P2-565: SOCIAL MEDIA IS EFFECTIVE TO RECRUIT DEMENTIA FAMILY CAREGIVERS FOR ONLINE DAILY DIARY RESEARCH

2006 ◽  
Vol 14 (7S_Part_17) ◽  
pp. P952-P953
Author(s):  
Carolyn E. Pickering ◽  
Maria Yefimova
2020 ◽  
pp. 073346482097924
Author(s):  
Molly A. Mather ◽  
Holly B. Laws ◽  
Jasmine S. Dixon ◽  
Rebecca E. Ready ◽  
Anna M. Akerstedt

Poor sleep in persons with Alzheimer’s disease (AD) is a common stressor for family caregivers. Retrospective reports support associations between sleep disturbance in persons with AD and worse caregiver mood; however, prospective associations between sleep in persons with AD and caregiver outcomes have not been studied. The current study determined associations between affect and sleep of persons with AD and their caregivers using daily diary data. Multilevel mediation models indicated that sleep in persons with AD is linked to caregiver affect; furthermore, these associations are mediated by sleep characteristics in caregivers and affect in persons with AD. Daily fluctuations in sleep behaviors in persons with AD—rather than average values—were most strongly associated with caregiver outcomes. Interventions to improve sleep in persons with AD may decrease their negative affect and improve caregiver mood.


2020 ◽  
Vol 4 (Supplement_1) ◽  
pp. 355-356
Author(s):  
Koji Abe

Abstract Purpose: Recent studies report daily fluctuations in stress among family caregivers of older individuals with dementia. Several studies focused on daily stressors or behavioral and psychological symptoms of dementia and use of adult day services. Most previous studies on daily fluctuations of caregivers’ stress have used a daily diary approach. This approach involves creating multiple daily reports, making it possible to examine between-person differences and within-person processes of change. However, only few studies used this approach for family caregivers in Asian countries. Therefore, this study examines the applicability of a daily diary approach for Japanese family caregivers and the effects of formal care services on their stress and depression. Methods: Participants were 13 family caregivers of individuals with dementia using formal care services in a rural area in Japan. They were assessed through self-administered questionnaires including use or nonuse of formal care services, caregiving stressors (DASC-8), depressive symptoms (K-6), and caregiving stress for 7 days. Generalized linear mixed models (GLMM) with data nested within persons were used to examine the effects of formal services on stress and depression. Results: For the GLMM procedure, this study used caregiving stressors and stress variables as fixed effects and participants as random effects. Results indicated that use of formal services significantly lowered caregivers’ stress and depression. Conclusion: The findings demonstrate the applicability of a daily diary approach and the effectiveness of formal services on the stress of Japanese family caregivers.


2021 ◽  
pp. 1-10
Author(s):  
Robyn Vanherle ◽  
Sebastian Kurten ◽  
Robin Achterhof ◽  
Inez Myin-Germeys ◽  
Kathleen Beullens

2019 ◽  
Author(s):  
Dana Hansen ◽  
Amy Petrinec ◽  
Mona Hebeshy ◽  
Denice Sheehan ◽  
Barbara L Drew

BACKGROUND Successful recruitment of participants is imperative to a rigorous study, and recruitment challenges are not new to researchers. Many researchers have used social media successfully to recruit study participants. However, challenges remain for effective online social media recruitment for some populations. OBJECTIVE Using a multistep approach that included a focus group and Delphi method, researchers performed this study to gain expert advice regarding material development for social media recruitment and to test the recruitment material with the target population. METHODS In the first phase, we conducted a focus group with 5 social media experts to identify critical elements for effective social media recruitment material. Utilizing the Delphi method with 5 family caregivers, we conducted the second phase to reach consensus regarding effective recruitment videos. RESULTS Phase I utilized a focus group that resulted in identification of three barriers related to social media recruitment, including lack of staff and resources, issues with restrictive algorithms, and not standing out in the crowd. Phase II used the Delphi method. At the completion of Delphi Round 1, 5 Delphi participants received a summary of the analysis for feedback and agreement with our summary. Using data and recommendations from Round 1, researchers created two new recruitment videos with additions to improve trustworthiness and transparency, such as the university’s logo. In Round 2 of the Delphi method, consensus regarding the quality and trustworthiness of the recruitment videos reached 100%. CONCLUSIONS One of the primary challenges for family caregiver research is recruitment. Despite the broad adoption of social media marketing approaches, the effectiveness of online recruitment strategies needs further investigation.


2018 ◽  
Author(s):  
Shevaun D. Neupert ◽  
Jennifer A. Bellingtier
Keyword(s):  

2019 ◽  
Vol 3 (Supplement_1) ◽  
pp. S592-S592
Author(s):  
Glenna Brewster ◽  
Fayron Epps ◽  
Rachel Nash ◽  
Patricia Griffiths ◽  
Janice Phillips ◽  
...  

Abstract Responsibilities of caregiving for persons living with dementia make it challenging to participate in in-person research studies. Caregivers may be more willing to participate in studies that are online. This presentation will highlight recruitment strategies of a 4-site telehealth caregiver intervention for caregivers of persons living with dementia. Thus far, we have recruited 596 participants over the period of 2 years: 76, 189, 164 and 167 from each of the sites, respectively. Community partnership strategies such as presentations at churches and events organized by the Alzheimer’s Association, and the Alzheimer’s Disease Research centers, using a handshake protocol, and using social media sites such as Facebook and Twitter have all been effective at recruiting participants. Ongoing communication among the staff at different sites is also an important aspect of successful recruitment. These strategies have enabled recruitment to continue at a consistent rate and enabled the maintenance of relationships within the community.


Author(s):  
Jason Isaacs ◽  
Sean MacKinnon ◽  
Kayla Joyce ◽  
Sherry Stewart

BACKGROUND: Daily diary measurements are a common way to assess substance use behaviours, however researchers and clinicians are often cognizant of assessment reactivity (or “reactivity”) in daily substance use measurement. Reactivity involves changes to behaviours that result simply from self-monitoring those behaviours. When reactivity to substance use measurement has been found to exist, it has been identified both as a possible confound in daily diary research and a potential intervention tool in clinical practice. Reactivity to daily self-monitoring of alcohol and tobacco use has been investigated in prior research, however this research has been inconsistent. Reactivity to daily self-monitoring of cannabis use quantity has yet to be documented at all. METHOD: The current study involved secondary analyses of data from N=88 women who self-monitored their cannabis use for 32 consecutive days (Joyce et al., under review). We examined objective reactivity of cannabis use to daily self-monitoring both for the probability of use each day as well as the quantity of cannabis used on each cannabis-using day. At study completion, participants were asked the degree to which they felt self-monitoring impacted their cannabis use (i.e., subjective reactivity). We explored the reported degree of subjective reactivity, and we examined correspondence between objective and subjective reactivity. RESULTS: Hurdle models were the best fit for the data. Participants’ probability of daily cannabis use and the quantity of cannabis use did not change significantly over the study period. For subjective reactivity, many respondents (45%) reported no subjective reactivity, though a majority (55%) reported some degree of subjective reactivity with 24% reporting moderate or more reactivity. A three-step hierarchical linear model was used to investigate the relationship between objective and subjective reactivity. Time was the only predictor in the first step, subjective reactivity was added as a predictor in the second step, and the time x subjective reactivity interaction was explored in the final step. Subjective reactivity was not found to moderate the relationship between time and cannabis use, although there was a significant relationship between self-reported subjective reactivity and variability of cannabis use across the data collection period. CONCLUSIONS: This study determined that participants who report greater subjective reactivity to cannabis measurement are more likely to demonstrate variability in their cannabis usage. While this study did not find a significant change in cannabis scores over time because of reactivity, the non-significant results are valuable from both a research and a clinical standpoint. For research, the lack of change is an indicator that reactivity is likely not a confounding factor in studies involving cannabis daily diary research. From a clinical perspective, the non-significant change indicates that simply self-monitoring cannabis is unlikely to provide standalone benefits when daily self-monitoring is used in clinical practice. It is relevant to note that our study involved a non-help-seeking sample, and future research could benefit from determining whether cannabis reactivity may be moderated by help-seeking behaviours or motivations to change.


2019 ◽  
Vol 12 (1) ◽  
pp. 387-405 ◽  
Author(s):  
A. Jattamart ◽  
A. Leelasantitham

Background: The World Health Organisation (WHO) predicts that depression will be the second leading cause of diseases by 2020. If depression is not properly treated, it can develop into a depressive disorder and increase the risk of suicide.Besides biopsychosocial factors, lifestyle is said to be a major cause of this disease and has led to an increase in its prevalence. Objective: The objective of this study was to study the intentions of patients with major depressive disorders and family caregivers to change their health behaviour and lifestyle through social media influences. Methods: This was a cross-sectional study. Participants were invited to take part in the research and give their informed consent. The sample consisted of 157 patients diagnosed with major depressive disorders, aged 18 years and over, and 110 family caregivers. Data were collected from the questionnaires designed according to the I-Change Model (ICM). Statistical results to confirm causal relationships were analysed based on Structural Equation Modelling (SEM) and by using the SmartPLS 3 software. Results: Patients and family caregivers were questioned about their perspectives on health matters and the influence on their motivations and intentions to change patients’ health behaviour and lifestyle, particularly social media interventions. The patients received information and counselling about health matters, health awareness, motivation and their intentions to change their health behaviour. The family caregivers were presented with the same information and counselling to motivate them to influence the depressive patients’ intentions to change their health behaviour. Conclusion: It is possible that lifestyle interventions on social media can influence the intention to change health behaviour in both patients and caregivers. However, if the patient lacks interest in participating in the treatment and does not have a good relationship with the clinician or provide relevant information to the experts; this can be an obstacle to changing their health behaviour. Therefore, future research should be conducted to ascertain which interventions are appropriate for patients and to study the long-term effects of any risks from using social media in patients with major depressive disorders.


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