Living with cancer and perception of care: Icelandic oncology outpatients, a qualitative study

2007 ◽  
Vol 16 (5) ◽  
pp. 515-524 ◽  
Author(s):  
Elísabet Hjörleifsdóttir ◽  
Ingalill Rahm Hallberg ◽  
Elín Díanna Gunnarsdóttir ◽  
Ingrid Ågren Bolmsjö
Buildings ◽  
2021 ◽  
Vol 11 (3) ◽  
pp. 113
Author(s):  
Brenda Groen ◽  
Hester van Sprang

Entering a building is a ‘moment of truth’ and may invoke feelings of hospitableness. Physical environments and staff behaviour deliver ‘clues’ that may result in the experience of hospitality. The focus in a reception area may be on mitigation of risks, or on a hospitable atmosphere, with either a host or a security officer at the entrance. However, the division of tasks to either the pleasing host or the controlling security officer to a certain extent disavows the overlap between perceptions of hospitality and safety. This exploratory qualitative study combines a group interview with three managers responsible for hospitality and security in reception areas and Critical Incidents by staff and visitors (N = 51). Thematic coding was based on The Egg Aggregated Model and the Experience of Hospitality Scale. Results show that hospitality and safety are indeed two sides of the same coin. Usually people do accept security measures, provided that staff act in a hospitable way. A lack of security measures may seem ‘inviting’, but also decreases the perception of care for your visitor, and may cause uncertainty and therefore decrease comfort. A correct risk perception, flexible appliance of security measures, and a friendly approach connect aspects of ‘safe’ and ‘hospitable’ sentiments.


2021 ◽  
pp. 026921632110494
Author(s):  
Eloise Radcliffe ◽  
Aysha Khan ◽  
David Wright ◽  
Richard Berman ◽  
Sara Demain ◽  
...  

Background: People living with cancer that is treatable but not curable have complex needs, often managing health at home, supported by those close to them. Challenges are likely to be exacerbated during the COVID-19 pandemic and the risk-reducing measures introduced in response. The impact of COVID-19 on those living with incurable, life-threatening conditions is little understood. Aim: To investigate the experiences and identify the impact of the COVID-19 pandemic for people living with treatable not curable cancer and their informal carers. Design: Qualitative semi-structured phone interviews were conducted with 21 patients living with cancer that is treatable but not curable and 14 carers. Setting/ participants: Participants were part of a larger longitudinal qualitative study (ENABLE) on supported self-management for people living with cancer that is treatable but not curable. Results: The COVID-19 pandemic magnified uncertainty and anxiety and led to loss of opportunities to do things important to patients in the limited time they have left to live. Lack of face-to-face contact with loved ones had a significant impact on patients’ and carers’ emotional wellbeing. Carers experienced increased responsibilities but less access to formal and informal support and respite. While changes to treatment led to some concern about longer-term impact on health, most patients felt well-supported by healthcare teams. Conclusion: The study provides rich insights into the nature of challenges, uncertainty and lost opportunities resulting from the COVID-19 pandemic for patients and carers living with cancer that is treatable but not curable, which has wider resonance for people living with other life-limiting conditions.


2013 ◽  
Author(s):  
Χρυσούλα Κάρλου

Backgound In the evolution of nursing as a science, considerations were presented inthe definition of "care‖ and ―caring" in the literature." Special emphasis is given to therelationship between nursing and care as well as in determining the dimensions,characteristics and behaviors that make it as a central concept in nursing. Oncologynursing is a nursing specialty that responded early to the challenge in defining such acomplicated and significant concept.Aim The aim of this study was to examine the caring behaviors as perceived bynurses patients and their caregivers.Methodology: A descriptive correlational study was conducted with cross-sectionalcomparisons, for the three study groups (patients, caregivers, nurses), in medicaloncology clinics of three cancer hospitals in the Attica area. A qualitative research ofnurses‘ caring behaviors using three focus groups followed.The study sample: For the descriptive study a convenience sample of N = 138 pairs of patients receiving chemotherapy and their family caregivers, with a response rate of78.8%, and N = 72 nurses with a response rate of 68% was used. The focus groupswere conducted with a purposeful sampling of 18 nurses with socio-demographiccharacteristics similar to those of participants in the quantitative study.Instruments: For the quantitave study were used 1. A social and professional form. 2.The Caring Behaviors Inventory (CBI). 3. The Symptom Assessment Scale ShortForm (MSAS-SF) MSAS-SF for patients and their family caregivers. 4. The NurseStress Index NSI. The statistical program of SPSS 17.0. was used for data analysis. Inthe qualitative study, a formed interview guide was used and deductive contentanalysis was the method of analysis.Results: There was not any statistically significant difference between patients andtheir family caregivers. Nurses, patients and their caregivers agreed on the scoring in the first two most highly rated caring behaviors, ―Knowing how to give shots, IVs,etc‖ and ―Giving the patients‘ treatments and medications on time‖. Also all threegroups agreed on the two lowest rated caring behaviors ―Including the patient inplanning his or her care‖ and ―Talking with the patient‖.Associations between patients, family caregivers and nurses rating with all CBIsubscales showed a) no statistically significant difference between patients and theirfamily caregivers in any of CBI subscales b) statistically significant difference wasfound between patients and nurses in ―Knowledge and skill‖ (p=0,010), ―Respectfuldeference to others‖ (p=0,001) and ―Positive connectedness‖ (p=0,004). c)assosiations between family caregivers and nurses were found statistically significantdifference in subscale ―Knowledge and skill‖ (p=0,007), ―Assurance of humanpresence‖ (p=0,003), ―Respectful deference to others‖ (p=0,001) and ―Positiveconnectedness‖ (p=0,003).Associations of patients‘ symptoms and their caring behaviors showed that a) Caringbehaviors of subscale ―Knowledge and skill‖ rated lower when they had higher Total MSAS score (r-0,34 p<0,001), Global Distress (r-0,30 p<0,001), intenselyPsychological symptoms (r-0,28 p <0,001) and Physical symptoms (r-0,22 p=0,006).b) results for the subscale ―Positive connectedness‖ was found similar. c) subscales―Assurrance of human presence‖ and ―Respectful deference to others‖ when patientshad higher Global Distress Index (r-0,22 p=0,005), psychological symptoms (r-0,24p=0,003) and Total MSAS score (r-0,24 p=0,003). d) ―Respectful deference to others‖when patients had higher Global Distress Index (r-0,23 p=0,004) psychologicalsymptoms (r-0,25 p=0,001) and Total MSAS score (r-0,25 p=0,002).Associations of family caregivers rating of patients‘ symptoms with nurses‘ caringbehaviors showed that a) caring behaviors of subscale ―Knowledge and skill‖ ratedlower when Total MSAS score was rated higher (r-0,30 p=0,001), intensely physicalsymptoms (r-0,25 p=0,004), psychological symptoms (r-0,21 p=0,021) and greaterGlobal Distress (r-0,22 p=0,015) of their patients. b) Subscales of ―Assurance ofhuman presence‖ and ―Positive connectedness‖ rated lower when their patients hadmore intense physical symptoms (r-0,20 p=0,025) and (r-0,18 p=0,046) respectively,psychological symptoms (r-0,21 p=0,018) and (r-0,23 p=0,010) respectively, higherTotal MSAS score (r-0,25 p=0,004) and (r-0,26 p=0,004) respectively. c) Caringbehaviors indicating ―Respectful deference to others‖ were rated lower by familycaregivers as higher was the patients‘ Total MSAS score (r-0,20 p=0,026). Married nurses had significantly higher rating compared to those who were single ordivorced in all subscales of the CBI (p=0,01). No statistically significant correlationwas found between the total score of stress (NSI) and caring behaviors, additionallythe total score of stress (NSI) showed no high levels of job stress for nurses.In a multivariate approach, a stepwise multiple regression was used in order to findthe strongest predictors of CBI only the educational level, family caregiver and theTotal MSAS score were the three variables that significantly affected subscales of―Assurance of human presence‖ of CBI (p=0,001) for patients. Family caregivers‘Total MSAS score was the only variable that significantly affected ―Knowledge andskill‖ (p=0,005), ―Assurance of human presence‖ (p=0,008) and ―Positiveconnectedness‖ (p=0,004). At the end for nurses no model found to had a statisticalsignificant predictor ability.Content analysis of the qualitative study highlighted the following main categories 1.The perception of care as a humanistic value, professional responsibility, meetingneeds of patients and individualized care that gives satisfaction to patients and nurses.2. Respect for the human presence. 3. Patients information and effectivecommunication. 4. Creating relationship or connection with patient.5. Empathy ofpatients‘ experience. 6. Nurses‘ personal perception about the disease and finally 7.Nurses‘ perception of their role through the tasks, responsibilities, clinicalcompetence, interdisciplinary collaboration and patient advocacy, and the necessity ofcontinuing education and specialization.Conclusions: Patients, their caregivers and nurses agreed that the most importantbehaviors associated first with the clinical competence of nurses followed by ensuringpatient and then by behaviors expressing respect. The findings of the qualitative studyreinforced the quantitative findings clarifying that the perception of care, perceptionsand expressed nurses‘ behaviors dare affected from the context of the provision ofcare. In addition, relationships with patients and their caregivers are created moreeasily when the nurse has demonstrated clinical competency, which is an evaluationpoint among nurses and from patients and their caregivers to nurses.


2018 ◽  
Vol 22 (4) ◽  
pp. 532-544 ◽  
Author(s):  
Sin Hui Ang ◽  
Serena Siew Lin Koh ◽  
Xiu Hua @ Hideka Tamamura Lee ◽  
Shefaly Shorey

This study aimed to explore the experiences of adolescents from Singapore, aged 10–18 years old, living with cancer and their perceptions on how their psychosocial outcomes can be improved. A descriptive qualitative study design was used. Convenience sampling was used to recruit 10 participants from a pediatric oncology ward in a Singapore hospital. Individual semi-structured interviews were conducted. Thematic analysis was used to analyze the data. Five major themes emerged: (1) experience of physical symptoms, (2) emotional response to their condition, (3) changes in social dynamics, and (4) falling behind in academics. The psychosocial outcomes of Singaporean adolescents with cancer could be improved by thorough pain assessments and creating a more conducive hospital environment.


Author(s):  
Le Meizhao ◽  
Ye Ming ◽  
Song Xiaoming ◽  
Xu Jiazhang

“Hydropic degeneration” of the hepatocytes are often found in biopsy of the liver of some kinds of viral hepatitis. Light microscopic observation, compareted with the normal hepatocytes, they are enlarged, sometimes to a marked degree when the term “balloning” degeneration is used. Their cytoplasm rarefied, and show some clearness in the peripheral cytoplasm, so, it causes a hydropic appearance, the cytoplasm around the nuclei is granulated. Up to the present, many studies belive that main ultrastructural chenges of hydropic degeneration of the hepatocytes are results of the RER cristae dilatation with degranulation and disappearance of glycogen granules.The specimens of this study are fixed with the mixed fluid of the osmium acidpotassium of ferricyanide, Epon-812 embed. We have observed 21 cases of biopsy specimens with chronic severe hepatitis and severe chronic active hepatitis, and found that the clear fields in the cytoplasm actually are a accumulating place of massive glycogen. The granules around the nuclei are converging mitochondria, endoplasm reticulum and other organelles.


Sign in / Sign up

Export Citation Format

Share Document