scholarly journals Oncofertility: Preserving the Future for Children, Adolescents and Young Adults Through Patient Education and Clinical Practice

2011 ◽  
Vol 17 (2) ◽  
pp. S244
Author(s):  
N.C. Rosipal ◽  
D. Herrera Bell ◽  
A.R.K. Franklin
Keyword(s):  
Young Adults ◽  
Clinical Practice ◽  
Patient Education ◽  
Adolescents And Young Adults ◽  
The Future

Final Report of the FOPE II Pediatric Generalists of the Future Workgroup

PEDIATRICS ◽  
2000 ◽  
Vol 106 (Supplement_E1) ◽  
pp. 1199-1223 ◽  
Author(s):  
Laurel Leslie ◽  
Peter Rappo ◽  
Herbert Abelson ◽  
Renee R. Jenkins ◽  
Sydney R. Sewall ◽  
...  
Keyword(s):  
Young Adults ◽  
21St Century ◽  
Task Force ◽  
Care Delivery ◽  
Health Needs ◽  
Adolescents And Young Adults ◽  
Final Report ◽  
Pediatric Practice ◽  
Pediatric Education ◽  
The Future

The Future of Pediatric Education II (FOPE II) Project was a 3-year, grant-funded initiative, which continued the work begun by the 1978 Task Force on the Future of Pediatric Education. Its primary goal was to proactively provide direction for pediatric education for the 21st century. To achieve this goal, 5 topic-specific workgroups were formed: 1) the Pediatric Generalists of the Future Workgroup, 2) the Pediatric Specialists of the Future Workgroup, 3) the Pediatric Workforce Workgroup, 4) the Financing of Pediatric Education Workgroup, and 5) the Education of the Pediatrician Workgroup. The FOPE II Final Report was recently published as a supplement toPediatrics (The Future of Pediatric Education II: organizing pediatric education to meet the needs of infants, children, adolescents, and young adults in the 21st century.Pediatrics. 2000;105(suppl):161–212). It is also available on the project web site at: www.aap.org/profed/fope1.htm This report reflects the deliberations and recommendations of the Pediatric Generalists of the Future Workgroup of the Task Force on FOPE II. The report looks at 5 factors that have led to changes in child health needs and pediatric practice over the last 2 decades. The report then presents a vision for the role and scope of the pediatrician of the future and the core attributes, skills, and competencies pediatricians caring for infants, children, adolescents, and young adults will need in the 21st century. Pediatrics 2000;106(suppl):1199–1223;pediatrics, medical education, children, adolescents, health care delivery.

Evaluation of an Educational Whiteboard Video to Introduce Fertility Preservation to Female Adolescents and Young Adults With Cancer

2020 ◽  
Vol 16 (6) ◽  
pp. e488-e497
Author(s):  
Talia Greenspoon ◽  
Rebecca Charow ◽  
Janet Papadakos ◽  
Mahsa Samadi ◽  
Anne Marie Maloney ◽  
...  
Keyword(s):  
Young Adults ◽  
Patient Education ◽  
Best Practices ◽  
Fertility Preservation ◽  
Reading Level ◽  
Adolescents And Young Adults ◽  
Future Research ◽  
Accurate Information ◽  
Education Material ◽  
Before And After

PURPOSE: Fertility is an important issue for adolescents and young adults with cancer facing potential infertility. Egg cryopreservation options exist, but information is sometimes overwhelming. We evaluated a fertility preservation educational video and assessed patient and family knowledge and impressions at pre- and post-video timepoints. METHODS: We developed a whiteboard video to explain egg cryopreservation to patients and families. The video was evaluated on the basis of patient education best practices (readability, understandability, actionability). Participants were recruited using convenience sampling in oncology clinics. They completed questionnaires before and after watching to assess knowledge and interest. Inclusion criteria were patients age 13-39 years and minimum 1 month from diagnosis. Descriptive statistics, correlation analyses, and mean comparisons were conducted. RESULTS: The video script read at a grade 8 reading level. Average understandability and actionability scores were below the acceptable standard. We recruited 108 patients (mean age, 27 years) and 39 caregivers/partners. Patients’ knowledge about fertility preservation increased after viewing the video. Interest was high before and after, and satisfaction was high for both patients and caregivers. Participants appreciated information on process, procedure, and delivery but desired more information on logistics, including cost. CONCLUSION: A targeted patient education video about fertility preservation options can build knowledge and encourage discussions about infertility. The video can be used as a model for videos on related topics to provide accurate information in a youth-friendly medium; however, following patient education best practices for readability, understandability, and actionability may increase video effectiveness. Future research should assess how audiovisual patient education material affects patient behavior.

scholarly journals Fertility preservation in children, adolescents, and young adults with cancer: Quality of clinical practice guidelines and variations in recommendations

Cancer ◽  
2016 ◽  
Vol 122 (14) ◽  
pp. 2216-2223 ◽  
Author(s):  
Anna Font‐Gonzalez ◽  
Renée L. Mulder ◽  
Erik A.H. Loeffen ◽  
Julianne Byrne ◽  
Eline van Dulmen‐den Broeder ◽  
...  
Keyword(s):  
Young Adults ◽  
Clinical Practice ◽  
Fertility Preservation ◽  
Clinical Practice Guidelines ◽  
Practice Guidelines ◽  
Adolescents And Young Adults

scholarly journals ISPAD Clinical Practice Consensus Guidelines 2018: Glycemic control targets and glucose monitoring for children, adolescents, and young adults with diabetes

2018 ◽  
Vol 19 ◽  
pp. 105-114 ◽  
Author(s):  
Linda A. DiMeglio ◽  
Carlo L. Acerini ◽  
Ethel Codner ◽  
Maria E. Craig ◽  
Sabine E. Hofer ◽  
...  
Keyword(s):  
Young Adults ◽  
Clinical Practice ◽  
Glycemic Control ◽  
Glucose Monitoring ◽  
Adolescents And Young Adults ◽  
Consensus Guidelines

To be or not to be in the social media arena? The perspective of healthcare providers working within adolescent and young adult oncology in Switzerland

2020 ◽  
Vol 0 (0) ◽  
Author(s):  
Eva De Clercq ◽  
Michael Rost ◽  
Nicolas von der Weid ◽  
Marc Ansari ◽  
Bernice S. Elger
Keyword(s):  
Social Media ◽  
Young Adults ◽  
Clinical Practice ◽  
Focus Groups ◽  
Cancer Patients ◽  
Healthcare Professionals ◽  
Adolescents And Young Adults ◽  
Adolescent And Young Adult ◽  
Psychosocial Needs ◽  
The Social

AbstractBackgroundGiven that social media is quickly penetrating clinical practice, it is essential to explore how these technologies can be used to improve patient-centered care. This is particularly important for healthcare professionals caring for adolescents and young adults (AYA), amid whom the use of social media is nearly universal and whose medical and psychosocial needs are often underestimated by the pediatric or adult oncology settings in which they are treated.ObjectivesTo examine the perspectives of various medical professionals on the emerging role of social media in AYA oncology.MethodsThree focus groups were performed with Swiss healthcare professionals involved in the care of AYA patients with cancer. The focus groups were analyzed using thematic coding.ResultsHealthcare professionals caring for AYA cancer patients in Switzerland are reluctant to step into the social media sphere because they find it difficult to navigate professional boundaries in an unfamiliar space where different contexts collapse. Nurses and younger healthcare professionals who tend to have a more intimate relationship with AYA, often lack virtual mentorship to know how to maintain online professionalism. Adolescents and young adults cancer-related social media presence was unknown to our participants which resulted in missed occasions to inform, educate and care for this often underserved population of cancer patients.ConclusionsMore practical guidance is needed to help healthcare professionals with how to integrate social media into clinical practice. Setting up fruitful collaborations between medical institutions and existing AYA support groups online might be the best way forward.

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