Digital Health Research Methods and Tools: Suggestions and Selected Resources for Researchers

2017 ◽  
pp. 5-34 ◽  
Author(s):  
Kathleen Gray ◽  
Cecily Gilbert
Keyword(s):  
Research Methods ◽  
Health Research ◽  
Digital Health

scholarly journals Assessing and piloting interoperability for population health research

2020 ◽  
Vol 30 (Supplement_5) ◽  
Author(s):  
F Estupiñán-Romero ◽  
J Gonzalez-García ◽  
E Bernal-Delgado
Keyword(s):  
Case Studies ◽  
Population Health ◽  
Health Research ◽  
Network Architecture ◽  
Digital Health ◽  
Data Extraction ◽  
Health Data ◽  
Research Network ◽  
Technical Solution ◽  
Privacy And Security

Abstract Issue/problem Interoperability is paramount when reusing health data from multiple data sources and becomes vital when the scope is cross-national. We aimed at piloting interoperability solutions building on three case studies relevant to population health research. Interoperability lies on four pillars; so: a) Legal frame (i.e., compliance with the GDPR, privacy- and security-by-design, and ethical standards); b) Organizational structure (e.g., availability and access to digital health data and governance of health information systems); c) Semantic developments (e.g., existence of metadata, availability of standards, data quality issues, coherence between data models and research purposes); and, d) Technical environment (e.g., how well documented are data processes, which are the dependencies linked to software components or alignment to standards). Results We have developed a federated research network architecture with 10 hubs each from a different country. This architecture has implied: a) the design of the data model that address the research questions; b) developing, distributing and deploying scripts for data extraction, transformation and analysis; and, c) retrieving the shared results for comparison or pooled meta-analysis. Lessons The development of a federated architecture for population health research is a technical solution that allows full compliance with interoperability pillars. The deployment of this type of solution where data remain in house under the governance and legal requirements of the data owners, and scripts for data extraction and analysis are shared across hubs, requires the implementation of capacity building measures. Key messages Population health research will benefit from the development of federated architectures that provide solutions to interoperability challenges. Case studies conducted within InfAct are providing valuable lessons to advance the design of a future pan-European research infrastructure.

scholarly journals Implementation: The Next Giant Hurdle to Clinical Transformation With Digital Health

10.2196/16259 ◽  
2019 ◽  
Vol 21 (11) ◽  
pp. e16259 ◽  
Author(s):  
Lorraine Buis
Keyword(s):  
Health Research ◽  
Digital Health ◽  
Internet Research ◽  
Clinical Implementation ◽  
The Past ◽  
Barriers To Implementation ◽  
Clinical Transformation

Clinical implementation of digital health is a major hurdle to overcome in the coming years. Considering the role of the Journal of Medical Internet Research in the past 20 years and looking toward the journal’s future, this viewpoint acknowledges the vision of medicine and the role that digital health plays in that vision. It also highlights barriers to implementation of digital health as an obstacle to achieving that vision. In particular, this paper focuses on how digital health research must start looking toward implementation as an area of inquiry and the role that the Journal of Medical Internet Research and its' sister journals from JMIR Publications can play in this process.

scholarly journals A retrospective analysis of NIH-funded digital health research using social media platforms

2020 ◽  
Vol 6 ◽  
pp. 205520761990108 ◽  
Author(s):  
Camille Nebeker ◽  
Sarah E. Dunseath ◽  
Rubi Linares-Orozco
Keyword(s):  
Social Media ◽  
Retrospective Analysis ◽  
Health Research ◽  
Digital Health ◽  
Social Media Platforms

scholarly journals 2543

2017 ◽  
Vol 1 (S1) ◽  
pp. 54-54
Author(s):  
Jorge Delva ◽  
Adam Paberzs ◽  
Patricia Piechowski ◽  
Karen Calhoun ◽  
Diane Carr ◽  
...  
Keyword(s):  
Translational Research ◽  
Research Methods ◽  
Health Research ◽  
Governance Structure ◽  
Advisory Board ◽  
Community Advisory Board ◽  
Strategic Decisions ◽  
Study Population ◽  
Wide Community ◽  
Future Plans

OBJECTIVES/SPECIFIC AIMS: To describe how Michigan Institute for Clinical & Health Research (MICHR) has engaged communities in its leadership and governance structure. This presentation will describe these practices, how they are being evaluated, and future plans for institute-wide engagement of communities in translational research. METHODS/STUDY POPULATION: Engaged partners from various communities across Michigan in various ways within MICHR’s Community Engagement Program. RESULTS/ANTICIPATED RESULTS: MICHR has utilized participatory practices in the development of the CAB to strengthen existing relationships and build new ones with potential partners. DISCUSSION/SIGNIFICANCE OF IMPACT: MICHR-wide Community Advisory Board (CAB) will ensure community voices are heard and utilized in leadership and strategic decisions for CTSA activities.

scholarly journals Implementation: The Next Giant Hurdle to Clinical Transformation With Digital Health (Preprint)

2019 ◽  
Author(s):  
Lorraine Buis
Keyword(s):  
Health Research ◽  
Digital Health ◽  
Internet Research ◽  
Clinical Implementation ◽  
The Past ◽  
Barriers To Implementation ◽  
Clinical Transformation

UNSTRUCTURED Clinical implementation of digital health is a major hurdle to overcome in the coming years. Considering the role of the Journal of Medical Internet Research in the past 20 years and looking toward the journal’s future, this Viewpoint acknowledges the vision of medicine and the role that digital health plays in that vision and highlights barriers to implementation of digital health as an obstacle to achieving that vision. In particular, this paper focuses on how digital health research must start looking toward implementation as an area of inquiry and the role that the Journal of Medical Internet Research can play in this process.

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