Reasons for Distress Among Burn Survivors at 6, 12, and 24 Months Postdischarge: A Burn Injury Model System Investigation

2018 ◽  
Vol 99 (7) ◽  
pp. 1311-1317 ◽  
Author(s):  
Shelley A. Wiechman ◽  
Kara McMullen ◽  
Gretchen J. Carrougher ◽  
Jame A. Fauerbach ◽  
Colleen M. Ryan ◽  
...  
Author(s):  
Dagmar Amtmann ◽  
Alyssa M Bamer ◽  
Kara McMullen ◽  
Karen Kowalske ◽  
Jeffrey C Schneider ◽  
...  

Abstract Pruritus is a commonly reported symptom after burn injury. Valid and reliable scales to measure itch in pediatric burn survivors are important for treatment and epidemiological studies. This study sought to develop psychometrically sound, publicly available self- and proxy-report measures of itch for use in pediatric burn survivors suitable for use in research and clinical practice. A panel of burn experts developed a definition of itch interference and a set of parallel self- and proxy-report candidate items that covered important activities affected by itch. Candidate items were evaluated in cognitive interviews with pediatric burn survivors (n = 4) and proxies (n = 2). Items were translated to Spanish and administered in both English and Spanish to a sample (N = 264) of pediatric burn survivors and/or their proxy enrolled in the Burn Model System (BMS) longitudinal database. The mean age of the pediatric sample was 13 years and average time since burn 5 years. The final itch interference measures each included 5 parallel items calibrated using a one-parameter graded response item response theory model, with a mean of 50 representing the average itch interference of the sample. Reliability of the scores is excellent between the mean and two standard deviations above. Initial analyses provide support for validity of the score. Concordance between the self- and proxy-report scores was moderate (ICC = 0.68). The results support the reliability and validity of the itch scale in children and youth with burn injury. The new BMS Pediatric Itch Interference scales are freely and publicly available at https://burndata.washington.edu/itch.


2018 ◽  
Vol 40 (1) ◽  
pp. 21-28 ◽  
Author(s):  
Gretchen J Carrougher ◽  
Kara McMullen ◽  
Samuel P Mandell ◽  
Dagmar Amtmann ◽  
Karen J Kowalske ◽  
...  

2021 ◽  
Vol 42 (Supplement_1) ◽  
pp. S9-S10
Author(s):  
Clifford C Sheckter ◽  
Gretchen J Carrougher ◽  
Mallory B Smith ◽  
Steven E Wolf ◽  
Jeffrey C Schneider ◽  
...  

Abstract Introduction Burn injuries can be life-altering events that involve intensive healthcare, changes in body image, psychological stress and financial toxicity. Burn survivors frequently experience numerous and varied barriers to returning to work. For those who return to work, little is known regarding whether they achieve pre-injury productivity (i.e., equivalent work output and/or pay). Understanding return to productivity and patients at risk of not achieving pre-injury productivity is important for targeting services that support this population and their families. Methods Burn survivors with complete occupational and personal income data through 24 months post-injury were extracted from the NIDILRR Burn Model System National Database. Participant annual income was reported in six groups: < $25k, $25k-50k, $50k-99k, $100k-149k, $150k-199k, $ >199k. Participants were classified by their change in income at each follow up (i.e., gain, loss, equivalent). Explanatory variables of interest included demographics, payer, job type, and injury characteristics. Logistic regression modeled return to productivity (i.e., equivalent or gain in income compared to pre-injury status) at each follow up interval. Results Data from 402 participants were analyzed. At 6-, 12-, and 24-months post-injury, 77%, 79%, and 71% of participants reported equivalent or gain in income, respectively. Physical and labor-based jobs were reported by 60% of participants who had return to productivity versus 63% of those who lost income. Demographics, payer, and job type were not significantly associated with differences in return to productivity. Mean %TBSA burn size was 17.4% in those who returned to productivity versus 26.1% among those who did not. Burn size ≥50% TBSA was the only predictor of decreased likelihood for return to productivity (OR 0.24, 95%CI 0.06–0.90). Post hoc comparison to participants who did not have complete financial data demonstrated that participants with complete data were significantly more likely to be older, white, have smaller burns, and carry private insurance. Conclusions Most burn survivors returned to pre-injury productivity by 24-months after injury regardless of demographics, job type, and payer status. Burn survivors who experienced ≥50% TBSA burns were much more likely to not return to pre-injury productivity.


2021 ◽  
Vol 42 (Supplement_1) ◽  
pp. S98-S98
Author(s):  
Jessica Banks ◽  
Matt Ferdock ◽  
Jennifer Nagle

Abstract Introduction Skin is not the only casualty following a burn accident. Many children suffer long term, debilitating emotional effects from their burn injury (Abdullah et al. 1994; Kornhaber et al. 2018). Armstrong-James et al. (2018) and Maslow and Lobato (2010) found that summer camps explicitly designed for burn survivor children can positively impact children’s adaptability to stares and comments and improve their sense of self-esteem. Camp Susquehanna has been a summer camp for burn survivors for the past 25+ years. When the COVID19 pandemic closed many businesses, we decided to transition our in-person camp to 100% online. Researchers demonstrated the positive effects of summer camp for burn survivors (Maslow & Lobato, 2010; Bakker et al. 2011). However, the effects of a 100% online camp are not known. Our concern was, are we able to transition and be as impactful as it is face to face at camp? What will the schedule and activities look like in this new format? How will we ensure all children participating will have access to online and the supplies necessary? Methods We opted to select a three-week format with two sessions a day divided into two age groups. We ensured every child had internet access then mailed out a “camp in the box.” It contained all the things needed for each planned activity. The critical question remained, however, will we be as impactful? The current research looks at quantitative and qualitative measures of self-esteem, happiness, and satisfaction following participation in a three-week summer program held in July 2020. We make comparisons to previous years’ results. The authors expected that self-esteem, happiness, and satisfaction levels matched or exceeded last years’ levels. Results We collected data from 42 campers and 22 volunteer camp counselors. Results show that campers were able to receive the support they needed, not only from the staff but also from their peers. Conclusions The delivery method was indeed different this year, but the positive effect on our campers remained the same.


2016 ◽  
Vol 22 (13) ◽  
pp. 1755-1766 ◽  
Author(s):  
Kirsty Garbett ◽  
Diana Harcourt ◽  
Heather Buchanan

This study uses blog analysis, a new and novel technique, to explore the positive outcomes experienced by burn survivors. This study examined 10 burn survivor blogs to offer a unique, longitudinal insight into burn survivor recovery. Using thematic analysis, three themes emerged: shift in self-perception, enhanced relationships and a change in life outlook. Many of these themes contained stories and experiences unique to a traumatic burn injury, suggesting that standardised trauma scales are not effectively measuring the impact of a burn in this population. Reflections on blog analysis are discussed, along with a recommendation that health researchers utilise the vast amount of data available from online blogs.


2018 ◽  
Vol 97 (4) ◽  
pp. 236-241 ◽  
Author(s):  
Raj G. Kumar ◽  
Zhensheng Wang ◽  
Matthew R. Kesinger ◽  
Mark Newman ◽  
Toan T. Huynh ◽  
...  

Author(s):  
Olivia R Stockly ◽  
Audrey E Wolfe ◽  
Richard Goldstein ◽  
Kimberly Roaten ◽  
Shelley Wiechman ◽  
...  

Abstract Depression and post-traumatic stress are common psychiatric comorbidities following burn injury. The purpose of this study was to develop an admission scoring system that assesses the risk of development of depression or post-traumatic symptoms in the burn population. This study is a retrospective review of the prospectively collected Burn Model System National Database. Adult burn survivors enrolled from 2014-2018 (n=486) were included. The primary outcome was the presence of depression or post-traumatic stress symptoms at 6, 12, or 24 months post-injury. Logistic regression analysis was used to identify demographic and clinical predictors of depression and post-traumatic stress symptoms. A risk scoring system was then created based on assigning point values to relevant predictor factors. The study population had a mean age of 46.5±15.8 years, mean burn size of 18.3±19.7%, and was 68.3% male. Prior to injury, 71.3% of the population was working, 47.9% were married, and 50.8% had completed more than a high school education. An 8-point risk scoring system was developed using the following predictors of depression or post-traumatic stress symptom development: gender, psychiatric treatment in the past year, graft size, head/neck graft, etiology of injury, and education level. This study is the first to develop a depression and post-traumatic stress symptom risk scoring system for burn injury. This scoring system will aid in identifying burn survivors at high risk of long-term psychiatric symptoms that may be used to improve screening, monitoring, timely diagnosis and interventions.


Sign in / Sign up

Export Citation Format

Share Document