Home monitoring for cystic fibrosis: The future is now

2021 ◽  
Author(s):  
Catharina C. Moor
Keyword(s):  
Cystic Fibrosis ◽  
Home Monitoring ◽  
The Future

scholarly journals Publisher Correction: Early detection of pulmonary exacerbations in children with Cystic Fibrosis by electronic home monitoring of symptoms and lung function

2018 ◽  
Vol 8 (1) ◽  
Author(s):  
Marieke van Horck ◽  
Bjorn Winkens ◽  
Geertjan Wesseling ◽  
Dillys van Vliet ◽  
Kim van de Kant ◽  
...  
Keyword(s):  
Cystic Fibrosis ◽  
Lung Function ◽  
Early Detection ◽  
Home Monitoring ◽  
Pulmonary Exacerbations

scholarly journals The Implications of Cardiovascular Home Monitoring Rehabilitation - Mobile Applications as Optimum Solutions for the Future

2015 ◽  
Vol 11 (5) ◽  
pp. 38
Author(s):  
Mihaela Raileanu ◽  
Stefan Busnatu ◽  
Crina Sinescu
Keyword(s):  
Secondary Prevention ◽  
Medical Devices ◽  
Mobile Applications ◽  
Home Monitoring ◽  
Future Internet ◽  
Point Of View ◽  
Telemedicine System ◽  
Life Style Changes ◽  
The Future ◽  
Vital Parameters

This paper examines the home monitoring system used in our Department of Cardiology in the Future Internet Social Technological Alignment in Healthcare (FI-STAR) project - a project focused on secondary prevention in cardiology (www.fi-star.eu). The system used is composed of bluetooth capable medical devices that collect vital parameters though CardioStar application (an application that was developed in collaboration with computer engineers. The collected data are transmitted in real time to a central server in our hospital, where there is a continuous supervision of the parameters. We evaluated this system in order to prove its use in reducing the cardiovascular risk and increasing the adherence to the life-style changes. This paper presents the analysis of the MAST (Model for Assessment of Telemedicine) evaluation - which is the best way of evaluation for the telemedicine solutions - from the professional point of view. The questionnaires of evaluation were performed anonymous on a online platform. The application passed successfully the MAST evaluation, demonstrating that the developed telemedicine system designed for our cardiac patients fulfills its purpose in the secondary prevention.

scholarly journals Using digital technology for home monitoring, adherence and self-management in cystic fibrosis: a state-of-the-art review

Thorax ◽  
2019 ◽  
Vol 75 (1) ◽  
pp. 72-77 ◽  
Author(s):  
Rebecca Jane Calthorpe ◽  
Sherie Smith ◽  
Katie Gathercole ◽  
Alan Robert Smyth
Keyword(s):  
Cystic Fibrosis ◽  
Digital Technology ◽  
State Of The Art ◽  
Digital Health ◽  
Home Monitoring ◽  
Global Strategy ◽  
Healthcare Sector ◽  
Self Management ◽  
Comprehensive Overview ◽  
Treatment Regimens

Digital healthcare is a rapidly growing healthcare sector. Its importance has been recognised at both national and international level, with the WHO recently publishing its first global strategy for digital health. The use of digital technology within cystic fibrosis (CF) has also increased. CF is a chronic, life-limiting condition, in which the treatment burden is high and treatment regimens are not static. Digital technologies present an opportunity to support the lives of people with CF. We included 59 articles and protocols in this state-of-the-art review, relating to 48 studies from 1999 until 2019. This provides a comprehensive overview of the expansion and evolution of the use of digital technology. Technology has been used with the aim of increasing accessibility to healthcare, earlier detection of pulmonary exacerbations and objective electronic adherence monitoring. It may also be used to promote adherence and self-management through education, treatment management Apps and social media.

Telehealth spirometry for children with cystic fibrosis

2019 ◽  
Vol 105 (12) ◽  
pp. 1203-1205
Author(s):  
Karla Logie ◽  
Liam Welsh ◽  
Sarath C Ranganathan
Keyword(s):  
Cystic Fibrosis ◽  
Home Monitoring ◽  
American Thoracic Society ◽  
Computer Hardware ◽  
Hospital Visit ◽  
European Respiratory Society ◽  
Time Saving ◽  
Median Distance ◽  
Home Based ◽  
The Family

AimWe assessed the feasibility of telehealth spirometry assessments for children with cystic fibrosis (CF) living in a regional setting.MethodPatients with acceptable computer hardware at home were provided with a SpiroUSB (Vyaire) spirometer. Spirometry was performed during ‘home admissions’ or for ongoing home monitoring in children living outside metropolitan Melbourne. At the end of the session, the family forwarded the data to the Royal Children’s Hospital, Melbourne.ResultsTwenty-two patients aged 7 to 17 years participated, with spirometry successful in 55 of 59 (93%) attempted sessions according to American Thoracic Society/European Respiratory Society criteria. The median distance between the subject’s home and the hospital was 238 km (range 62–537 km) which equated to a travel time saving of 5 hours and 34 min per hospital visit.ConclusionHome-based telehealth spirometry is feasible in children with CF and can support the CF team during home-based admissions and for ongoing outpatient monitoring.

Cystic Fibrosis: New Insights into Therapeutic Approaches

2020 ◽  
Vol 15 (3) ◽  
pp. 174-186
Author(s):  
Antonella Tosco ◽  
Valeria R. Villella ◽  
Valeria Raia ◽  
Guido Kroemer ◽  
Luigi Maiuri
Keyword(s):  
Cystic Fibrosis ◽  
Gene Editing ◽  
New Technologies ◽  
Therapeutic Approaches ◽  
Basic Defect ◽  
Recent Advances ◽  
The Future ◽  
Cftr Protein

Since the identification of Cystic Fibrosis (CF) as a disease in 1938 until 2012, only therapies to treat symptoms rather than etiological therapies have been used to treat the disease. Over the last few years, new technologies have been developed, and gene editing strategies are now moving toward a one-time cure. This review will summarize recent advances in etiological therapies that target the basic defect in the CF Transmembrane Receptor (CFTR), the protein that is mutated in CF. We will discuss how newly identified compounds can directly target mutated CFTR to improve its function. Moreover, we will discuss how proteostasis regulators can modify the environment in which the mutant CFTR protein is synthesized and decayed, thus restoring CFTR function. The future of CF therapies lies in combinatory therapies that may be personalized for each CF patient.

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