scholarly journals Expanding the critique of the social motivation theory of autism with participatory and developmental research

2019 ◽  
Vol 42 ◽  
Author(s):  
Steven K. Kapp ◽  
Emily Goldknopf ◽  
Patricia J. Brooks ◽  
Bella Kofner ◽  
Maruf Hossain

AbstractWe argue that understanding of autism can be strengthened by increasing involvement of autistic individuals as researchers and by exploring cascading impacts of early sensory, perceptual, attentional, and motor atypicalities on social and communicative developmental trajectories. Participatory action research that includes diverse participants or researchers may help combat stigma while expanding research foci to better address autistic people's needs.

2021 ◽  
Vol 16 (3-2020) ◽  
pp. 267-278
Author(s):  
de Castro Pitano Sandro ◽  
Rosa Elena Noal ◽  
Cheron Zanini Moretti

The seventh conference of the Action Research Network of the Americas (ARNA) took place in Montreal, Canada, from the 26th to 28th of June, in 2019. Having as title “Repoliticising Participatory/Action Research: From Action Research to Activism”, the event gathered people from different areas of practice coming mostly from the North American countries: Canada, United States and Mexico. The discussion presented here is based on notes made by the authors in the course of the conference, in which 40 words/keywords were identified, serving as a base to debate the validity of the principles of participatory research and action research in its repoliticisation and activism. Thus, we presented a systematisation of some key themes of the conference, among them, the commitment with the rupture: in relation to the traditional practices of research, the role and the social responsibility of the universities and the transforming character of participation, with emphasis in the effort for its repoliticisation and activism.


2020 ◽  
Vol 10 (1) ◽  
pp. 78-89 ◽  
Author(s):  
Maria Liegghio

While globally advances have been made to recognize children as social actors in their own right, for psychiatrized young people their experiences of distress are often seen as a limitation and thus used as a justification for denying their meaningful participation in matters of concern to their lives. However, what would it mean if ‘mental illness’ was not seen as a ‘limitation’, but rather as an ‘epistemological position’ from which the social world is experienced, understood and acted upon? What would it mean if our theories about ‘distress’ and ‘helping’ were premised on the subjugated knowledges of psychiatrized children and youth? The consumer/survivor-led research movement has made significant gains in answering these questions for the adult, but not necessarily for the child and youth mental health field. The purpose of this article is to critically examine the significance of psychiatrized young people setting and executing their own research and, ultimately, practice agendas. Presented are the outcomes of an evaluation of a participatory action research project examining the stigma of mental illness conducted with seven psychiatrized youth, 14 to 17 years old. The outcomes suggest our roles as practitioners and researchers need to shift from being ‘agents’ working on behalf of to ‘allies’ working in solidarity with young people to change the social conditions of their marginalization. The article concludes with the limits of consumer/survivor-led research for addressing adultism and, instead, ends with a call for decolonizing children’s mental health.


2019 ◽  
Vol 19 (2) ◽  
pp. 205
Author(s):  
Moh Yusup Saepuloh Jamal ◽  
Muhamad Dani Somantri ◽  
Cecep Moch. Ramli Al-Fauzi

<p>Mosque has a pivotal role in the process of Da’wah for Muslim, including  al-Barokah Mosqu, Guranteng, Tasikmalaya. This transformative research aims at transforming people's perception in understanding the substance of the role and function of mosques and optimizing the potential of the mosque to its fullest. This Participatory Action Research model links the social change process through three-area of empowerment : Community commitment, local leader, and institutional based needs. The results of the study gained action of change: Seeking the transformation of community paradigms on understanding the substance role of the mosque through several actions: FGD for restructuring DKM Management, strengthening DKM and DKM management training. Meanwhile, the second stage is to optimize the potential of the culture by implementing the mosque empowerment based on local culture, such as the training of Friday's cermon, corpes-handling management, Ziswaf Manager, reading <em>Marhabaan</em>, forming youth-mosque-managers, as well as assistance by other potential-based empowerment activities.</p><p> </p><p>Secara substansi masjid mempunyai peran sentral yang sangat penting terhadap laju perjalanan dakwah umat Islam. Peran sentral masjid kenyataannya tidak berbanding lurus dengan keberadaan masjid al-Barokah daerah ujung utara Kabupaten Tasikmalaya. Penelitian transformatif ini bertujuan untuk mentransformasi persepsi masyarakat dalam memahami substansi peran dan fungsi masjid dan mengoptimalisasikan potensi masjid secara maksimal. Penelitian ini menggunakan model <em>participatory action research</em> yang menghubungkan proses perubahan sosial melalui tiga pemberdayaan: komitmen masyarakat, <em>local leader</em>, dan institusi berdasarkan kebutuhan. Dari hasil penelitian diperoleh aksi perubahan:  mengupayakan transformasi paradigma masyarakat terhadap pemahaman substansi peranan fungsi masjid yang diupayakan melalui beberapa <em>action</em>: refleksi FGD merestrukturisasi pengurus DKM, pengukuhan pengurus DKM; dan pelatihan manajemen DKM.Sementara tahap kedua melakukan langkah optimalisasi terhadap potensi yang dimiliki dengan menerapkan pemberdayaan masjid berbasis lokalitas budaya, seperti pelatihan khutbah Jum’at, pengurusan jenazah, pengelola Ziswaf, membaca <em>marhabaan</em>, pembentukan pengurus remaja/pemuda masjid, serta dampingan kegiatan pemberdayaan lainnya berbasis potensi.</p>


Author(s):  
Katie Richards-Schuster

This article reviews 'Revolutionizing education', a deeply reflective and retrospective book of scholarship on critical questions about youth participatory action research. The book contains a series of case study chapters that examine how youth participatory action research transforms young people and the social contexts in which they live as well as the learnings and implications yielded from this research. The book examines youth participatory action research both for its radical and revolutionary challenge to 'traditional research' practices but also for its active focus on research as a vehicle for increasing critical consciousness, developing knowledge for 'resistance and transformation' and for creating social change. It represents an important contribution to the field of youth participatory action research and community-based research.


Sosio Informa ◽  
2005 ◽  
Vol 10 (2) ◽  
Author(s):  
Mu'man Nuryana

Sebuah Kerangka Kerja bagi Action Research dalam Pengembangan Komunitas dan Pendidikan Populer - This paper helps to elaborate about how researchers, teachers and educational advisors balance their different roles in participatory action research teams. Through explaining the Participatory Action Research (PAR) as a way of building bridges and making connections between people, this method of doing research depicted a process that seeks to develop a practical knowledge and understanding of social, political, environmental, or economical conditions. By using PAR on of research and development, we can recognize our social relationships and the value of our real experiences and personal thoughts and feelings. Moreover, PAR seeks to link the research process to the process of social change; it recognizes the change process as a researchable topic; it brings the research process full circle with people's interests in finding practical solutions for common problems and issues of concern by uniting action and reflection, theory and practice; it involves doing research to define a problem as well as applying the information in action towards solutions to identified problems; it is research conducted by, with and for people, rather than research on people; it is participatory in that it is a necessary condition that people play key roles in and have relevant information about the social system, or community, under study, and that they participate in the research design and implementation of action plans based on research outcomes.


2017 ◽  
Vol 18 (3) ◽  
pp. 257-272 ◽  
Author(s):  
Travis SK Kong

This article examines how a research project transformed into participatory action research (PAR) whose outcome was a self-help group for older (60+) gay men in Hong Kong. The overall process witnessed a change in the level of participation by both the researcher and researched, as well as the social transformation of the participants and production of knowledge on Chinese homosexuality. Most importantly, the morph into PAR can be seen as a process whereby the participants took control and felt empowered. By bridging the gap between queer studies and PAR, this research rethinks three power issues embedded in the research process: the power relation between researcher and researched, that between participants and the major form of oppression in queer lives, i.e. heteronormativity, and the knowledge–power relation in the formulation of Chinese homosexuality.


Author(s):  
Mervi Kaukko ◽  
Michael Fertig

This article focuses on the practical, ontological, and epistemological similarities and differences between global education and participatory action research (PAR). The paper starts by presenting classical definitions of action research, highlighting their similarities with the ideas of global education. Considering the aim of global education is to promote social justice and to improve the social and educational chances of groups at risk of marginalization, participatory methods can help to involve such groups in research in an ethical and effective way. The paper ends with two examples in formal and non-formal education that show that PAR can be used to address the underlying transformative and social action principles of global education, but the principles must be adjusted to meet the needs of the participants and the context.


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