Experiences of adolescents living with cancer: A descriptive qualitative study

2018 ◽  
Vol 22 (4) ◽  
pp. 532-544 ◽  
Author(s):  
Sin Hui Ang ◽  
Serena Siew Lin Koh ◽  
Xiu Hua @ Hideka Tamamura Lee ◽  
Shefaly Shorey
Keyword(s):  
Qualitative Study ◽  
Emotional Response ◽  
Social Dynamics ◽  
Psychosocial Outcomes ◽  
Physical Symptoms ◽  
Hospital Environment ◽  
Structured Interviews ◽  
Convenience Sampling ◽  
Living With Cancer ◽  
Descriptive Qualitative

This study aimed to explore the experiences of adolescents from Singapore, aged 10–18 years old, living with cancer and their perceptions on how their psychosocial outcomes can be improved. A descriptive qualitative study design was used. Convenience sampling was used to recruit 10 participants from a pediatric oncology ward in a Singapore hospital. Individual semi-structured interviews were conducted. Thematic analysis was used to analyze the data. Five major themes emerged: (1) experience of physical symptoms, (2) emotional response to their condition, (3) changes in social dynamics, and (4) falling behind in academics. The psychosocial outcomes of Singaporean adolescents with cancer could be improved by thorough pain assessments and creating a more conducive hospital environment.

scholarly journals The professional resilience of mid-career General Practitioners (GPs) in the UK: a qualitative study

2021 ◽  
pp. BJGP.2021.0230
Author(s):  
Lucy Martin ◽  
Almuth McDowall
Keyword(s):  
Social Media ◽  
Qualitative Study ◽  
Thematic Analysis ◽  
Working Hours ◽  
Training Method ◽  
Structured Interviews ◽  
Common Strategy ◽  
Convenience Sampling ◽  
The Uk ◽  
Gp Training

Background: With a continued crisis of increasing workload and reduced workforce in General Practice, supporting resilience is a key strategy for sustaining the profession for the future. Aim: How do GPs perceive professional resilience and what workplace factors influence it? Design and setting: A UK based qualitative study of the perspectives of GPs currently practicing in the UK with least five years’ experience after completion of GP training. Method: Participants were recruited using convenience sampling, including social media forums and underwent semi-structured interviews (n = 27). Data were analysed using thematic analysis. Results: Participants offered definitions of and influences on resilience which largely fit with existing research but in addition may result in GPs being perceived as obstructive, or that resilience may be a ‘surface act’. GPs agree that the current focus on methods of improving resilience does help support them but there is significantly more to be done in this field. Social media activity aiming at GP support may be counterproductive. Reduction of clinical working hours is a common strategy to improve resilience. Conclusion: That GPs feel to improve resilience they need to work fewer clinical hours may have huge implications for a workforce already in crisis; and ultimately for the healthcare of the UK population. Urgent research is needed to formulate a bespoke assessment for measuring GP resilience to assess potential interventions and identify GPs at risk of mental ill-health or leaving the profession.

scholarly journals Professors’ Attitudes Toward Considering Spirituality and Spiritual Counseling and Training During Medical Education Among Medical Students: A Qualitative Study

2018 ◽  
Vol 8 (1) ◽  
pp. 74
Author(s):  
Golnaz Mazaheri Nejad Fard ◽  
Ali Asghar Asgharnejad Farid ◽  
Neda Shahvaroughi Farahani ◽  
Zeinab Ghaempanah ◽  
Mohammad Reza Pirmoradi
Keyword(s):  
Medical Education ◽  
Qualitative Study ◽  
Analysis Method ◽  
Structured Interviews ◽  
Content Analysis Method ◽  
Conventional Content Analysis ◽  
Convenience Sampling ◽  
Spiritual Counseling ◽  
Spiritual Problems ◽  
And Training

Background and aim: Spirituality is considered as one of the dimensions of health, along with physical, psychological and social health which includes an element of excellence and transcendence. However, it is unclear whether contemporary medical professors in Iran still considering this concept in their training program. This study assesses the professors' attitude toward considering spirituality and spiritual counseling and training during medical education among medical students.Materials and methods: This is a qualitative study with conventional content analysis method. 43 participants, who were main stakeholders in medical education were selected by convenience sampling. Data were collected using structured interviews from September to October 2017, which continued until data saturation.Ethical consideration: the principles of ethics and integrity in the research, citation and literature analysis were taken into consideration.Finding: Three main themes and their categories were extracted from analysis of data. The themes are (1) helping to solve the students' spiritual problems and challenges (2), Psycho-spiritual characteristics of medical student (3), training spiritual concepts.Conclusion: A majority of professors acknowledged the use of spirituality concepts in medical education. It seems that implementation of such programs requires attention to facilitating factors and challenges proposed by those involved.

scholarly journals Family Experience With Pierre Robin Sequence: A Qualitative Study

2020 ◽  
Vol 57 (6) ◽  
pp. 736-745 ◽  
Author(s):  
Jonathan R. Skirko ◽  
Sarah Hatch Pollard ◽  
Stacey Slager ◽  
Man Hung ◽  
Charlene Weir
Keyword(s):  
Qualitative Study ◽  
Well Being ◽  
Physical Symptoms ◽  
Pierre Robin Sequence ◽  
Structured Interviews ◽  
Robin Sequence ◽  
Mandibular Distraction Osteogenesis ◽  
Knowledge Competencies ◽  
Pierre Robin

Objective: To identify concepts and constructs important to parents of children with Pierre Robin Sequence (PRS). Design: Qualitative study. Setting: All children received some care at a tertiary hospital with additional care at outside facilities. Interviews were conducted in nonclinical locations, including remote locations. Participants: Parents of children <5 years old with a diagnosis of PRS. Prior treatments included observation, positioning, nasal trumpet, mandibular distraction osteogenesis, tracheostomy, and gastrostomy. Intervention: Semi-structured interviews with individuals (4) and with groups (focus groups, 4) were conducted using open-ended questions and non-leading prompts. Transcripts were analyzed with iterative open and axial coding. Concepts and constructs were identified and refined into codes and central themes. Interviews were conducted until thematic saturation was achieved. Results: Sixteen parents were interviewed. Their experiences were coded into 5 main themes, which can be summarized as: (1) child’s symptoms/well-being, (2) parents’ grief/isolation, (3) family stress, (4) relationships with providers, and (5) psychological and technical growth. Difficulty with feeding, weight gain, and breathing problems were core physical issues described by participants with associated intense fear. Participants described frustration from not only lack of care coordination, slow diagnoses, and poor communication but also gratitude for providers who served as advocates. Participants described gradual development of knowledge/competencies. Conclusions: Families of children with PRS have experiences that profoundly affect their lives. Child’s physical symptoms/well-being and parents’ psychosocial well-being provide content for a future PRS-specific quality-of-life instrument. Concepts that emerged also provide a framework to improve parents’ experience and enhance their children’s quality of care.

scholarly journals Conforto nos momentos finais da vida: a percepção da equipe multidisciplinar sobre cuidados paliativos [Comfort in the last moments of life: the multidisciplinary team's perception on palliative care] [Confort en los momentos finales de la vida: la percepción del equipo multidisciplinaria en cuidados paliativos]

2019 ◽  
Vol 27 ◽  
pp. e45135
Author(s):  
Antonio Ribeiro Silva ◽  
Thereza Maria Magalhães ◽  
Raquel Sampaio Florencio ◽  
Lorena Campos Souza ◽  
Amanda Caboclo Flor ◽  
...  
Keyword(s):  
Palliative Care ◽  
Qualitative Study ◽  
Thematic Analysis ◽  
Multidisciplinary Team ◽  
Northeastern Brazil ◽  
Care Practice ◽  
Structured Interviews ◽  
Hospital Unit ◽  
Descriptive Qualitative

Objetivo: analisar a percepção dos profissionais da equipe multidisciplinar acerca da assistência em cuidados paliativos. Método: estudo descritivo, qualitativo, desenvolvido em outubro de 2017, em hospital especializado em doenças cardiopulmonares situado em uma capital do nordeste brasileiro. O projeto do estudo foi aprovado por Comitê de Ética em Pesquisa. A amostra contou com 15 participantes da equipe multidisciplinar. Os dados foram coletados mediante entrevista semiestruturada e submetidos à análise temática. Resultados: da análise, emergiram duas categorias: conhecimento da equipe multidisciplinar sobre cuidados paliativos e a percepção da prática dos cuidados paliativos. Os profissionais possuem um conhecimento ainda incipiente sobre cuidados paliativos e suas prerrogativas, além da necessidade de um comprometimento efetivo para a qualidade desse cuidado. Conclusão: apesar de os profissionais reconhecerem a necessidade de oferecer conforto nos momentos finais da vida, o conhecimento acerca do cuidado paliativo é limitado e, por isso, eles vivenciam dilemas ao lidar com equipes, pacientes e familiares.ABSTRACTObjective: to analyze the perception of professionals of the multidisciplinary team about assistance in palliative care. Method: descriptive, qualitative study, developed in October 2017 in a hospital unit specialized in cardiopulmonary diseases located in a capital of Northeastern Brazil. The sample included 15 participants from the multidisciplinary team. Data were collected through semi-structured interviews and submitted to thematic analysis. Results: from the analysis, two categories emerged: knowledge of the multidisciplinary team on palliative care and the perception of palliative care practice. The professionals have a still incipient knowledge about what palliative care is and its prerogatives, in addition to the need for an effective commitment to the quality of this care. Conclusion: Although professionals recognize the need to offer comfort in the final moments of life, knowledge about palliative care is limited and, therefore, professionals perceive dilemmas when dealing with staff, patient and family.RESUMENObjetivo: analizar la percepción de los profesionales del equipo multidisciplinario sobre la asistencia en cuidados paliativos. Método: estudio descriptivo, cualitativo, desarrollado en octubre de 2017 en una unidad hospitalaria especializada en enfermedades cardiopulmonares ubicada en una capital del noreste de Brasil. La muestra incluyó a 15 participantes del equipo multidisciplinario. Los datos fueron recolectados a través de entrevistas semiestructuradas y sometidos a análisis temático. Resultados: del análisis surgieron dos categorías: conocimiento del equipo multidisciplinario sobre cuidados paliativos y la percepción de la práctica de cuidados paliativos. Los profesionales tienen un conocimiento aún incipiente sobre qué son los cuidados paliativos y sus prerrogativas, además de la necesidad de un compromiso efectivo con la calidad de esta atención. Conclusión: aunque los profesionales reconocen la necesidad de ofrecer comodidad en los momentos finales de la vida, el conocimiento sobre los cuidados paliativos es limitado y, por lo tanto, los profesionales perciben dilemas al tratar con el personal, el paciente y la familia.

scholarly journals Development of an eHealth programme for self-management of persistent physical symptoms: a qualitative study on user needs in general practice

2021 ◽  
Vol 22 (1) ◽  
Author(s):  
Mette Trøllund Rask ◽  
Pernille Ravn Jakobsen ◽  
Jane Clemensen ◽  
Marianne Rosendal ◽  
Lisbeth Frostholm
Keyword(s):  
General Practice ◽  
Qualitative Study ◽  
Physical Symptoms ◽  
Self Management ◽  
Structured Interviews ◽  
Patient Interviews ◽  
Mapping Strategy ◽  
Management Interventions ◽  
Self Help ◽  
Key Issues

Abstract Background Persistent physical symptoms (PPS) are estimated to be present in 17% of patients in general practice. Hence, general practitioners (GPs) play a key role in both the diagnostic assessment and the management of PPS. However, research indicates a need to improve their strategies to support self-help in patients, and eHealth tools may serve as an opportunity. This study aimed to explore patients’ and GPs’ needs related to self-management of PPS. The study was designed to inform the future development of eHealth interventions in this field. Methods This qualitative study was based on 20 semi-structured interviews (6 GPs and 14 patients with PPS). Interviews were audiotaped, transcribed verbatim and analysed through a five-step thematic analysis approach. First, we conducted an inductive analysis to identify and explore emerging subthemes. Second, using a deductive mapping strategy, we categorised the derived subthemes according to the COM-B behaviour change model and its three domains: capability, opportunity and motivation. Results We identified eleven subthemes in the patient interviews and seven subthemes in the GP interviews. Several unmet needs emerged. First, we identified a need to consider PPS early in the illness trajectory by taking a bio-psycho-social approach. Second, both patients and GPs need better skills to manage uncertainty. Third, hope is important for the patients. Fourth, patients need guidance from their GP in how to self-manage their PPS. Conclusions This study provides important insight into key issues and needs related to capability, opportunity and motivation that should be addressed in the design of future eHealth self-management interventions targeting patients with PPS in general practice in order to support and improve care.

scholarly journals Experience of healthcare workers in combatting COVID-19 in Indonesia: A descriptive qualitative study

2021 ◽  
Author(s):  
Ramadhan Tosepu ◽  
Joko Gunawan ◽  
Devi Savitri Effendy ◽  
Muhammad Rustam HN ◽  
Febriana Muchtar ◽  
...  
Keyword(s):  
Qualitative Study ◽  
Healthcare Workers ◽  
Viral Transmission ◽  
Protective Equipment ◽  
Structured Interviews ◽  
Roles And Responsibilities ◽  
Referral Hospitals ◽  
Unknown Status ◽  
The Government ◽  
Descriptive Qualitative

Background: The number of COVID-19 cases in Indonesia continues to rise. The roles and responsibilities of healthcare workers are crucial in the battle of the COVID-19.Objective: This study aimed to explore the experience of healthcare workers in combatting COVID-19 in some parts of Indonesia.Methods: This study employed a descriptive qualitative study design. Online semi-structured interviews were conducted in April 2020 among thirteen participants who were purposively selected. Data were analyzed using thematic analysis.Results: Eight themes emerged from data, including lack of personal protective equipment, lack of referral hospitals and limited facilities, dealing with patients with unknown status, feeling worried about getting infected or being a source of viral transmission, being creative, too long shift and fatigue, being surrender to God, and government issues.Conclusion: Findings of this study could be used as the input for the government, healthcare workers, and the general population in combatting COVID-19.

scholarly journals The Use of Brainstorming Strategy Among Teachers of Arabic for Speakers of Other Languages (ASOL) in Writing Classes

2018 ◽  
Vol 9 (1) ◽  
pp. 15
Author(s):  
Ibrahim ALRababah ◽  
Luqman Rababah
Keyword(s):  
Qualitative Study ◽  
Arabic Language ◽  
Clear Understanding ◽  
Research Needs ◽  
Structured Interviews ◽  
Writing Classes ◽  
Arab Region ◽  
Actual Use ◽  
Speakers Of Other Languages ◽  
Convenience Sampling

Although brainstorming strategy is not a new concept, the practice is relatively new in the Arab region, especially, in Jordan, where the old approaches are still widely used. This qualitative study examined the attitudes of Arabic language lecturers at Language Center, University of Jordan towards utilizing brainstorming in their instruction. With the help of convenience sampling, ten lecturers were selected to participate in the study. To reach a clear understanding of this issue, the study utilized a qualitative design and semi-structured interviews and observations were used as a tool to collect the data. The findings revealed that the attitudes and the actual use of brainstorming strategy by ASOL lecturers in their instruction were generally positive. A key recommendation of the study is that further research needs to be conducted into the reasons why some instructors opt not to use brainstorming strategy in their instruction.

scholarly journals Challenges to Family Caregivers in Caring for Gastric Cancer Patients from Perspectives of Family Caregivers, Patients, and Healthcare Providers: A Qualitative Study

2021 ◽  
Vol 0 ◽  
pp. 1-9
Author(s):  
Fariba Taleghani ◽  
Maryam Ehsani ◽  
Sedigheh Farzi ◽  
Saba Farzi ◽  
Peyman Adibi ◽  
...  
Keyword(s):  
Gastric Cancer ◽  
Qualitative Study ◽  
Family Caregivers ◽  
Healthcare Providers ◽  
Physical Symptoms ◽  
Bad News ◽  
Psychological Consequences ◽  
Structured Interviews ◽  
Data Saturation ◽  
Gastric Cancer Patients

Objectives: Cancer affects both patients and their families. Sometimes, the effects of cancer on families are greater than its effects on patients. Family caregivers play significant roles in car for patients with cancer. Nonetheless, the data on the challenges they face in caregiving are limited. The present study explored the perspectives of patients with gastric cancer (GC), their family caregivers, and healthcare providers regarding family caregivers’ challenges in caregiving to patients with GC. Materials and Methods: This descriptive exploratory qualitative study was conducted in 2019–2020. Six GC patients, six family caregivers, three physicians, and five nurses took part for a total of twenty participants. Purposive sampling was performed, and data were collected through semi-structured interviews and continued up to data saturation. Conventional content analysis was used for data analysis. Results: Caregivers’ challenges in caregiving to patients with GC were grouped into five main categories, namely, lengthy process of GC diagnosis, delivery of bad news, management of physical symptoms, altered relationships, and psychological consequences, and 14 subcategories. Conclusion: Educating the public about the primary symptoms of GC and the importance of timely seeking medical care as well as using culturally appropriate protocols for delivering bad news is recommended. Empowering family caregivers for the effective management of GC symptoms and caregiving-related challenges are also recommended to reduce their caregiver burden.

Topik-Topik Komunikasi Dakwah Dalam Mesej Akidah Kepada Masyarakat Orang Asli di Selangor

Sains Insani ◽  
2018 ◽  
Vol 3 (2) ◽  
pp. 15-21
Author(s):  
Zulkefli Aini ◽  
Abdul Ghafar Don ◽  
Ahmad Irdha Mokhtar ◽  
Nur Uswah Ahmad Fauzi
Keyword(s):  
Qualitative Study ◽  
Study Design ◽  
Verbal Feedback ◽  
Structured Interviews ◽  
Orang Asli ◽  
Case Study Design ◽  
Beliefs And Practice ◽  
Islamic Faith ◽  
Selection Of

One of the factors that can affect a person's behavior is a communication message. In the context of the da`wah, preachers who involved actively in da`wah communication with the Orang Asli should be able to ensure that the message conveyed can be understood by the target group. In addition, the selection of the correct messages of da`wah based on the foremost priority simplify the process of sharing information between the preachers and the Orang Asli. Accordingly, this article aims to identify specific topics of Islamic faith (akidah) submitted by the Orang Asli in the process of da`wah communication and to identify verbal feedback given by the preachers to the Orang Asli of the topics. This qualitative study using case study design and data was collected through semi-structured interviews. Interviews involving nine preachers were active in da`wah activity to the Orang Asli community in Selangor. Data were analyzed thematically according to the specified objectives. The study found that the topics frequently raised by the Orang Asli is concerned about belief in Allah, belief in Malaikat, and belief in Qada' and Qadar. The topics may be found within the framework of worldview in their beliefs and practice of ancient traditions. Therefore, the preachers gave verbal feedback on these topics is based on a clear and precise sample corresponding to the level of their thinking. The emphasis on these topics is very important to strengthen and purify the faith of the community.Keywords: Communication; Message; Preacher; Indigenous community Abstrak: Elemen mesej dalam komunikasi merupakan salah satu faktor yang dapat memberi kesan terhadap perubahan tingkah laku seseorang. Dalam konteks dakwah, pendakwah yang terlibat dalam proses komunikasi dakwah dengan Orang Asli seharusnya berkebolehan memastikan kandungan mesej yang disampaikan boleh difahami oleh sasaran dakwahnya. Di samping itu, pemilihan mesej dakwah yang betul mengikut keutamaan memudahkan proses perkongsian maklumat antara pendakwah dengan Orang Asli. Sehubungan dengan itu, artikel ini bertujuan untuk mengenalpasti topik-topik tertentu dalam mesej akidah yang dikemukakan oleh masyarakat Orang Asli kepada pendakwah dan mengenalpasti maklum balas lisan yang diberikan oleh pendakwah kepada Orang Asli terhadap topik tersebut. Kajian kualitatif ini menggunakan reka bentuk kajian kes dengan pengumpulan data melalui temu bual separa struktur. Temu bual melibatkan sembilan orang pendakwah yang aktif dalam aktiviti dakwah masyarakat Orang Asli di Selangor. Data kajian dianalisis secara tematik mengikut objektif yang ditentukan. Kajian ini mendapati bahawa topik-topik yang sering dikemukan oleh Orang Asli kepada pendakwah dalam penyampaian mesej akidah ialah berkenaan tentang keimanan kepada Allah SWT, keimanan kepada malaikat, dan keimanan kepada qada’ dan qadar. Topik-topik berkenaan didapati berada dalam kerangka worldview kepercayaan dan amalan tradisi mereka. Sehubungan dengan itu, pendakwah memberikan maklum balas lisan terhadap topik-topik tersebut adalah berdasarkan keterangan yang jelas dan contoh yang tepat bersesuaian dengan tahap pemikiran mereka. Penekanan terhadap topik-topik tersebut merupakan perkara yang penting dalam rangka mengukuhkan dan memurnikan akidah masyarakat Orang Asli.Kata kunci: Komunikasi; Mesej; Pendakwah; Komuniti Orang Asli

The Strategies and Response of Internalizing Islamic values in English Learning

2019 ◽  
Vol 2 ◽  
Author(s):  
Aswir Aswir ◽  
Hasanul Misbah
Keyword(s):  
Qualitative Study ◽  
Education Program ◽  
Role Model ◽  
English Education ◽  
Moral Values ◽  
English Learning ◽  
Preparation Process ◽  
The Impact ◽  
Islamic Values ◽  
Descriptive Qualitative

This study is aimed at describing lecturers’ strategies to internalize Islamic values and students’ response toward the strategies. This a descriptive-qualitative study. The participants were 40 students of English education program and 3 English lecturers. All participants were given questionnaire and 3 students and 3 lecturers were interviewed. The data showed that all lecturers did internalize the Islamic values such as aqidah, worship, and moral values in the English learning preparation, process, and evaluation. However, students requested that the lecturers should consistently became the role model, performed positive habit, and gave best learning service so that the impact of internalizing Islamic values would be significantly and positively received.

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