scholarly journals Older Carers and Carers of People with Dementia: Improving and Developing Effective Support

2020 ◽  
pp. 1-15
Author(s):  
Mary Larkin ◽  
Melanie Henwood ◽  
Alisoun Milne
Keyword(s):  
Third Sector ◽  
Evidence Base ◽  
Service Evaluation ◽  
People With Dementia ◽  
Carer Support ◽  
Tailored Approach ◽  
The Uk ◽  
Similar Stage

The policy drive to support carers is a longstanding national and international priority. Research about the design and delivery of support for carers is critical to the underpinning evidence base. Through a timely exploration of a third sector perspective, the UK-based study discussed in this article provides insights into approaches to, and the commissioning of, support for older carers and carers of people with dementia. The study highlights the importance of: embedding carers’ perspectives in service developments; the provision of both generic and targeted support which adopts a nuanced and tailored approach; titrating the delivery of information and advice at a pace to match carers’ needs; capturing quantitative and qualitative dimensions in service evaluation; and increased quantity and longevity of funding. Such insights not only complement existing research but are also generalisable to other countries at a similar stage in the development of carer support.

scholarly journals Developing the evidence base for evaluating dementia training in NHS hospitals (DEMTRAIN): a mixed-methods study protocol

BMJ Open ◽  
2020 ◽  
Vol 10 (1) ◽  
pp. e030739 ◽  
Author(s):  
Faraz Ahmed ◽  
Hazel Morbey ◽  
Andrew Harding ◽  
David Reeves ◽  
Caroline Swarbrick ◽  
...  
Keyword(s):  
Third Sector ◽  
Evidence Base ◽  
Programme Theory ◽  
Process Measures ◽  
Medicine Research ◽  
Staff Members ◽  
Acute Hospitals ◽  
Third Sector Organisations ◽  
Academic Publications ◽  
The Uk

IntroductionAround 70% of acute hospital beds in the UK are occupied by older people, approximately 40% of whom have dementia. Improving the quality of care in hospitals is a key priority within national dementia strategies. Limited research has been conducted to evaluate dementia training packages for staff, and evaluation of training often focuses on immediate, on-the-day training feedback and effects.ObjectivesOur study aims to answer two research questions: (1) How do variations in content, implementation and intensity of staff dementia training in acute hospitals in England relate to health service outcome/process measures and staff outcomes? and (2) What components of staff dementia training are most strongly related to improved patient and staff outcomes?Methods and analysisUsing the principles of programme theory, a mixed-method study will be used to identify mechanisms and the interactions between them, as well as facilitators and barriers to dementia training in hospitals. We will use existing data, such as Hospital Episode Statistics, alongside two surveys (at hospital and staff level).We will recruit up to 193 acute hospitals in England to participate in the hospital level survey. We aim to recruit up to 30 staff members per hospital, from a random sample of 24 hospitals. In addition, we will explore the cost-effectiveness of dementia training packages and carry out an in-depth case study of up to six hospitals.Ethics and disseminationThe study has been reviewed and approved by the Faculty of Health and Medicine Research Ethics Committee (FHMREC 17056) and Health Research Authority (Integrated Research Approval System (IRAS) ID 242166: REC reference 18/HRA/1198). We plan to develop both standard (eg, academic publications, presentations at conferences) and innovative (eg, citizen scientist web portals, online fora, links with hospitals and third sector organisations) means of ensuring the study findings are accessible and disseminated regionally, nationally and internationally.

Third sector partnerships for older people: insights from live at home schemes in the UK

2018 ◽  
Vol 22 (3) ◽  
pp. 148-153 ◽  
Author(s):  
Olumide Adisa
Keyword(s):  
Older People ◽  
Online Survey ◽  
Third Sector ◽  
Later Life ◽  
Evidence Base ◽  
Content Type ◽  
Health And Social Care ◽  
Wide Range ◽  
The Uk ◽  
At Home

Purpose While there is a rich literature on the role of partnerships between statutory agencies and third sector organisations for public service delivery in health and social care, the evidence base on, partnerships between community-based groups and charities for older people in the UK is lacking. Drawing on quantitative and qualitative data, the purpose of this paper is to examines partnerships within 46 live at home (LAH) schemes. These schemes were specifically designed to tackle isolation and promote independence and wellbeing by providing a wide range of activities, based on the needs of its members. Design/methodology/approach This study is based on an online survey of 46 LAH schemes and face-to-face interviews with seven scheme managers to capture data on the various partnership initiatives within the LAH schemes. Findings Third sector partnerships for older people varied by type – formal, semi-formal and informal. In addition, third sector partnership working fosters the achievement of clear outcomes for older people who LAH and could be a mechanism for building social capital in communities. The study also identified barriers to developing third sector partnerships within this context. Mapping existing partnerships in LAH schemes were considered to be useful in engaging with partners. LAH scheme managers were better able to identify partnerships that could be deepened and broadened, depending on the desired outcomes. Originality/value To the author’s knowledge, there are few studies on third sector partnership working in LAH schemes for older people. According to Age UK, there are 1.2m chronically lonely older people in the UK. Over half of all people aged 75 and over live alone (ONS, 2015). Loneliness and social isolation in later life are considered to be two of the largest health concerns we face. Scaling up these third sector partnerships may offer a credible way to shore up support for older people who live alone or want to live at home.

Moving towards culturally competent dementia care: have we been barking up the wrong tree?

2005 ◽  
Vol 15 (1) ◽  
pp. 39-46 ◽  
Author(s):  
Jenny Mackenzie ◽  
Ruth Bartlett ◽  
Murna Downs
Keyword(s):  
Service Providers ◽  
Evidence Base ◽  
Culturally Competent ◽  
Ethnic Communities ◽  
Cultural Groups ◽  
Care Services ◽  
People With Dementia ◽  
Health And Social Care ◽  
The Uk ◽  
Minority Ethnic

In the UK it is established that health and social care services for people with dementia from black and minority ethnic communities need to move towards providing evidence-based culturally appropriate care. At present, however, the evidence base available to guide professionals working with people with dementia from diverse ethnic and cultural groups is limited, and beliefs about dementia and the type of treatment and support needed have received little attention. Consequently this creates problems for service providers faced with appropriately supporting people with dementia and their families from black and minority ethnic communities.

scholarly journals Music therapy in UK palliative and end-of-life care: a service evaluation

2018 ◽  
Vol 8 (3) ◽  
pp. 282-284 ◽  
Author(s):  
Lisa Graham-Wisener ◽  
Grace Watts ◽  
Jenny Kirkwood ◽  
Craig Harrison ◽  
Joan McEwan ◽  
...  
Keyword(s):  
Music Therapy ◽  
End Of Life ◽  
End Of Life Care ◽  
Holistic Approach ◽  
Evidence Base ◽  
Service Evaluation ◽  
Life Care ◽  
Music Therapists ◽  
Health And Social Care ◽  
The Uk

Music therapy aligns to the holistic approach to palliative and end-of-life care (PEOLC), with an emergent evidence base reporting positive effect on a range of health-related outcomes for both patient and family carer alongside high client demand. However, the current service provision and the role of music therapists in supporting individuals receiving PEOLC in the UK is currently unknown.ObjectivesThis service evaluation aims to identify the provision, role and perceived impact of UK music therapists in supporting patients receiving PEOLC, their families and health and social care professionals.MethodsA survey was distributed to the British Association for Music Therapy (BAMT) member mailing list in July 2017. BAMT is the professional body for Health and Care Professions Council registered music therapists in the UK.ResultsFifty respondents identified themselves as music therapists currently working with clients receiving PEOLC. The respondents largely reported (84.7%) less than 10 years of experience working in PEOLC settings, with only a minority receiving statutory funding for their role. Music therapists most commonly reported supporting adults with neurological conditions, cancers and dementia.ConclusionsAlthough promising that evidence suggests provision of music therapy in UK PEOLC settings in the past 10 years to have increased, lack of sustainable funding suggests the role to not be consistently accessible in PEOLC.

scholarly journals Attitudes and support needs of Black Caribbean, south Asian and White British carers of people with dementia in the UK

2008 ◽  
Vol 193 (3) ◽  
pp. 240-246 ◽  
Author(s):  
Vanessa Lawrence ◽  
Joanna Murray ◽  
Kritika Samsi ◽  
Sube Banerjee
Keyword(s):  
Social Services ◽  
South Asian ◽  
Evidence Base ◽  
Theory Approach ◽  
Family Carers ◽  
Cultural Attitudes ◽  
Individual Interviews ◽  
People With Dementia ◽  
Black Caribbean ◽  
The Uk

BackgroundFamily carers are the most important source of dementia care, especially among ethnic minority populations, who are less likely to access health or social services. The evidence base on the carer experience in these communities is profoundly limited.AimsTo explore the caregiving attitudes, experiences and needs of family carers of people with dementia from the three largest ethnic groups in the UK.MethodA qualitative study, using a grounded theory approach. In-depth individual interviews were conducted with 32 carers of people with dementia (10 Black Caribbean, 10 south Asian, 12 White British).ResultsCarers were identified as holding a ‘traditional’ or ‘non-traditional’ caregiver ideology, according to whether they conceptualised caregiving as natural, expected and virtuous. This informed feelings of fulfilment, strain, carers' fears and attitudes towards formal services. The majority of the south Asian, half of the Black Caribbean and a minority of the White British participants were found to possess a traditional ideology.ConclusionsThe findings suggest that specific cultural attitudes towards the caregiving role have important implications for how carers can best be supported.

scholarly journals Psychosocial interventions for dementia: from evidence to practice

2014 ◽  
Vol 20 (5) ◽  
pp. 340-349 ◽  
Author(s):  
Bhamini Patel ◽  
Mark Perera ◽  
Jill Pendleton ◽  
Anna Richman ◽  
Biswadeep Majumdar
Keyword(s):  
Life Story ◽  
Psychological Symptoms ◽  
Psychosocial Interventions ◽  
Well Being ◽  
Evidence Base ◽  
List Type ◽  
Pharmacological Agents ◽  
People With Dementia ◽  
Carer Support ◽  
Story Work

SummaryThis article presents evidence for the efficacy of psychosocial interventions for people with dementia and their carers. The evidence base is not yet robust enough to clearly suggest which interventions are most suited for which environment. However, from our literature review there appears to be reason to use music therapy, aromatherapy, life story work, animal-assisted therapy and post-diagnosis/carer support work. We focus on both the traditional outcome measures of behavioural and psychological symptoms of dementia (BPSD) and the more difficult to measure, but equally important, person-centred outcomes of nonpharmacological interventions, as their properties are distinctly different from those of pharmacological agents.Learning Objectives•Be aware of the range of psychosocial interventions.•Have a better understanding of the possible outcomes from given interventions.•Be aware of the paradigm shift from managing BPSD to a person-centred approach that focuses on the patient's well-being and quality of life.

scholarly journals Creating the asset base – a review of literature and policy on housing with care

2014 ◽  
Vol 17 (1) ◽  
pp. 16-25 ◽  
Author(s):  
Teresa June Atkinson ◽  
Simon Evans ◽  
Robin Darton ◽  
Ailsa Cameron ◽  
Jeremy Porteus ◽  
...  
Keyword(s):  
Web Sites ◽  
Social Care ◽  
Third Sector ◽  
Well Being ◽  
Evidence Base ◽  
Policy And Practice ◽  
Content Type ◽  
Care And Support ◽  
Strong Position ◽  
The Uk

Purpose – Appropriate housing for the growing population of older adults is becoming an international concern. The purpose of this paper is to report on a review of UK and international literature carried out as part of a project exploring the commissioning and delivery of social care in housing with care settings. The paper also considers housing with care in the context of UK policy and practice. Design/methodology/approach – The peer literature review process used a range of academic databases as well as government and third sector web sites, drawing on relevant material in English published from 1990 to 2012. Findings – Findings are presented within three main themes: how care and support is provided; the role of the built environment; and the benefits for resident well-being. The review found a paucity of literature focusing specifically on care and support in housing with care settings, particularly in terms of how social care is delivered, but the evidence base suggests that housing with care is in a strong position to deliver on most if not all UK government aspirations. Practical implications – Despite a growing literature both in the UK and internationally exploring the characteristics and benefits of housing with care for older people, substantial gaps remain in the research evidence. Originality/value – This paper presents an up to date review of the housing with care literature in the context of current UK policy.

scholarly journals Supporting carers of people with dementia: What is effective?

2017 ◽  
Vol 23 (3) ◽  
pp. 179-186 ◽  
Author(s):  
Graham A. Jackson ◽  
Debbie Browne
Keyword(s):  
Caregiver Burden ◽  
Evidence Base ◽  
People With Dementia ◽  
Carer Support ◽  
Nice Guidance ◽  
Psychological Harm ◽  
Training Courses ◽  
Informal Carers ◽  
Multicomponent Interventions ◽  
And Training

Carer stress is well documented, especially in those caring for individuals with dementia. A recommendation of all national dementia strategies is to provide excellent support and information to informal carers of people with dementia. NICE guidance suggests that a range of tailored interventions, including psychological input, psychoeducation and training courses, should be offered to reduce caregiver burden and stress, although good-quality outcome-based evidence is lacking. On the basis of a narrative review of the literature, we describe individual and multicomponent carer support packages and discuss their evidence base, reflecting on outcomes for carers. Multicomponent interventions have the best evidence for effectiveness.Learning Objectives• Consider the risks of both physical and psychological harm experienced by carers of people with dementia (often referred to as carer burden or caregiver burden)• Be aware of the interventions available for the support of carers of people with dementia• Consider the evidence for the effectiveness of these interventions and be aware of the limitations of the evidence

Best practice for chronic oedema in community settings: what can we learn?

2020 ◽  
Vol 25 (12) ◽  
pp. 610-614
Author(s):  
Garry Cooper-Stanton
Keyword(s):  
Service Provision ◽  
Best Practice ◽  
Evidence Base ◽  
Community Services ◽  
Guidance Document ◽  
Community Settings ◽  
Tissue Viability ◽  
Delivery Of Care ◽  
Specialist Nurses ◽  
The Uk

There are various opportunities and challenges in the delivery of care to those diagnosed with chronic oedema/lymphoedema. Service provision is not consistent within the UK, and non-specialist nurses and other health professionals may be called on to fill the gaps in this area. The latest best practice guidance on chronic oedema is directed at community services that care for people within their own homes in primary care. This guide was developed in order to increase awareness, knowledge and access to an evidence base. Those involved in its creation cross specialist fields (lymphoedema and tissue viability), resulting in the document covering a number of areas, including an explanation of chronic oedema, its assessment and management and the association between chronic oedema and wet legs. The document complements existing frameworks on the condition and its management and also increases the available tools within chronic oedema management in the community. The present article provides an overview of the guidance document and discusses its salient features.

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