scholarly journals What do family care-givers want from domiciliary care for relatives living with dementia? A qualitative study

2020 ◽  
pp. 1-14 ◽  
Author(s):  
Kristian Pollock ◽  
Samantha Wilkinson ◽  
Lucy Perry-Young ◽  
Nicola Turner ◽  
Justine Schneider
Keyword(s):  
Qualitative Study ◽  
Home Care ◽  
Comparative Method ◽  
Qualitative Interviews ◽  
Family Care ◽  
Domiciliary Care ◽  
Care Givers ◽  
Individual Client ◽  
The Individual ◽  
Person With Dementia

Abstract In the current ecology of care, social, rather than medical, support is critical in enabling frail older people to live at home. This paper reports findings from a qualitative study about how home care workers (HCWs) support persons with dementia living in the community. Semi-structured qualitative interviews were carried out in England with 14 family care-givers (FCGs) recruited from a single private home care provider. A thematic analysis of the data was undertaken using the constant comparative method. In every instance, it was FCGs who initiated domiciliary care for the person with dementia, highlighting ambiguity about who is the ‘client’. Rather than focusing on the HCWs’ work in undertaking practical tasks and personal care, respondents prioritised HCWs as companions, providing emotional and social support for their relatives. From an organisational perspective, respondents valued the capacity of the provider to deliver a consistent, personal, reliable and punctual service. These attributes were important in supporting their relative's agency and dignity. Respondents described HCWs engaging in skilled and sensitive communication with clients but considered ‘character’ and ‘innate’ caring abilities to be more important than those derived from training. The results highlight the need to acknowledge the family, rather than the individual client, as the functioning unit of care, and to recognise the highly skilled communicative and emotional work undertaken by HCWs.

After the care journey: exploring the experiences of family carers of people living with dementia

2019 ◽  
Vol 40 (11) ◽  
pp. 2429-2447 ◽  
Author(s):  
Sonja Jameson ◽  
Lynne Parkinson ◽  
Annie Banbury
Keyword(s):  
Psychological Health ◽  
Family Care ◽  
Health Issues ◽  
Face To Face ◽  
Telephone Interviews ◽  
Care Givers ◽  
People With Dementia ◽  
Number Of Factors ◽  
Person With Dementia ◽  
Primary Family

AbstractWhile the burden of caring for people living with dementia has been well documented, considerably less is known about how carers transition into post-care life. This study aimed to understand the experiences of primary family care-givers of people with dementia after the person with dementia has died. A specific focus of the research was understanding the barriers to transitioning into a positive post-care life, and facilitators that help sustain carers as they move forward after their care journey has ended. A qualitative exploratory, descriptive study was undertaken with nine primary carers for a family member who died with dementia (five spouses and four adult children). Semi-structured face-to-face or telephone interviews were conducted with carers between July and August 2016. Interview transcripts were analysed using a thematic approach. A number of factors that can act as barriers or facilitators to transition for carers were identified. Contextualising loss, restructuring identity, psychological health issues and the influence of social attitudes seemed to have a strong influence on carer outcomes. The findings highlight the need for further systematic social and informational support for carers to moderate post-care trajectories and improve carer transition.

Family and family-like interactions in households with round-the-clock paid foreign carers in Israel

2009 ◽  
Vol 29 (5) ◽  
pp. 671-686 ◽  
Author(s):  
LIAT AYALON
Keyword(s):  
Home Care ◽  
Qualitative Interviews ◽  
Family Members ◽  
System Of Care ◽  
Care Recipient ◽  
Social And Emotional ◽  
Care Givers ◽  
Care Workers ◽  
Home Care Workers

ABSTRACTThis paper reports a study of family and family-like interactions and transfers, or exchanges of goods and resources, between paid, round-the-clock, Filipino home carers and those they care for in a sample of households in Israel. Qualitative interviews about their experiences and attitudes concerning the care role were conducted with 22 family members and 29 Filipino home-care workers. A thematic analysis of the interview data identified three major themes: the structure and internal dynamics of the adapted family or family-like system of care; the role of family members; and the role of Filipino home-care workers in the new system of care. Sons and daughters tended to appropriate the care-management positions and to reduce their social and emotional support for the care recipient. In contrast, spouse care-givers continued to provide some of the personal and emotional care even when a Filipino home-care worker was employed. Filipino home-care workers were made responsible for daily care and domestic routines and provided emotional and social care. It was found that family members do not relinquish their role as care-givers when round-the-clock foreign carers are on hand, but the nature of their role changes. The results suggest that foreign home-care workers' job description needs to be redefined to acknowledge the substantial social and emotional care that they provide.

scholarly journals Disruption, control and coping: responses of and to the person with dementia in hospital

2013 ◽  
Vol 35 (1) ◽  
pp. 37-63 ◽  
Author(s):  
DAVINA POROCK ◽  
PHILIP CLISSETT ◽  
ROWAN H. HARWOOD ◽  
JOHN R. F. GLADMAN
Keyword(s):  
Participant Observation ◽  
Family Care ◽  
Sense Of Control ◽  
Care Giver ◽  
Structured Interviews ◽  
Coping Responses ◽  
Care Givers ◽  
Sharing Space ◽  
Person With Dementia ◽  
Constant Comparative Analysis

ABSTRACTThis qualitative study aimed to gain insight into the experience of hospitalisation from the perspectives of the older person with dementia, their family care-giver and other patients sharing the ward (co-patients). Non-participant observation of care on 11 acute hospital wards was supplemented by 39 semi-structured interviews with 35 family care-givers and four co-patients following discharge. Constant comparative analysis produced the core problem facing all those involved: disruption from normal routine meaning that the experience of hospitalisation was disrupted by the presence and behaviour of the person with dementia. Disruption adversely affected the person with dementia, triggering constructive, disengaged, distressed and neutral behaviours. Using Kitwood's model of person-centred care, these behaviours were interpreted as attempts by the person with dementia at gaining a sense of control over the unfamiliar environment and experience. Family care-givers' lives and experiences both inside and outside the hospital were disrupted by the hospitalisation. They too attempted to gain a sense of control over the experience and to give a sense of control to the patient, co-patients and staff. Co-patients experienced disruption from sharing space with the person with dementia and were left feeling vulnerable and sometimes afraid. They too attempted to gain a sense of control over their situation and give some control by helping the person with dementia, the family care-giver and the staff.

scholarly journals Strategies to support engagement and continuity of activity during mealtimes for families living with dementia; a qualitative study

2021 ◽  
Author(s):  
Heather H. Keller ◽  
Lori Schindel Martin ◽  
Sherry Dupuis ◽  
Holly Reimer ◽  
Rebecca Genoe
Keyword(s):  
Qualitative Study ◽  
Social Engagement ◽  
Family Care ◽  
Further Education ◽  
Older Person ◽  
Care Partners ◽  
The Moment ◽  
Person With Dementia ◽  
Family Mealtimes

Background Mealtimes are an essential part of living and quality of life for everyone, including persons living with dementia. A longitudinal qualitative study provided understanding of the meaning of mealtimes for persons with dementia and their family care partners. Strategies were specifically described by families to support meaningful mealtimes. The purpose of this manuscript is to describe the strategies devised and used by these families living with dementia. Methods A longitudinal qualitative study was undertaken to explore the meaning and experience of mealtimes for families living with dementia over a three-year period. 27 families [older person with dementia and at least one family care partner] were originally recruited from the community of South-Western Ontario. Individual and dyad interviews were conducted each year. Digitally recorded transcripts were analyzed using grounded theory methodology. Strategies were identified and categorized. Results Strategies to support quality mealtimes were devised by families as they adapted to their evolving lives. General strategies such as living in the moment, as well as strategies specific to maintaining social engagement and continuity of mealtime activities were reported. Conclusions In addition to nutritional benefit, family mealtimes provide important opportunities for persons with dementia and their family care partners to socially engage and continue meaningful roles. Strategies identified by participants provide a basis for further education and support to families living with dementia.

scholarly journals Causes and Challenges of Males’ Rhinoplasty in Iranian Population: Qualitative Study

2020 ◽  
Author(s):  
Zeinab Ghafari ◽  
Amir Jalali ◽  
Parvin Abbasi ◽  
Javad Yousefi-Labani
Keyword(s):  
Data Analysis ◽  
Qualitative Study ◽  
Cosmetic Surgery ◽  
Iranian Population ◽  
Care Givers ◽  
Analysis Process ◽  
Content Analysis Method ◽  
Data Saturation ◽  
Negative Side Effects ◽  
The Individual

Abstract Background: Rhinoplasty is a cosmetic surgery for which the society and the individual incur heavy costs. The present study is an attempt to elaborate on the causes and challenges of males’ rhinoplasty in Iranian population. Methods: The study was carried out as a qualitative study using content analysis method. Totally, 20 participants (16 clients, one family member, and three care-givers) were selected purposefully and participated in semi-structured and in-depth interviews. With 20 interviews, data saturation was achieved. Data analysis process was conducted manually along with the interviews following Lundman and Graneheim method.Results and conclusion: Data analysis revealed 614 primary codes and the continuous examination and removal or repetitious codes left 417 codes, nine sub-themes, and two themes namely the reasons for rhinoplasty (lack of confidence, hope for a better face, seeking attention, keeping up with the Joneses, and persuasion by others) and challenges (family challenge, social atmosphere, financial problems, and unwanted consequence). The lack of confidence and the hope of having a more beautiful face were the motivators. Family challenges, financial problem and the negative side effects of the surgery were challenges in the way of men for having rhinoplasty.

scholarly journals A cross-cultural investigation of the conceptualisation of frailty in northern Tanzania

2021 ◽  
pp. 1-34
Author(s):  
Emma G. Lewis ◽  
Jane Rogathi ◽  
John Kissima ◽  
Matthew Breckons ◽  
Richard Lee ◽  
...  
Keyword(s):  
Older People ◽  
Low Income ◽  
Qualitative Interviews ◽  
Cross Cultural ◽  
Global Public Health ◽  
Frailty Phenotype ◽  
Middle Income ◽  
Care Givers ◽  
Northern Tanzania ◽  
The Individual

Abstract Frailty prevalence is higher in low- and middle-income countries (LMICs) compared with high-income countries when measured by biomedical frailty models, the most widely used being the frailty phenotype. Frailty in older people is becoming of global public health interest as a means of promoting health in old age in LMICs. As yet, little work has been done to establish to what extent the concept of frailty, as conceived according to ‘western’ biomedicine, has cross-cultural resonance for a low-income rural African setting. This study aimed to investigate the meaning of frailty contextually, using the biomedical concept of the frailty phenotype as a framework. Qualitative interviews were conducted with a purposive sample of older adults, their care-givers and community representatives in rural northern Tanzania. Thirty interview transcripts were transcribed, translated from Kiswahili to English and thematically analysed. Results reveal that despite superficial similarities in the understanding of frailty, to a great extent the physical changes highlighted by the frailty phenotype were naturalised, except when these were felt to be due to a scarcity of resources. Frailty was conceptualised as less of a physical problem of the individual, but rather, as a social problem of the community, suggesting that the frailty construct may be usefully applied cross-culturally when taking a social equity focus to the health of older people in LMICs.

Family Care Experience in a Decentralized Social Home Care Context

2017 ◽  
Vol 15 (3) ◽  
pp. 495-511
Author(s):  
Valentina Hlebec
Keyword(s):  
Home Care ◽  
Informal Care ◽  
Family Care ◽  
The Elderly ◽  
Individual Characteristics ◽  
Care Recipient ◽  
Informal Carer ◽  
Financial Contribution ◽  
Care Experience ◽  
Care Givers

This survey analyses the scope and intensity of informal care for the elderly residing in their homes in Slovenia and their determinants: the residing municipality of the care recipient, geographical distance between the informal carer and the care recipient, to the care recipients’ and the care givers’ individual characteristics. With the increasing private out-of-pocket financial contribution, which is determined by municipality, the scope and intensity of informal care shows a significant increase as shown by regression analysis. Inter-municipal cooperation and the introduction of gradual private financial contribution are proposed as tools for improving accessibility of social home care in Slovenia.

scholarly journals Strategies to support engagement and continuity of activity during mealtimes for families living with dementia; a qualitative study

2021 ◽  
Author(s):  
Heather H. Keller ◽  
Lori Schindel Martin ◽  
Sherry Dupuis ◽  
Holly Reimer ◽  
Rebecca Genoe
Keyword(s):  
Qualitative Study ◽  
Social Engagement ◽  
Family Care ◽  
Further Education ◽  
Older Person ◽  
Care Partners ◽  
The Moment ◽  
Person With Dementia ◽  
Family Mealtimes

Background Mealtimes are an essential part of living and quality of life for everyone, including persons living with dementia. A longitudinal qualitative study provided understanding of the meaning of mealtimes for persons with dementia and their family care partners. Strategies were specifically described by families to support meaningful mealtimes. The purpose of this manuscript is to describe the strategies devised and used by these families living with dementia. Methods A longitudinal qualitative study was undertaken to explore the meaning and experience of mealtimes for families living with dementia over a three-year period. 27 families [older person with dementia and at least one family care partner] were originally recruited from the community of South-Western Ontario. Individual and dyad interviews were conducted each year. Digitally recorded transcripts were analyzed using grounded theory methodology. Strategies were identified and categorized. Results Strategies to support quality mealtimes were devised by families as they adapted to their evolving lives. General strategies such as living in the moment, as well as strategies specific to maintaining social engagement and continuity of mealtime activities were reported. Conclusions In addition to nutritional benefit, family mealtimes provide important opportunities for persons with dementia and their family care partners to socially engage and continue meaningful roles. Strategies identified by participants provide a basis for further education and support to families living with dementia.

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