Gender Equality and Quality of Life: Examples of Best Practices from Nine

Author(s):  
Almudena Moreno Mínguez
2020 ◽  
Author(s):  
E. Parimbelli ◽  
S. Wilk ◽  
R. Cornet ◽  
P. Sniatala ◽  
K. Sniatala ◽  
...  

AbstractIntroductionThanks to improvement of care, cancer has become a chronic condition. But due to the toxicity of treatment, the importance of supporting the quality of life (QoL) of cancer patients increases. Monitoring and managing QoL relies on data collected by the patient in his/her home environment, its integration, and its analysis, which supports personalization of cancer management recommendations. We review the state-of-the-art of computerized systems that employ AI and Data Science methods to monitor the health status and provide support to cancer patients managed at home.ObjectiveOur main objective is to analyze the literature to identify open research challenges that a novel decision support system for cancer patients and clinicians will need to address, point to potential solutions, and provide a list of established best-practices to adopt.MethodsWe designed a review study, in compliance with the Preferred Reporting Items for Systematic Reviews and Meta-Analyses (PRISMA) guidelines, analyzing studies retrieved from PubMed related to monitoring cancer patients in their home environments via sensors and self-reporting: what data is collected, what are the techniques used to collect data, semantically integrate it, infer the patient’s state from it and deliver coaching/behavior change interventions.ResultsStarting from an initial corpus of 819 unique articles, a total of 180 papers were considered in the full-text analysis and 109 were finally included in the review. Our findings are organized and presented in four main sub-topics consisting of data collection, data integration, predictive modeling and patient coaching.ConclusionDevelopment of modern decision support systems for cancer needs to utilize best practices like the use of validated electronic questionnaires for quality-of-life assessment, adoption of appropriate information modeling standards supplemented by terminologies/ontologies, adherence to FAIR data principles, external validation, stratification of patients in subgroups for better predictive modeling, and adoption of formal behavior change theories. Open research challenges include supporting emotional and social dimensions of well-being, including PROs in predictive modeling, and providing better customization of behavioral interventions for the specific population of cancer patients.


Author(s):  
Christos Bouras ◽  
Apostolos Gkamas ◽  
Thrasyvoulos Tsiatsos

Broadband deployment is a necessity nowadays. It could help each country, municipality and region to grow and offer better quality of life to the citizens. Today, the emphasis on the development of broadband networks is on fixed Fibre To The Home solutions The lessons learned from countries that are leaders in broadband penetration and Fibre To The Home deployment could be proven very useful for under-served communities, regions and countries where the broadband penetration is low. Therefore, this chapter summarises the lessons learned from implementing (a) country-wide strategies formulated at the national level, and (b) local strategies formulated by the municipalities. Concerning the role of national and local governments, it should be noted that nowadays it is very urgent the involvement of government in the development of broadband infrastructure. Proposed noteworthy remarkable cases are Japan, South Korea and Singapore.


Author(s):  
Sarah Jean Barton ◽  
Lucy Selman ◽  
Gary Maslow ◽  
Raymond Barfield

This chapter responds to the sparse attention paid to the connections between religion, spirituality, and pediatric quality of life in healthcare settings. Key points of spiritual distress in the context of pediatrics, including intensive care settings, diagnostic meetings, and oncology, are explored. In order to envision a robust embrace of religious and spiritual issues in pediatric care, this chapter analyzes core themes from the perspectives of caregivers and clinicians. Building on these themes as well as current best practices from the literature, this chapter proposes an expanded vision and accompanying concrete practices to improve attention to and integration of religion and spirituality in pediatric care. The chapter concludes that an expansion of creative engagement with the religious and spiritual components of pediatric healthcare would foster more interdisciplinary, holistic practices of care.


2018 ◽  
Vol 8 (4) ◽  
pp. 187 ◽  
Author(s):  
Martin Dür ◽  
Lars Keller

Dealing with the great challenges of the 21st century requires far reaching changes in the lifestyle and perceptions of humans to ensure an appropriate quality of life for all, now and in the future. To provide people with the necessary competencies, the UN initiated the Education for Sustainable Development (ESD) program. The two-year research-education, cooperative project ‘AustrIndia-4QOL’ aims to contribute to the goals of ESD. It is based on a collaboration between students from schools in Austria and India on the topics of quality of life, sustainability and global justice. The purpose of this particular case study is to explore the effects of a weeklong face-to-face collaboration in the final part of the AustrIndia-4QOL project. Therefore, it is examined whether or not Austrian and Indian students’ concepts regarding the Sustainable Development Goals ‘Gender Equality’ and ‘Decent Work and Economic Growth’ change as a consequence of encountering differing perspectives. Short texts written by the students at the beginning and at the end of this collaboration, according to guiding questions, form the basis for a qualitative content analysis. The findings illustrate that the students’ awareness increased and their evaluation of topics related to the discussed sustainable development goals changed.


2017 ◽  
Vol 44 (2) ◽  
pp. 323-340 ◽  
Author(s):  
Mario Vázquez Maguirre ◽  
Luis Portales ◽  
Isabelle Velásquez Bellido

The aim of this article is to explore the mechanisms by which indigenous social enterprises contribute to a rural community’s sustainable development and improves the quality of life of its inhabitants. The work follows a qualitative methodology and uses the case study as a research technique. The research suggests that social enterprise uses four main mechanisms to promote rural sustainable development in the community where it operates: labor as a source of quality of life, gender equality, sustainable exploitation of the resources, and the equitable distribution of benefits between the economic, social and environmental dimensions.


2020 ◽  
pp. 165-170
Author(s):  
Dominic Moore ◽  
Colleen Marty

Fatigue is a common and troubling symptom in children with serious illness. Coping with fatigue impacts and diminishes quality of life in multiple ways. Despite the well-established impact of fatigue, clinicians tend to underrecognize and undertreat this symptom. This chapter examines fatigue as it presents in pediatric patients and suggests best practices for evaluation and treatment. Common causes of fatigue include anemia, medications, pain, disordered sleep, nutritional imbalance, changes in physical activity, emotional and/or spiritual distress, and medical comorbidities. Each case should be evaluated separately, with a focus on treating the underlying cause of the fatigue when possible. An interdisciplinary approach is often required to fully address the factors contributing to a patient’s fatigue. Nonpharmacologic approaches have been shown to be effective and may be used in concert with pharmacologic agents.


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