design to collect both quantitative and qualitative information through structured interviews. Participants reported experiencing 42 concussions across the life span—26 subsequent to sports injuries. Results Twenty-three concussions were reported to a parent or medical professional, 14 resulted in a formal diagnosis, and participants received initial medical care for only 10 of the incidents and treatment or services on only two occasions. Participants reported concussions to an athletic trainer least frequently and to parents most frequently. Participants commented that previous experience with concussion reduced the need for seeking treatment or that they were unaware treatments or supports existed postconcussion. Only one concussion incident resulted in the care from a speech-language pathologist. Conclusion The results of the study reported herein shed light on the fidelity of sports-related concussion care management across time. Subsequently, we suggest guidelines related to continuum of care from injury to individualized therapy.

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Ethical Challenges: Less About Moral Wrongdoing and More About Communication Breakdown

Perspectives on Gerontology ◽

10.1044/gero20.3.72 ◽

2015 ◽

Vol 20 (3) ◽

pp. 72-84 ◽

Cited By ~ 2

Author(s):

Paula Leslie ◽

Mary Casper

Keyword(s):

Ethical Challenges ◽

Speech Language Pathology ◽

Thickened Liquids ◽

Communication Breakdown ◽

Professional Duty ◽

Language Pathology ◽

The Law ◽

Personal Case

“My patient refuses thickened liquids, should I discharge them from my caseload?” A version of this question appears at least weekly on the American Speech-Language-Hearing Association's Community pages. People talk of respecting the patient's right to be non-compliant with speech-language pathology recommendations. We challenge use of the word “respect” and calling a patient “non-compliant” in the same sentence: does use of the latter term preclude the former? In this article we will share our reflections on why we are interested in these so called “ethical challenges” from a personal case level to what our professional duty requires of us. Our proposal is that the problems that we encounter are less to do with ethical or moral puzzles and usually due to inadequate communication. We will outline resources that clinicians may use to support their work from what seems to be a straightforward case to those that are mired in complexity. And we will tackle fears and facts regarding litigation and the law.

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