scholarly journals Developing the evidence base for evaluating dementia training in NHS hospitals (DEMTRAIN): a mixed-methods study protocol

BMJ Open ◽  
2020 ◽  
Vol 10 (1) ◽  
pp. e030739 ◽  
Author(s):  
Faraz Ahmed ◽  
Hazel Morbey ◽  
Andrew Harding ◽  
David Reeves ◽  
Caroline Swarbrick ◽  
...  

IntroductionAround 70% of acute hospital beds in the UK are occupied by older people, approximately 40% of whom have dementia. Improving the quality of care in hospitals is a key priority within national dementia strategies. Limited research has been conducted to evaluate dementia training packages for staff, and evaluation of training often focuses on immediate, on-the-day training feedback and effects.ObjectivesOur study aims to answer two research questions: (1) How do variations in content, implementation and intensity of staff dementia training in acute hospitals in England relate to health service outcome/process measures and staff outcomes? and (2) What components of staff dementia training are most strongly related to improved patient and staff outcomes?Methods and analysisUsing the principles of programme theory, a mixed-method study will be used to identify mechanisms and the interactions between them, as well as facilitators and barriers to dementia training in hospitals. We will use existing data, such as Hospital Episode Statistics, alongside two surveys (at hospital and staff level).We will recruit up to 193 acute hospitals in England to participate in the hospital level survey. We aim to recruit up to 30 staff members per hospital, from a random sample of 24 hospitals. In addition, we will explore the cost-effectiveness of dementia training packages and carry out an in-depth case study of up to six hospitals.Ethics and disseminationThe study has been reviewed and approved by the Faculty of Health and Medicine Research Ethics Committee (FHMREC 17056) and Health Research Authority (Integrated Research Approval System (IRAS) ID 242166: REC reference 18/HRA/1198). We plan to develop both standard (eg, academic publications, presentations at conferences) and innovative (eg, citizen scientist web portals, online fora, links with hospitals and third sector organisations) means of ensuring the study findings are accessible and disseminated regionally, nationally and internationally.

2021 ◽  
Vol 21 (1) ◽  
Author(s):  
Clarissa Giebel ◽  
Kerry Hanna ◽  
Manoj Rajagopal ◽  
Aravind Komuravelli ◽  
Jacqueline Cannon ◽  
...  

Abstract Background Sudden public health restrictions can be difficult to comprehend for people with cognitive deficits. However, these are even more important for them to adhere to due to their increased levels of vulnerability, particularly to COVID-19. With a lack of previous evidence, we explored the understanding and changes in adherence to COVID-19 public health restrictions over time in people living with dementia (PLWD). Methods Unpaid carers and PLWD were interviewed over the phone in April 2020, shortly after the nationwide UK lockdown, with a proportion followed up from 24th June to 10th July. Participants were recruited via social care and third sector organisations across the UK, and via social media. Findings A total of 70 interviews (50 baseline, 20 follow-up) were completed with unpaid carers and PLWD. Five themes emerged: Confusion and limited comprehension; Frustration and burden; Putting oneself in danger; Adherence to restrictions in wider society; (Un) changed perceptions. Most carers reported limited to no understanding of the public health measures in PLWD, causing distress and frustration for both the carer and the PLWD. Due to the lack of understanding, some PLWD put themselves in dangerous situations without adhering to the restrictions. PLWD with cognitive capacity who participated understood the measures and adhered to these. Discussion In light of the new second wave of the pandemic, public health measures need to be simpler for PLWD to avoid unwilful non-adherence. Society also needs to be more adaptive to the needs of people with cognitive disabilities more widely, as blanket rules cause distress to the lives of those affected by dementia.


Water ◽  
2021 ◽  
Vol 13 (9) ◽  
pp. 1235
Author(s):  
Luke Waterman ◽  
Mónica Rivas Casado ◽  
Emma Bergin ◽  
Gary McInally

With increases in average temperature and rainfall predicted, more households are expected to be at risk of flooding in the UK by 2050. Data and technologies are increasingly playing a critical role across public-, private- and third-sector organisations. However, barriers and constraints exist across organisations and industries that limit the sharing of data. We examine the international context for data sharing and variations between data-rich and data-sparse countries. We find that local politics and organisational structures influence data sharing. We focus on the case study of the UK, and on geospatial and flood resilience data in particular. We use a series of semi-structured interviews to evaluate data sharing limitations, with particular reference to geospatial and flood resilience data. We identify barriers and constraints when sharing data between organisations. We find technological, security, privacy, cultural and commercial barriers across different use cases and data points. Finally, we provide three long-term recommendations to improve the overall accessibility to flood data and enhance outcomes for organisations and communities.


2020 ◽  
pp. 1-15
Author(s):  
Mary Larkin ◽  
Melanie Henwood ◽  
Alisoun Milne

The policy drive to support carers is a longstanding national and international priority. Research about the design and delivery of support for carers is critical to the underpinning evidence base. Through a timely exploration of a third sector perspective, the UK-based study discussed in this article provides insights into approaches to, and the commissioning of, support for older carers and carers of people with dementia. The study highlights the importance of: embedding carers’ perspectives in service developments; the provision of both generic and targeted support which adopts a nuanced and tailored approach; titrating the delivery of information and advice at a pace to match carers’ needs; capturing quantitative and qualitative dimensions in service evaluation; and increased quantity and longevity of funding. Such insights not only complement existing research but are also generalisable to other countries at a similar stage in the development of carer support.


2014 ◽  
Vol 6 (1) ◽  
pp. 24-41 ◽  
Author(s):  
Wendy Fitzgibbon ◽  
John Lea

The current debate about the privatisation of probation in the UK has tended to set up a false dichotomy between state and private that diverts attention from the fact that privatisation as part of a ‘rehabilitation revolution’ intends, in fact, to continue the domination of the risk management approach. What is emerging is a public–private combination of increasingly centralised public sector probation and the private ‘security-industrial complex’ of global security corporations. An important consequence of this process is the annihilation of both residual elements of voluntary sector and community work within probation itself and of the smaller private charities and third sector organisations that have long collaborated with probation in traditional desistance work. This complex dynamic is a reflection of some of the key internal inconsistencies of neoliberalism as a political strategy.


2016 ◽  
Vol 46 (1) ◽  
pp. 175-194 ◽  
Author(s):  
JAMES REES ◽  
ROBIN MILLER ◽  
HEATHER BUCKINGHAM

AbstractThe concept of commissioning has risen in prominence in recent years as a result of ongoing reforms to the funding and delivery of public services in the UK. The model of commissioning constructed by policy has however been overlaid on existing practices, which themselves differ between different service areas. This paper, focusing on commissioning of third sector organisations (TSOs) in the field of community mental health services, shows that its introduction has not led to the straightforward public sector ‘marketisation’ that advocates desire or that critics fear. Instead, commissioning has led to an indeterminate outcome or ‘halfway house’ position in which the status and role of commissioning remains somewhat muddled – both internally to participants within public sector organisations and externally in terms of the experience of the interface by TSOs. We found that commissioning as it is actually practiced remains contested and political – it is a highly relational process dependent on personal practices and skills and on personal relationships between stakeholders – and is therefore not fully managerialised or marketised. This has implications for the policy and practice of commissioning and the interpretation of more ‘open’ public services.


2018 ◽  
Vol 22 (3) ◽  
pp. 148-153 ◽  
Author(s):  
Olumide Adisa

Purpose While there is a rich literature on the role of partnerships between statutory agencies and third sector organisations for public service delivery in health and social care, the evidence base on, partnerships between community-based groups and charities for older people in the UK is lacking. Drawing on quantitative and qualitative data, the purpose of this paper is to examines partnerships within 46 live at home (LAH) schemes. These schemes were specifically designed to tackle isolation and promote independence and wellbeing by providing a wide range of activities, based on the needs of its members. Design/methodology/approach This study is based on an online survey of 46 LAH schemes and face-to-face interviews with seven scheme managers to capture data on the various partnership initiatives within the LAH schemes. Findings Third sector partnerships for older people varied by type – formal, semi-formal and informal. In addition, third sector partnership working fosters the achievement of clear outcomes for older people who LAH and could be a mechanism for building social capital in communities. The study also identified barriers to developing third sector partnerships within this context. Mapping existing partnerships in LAH schemes were considered to be useful in engaging with partners. LAH scheme managers were better able to identify partnerships that could be deepened and broadened, depending on the desired outcomes. Originality/value To the author’s knowledge, there are few studies on third sector partnership working in LAH schemes for older people. According to Age UK, there are 1.2m chronically lonely older people in the UK. Over half of all people aged 75 and over live alone (ONS, 2015). Loneliness and social isolation in later life are considered to be two of the largest health concerns we face. Scaling up these third sector partnerships may offer a credible way to shore up support for older people who live alone or want to live at home.


2019 ◽  
pp. 1-15
Author(s):  
Stephen Cowden ◽  
Sukhwant Dhaliwal ◽  
Rebecca Durand

The focus of this Issue is the UK’s counter-terrorist programme ‘Prevent’.  As a number of articles explain, this policy developed out of the wider policy agenda of CONTEST which was developed by the UK government following the 9/11 attacks by Al Qaeda in New York in 2001. Many readers may be wondering why we would devote a whole issue to this particular policy.  Our reason for doing this is that the issues raised in the debate around Prevent and what it represents impinge directly on concerns around the rise of fundamentalism and its ongoing project of establishing hegemony across religious and political fields, as well as state responses to that.  In this issue we have sought to create a space to raise concerns that have not figured in the dominant understanding of Prevent in the eyes of both its supporters and its critics. The Prevent policy is presently having a significant impact on a whole range of areas within the British state – on Further and Higher Education, Probation and Social Work, third sector organisations, women’s organisations, Local Authorities as well as on religious institutions and movements, and on community based political activism.  Yet the polarised nature of the debate around Prevent means that we know very little about how these impacts are playing out, and in particular how the responses and practices which are being adopted are impacting on women as well as on other vulnerable groups.  These are the concerns we have sought to give voice to in this issue.


2020 ◽  
Vol 4 (1) ◽  
pp. 27
Author(s):  
Frances Ridout

<p>The UK and Ireland Best Practice Street Law Conference has become a popular annual event on the UK clinical legal education calendar. Taking place in early autumn, the conference is unique in celebrating this area, which is often viewed as the smaller sibling of more traditional clinical legal education models. What started as a casual discussion between clinicians at an international Street Law conference, has developed to be a well-known conference attracting national and international delegates as well as input from NGOs and third sector organisations.</p><p><br />The unique ethos of the conference is focused on interactivity, delegate contribution and sharing best practice (both theoretical and practical). It aims to be a truly collaborative initiative between the host institution, the oversight and steering committee, and most importantly the conference delegates. It is a valuable resource for those already experienced in Street Law and a helpful platform for those starting out on the journey.</p>


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