scholarly journals Culturally-Relevant Online Cancer Education Modules Empower Alaska’s Community Health Aides/Practitioners to Disseminate Cancer Information and Reduce Cancer Risk

2017 ◽  
Vol 33 (5) ◽  
pp. 1102-1109 ◽  
Author(s):  
Katie Cueva ◽  
Laura Revels ◽  
Melany Cueva ◽  
Anne P. Lanier ◽  
Mark Dignan ◽  
...  
Keyword(s):  
Cancer Risk ◽  
Community Health ◽  
Culturally Relevant ◽  
Cancer Education ◽  
Cancer Information ◽  
Community Health Aides

Culturally Relevant Online Cancer Education Supports Tribal Primary Care Providers to Reduce Their Cancer Risk and Share Information About Cancer

2021 ◽  
pp. 152483992110278
Author(s):  
Katie Cueva ◽  
Melany Cueva ◽  
Laura Revels ◽  
Michelle Hensel ◽  
Mark Dignan
Keyword(s):  
Primary Care ◽  
Cancer Risk ◽  
Culturally Relevant ◽  
Cancer Education ◽  
Primary Care Providers ◽  
Future Research ◽  
Cancer Information ◽  
Care Providers ◽  
Share Information

Background Culturally relevant education is an opportunity to reduce health disparities, and online learning is an emerging avenue for health promotion. In 2014–2019, a team based at the Alaska Native Tribal Health Consortium developed, implemented, and evaluated culturally relevant online cancer education modules with, and for, Alaska’s tribal primary care providers. The project was guided by Indigenous Ways of Knowing and the principles of community-based participatory action research and was evaluated in alignment with empowerment theory. About 265 unique learners completed 1,898 end-of-module evaluation surveys between March 2015 and August 2019, and 13 people completed a follow-up survey up to 28 months post module completion. Key Findings Learners described the modules as culturally respectful and informative and reported feeling more knowledgeable and comfortable talking about cancer as a result of the modules. About 98% of the learners planned to reduce their cancer risk because of the modules, and all follow-up survey respondents had reduced their risk, including by quitting smoking, getting screened for cancer, eating healthier, and exercising more. About 98% of the learners planned to share information with their patients, families, friends, and community members because of the modules, with all follow-up survey respondents indicating that they had shared information about cancer from the modules. Implications for Practice and Further Research Culturally relevant online modules have the capacity for positive behavioral change and relatively high correlations between intent and behavior change. Future research could determine which aspects of the modules catalyzed reduced cancer risk and increased dissemination of cancer information.

scholarly journals Assessing Knowledge and Perceptions About Cancer Among American Indians of the Zuni Pueblo, NM

2021 ◽  
Author(s):  
Safia Safi ◽  
Donica Ghahate ◽  
Jeanette Bobelu ◽  
Andrew L. Sussman ◽  
Joseph Rodman ◽  
...  
Keyword(s):  
Cancer Screening ◽  
Focus Group ◽  
Cancer Risk ◽  
Focus Groups ◽  
Community Health ◽  
American Indians ◽  
Cultural Context ◽  
Cultural Beliefs ◽  
Cancer Information ◽  
Zuni Pueblo

AbstractAmerican Indians (AIs) in New Mexico have lower cancer screening rates compared to other populations and are more likely to be diagnosed with cancer at an advanced stage of the disease as reported by Li et al. (Archives of Internal Medicine 163(1):49–56, 2003). AIs also have the lowest 5-year cancer survival rates compared to any ethnic/racial group in the USA as reported by Clegg et al. (Arch Intern Med 162:1985–1993, 2002) and Edwards et al. (Cancer 97:1407–1427, 2005). Numerous barriers such as cultural beliefs, fear, fatalism, mistrust, stigma, and lack of culturally appropriate interventions could contribute to low cancer screening rates as reported by Daley et al. (J Health Dispar Res Pract 5(2), 2012); Filippi et al. (J Prim Care Community Health 4(3):160–166, 2013); James et al. (Prev Chronic Dis 10:E170, 2013); and Schumacher et al. (Cancer Causes Control 19(7):725–737, 2008). Trained Community Health Representatives (CHRs) from the Zuni Pueblo and native Zuni undergraduate students led six 1-h focus group sessions using a structured focus group guide with probes. The focus groups were conducted among 51 participants from different age groups (20–29 years, n = 19; 30–49 years, n = 17; and 50 years and older, n = 15) stratified by sex. Focus groups were conducted in both English and Shiwi (Zuni) languages. Sessions were audio recorded, and team members took notes. CHRs transcribed the notes and audio recordings, and created a codebook for qualitative data analysis. In the focus groups, participants provided Zuni-specific cultural context, opinion, and experience regarding (1) general knowledge about cancer, (2) cancer risk, (3) cancer risk reduction, (4) personal experiences with cancer, and (5) culturally competent delivery of cancer information and resources. Understanding the perceptions of cancer within the Zuni Pueblo is an essential component in the development of interventional/preventative measures and improvement of current care. Ultimately, this information will provide a basis for the next steps in culturally sensitive cancer care for the Zuni Pueblo.

scholarly journals Promoting Culturally Respectful Cancer Education Through Digital Storytelling

2016 ◽  
Vol 11 (1) ◽  
pp. 34 ◽  
Author(s):  
Melany Cueva ◽  
Regina Kuhnley ◽  
Anne Lanier ◽  
Mark Dignan ◽  
Laura Revels ◽  
...  
Keyword(s):  
Community Health ◽  
Alaska Native ◽  
Digital Storytelling ◽  
Cancer Education ◽  
Indigenous Communities ◽  
Native People ◽  
Cancer Information ◽  
Cancer Awareness ◽  
Digital Story ◽  
Digital Stories

<p>Cancer is the leading cause of mortality among Alaska Native people. Over half of Alaska Native people live in rural communities where specially trained community members called Community Health Aides/Practitioners (CHA/Ps) provide health care. In response to CHA/Ps’ expressed desire to learn more about cancer, four 5-day cancer education and digital storytelling courses were provided in 2014. Throughout each course, participants explored cancer information, reflected on their personal experiences, and envisioned how they might apply their knowledge within their communities. Each course participant also created a personal and authentic digital story, a methodology increasingly embraced by Indigenous communities as a way to combine storytelling traditions with modern technology to promote both individual and community health. Opportunities to learn of CHA/Ps’ experiences with cancer and digital storytelling included a 3-page end-of-course written evaluation, a weekly story-showing log kept for 4 weeks post-course, a group teleconference held 1–2 weeks post-course, and a survey administered 6 months post-course. Participants described digital storytelling as a culturally respectful way to support cancer awareness and education. Participants described the process of creating digital stories as supporting knowledge acquisition, encouraging personal reflection, and sparking a desire to engage in cancer risk reduction activities for themselves and with their families and patients. As a result of creating a personalized digital story, CHA/Ps reported feeling differently about cancer, noting an increase in cancer knowledge and comfort to talk about cancer with clients and family. Indigenous digital stories have potential for broad use as a culturally appropriate health messaging tool.</p>

Cancer Education for Community Health Aides/Practitioners (CHA/Ps) in Alaska Assessing Comfort with Cancer

2005 ◽  
Vol 20 (2) ◽  
pp. 85-88 ◽  
Author(s):  
Melany Cueva ◽  
Anne Lanier ◽  
Mark Dignan ◽  
Regina Kuhnley ◽  
Crystal Jenkins
Keyword(s):  
Community Health ◽  
Cancer Education ◽  
Community Health Aides

scholarly journals Harvesting Health Knowledge: Breast Cancer Perceptions in the South Florida Latinx Farmworker Community

2021 ◽  
pp. 104973232110035
Author(s):  
Felicia Casanova ◽  
Felicia M. Knaul ◽  
Natalia M. Rodriguez
Keyword(s):  
Breast Cancer ◽  
Community Health ◽  
Health Care Services ◽  
Health Knowledge ◽  
Health Workers ◽  
Cancer Education ◽  
Breast Cancer Diagnosis ◽  
South Florida ◽  
Theory Approach ◽  
Depth Interviews

South Florida agricultural regions, home to Latinx immigrant farmworkers, report higher rates of late-stage breast cancer diagnosis than national, state, and county-level averages. We conducted a community-based qualitative study on the needs, health knowledge gaps, barriers to breast cancer screening, and the role of community health workers (CHWs) in supporting the community’s access to early detection services. We conducted three CHW focus groups (FGs) ( n = 25) and in-depth interviews ( n = 15), two FGs ( n = 18) and in-depth interviews ( n = 3) with farmworker community members, and informal interviews with cancer clinicians ( n = 7). Using a grounded theory approach, five core themes regarding the community’s barriers to accessing health care services emerged: (a) lack of information; (b) social and economic barriers; (c) cultural factors; (d) fears and mistrust; and (e) psychosocial concerns. Findings yield implications for community health practice, the potential impact of CHWs, and the production of breast cancer education to improve health equity along with the care continuum.

scholarly journals Diffusion of cancer education information through a Latino community health advisor program

2007 ◽  
Vol 45 (2-3) ◽  
pp. 135-138 ◽  
Author(s):  
Ana M. Navarro ◽  
Rema Raman ◽  
Lori J. McNicholas ◽  
Oralia Loza
Keyword(s):  
Community Health ◽  
Cancer Education ◽  
Latino Community ◽  
Community Health Advisor

scholarly journals Word on the Street

2016 ◽  
Vol 10 (5) ◽  
pp. 377-388 ◽  
Author(s):  
Elinor R. Schoenfeld ◽  
Linda E. Francis
Keyword(s):  
Prostate Cancer ◽  
Health Care ◽  
African American ◽  
Cancer Care ◽  
Cancer Education ◽  
African American Men ◽  
Community Based Participatory Research ◽  
Cancer Information ◽  
Cancer Knowledge ◽  
African American Communities

African American men face the highest rates of prostate cancer, yet with no consensus for screening and treatment, making informed health care decisions is difficult. This study aimed to identify approaches to empowering African American men as proactive participants in prostate cancer decision making using an established community–campus partnership employing elements of community-based participatory research methods. Community stakeholders with an interest in, and knowledge about, health care in two local African American communities were recruited and completed key informant interviews ( N = 39). Grounded theory coding identified common themes related to prostate cancer knowledge, beliefs, attitudes, and responses to them. Common barriers such as gender roles, fear, and fatalism were identified as barriers to work-up and treatment, and both communities’ inadequate and inaccurate prostate cancer information described as the key problem. To build on community strengths, participants said the change must come from inside these communities, not be imposed from the outside. To accomplish this, they suggested reaching men through women, connecting men to doctors they can trust, making men’s cancer education part of broader health education initiatives designed as fun and inexpensive family entertainment events, and having churches bring community members in to speak on their experiences with cancer. This study demonstrated the success of community engagement to identify not only barriers but also local strengths and facilitators to prostate cancer care in two suburban/rural African American communities. Building collaboratively on community strengths may improve prostate cancer care specifically and health care in general.

scholarly journals Malignant websites? Analyzing the quality of prostate cancer education web resources

2018 ◽  
Vol 12 (10) ◽  
Author(s):  
Kevin Kobes ◽  
Ilene B. Harris ◽  
Glenn Regehr ◽  
Ara Tekian ◽  
Paris-Ann Ingledew
Keyword(s):  
Prostate Cancer ◽  
Grade Level ◽  
Cancer Education ◽  
School Level ◽  
Cancer Information ◽  
High School Level ◽  
Web Resources ◽  
Inaccurate Information ◽  
University Level

Introduction: Prostate cancer patients are using more web resources to inform themselves about their cancer. However, patients may receive out-of-date or inaccurate information due to lack of regulation. The current study looks to systematically analyze the quality of websites accessed by patients with prostate cancer.Methods: The term “prostate cancer” was searched in Google and the metasearch engines, Yippy and Dogpile, and the top 100 hits related to patient information were compiled from over 32 million hits. A standardized tool was used to examine 100 sites with respect to attribution, currency, usability, and content.Results: Of the top 100 websites relating to prostate cancer information, only 27% identified an author, of which 16% had their credentials displayed. The majority of websites disclosed ownership (97%). Over half of the websites did not include the date of the last update and of those that did, only 66% were current within two years. According to the Flesch Kincaid grade level tool for readability, the majority (87%) of sites were found to be at a high school level, while 6% were at university level. Finally, content varied among websites; 90% of sites provided information on detection and workup and treatments, but only 14% of sites included information on prognosis.Conclusions: The reliability of websites presenting prostate cancer information is questionable. There were noted deficiencies in attribution, currency, and readability. While information on detection and treatment is well-covered, information related to prognosis is lacking.

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