726: Differential rates of consenting to share information and to participate in future genetic research: experience from a large perinatal biorepository

2012 ◽  
Vol 206 (1) ◽  
pp. S322
Author(s):  
Timothy Dye ◽  
Zoe Hammatt ◽  
Skol Watanawongskul ◽  
Tina Dean ◽  
Pamela Bullard ◽  
...  
2021 ◽  
pp. 15-30
Author(s):  
Thomas E. Schindler

This chapter reviews Esther Zimmer’s early training, as she set out on a parallel career pathway, from Neurospora to bacteria, to her future husband Joshua Lederberg. While still a junior at Hunter College, Zimmer found the best possible mentor in Bernard Ogilvie Dodge, the foremost expert in Neurospora, the new model organism of genetic research. After graduation, Dodge helped her gain further research experience at the Industrial Hygiene Research Laboratory in Bethesda, Maryland, where she worked with Alexander Hollaender, an expert in radiation biology. After two years of training in the procedures for developing X-ray and UV induced mutations, Zimmer acquired her bona fides for graduate school. She was accepted to graduate school at Stanford University because of Dodge’s association with George Beadle, who, with Edward Tatum, had developed a new paradigm for biochemical genetics: “one gene: one enzyme.” In 1946, their similar experiences in Neurospora research brought Joshua and Esther together.


Author(s):  
V. I. Przhilenskiy

The article examines the experience of legal regulation of biobanks in the Nordic countries in the context of the interaction of law and bioethics. The article analyzes the moral possibilities and legal boundaries of access to personal data by the state, society and the research community, provided that the inviolability of private life is strictly observed. On the basis of legislation of individual Nordic countries, as well as the regulatory framework of the European Union, the successes and difficulties in achieving the stated goal are discussed. The issues of opening, functioning and closing of biobanks, as well as the institutional, value and socio-cultural contexts of relevant practices are considered separately.


2021 ◽  
Author(s):  
A.N. Khanaychenko ◽  
◽  
V.E. Giragosov ◽  

This book resumes many years of research experience of the authors and their colleagues, as well as numerous European and Chinese experimental and field studies on the developmental biology and physiology of valuable commercial fish, the Black Sea kalkan (Scophthalmus maeoticus) and the Atlantic turbot (Scophthalmus maximus), closest relatives and, according to modern genetic research, presumably, one species. The history of formation of currently powerful industrial turbot aquaculture presented in this book is based on the analysis of numerous scientific and applied research on turbot mariculture and economic features of formation of its European, in particular, Spanish and Chinese clusters. Recommended for researchers – biologists and biotechnologists, university professors, students of biological and biotechnology specialties, specialists in aquaculture, fish farming, ecology, as well as for a wider range of readers, managers, economists and operators of aquaculture enterprises.


2014 ◽  
Vol 15 (1) ◽  
Author(s):  
Peter B Olaitan ◽  
Victoria Odesina ◽  
Samuel Ademola ◽  
Solomon O Fadiora ◽  
Odunayo M Oluwatosin ◽  
...  

2020 ◽  
Vol 29 (2) ◽  
pp. 206-217
Author(s):  
Jianyuan Ni ◽  
Monica L. Bellon-Harn ◽  
Jiang Zhang ◽  
Yueqing Li ◽  
Vinaya Manchaiah

Objective The objective of the study was to examine specific patterns of Twitter usage using common reference to tinnitus. Method The study used cross-sectional analysis of data generated from Twitter data. Twitter content, language, reach, users, accounts, temporal trends, and social networks were examined. Results Around 70,000 tweets were identified and analyzed from May to October 2018. Of the 100 most active Twitter accounts, organizations owned 52%, individuals owned 44%, and 4% of the accounts were unknown. Commercial/for-profit and nonprofit organizations were the most common organization account owners (i.e., 26% and 16%, respectively). Seven unique tweets were identified with a reach of over 400 Twitter users. The greatest reach exceeded 2,000 users. Temporal analysis identified retweet outliers (> 200 retweets per hour) that corresponded to a widely publicized event involving the response of a Twitter user to another user's joke. Content analysis indicated that Twitter is a platform that primarily functions to advocate, share personal experiences, or share information about management of tinnitus rather than to provide social support and build relationships. Conclusions Twitter accounts owned by organizations outnumbered individual accounts, and commercial/for-profit user accounts were the most frequently active organization account type. Analyses of social media use can be helpful in discovering issues of interest to the tinnitus community as well as determining which users and organizations are dominating social network conversations.


1999 ◽  
Vol 9 (1) ◽  
pp. 1-1

It is my pleasure to introduce this newsletter, which is the first collaborative effort between Division 1, Language Learning and Education and Division 9, Hearing and Hearing Disorders in Childhood to share information we believe affiliates from both divisions will find useful.


1995 ◽  
Vol 38 (5) ◽  
pp. 1126-1142 ◽  
Author(s):  
Jeffrey W. Gilger

This paper is an introduction to behavioral genetics for researchers and practioners in language development and disorders. The specific aims are to illustrate some essential concepts and to show how behavioral genetic research can be applied to the language sciences. Past genetic research on language-related traits has tended to focus on simple etiology (i.e., the heritability or familiality of language skills). The current state of the art, however, suggests that great promise lies in addressing more complex questions through behavioral genetic paradigms. In terms of future goals it is suggested that: (a) more behavioral genetic work of all types should be done—including replications and expansions of preliminary studies already in print; (b) work should focus on fine-grained, theory-based phenotypes with research designs that can address complex questions in language development; and (c) work in this area should utilize a variety of samples and methods (e.g., twin and family samples, heritability and segregation analyses, linkage and association tests, etc.).


2016 ◽  
Vol 1 (5) ◽  
pp. 4-12
Author(s):  
David P. Kuehn

This report highlights some of the major developments in the area of speech anatomy and physiology drawing from the author's own research experience during his years at the University of Iowa and the University of Illinois. He has benefited greatly from mentors including Professors James Curtis, Kenneth Moll, and Hughlett Morris at the University of Iowa and Professor Paul Lauterbur at the University of Illinois. Many colleagues have contributed to the author's work, especially Professors Jerald Moon at the University of Iowa, Bradley Sutton at the University of Illinois, Jamie Perry at East Carolina University, and Youkyung Bae at the Ohio State University. The strength of these researchers and their students bodes well for future advances in knowledge in this important area of speech science.


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