The Mid-Atlantic Twin Registry, Revisited

2012 ◽  
Vol 16 (1) ◽  
pp. 424-428 ◽  
Author(s):  
Emily C. H. Lilley ◽  
Judy L. Silberg
Keyword(s):  
South Carolina ◽  
Developmental Psychopathology ◽  
Human Microbiome ◽  
Population Based ◽  
Data Set ◽  
Twin Registry ◽  
Children Of Twins ◽  
Scientific Disciplines ◽  
Sleep Homeostasis ◽  
Population Based Registry

The Mid-Atlantic Twin Registry (MATR) is a population-based registry of more than 56,000 twins primarily born or living in Virginia, North Carolina, and South Carolina. The MATR employs several methods of ascertaining twins, and devotes considerable resources to tracking and maintaining communication with MATR participants. Researchers may utilize the MATR for administration of research services including study recruitment, collection of DNA, archival data set creation, as well as data collection through mailed, phone, or online surveys. In addition, the MATR houses the MATR Repository, with over 1,200 blood samples available for researchers interested in DNA genotyping. For over 35 years MATR twins have participated in research studies with investigators from diverse scientific disciplines and various institutions. These studies, which have resulted in numerous publications, have covered a range of topics, including the human microbiome, developmental psychopathology, depression, anxiety, substance use, epigenetics of aging, children of twins, pre-term birth, social attitudes, seizures, eating disorders, as well as sleep homeostasis. Researchers interested in utilizing twins are encouraged to contact the MATR to discuss potential research opportunities.

scholarly journals The Mid-Atlantic Twin Registry of Virginia Commonwealth University

2019 ◽  
Vol 22 (6) ◽  
pp. 753-756
Author(s):  
Emily C. H. Lilley ◽  
Anne-Taylor Morris ◽  
Judy L. Silberg
Keyword(s):  
South Carolina ◽  
Developmental Psychopathology ◽  
Human Microbiome ◽  
Population Based ◽  
Twin Registry ◽  
Children Of Twins ◽  
Sleep Homeostasis ◽  
Smoking Behaviors ◽  
Dna Collection ◽  
Virginia Commonwealth University

AbstractThe Mid-Atlantic Twin Registry (MATR) is a population-based registry of more than 60,000 twins primarily born or living in Virginia, North Carolina and South Carolina. Researchers may utilize the MATR for administration of research services, including study recruitment, data or sample (e.g., DNA) collection, archival dataset creation, as well as data collection through mailed, phone or online surveys. In addition, the MATR houses the MATR Repository, with over 1700 DNA samples primarily from whole blood available for researchers interested in DNA genotyping. For over 40 years MATR twins have participated in research studies with investigators from a range of scientific disciplines and institutions. These studies, which have resulted in numerous publications, explored diverse topics, including substance use, smoking behaviors, developmental psychopathology, bullying, children’s health, cardiovascular disease, cancer, the human microbiome, epigenetics of aging, children of twins and sleep homeostasis. Researchers interested in utilizing twins are encouraged to contact the MATR to discuss potential research opportunities.

Colorado Twin Registry

2006 ◽  
Vol 9 (6) ◽  
pp. 941-949 ◽  
Author(s):  
Sally-Ann Rhea ◽  
Andy A. Gross ◽  
Brett C. Haberstick ◽  
Robin P. Corley
Keyword(s):  
Reading Ability ◽  
Behavioral Genetics ◽  
Early Reading ◽  
Population Based ◽  
Demographic Information ◽  
Early Reading Development ◽  
University Of Colorado ◽  
Executive Cognitive Function ◽  
Twin Registry ◽  
Population Based Registry

AbstractThe Colorado Twin Registry (CTR) is a population-based registry housed at the Institute for Behavioral Genetics, University of Colorado. Recruited subjects' birth years date from 1968. Four samples comprise the CTR: the Community Twin Sample, Infant Twin Sample, Longitudinal Twin Sample, and the Early Reading Development Sample. Criteria for enrollment, recruitment strategies, demographic information and zygosity assignment are explained for each sample. In addition, 8 studies in which CTR twins have participated are highlighted. These include studies of early cognition, early reading ability, executive cognitive function, and vulnerability to substance abuse and antisocial behavior. Goals, measures, and brief results are provided for each study. The development of the CTR is an ongoing and evolving process, and it has proved to be a valuable resource, relatively representative of the population from which it was drawn.

Patterns of alcohol use 1 year after traumatic brain injury: A population-based, epidemiological study

2005 ◽  
Vol 11 (3) ◽  
pp. 322-330 ◽  
Author(s):  
MICHAEL DAVID HORNER ◽  
PAMELA L. FERGUSON ◽  
ANBESAW W. SELASSIE ◽  
LAWRENCE A. LABBATE ◽  
KATHRYN KNIELE ◽  
...  
Keyword(s):  
Traumatic Brain Injury ◽  
South Carolina ◽  
Brain Injury ◽  
Alcohol Use ◽  
Large Population ◽  
Heavy Drinking ◽  
Population Based ◽  
Drinking Patterns ◽  
Data Set ◽  
Discharge Data

This study delineated patterns of alcohol use 1 year after traumatic brain injury (TBI) in a large, population-based, epidemiological, nonclinical sample, and identified predictors of heavy alcohol use in these individuals. Participants were 1,606 adults identified by review of a South Carolina statewide hospital discharge data set, on the basis of satisfying the Centers for Disease Control case definition of TBI, and were interviewed by telephone 1 year after TBI-related discharge. Alcohol use in the month prior to interview was classified according to categories from the Quantity–Frequency–Variability Index; heavy drinking was defined as nearly daily use with ≥ 5 drinks at least occasionally, or at least three occasions with ≥ 5 drinks. A polychotomous logistic regression with 3 response levels (heavy, moderate, and abstinent/infrequent/light drinking) was used to identify predictors of heavy drinking. Heavy drinking in the month prior to interview was reported by 15.4% of participants, while 14.3% reported moderate drinking and 70.3% reported abstinence or light/infrequent drinking. Risk factors for heavy drinking included male gender, younger age, history of substance abuse prior to TBI, diagnosis of depression since TBI, fair/moderate mental health, and better physical functioning. There was no association between drinking patterns and TBI severity. (JINS, 2005,11, 322–330.)

scholarly journals The Italian Twin Registry: An Update at 18 Years From Its Inception

2019 ◽  
Vol 22 (6) ◽  
pp. 572-578
Author(s):  
Emanuela Medda ◽  
Virgilia Toccaceli ◽  
Corrado Fagnani ◽  
Lorenza Nisticò ◽  
Sonia Brescianini ◽  
...  
Keyword(s):  
Age Groups ◽  
Population Based ◽  
International Studies ◽  
Questionnaire Data ◽  
Twin Registry ◽  
Health Related ◽  
Research Initiatives ◽  
Population Based Registry ◽  
Age Range ◽  
Research Period

AbstractThe Italian Twin Registry (ITR), established in 2001, is a population-based registry of voluntary twins. To date, it consists of approximately 29,000 twins who gave their consent to participate in the studies proposed by the ITR research group. The database comprises 11,500 monozygotic and 16,700 dizygotic twins resident throughout the country and belonging to a wide age range (from 0 to 95 years, mean 36.8 years). This article provides an overview of the recruitment strategies along with the major phenotypes investigated during an 18 years’ research period. Over the years, several self-reported questionnaire data were collected, together with saliva/blood samples and measurements taken during in-person interviews or outpatient clinical examinations. Mental and behavioral phenotypes as well as atherosclerotic traits were studied in depth across different age groups. A birth cohort of twins was established and followed up. Novel research hypotheses are also being tested in ongoing projects. The ITR is involved in international studies in collaboration with other twin registries and represents a valuable resource for national and international research initiatives regarding a broad spectrum of health-related characteristics.

An Update of Twin Research in Spain: The Murcia Twin Registry

2019 ◽  
Vol 22 (6) ◽  
pp. 667-671 ◽  
Author(s):  
Juan R. Ordoñana ◽  
Eduvigis Carrillo ◽  
Lucía Colodro-Conde ◽  
Francisco J. García-Palomo ◽  
Francisca González-Javier ◽  
...  
Keyword(s):  
Population Based ◽  
Short Term ◽  
Public Health Perspective ◽  
Twin Research ◽  
Main Research ◽  
Twin Registry ◽  
Adult Participants ◽  
Health Related ◽  
Population Based Registry

AbstractThe Murcia Twin Registry (MTR) is the only population-based registry in Spain. Created in 2006, the registry has been growing more than a decade to become one of the references for twin research in the Mediterranean region. The MTR database currently comprises 3545 adult participants born between 1940 and 1977. It also holds a recently launched satellite registry of university students (N = 204). Along five waves of data collection, the registry has gathered questionnaire and anthropometric data, as well as biological samples. The MTR keeps its main research focus on health and health-related behaviors from a public health perspective. This includes lifestyle, health promotion, quality of life or environmental conditions. Future short-term development points to the expansion of the biobank and the continuation of the collection of longitudinal data.

The Colorado Twin Registry: 2019 Update

2019 ◽  
Vol 22 (6) ◽  
pp. 707-715 ◽  
Author(s):  
Robin P. Corley ◽  
Chandra A. Reynolds ◽  
Sally J. Wadsworth ◽  
Sally-Ann Rhea ◽  
John K. Hewitt
Keyword(s):  
Human Genetics ◽  
Longitudinal Research ◽  
Population Based ◽  
Twin Research ◽  
Research Opportunities ◽  
Twin Registry ◽  
History Of ◽  
Population Based Registry ◽  
School Records

AbstractThe Colorado Twin Registry (CTR) is a population-based registry formed from birth and school records including twins born between 1968 and the present. Two previous reports on the CTR [Rhea et al., (2006). Twin Research and Human Genetics, 9, 941–949; Rhea et al., (2013).Twin Research and Human Genetics, 16, 351–357] covered developments in the CTR through 2012. This report briefly summarizes previously presented material on ascertainment and recruitment and the relationships between samples and studies, discusses developments since 2012 for four previously described twin samples, describes two new samples and their complementary studies and expands on two subjects briefly mentioned in the last report: a history of genotyping efforts involving CTR samples, and a survey of collaborations and consortia in which CTR twins have been included. The CTR remains an active resource for both ongoing, longitudinal research and the recruitment of new twin samples for newly identified research opportunities.

scholarly journals Colorado Twin Registry: An Update

2012 ◽  
Vol 16 (1) ◽  
pp. 351-357 ◽  
Author(s):  
Sally-Ann Rhea ◽  
Andy A. Gross ◽  
Brett C. Haberstick ◽  
Robin P. Corley
Keyword(s):  
Behavioral Genetics ◽  
Early Reading ◽  
Population Based ◽  
Learning Ability ◽  
Demographic Information ◽  
Early Reading Development ◽  
University Of Colorado ◽  
Twin Registry ◽  
The University ◽  
Population Based Registry

The Colorado Twin Registry (CTR) is a population-based registry housed at the Institute for Behavioral Genetics at the University of Colorado. Recruitment began in 1982 and includes twins born from 1968 to the present. Four samples are currently drawn from the CTR: The Community Twin Sample, the Longitudinal Twin Sample, the Early Reading Development Sample, and the Colorado Learning Sample. Criteria for enrollment, recruitment strategies, demographic information, and zygosity assignment are explained for each sample. In addition, five studies in which CTR twins are now participating are highlighted. These include studies of cognition, learning ability, and vulnerability to substance abuse and antisocial behavior. The development of the CTR is an ongoing and evolving process, and it has proven to be a valuable registry, relatively representative of the population from which it was drawn.

scholarly journals The Michigan State University Twin Registry (MSUTR): 15 Years of Twin and Family Research

2019 ◽  
Vol 22 (6) ◽  
pp. 741-745 ◽  
Author(s):  
S. Alexandra Burt ◽  
Kelly L. Klump
Keyword(s):  
Family Environment ◽  
Large Scale ◽  
Population Based ◽  
Future Research ◽  
Buccal Swab ◽  
Michigan State University ◽  
Childhood And Adolescence ◽  
State University ◽  
Twin Registry ◽  
Population Based Registry

AbstractThe primary aim of the Michigan State University Twin Registry (MSUTR) is to examine developmental differences in genetic, environmental, neural, epigenetic, and neurobiological influences on psychopathology and resilience, particularly during childhood and adolescence. The MSUTR has two broad components: a large-scale, population-based registry of child, adolescent, and adult twins and their families (current N ~30,000) and a series of more focused and in-depth studies drawn from the registry (projected N ~7200). Participants in the population-based registry complete a family health and demographic questionnaire via mail. Families can then be recruited for one or more of the intensive, in-person studies from the population-based registry, using any one of several recruitment strategies (e.g., population-based, based on their answers to the registry questionnaire). These latter studies target a variety of biological, genetic, and environmental phenotypes, including multi-informant measures of psychiatric and behavioral phenotypes, functional and structural neuroimaging, comprehensive measures of the twin family environment (e.g., census and neighborhood informant reports of twin neighborhood characteristics, videotaped interactions of child twin families), buccal swab and salivary DNA samples, and/or assays of adolescent and adult steroid hormone levels. This article provides an overview of the MSUTR and describes current and future research directions.

The Murcia Twin Registry: A Population-Based Registry of Adult Multiples in Spain

2012 ◽  
Vol 16 (1) ◽  
pp. 302-306 ◽  
Author(s):  
Juan R. Ordoñana ◽  
Irene Rebollo-Mesa ◽  
Eduvigis Carrillo ◽  
Lucía Colodro-Conde ◽  
Francisco J. García-Palomo ◽  
...  
Keyword(s):  
Development Strategy ◽  
Population Based ◽  
Short Term ◽  
Twin Registry ◽  
Health Related Behaviors ◽  
Health Related ◽  
Opposite Sex ◽  
The University ◽  
Population Based Registry

The Murcia Twin Registry (MTR) was created in 2006, under the auspices of the University of Murcia and the regional Health Authority, aiming to develop a research resource in Spain intended to stimulate current research and new investigation on the analysis of genetic factors related to health and health-related behaviors. The MTR development strategy was designed as a step-by-step process. Initially, it was focused on women's health but nowadays it includes males and opposite-sex twins. The database comprises 2,281 participants born between 1940 and 1966 in the region of Murcia, in Spain. There have been three waves of data collection and today the MTR databases include questionnaire and anthropometric data as well as biological samples. The current main areas of research interest are health and health-related behaviors, including lifestyle, health promotion, and quality of life. Future short-term development points to the completion of the biobank and continuing the collection of longitudinal data.

scholarly journals The Michigan State University Twin Registry (MSUTR): An Update

2012 ◽  
Vol 16 (1) ◽  
pp. 344-350 ◽  
Author(s):  
S. Alexandra Burt ◽  
Kelly L. Klump
Keyword(s):  
Large Scale ◽  
Family Health ◽  
Externalizing Disorders ◽  
Population Based ◽  
Future Research ◽  
Buccal Swab ◽  
Michigan State University ◽  
State University ◽  
Twin Registry ◽  
Population Based Registry

The primary aim of the Michigan State University Twin Registry (MSUTR) is on understanding developmental changes in genetic, environmental, and neurobiological influences on internalizing and externalizing disorders, with antisocial behavior and disordered eating representing our particular areas of interest. The MSUTR has two broad components: a large-scale, population-based registry of child, adolescent, and adult twins and their families (current N ~20,000) and a series of more focused and in-depth studies drawn from the registry (current N ~4,000). Participants in the population-based registry complete a family health and demographic questionnaire via mail. Families are then recruited for one or more of the intensive, in-person studies from the population-based registry based on their answers to relevant items in the registry questionnaire. These in-person assessments target a variety of biological, genetic, and environmental phenotypes, including multi-informant measures of psychiatric and behavioral phenotypes, census and neighborhood informant reports of twin neighborhood characteristics, buccal swab and salivary DNA samples, assays of adolescent and adult steroid hormone levels, and/or videotaped interactions of child twin families. This article provides an overview of the MSUTR and describes current and future research directions.

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