scholarly journals A different story: exploring patterns of communication in residential dementia care

2008 ◽  
Vol 28 (5) ◽  
pp. 629-651 ◽  
Author(s):  
RICHARD WARD ◽  
ANTONY A. VASS ◽  
NEERU AGGARWAL ◽  
CYDONIE GARFIELD ◽  
BEAU CYBYK
Keyword(s):  
Dementia Care ◽  
Care Homes ◽  
Care Practice ◽  
People With Dementia ◽  
Effective Care ◽  
Care Workers ◽  
Key Skills ◽  
Constituent Elements ◽  
Provision Of Care

ABSTRACTThis article reports findings from a three-year project on ‘Communication patterns and their consequences for effective care’ that explored communication in dementia-care settings. As the proportion of people with dementia living in British care-homes continues to grow, there is a need to understand better their care. Using a range of qualitative methods, the project set out to identify the constituent elements of dementia-care practice and the patterns that characterise day-to-day relations in care homes. The tightly prescribed and standardised nature of the interactions between staff and residents is described: it raises questions about the capacity for dementia care to be truly person-centred. The project found that people with dementia are both capable of communication, and invest much effort in seeking to engage those around them, but are excluded from the monitoring, planning and provision of care in ways that we argue are discriminatory. The case is made for promoting and supporting communication as key skills and competencies for care workers. The value of measuring the level and quality of communication as a means to evaluate care is demonstrated. The authors question the priorities that currently guide care practice and argue that we need to listen to people with dementia and rethink what lies at the heart of dementia care.

scholarly journals Dementia Care Mapping in long-term care settings: a systematic review of the evidence

2017 ◽  
Vol 29 (10) ◽  
pp. 1609-1618 ◽  
Author(s):  
Ana Barbosa ◽  
Kathryn Lord ◽  
Alan Blighe ◽  
Gail Mountain
Keyword(s):  
Systematic Review ◽  
Neuropsychiatric Symptoms ◽  
Dementia Care ◽  
Future Research ◽  
Term Care ◽  
People With Dementia ◽  
Care Workers ◽  
Care Mapping ◽  
Dementia Care Mapping

ABSTRACTBackground:This systematic review identifies and reports the extent and nature of evidence to support the use of Dementia Care Mapping as an intervention in care settings.Methods:The review was limited to studies that used Dementia Care Mapping as an intervention and included outcomes involving either care workers and/or people living with dementia. Searches were conducted in PubMed, Web of Knowledge, CINAHL, PsychINFO, EBSCO, and Scopus and manually from identified articles reference lists. Studies published up to January 2017 were included. Initial screening of identified papers was based on abstracts read by one author; full-text papers were further evaluated by a second author. The quality of the identified papers was assessed independently by two authors using the Cochrane Risk of Bias Tool. A narrative synthesis of quantitative findings was conducted.Results:We identified six papers fulfilling predefined criteria. Studies consist of recent, large scale, good quality trials that had some positive impacts upon care workers’ stress and burnout and benefit people with dementia in terms of agitated behaviors, neuropsychiatric symptoms, falls, and quality of life.Conclusion:Available research provides preliminary evidence that Dementia Care Mapping may benefit care workers and people living with dementia in care settings. Future research should build on the successful studies to date and use other outcomes to better understand the benefits of this intervention.

Systematic review of the effectiveness of non-pharmacological interventions to improve quality of life of people with dementia

2012 ◽  
Vol 24 (6) ◽  
pp. 856-870 ◽  
Author(s):  
Claudia Cooper ◽  
Naaheed Mukadam ◽  
Cornelius Katona ◽  
Constantine G. Lyketsos ◽  
David Ames ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Coping Strategy ◽  
Cognitive Stimulation ◽  
Care Homes ◽  
Improve Quality ◽  
Family Carer ◽  
Pharmacological Interventions ◽  
People With Dementia ◽  
At Home

ABSTRACTBackground: People with dementia report lower quality of life, but we know little about what interventions might improve it.Methods: We systematically reviewed 20 randomized controlled trials reporting the effectiveness of non-pharmacological interventions in improving quality of life or well-being of people with dementia meeting predetermined criteria. We rated study validity with a checklist. We contacted authors for additional data. We calculated standardized mean differences (SMD) and, for studies reporting similar interventions, pooled standardized effect sizes (SES).Results: Pooled analyses found that family carer coping strategy-based interventions (four studies, which did not individually achieve significance; n = 420; SES 0.24 (range 0.03–0.45)) and combined patient activity and family carer coping interventions (two studies, not individually significant; n = 191; SES 0.84 (range 0.54–1.14)) might improve quality of life. In one high-quality study, a care management system improved quality of life of people with dementia living at home. Group Cognitive Stimulation Therapy (GCST) improved quality of life of people with dementia in care homes.Conclusion: Preliminary evidence indicated that coping strategy-based family carer therapy with or without a patient activity intervention improved quality of life of people with dementia living at home. GCST was the only effective intervention in a higher quality trial for those in care homes, but we did not find such evidence in the community. Few studies explored whether effects continued after the intervention stopped. Future research should explore the longer-term impact of interventions on, and devise strategies to increase, life quality of people with dementia living in care homes or at home without a family carer.

scholarly journals Optimisation of dementia care in care homes: Dementia care framework (innovative practice)

Dementia ◽  
2017 ◽  
Vol 19 (4) ◽  
pp. 1316-1324
Author(s):  
Claire Royston ◽  
Gary Mitchell ◽  
Colin Sheeran ◽  
Joanne Strain ◽  
Sue Goldsmith
Keyword(s):  
Care Home ◽  
Evidence Base ◽  
Dementia Care ◽  
Care Homes ◽  
Spiritual Needs ◽  
Four Seasons ◽  
Care Partners ◽  
The Uk ◽  
Robust Evidence

There are an increasing number of people living with dementia in care home settings. Recent reports suggest that people who deliver care to residents living with dementia in care homes require specialist support to provide optimum care. To address this need Four Seasons Health Care, the largest provider of care homes within the UK today, sought to design a dementia care framework that enhanced the quality of life for people living with dementia in their care homes. The framework was designed using a robust evidence base, engagement with people living with dementia, their care partners, policy-writers, multidisciplinary professionals and people within the organisation. This paper describes the methodology behind the dementia care framework and outcomes data from the first phase (of 20 care homes that included the care of 451 people living with dementia). The main outcome was a significant improvement in the quality of the lives of residents across biological, psychological, social and spiritual needs.

scholarly journals Improving Dementia Care Among Family Physicians: From Stigma to Evidence-Informed Knowledge

2020 ◽  
Vol 23 (4) ◽  
pp. 340-343
Author(s):  
Juanita-Dawne R. Bacsu ◽  
Farrah J. Mateen ◽  
Shanthi Johnson ◽  
Marc D. Viger ◽  
Paul Hackett
Keyword(s):  
Older Adults ◽  
Family Physicians ◽  
Primary Source ◽  
Dementia Care ◽  
Public Health Issue ◽  
Research Education ◽  
People With Dementia ◽  
The Government ◽  
Government Of Canada

Dementia is a national public health issue and a growing concern across Canada. Recently, the Government of Canada released a national dementia strategy focused on the need to prevent dementia, advance therapies, find a cure, and improve the quality of life for people with dementia. Family physicians are a primary source of care in discussing concerns of cognitive health and dementia, especially in rural and remote communities in Canada. However, research indicates that family physicians often lack knowledge and feel ill-equipped in providing care to older adults with dementia. Inadequate knowledge and education of dementia contributes to the stigmatization (stereotypes, labeling, discriminatory practices) of people with dementia and creates barriers to diagnosis and treatment. Moreover, studies show that there is dementia-related stigma among family physicians. We believe that there is a critical gap and urgent need for better dementia education and training among family physicians to improve dementia care, treatment and timely diagnosis. Thus, it is time to rethink our approach to dementia care in Canada, and to recognize that better care of older adults requires more evidence-informed research, education and interprofessional collaboration in order to reduce stigma and improve the quality of care for people with dementia.

Supporting people with dementia during the COVID-19 pandemic

2021 ◽  
Vol 32 (2) ◽  
pp. 65-68
Author(s):  
Linda Nazarko
Keyword(s):  
Primary Care Practice ◽  
Social Care ◽  
Practice Nurse ◽  
Informal Support ◽  
Care Practice ◽  
Physical And Mental Health ◽  
Practice Nurses ◽  
People With Dementia ◽  
Care Workers ◽  
Health And Social Care

People with dementia have experienced great disruption to their lives due to the pandemic. Linda Nazarko highlights the way individuals have been affected and how the practice nurse can support them People with dementia and their caregivers have been severely affected by the COVID-19 pandemic. Isolation, a reduction in formal and informal support, and disruption to routine have contributed to feelings of loneliness and anxiety in people with dementia and their caregivers. The pandemic has led to staff shortages in health and social care, changes of care workers and a reduction in the level of support provided. These changes have affected the physical and mental health of people with dementia and increased their reliance on primary care. Practice nurses have a key role to play in supporting affected individuals.

Management of dementia

2020 ◽  
pp. 557-570
Author(s):  
Sarah Cullum ◽  
Tesema Taye
Keyword(s):  
Quality Of Life ◽  
Social Care ◽  
Ethical Issues ◽  
Family Members ◽  
Dementia Care ◽  
Psychosocial Aspects ◽  
People With Dementia

The cornerstone of dementia care is social care, and much of this is delivered by the families and carers of people with dementia. The management of dementia should therefore focus on supporting and developing the care provided by family members and carers in the community, because their education and enablement will help to optimize the quality of life for all people living with dementia. This chapter concentrates on the assessment and management of people with dementia in the early and later stages of the disorder. At both stages we consider engagement, autonomy, respect, protection, and ethical issues, as well as describing the clinical and psychosocial aspects of treatment. The emphasis is on the broader principles of management, which apply to people with dementia of any aetiology, their families, carers, and communities, and take into account the different settings in which they may present.

Japan

2019 ◽  
pp. 45-54
Author(s):  
Yumi Shindo ◽  
Akira Homma
Keyword(s):  
Local Governments ◽  
Local Population ◽  
The Elderly ◽  
Dementia Care ◽  
Term Care ◽  
Care Services ◽  
People With Dementia ◽  
Care Workers ◽  
Educational Programmes ◽  
Set Up

There are two strengths of dementia care services available in Japan. One strength is the creation of the Integrated Community Care System, which aims to provide various services that the elderly might need within their areas of residence. It is the responsibility of local governments to set up the ICCS, because each community has different social resources, as well as differences in the local population and the number of elderly individuals. The other strength lies in the various educational opportunities in dementia available to medical and long-term care professionals. In 2001, the national government introduced educational programmes for care workers in the field of dementia care. In addition, educational programmes for medical doctors, managers of facilities/service centres for people with dementia, medical professionals working in hospitals, pharmacists, and dentists are currently provided under the government’s policies.

scholarly journals Connections with nature for people living with dementia

2019 ◽  
Vol 23 (3) ◽  
pp. 142-151 ◽  
Author(s):  
Simon Chester Evans ◽  
Julie Barrett ◽  
Neil Mapes ◽  
June Hennell ◽  
Teresa Atkinson ◽  
...  
Keyword(s):  
Social Interaction ◽  
Online Survey ◽  
Good Practice ◽  
Dementia Care ◽  
Care Homes ◽  
Content Type ◽  
Outdoor Spaces ◽  
The Uk ◽  
Extra Care Housing

Purpose The benefits of “green dementia care”, whereby people living with dementia are supported to connect with nature, are increasingly being recognised. Evidence suggests that these benefits span physical, emotional and social spheres and can make a significant contribution towards quality of life. However, care settings often present specific challenges to promoting such connections due to a range of factors including risk-averse cultures and environmental limitations. The purpose of this paper is to report on a project that aims to explore the opportunities, benefits, barriers and enablers to interaction with nature for people living with dementia in residential care and extra care housing schemes in the UK. Design/methodology/approach Data were gathered from 144 responses to an online survey by managers/staff of extra care housing schemes and care homes in the UK. In depth-case studies were carried out at three care homes and three extra care housing schemes, involving interviews with residents, staff and family carers. Findings A wide variety of nature-based activities were reported, both outdoor and indoor. Positive benefits reported included improved mood, higher levels of social interaction and increased motivation for residents, and greater job satisfaction for staff. The design and layout of indoor and outdoor spaces is key, in addition to staff who feel enabled to promote connections with nature. Research limitations/implications This paper is based on a relatively small research project in which the participants were self-selecting and therefore not necessarily representative. Practical implications The paper makes some key recommendations for good practice in green dementia care in extra care housing and care homes. Social implications Outdoor activities can promote social interaction for people living with dementia in care settings. The authors’ findings are relevant to the recent policy focus on social prescribing. Originality/value The paper makes some key recommendations for good practice in green dementia care in extra care housing and care homes.

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