Family burden and quality of life of mothers of children and adolescents with mental retardation or borderline mental capacity

2016 ◽  
Vol 33 (S1) ◽  
pp. S192-S192
Author(s):  
L. Utas Akhan

IntroductionStudies have found that the cognitive function levels of intellectually challenged children add a burden to the family and affect quality of life.ObjectivesThe purpose of this study was to determine the family burden felt by mothers of children, ages 6–16, whose mental capacity evaluation indicates an IQ of 35–79 to explore the mother's quality of life and discover the factors that yield an impact in this context.AimsThe main objective of this study therefore was to ascertain the family burden and quality of life experienced by the parents of children with mentally retarded or borderline mental capacity.MethodsThe WISC-R test was used in the research to determine the intellectual capacity of children, 6–16 years of age. The sample comprised 131 children and adolescents between the ages 6–16 with IQs in the interval of 35–79 and their mothers. The parents accompanying their children were assessed using the Family Burden Assessment Scale, the World Health Organization Quality of Life instrument and a sociodemographic questionnaire that was filled out during face-to-face interviews.ResultsThe quality of life of the mothers was found to be average. At the same time, as the IQ level of the children went up, the less the mothers felt they were under a family burden. It was seen that the mothers experienced the most difficulty in the domains of “perception of inadequacy” and “emotional burden.”ConclusionMothers with intellectually disabled children need psychosocial support. Providing all members of the family with counseling services to help them cope with the issues and responsibilities involved in the care of disabled children may make a significant difference in quality of life.Disclosure of interestThe author has not supplied his/her declaration of competing interest.

2020 ◽  
Vol In Press (In Press) ◽  
Author(s):  
Mahnaz Zarshenas ◽  
Mozhgan Sorkhenezhad ◽  
Marzieh Akbarzadeh

Background: Uterine leiomyomas are considered as a major source of complications and the most common cause of hysterectomy. Objectives: The aim of this study was to compare the quality of life in women with and without uterine leiomyoma referred to gynecology clinics of Shiraz University of Medical Sciences in 2018. Methods: In this cross-sectional study, a total of 126 patients who referred to the clinics of Shiraz University of Medical Sciences were selected and divided into equal groups according to uterine leiomyoma, 1 - 7 cm uterine leiomyoma group and non-uterine leiomyoma group by convenience sampling. The World Health Organization Quality of Life and Healthy Lifestyle questionnaires were used for data collection. Independent t-test was used to analyze the data. Results: The mean quality of life of women with uterine leiomyoma was 47.20 ± 12.41 and women without uterine leiomyoma had a significant difference (51.11 ± 11.23, t = 3.93, P = 0.041). The mean lifestyle of women with uterine leiomyoma was 114.18 ± 25.48 and women without uterine leiomyoma had 149.11 ± 23.81 (t = 4.01, P = 0.029). Conclusions: The mean score of quality of life and lifestyle were significantly different in women with and without uterine leiomyoma. Therefore, it is necessary to improve the quality of life of women by improving their lifestyle and providing psychological counseling.


2021 ◽  
Author(s):  
Sadeel Shanshal ◽  
Harith Kh. Al-Qazaz

Abstract Background: COVID-19 pandemic has negatively affected the entire world and one of its impacts was the increased level of stress and anxiety, especially among healthcare workers. Therefore, this study aims at evaluating the quality of life (QoL) and sleep quality of healthcare professionals in Iraq.Methods: This study assessed the QoL and sleep quality by using World Health Organization Quality of Life Instruments (WHOQOL-BREF) and the Insomnia Severity Index (ISI) respectively. The questionnaires were administered through an online cross-sectional survey targeted at workers in medical fields in Iraq from 1st to 20th of August 2021. Results: Three hundred medical health workers participated, and females constituted 75.3%. The two questionnaires had very good internal consistency. The highest scoring domain was the social relationships, followed by physical health. Significant difference was found in the mean scores of psychological health domain between males and females, with higher scores observed in males. The mean of the total ISI score was 11.58 ± 6.88 with a range between 0 and 27. Severe insomnia was observed in only 9.7% of the participants. A significant negative correlation (r = -0.118) was found between age and ISI scores of the participants. Significant differences were found between males and females with higher ISI mean score observed among males. Conclusion: The quality of life and sleep pattern can be impacted by COVID-19 infection with the psychological aspect of QoL being the most affected and some degrees of insomnia being observed in many participants.


2020 ◽  
Vol 4 (2) ◽  
pp. 84
Author(s):  
Muhammad Cholilurrohman Hadi ◽  
Tantut Susanto ◽  
Kholid Rosyidi Muhammad Nur

The family with special need children experience children’s dependency behavior. This situations related to parenting stress which affected parental quality of life. The objective of this study was to examine the correlation characteristic of parents and parenting stress and parental quality of life among special need children’s parents. A cross sectional study design conducted among 52 parents with special need children in School of Disabled Children in Badean Bondowoso. A self-administered questionnaire including the Alabama Parenting Questionnaire and the World Health Organization Quality of Life-BREF Indonesian version were used to assess parenting stress; and parental quality of life, respectively. Pearson Product Moment and Spearman Rank was performed to answer the objective of this study. The results showed that, there were no correlation between parenting stress and parental quality of life of special need children’s parents (p >0.05). However, length of disability correlated with parenting stress (r = 0.339; p = 0.014). Meanwhile; parent’s gender (Z = -2.089; p = 0.037), special need children’s gender (Z = -2.102; p = 0.036), and number of childrens (r = -0.297; p = 0.033) were correlated with parental quality of life. This study concluded that characteristic of parents and children with special needs correlated with parental quality of life. Therefore, adaptive parenting environment should implement to reduce parenting stress.  


Author(s):  
Jamileh Malekuti ◽  
Mojgan Mirghafourvand ◽  
Khadijeh Samadi ◽  
Fatemeh Abbasalizadeh ◽  
Laleh Khodaei

Abstract Introduction Due to the effects of hemorrhoids on physical and mental health, this study aimed to compare the effect of Myrtus communis herbal and anti-hemorrhoid ointments on symptoms of hemorrhoid and quality of life (primary outcomes) and satisfaction of the treatment and side effects (secondary outcomes). Methods This triple-blind randomized controlled trial was performed on women with grade I and II hemorrhoid referring to health centers in Tehran, Iran, in 2017. Individuals were randomly assigned to two groups of 67 people through block randomization method. The intervention group received the Myrtus communis herbal ointment and the control group received anti-hemorrhoid ointment twice a day, every 12 ± 2 h, an applicator of the drug through the rectum for 4 weeks. The Colorectal Evaluation of a Clinical Therapeutics Scale (CORECTS) was used to assess the severity of symptoms of hemorrhoid. To assess the quality of life, the World Health Organization Quality of Life questionnaire (WHOQOL-BREF) was used to measure the general quality of life of participants. This questionnaire was completed once before the start of the study, then on the fourth and the eighth week after the start of the intervention. Repeated measure ANOVA, Chi-square, Mann–Whitney U and independent t-test were used for data analysis. Results The severity of all symptoms of hemorrhoid decreased in both two group and there was no statistically significant difference between the two groups (p>0.05). However, the mean of anal itching at 4 and 8 weeks after the intervention was significantly lower in the Myrtus communis ointment group (p<0.05). There was no significant difference between groups in terms of quality of life at 4 and 8 weeks after the intervention (p>0.05). There was a significant difference between the two groups in terms of satisfaction with the drug (p=0.019) and the participants in the Myrtus communis ointment group were more satisfied with their drug use. Conclusions Myrtus communis herbal ointment was able to reduce the symptoms of hemorrhoid in the affected women. Therefore, it is likely that the use of this drug will promote the health of mothers with hemorrhoid.


2007 ◽  
Vol 1 (2) ◽  
pp. 196-202 ◽  
Author(s):  
Maria Paula Foss ◽  
Celmira Lange ◽  
José Humberto Silva Filho ◽  
Fabiana Brunini ◽  
Francisco A. Carvalho do Vale

Abstract Since the dementias lead to the need for caregivers, a Group for Dementia Caregivers (GC) was set up where the present study compared the psychosocial characteristics, quality of life and caregiver overload in a Group For Dementia Caregivers (GC) with caregivers not involved in this scheme (non-GC). Methods: 19 primary caregivers counseled by this group (GC group) was studied and compared to a group of 13 caregivers not receiving such counseling (non-GC group). The instruments used were the World Health Organization Quality of Life (WHOQOL-bref), the State-Trait Anxiety Inventory (STAI) and Caregiver Load Scale (CLS). Results: The two groups did not differ in mean age or gender (P<0.05). GC caregivers had a higher educational level, were service workers where majority were the children of patients. In the Non-CG group, the most frequent occupation was housewife, with most subjects being spouses. The WHOQOL revealed a significant difference (p<0.05) between groups in the physical, social relations and environment domains (GC>Non-GC). The STAI revealed a significant difference (p<0.05) in the Trait subscale (GC>Non-GC), but not in the State subscale. There was no significant difference in CLS. Conclusion: The GC appeared to be of benefit to its participants, with probable positive repercussions on the patients, particularly regarding their quality of life.


2021 ◽  
Vol 21 (1) ◽  
Author(s):  
Saleha Shafie ◽  
Ellaisha Samari ◽  
Anitha Jeyagurunathan ◽  
Edimansyah Abdin ◽  
Sherilyn Chang ◽  
...  

Abstract Background Patients with mental illness report lower quality of life (QoL) compared to the general population. Prior research has found several differences in clinical features and experiences of male and female patients with schizophrenia. Given these differences, it is also important to explore if there are any gender differences in terms of their QoL. This study aimed to investigate differences in QoL between and within each gender among outpatients with schizophrenia in Singapore. Methods A total of 140 outpatients were recruited through convenience sampling at the Institute of Mental Health, Singapore. QoL was measured using the brief version of World Health Organization Quality of Life (WHOQOL-BREF) which consists of four domains: physical health, psychological health, social relationships, and environment. QoL scores of males and females were compared using independent t-tests, and multiple linear regressions were used to examine sociodemographic correlates of QoL in the overall sample and within each gender. Results There was no significant difference in QoL domain scores between genders. Among males, Indian ethnicity (versus Chinese ethnicity) was positively associated with physical health (β=3.03, p=0.018) while males having Technical Education/ Diploma/ A level education (versus Degree and above) were positively associated with social relationships domain (β=2.46, p=0.047). Among females, Malay ethnicity (versus Chinese ethnicity) was positively associated with physical health (β=1.95, p=0.026) psychological health (β=3.21, p=0.001) social relationships (β=2.17, p=0.048) and environment (β=2.69, p=0.006) domains, while females who were separated/divorced (versus single) were inversely associated with psychological health (β=− 2.80, p=0.044) and social relationships domains (β=− 4.33, p=0.011). Females who had Secondary and below education (versus Degree and above) were inversely associated with social relationships (β=− 2.29, p=0.028) and environment domains (β=− 1.79, p=0.048). Conclusions The findings show the importance of treatments targeting QoL to attend to both the clinical features of the illness as well patient’s sociodemographic characteristics.


2017 ◽  
Vol 17 (2) ◽  
pp. 363-370 ◽  
Author(s):  
Yu-Yun Chang ◽  
Li-Yu Wang ◽  
Chia-Yu Liu ◽  
Tsai-Ju Chien ◽  
I-Ju Chen ◽  
...  

Objective. Numerous studies have investigated the efficacy of mindfulness meditation (MM) in managing quality of life (QoL) in cancer populations, yet only a few have studied the Asian population. The aim of this exploratory study is to evaluate the effect of a MM program on the QoL outcomes in Taiwanese cancer outpatients. Methods. Patients with various cancer diagnoses were enrolled and assigned to the MM group and usual care (UC) group. The meditation intervention consisted of 3 sessions held monthly. The outcomes of the whole intervention were measured using the World Health Organization Quality of Life (WHOQOL-BREF) instrument. Results. A total of 35 participants in the MM group and 34 in the UC group completed the study. The results showed that the postintervention scores were significantly higher than the preintervention scores in the MM group. In the UC group, there was no significant difference between preintervention and postintervention scores, except for the lower environment domain scores. There was no significant difference between the follow-up scores and postintervention scores in the MM group, indicating that improvement can be maintained for 3 months after completing the MM course. Conclusions. The present study provides preliminary outcomes of the effects on the QoL in Taiwanese cancer patients. The results suggest that MM may serve as an effective mind–body intervention for cancer patients to improve their QoL, and the benefits can persist over a 3-month follow-up period. This occurred in a diverse cancer population with various cancer diagnoses, strengthening the possibility of general use.


Author(s):  
Roy Eilat ◽  
Barak Hazor ◽  
Eli Carmeli

Abstract: Wheelchair basketball, a popular sport that allows for the inclusion of different levels of disability, has been played since 1946. It became a Paralympics sport in 1988. The aim of the study was to examine the association between quality of life (QOL) and achievement among wheelchair basketball players on a national level.Seven German players and 11 Israeli players participated in the study. The 36-Item Short Form Health Survey and the the World Health Organization Quality of Life questionnaires were used to measure QOL, and a sociodemographic questionnaire was used for individual athletic lifestyles.: Due to low compliance by several countries, only Germany and Israel were surveyed. There was no significant difference in the QOL scores between Israeli and German players. Israeli players were, on average, older than German players and had higher incomes. German players dedicated more time to the sport than Israeli players.QOL and team achievement were influenced by hours of practice and younger age, which were related to physical ability requirements for athletic performance. QOL was not contingent on income level or achievement.


Author(s):  
Susisusanti Daely ◽  
Tuti Nuraini ◽  
Dewi Gayatri ◽  
Hening Pujasari

Background: Living a life of good quality is important for everyone. This research aimed to get an overview of the quality of life (QOL) of the elderly in an elderly social institution in Jakarta, Indonesia.Design and Methods: This descriptive study with a cross-sectional design included 107 participants using simple random sampling technique. Data were collected using an abbreviated World Health Organization Quality of Life (WHOQOL-BREF) and analyzed using statistical software, Mann Whitney and Kruskal Wallis test.Results: The mean quality of life of the elderly’s was 66.09 (scale: 0–100), with a mean QOL of 67.58 in the physical domain, 66.26 in the psychological domain, 64.64 in the social relationships domain, and 65.88 in the environment domain. Regarding age and marital status, there was a significant difference in the mean QOL of the elderly living in the elderly social institution (p = .017 and .001). In contrast, there was no significant difference in their mean QOL in terms of gender, level of education, and length of stay (p = .323, .164, and .697).Conclusion: The low quality of life of the elderly is our concern. The staff in the elderly social institution could develop some activities for the elderly to increase the elderly’s QOL, such as making daily activities plans and the evaluation of those activities.  


2021 ◽  
Vol In Press (In Press) ◽  
Author(s):  
Fatemeh Bagheri ◽  
Azar Nematollahi ◽  
Mehrab Sayadi ◽  
Marzieh Akbarzadeh

Background: Infertility, as an individual and social problem, affects couples’ quality of life and family functioning, job relationships, sexual skills, and marital satisfaction. Objectives: The present study aimed to investigate the relationship between infertility and the quality of life in fertile and infertile women. Methods: In this cross-sectional study with a convenience purposive sampling method, 220 eligible women (110 fertile and 110 infertile) admitted to Shiraz’s healthcare centers were selected. Data collection was conducted using a demographic information questionnaire and the World Health Organization Quality of Life questionnaire. Results: In this study, a total of 220 fertile and infertile women were studied. Our findings showed that the quality of life WHOQOL-BREF score was higher in the fertile group (72.21 ± 12.74) than in the infertile group (69.86 ± 12.58), although not significant. However, the physical area of the quality of life was significantly higher in the fertile group (17.55 ± 3.62) than in the infertile group (16.57 ± 3.55) (P = 0.04). There was no statistically significant difference between the groups concerning other quality of life areas (P > 0.05). Conclusions: The results showed that infertility could reduce the quality of life of infertile women in all areas, and this reduction was significant in the physical area. It appears that infertility diagnostic and therapeutic interventions can affect the quality of life of women in the physical area. Further research is recommended in this field.


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