scholarly journals The Mid-Atlantic Twin Registry of Virginia Commonwealth University

2019 ◽  
Vol 22 (6) ◽  
pp. 753-756
Author(s):  
Emily C. H. Lilley ◽  
Anne-Taylor Morris ◽  
Judy L. Silberg
Keyword(s):  
South Carolina ◽  
Developmental Psychopathology ◽  
Human Microbiome ◽  
Population Based ◽  
Twin Registry ◽  
Children Of Twins ◽  
Sleep Homeostasis ◽  
Smoking Behaviors ◽  
Dna Collection ◽  
Virginia Commonwealth University

AbstractThe Mid-Atlantic Twin Registry (MATR) is a population-based registry of more than 60,000 twins primarily born or living in Virginia, North Carolina and South Carolina. Researchers may utilize the MATR for administration of research services, including study recruitment, data or sample (e.g., DNA) collection, archival dataset creation, as well as data collection through mailed, phone or online surveys. In addition, the MATR houses the MATR Repository, with over 1700 DNA samples primarily from whole blood available for researchers interested in DNA genotyping. For over 40 years MATR twins have participated in research studies with investigators from a range of scientific disciplines and institutions. These studies, which have resulted in numerous publications, explored diverse topics, including substance use, smoking behaviors, developmental psychopathology, bullying, children’s health, cardiovascular disease, cancer, the human microbiome, epigenetics of aging, children of twins and sleep homeostasis. Researchers interested in utilizing twins are encouraged to contact the MATR to discuss potential research opportunities.

The Mid-Atlantic Twin Registry, Revisited

2012 ◽  
Vol 16 (1) ◽  
pp. 424-428 ◽  
Author(s):  
Emily C. H. Lilley ◽  
Judy L. Silberg
Keyword(s):  
South Carolina ◽  
Developmental Psychopathology ◽  
Human Microbiome ◽  
Population Based ◽  
Data Set ◽  
Twin Registry ◽  
Children Of Twins ◽  
Scientific Disciplines ◽  
Sleep Homeostasis ◽  
Population Based Registry

The Mid-Atlantic Twin Registry (MATR) is a population-based registry of more than 56,000 twins primarily born or living in Virginia, North Carolina, and South Carolina. The MATR employs several methods of ascertaining twins, and devotes considerable resources to tracking and maintaining communication with MATR participants. Researchers may utilize the MATR for administration of research services including study recruitment, collection of DNA, archival data set creation, as well as data collection through mailed, phone, or online surveys. In addition, the MATR houses the MATR Repository, with over 1,200 blood samples available for researchers interested in DNA genotyping. For over 35 years MATR twins have participated in research studies with investigators from diverse scientific disciplines and various institutions. These studies, which have resulted in numerous publications, have covered a range of topics, including the human microbiome, developmental psychopathology, depression, anxiety, substance use, epigenetics of aging, children of twins, pre-term birth, social attitudes, seizures, eating disorders, as well as sleep homeostasis. Researchers interested in utilizing twins are encouraged to contact the MATR to discuss potential research opportunities.

scholarly journals Predictors of disordered eating in adolescence and young adulthood

2013 ◽  
Vol 38 (2) ◽  
pp. 128-138 ◽  
Author(s):  
Dawit Shawel Abebe ◽  
Leila Torgersen ◽  
Lars Lien ◽  
Gertrud S. Hafstad ◽  
Tilmann von Soest
Keyword(s):  
Risk Factors ◽  
Disordered Eating ◽  
Young Adulthood ◽  
Early Adolescence ◽  
Developmental Psychopathology ◽  
Population Based ◽  
Specific Risk ◽  
Random Intercept ◽  
Developmental Phases ◽  
Gender Specific

We investigated longitudinal predictors for disordered eating from early adolescence to young adulthood (12–34 years) across gender and different developmental phases among Norwegian young people. Survey data from a population-based sample were collected at four time points (T) over a 13-year time span. A population-based sample of 5,679 females and males at T1 and T2, 2,745 at T3 and 2,718 at T4 were included in analyses, and linear regression and random intercept models were applied. In adolescence, initial disordered eating and parental overprotectiveness were more strongly related to disordered eating among females, whereas loneliness was a stronger predictor for adolescent males. Initial disordered eating during early adolescence predicted later disordered eating more strongly in late- than mid-adolescence. In young adulthood, no significant gender-specific risk factors were found. The findings provide support for both shared and specific risk factors for the developmental psychopathology of disordered eating.

scholarly journals The NAS-NRC Twin Registry and Duke Twins Study of Memory in Aging: An Update

2019 ◽  
Vol 22 (6) ◽  
pp. 757-760 ◽  
Author(s):  
Margaret Gatz ◽  
Brenda L. Plassman ◽  
Caroline M. Tanner ◽  
Samuel M. Goldman ◽  
Gary E. Swan ◽  
...  
Keyword(s):  
World War Ii ◽  
Human Genetics ◽  
White Male ◽  
National Research Council ◽  
Armed Forces ◽  
National Archive ◽  
Population Based ◽  
National Academy Of Sciences ◽  
Twin Registry ◽  
Academy Of Sciences

AbstractThe National Academy of Sciences-National Research Council (NAS-NRC) Twin Registry is one of the oldest, national population-based twin registries in the USA. It comprises 15,924 White male twin pairs born in the years 1917–1927 (N = 31.848), both of whom served in the armed forces, chiefly during World War II. This article updates activities in this registry since the most recent report in Twin Research and Human Genetics (Page, 2006). Records-based data include information from enlistment charts and Veterans Administration data linkages. There have been three major epidemiologic questionnaires and an education and earnings survey. Separate data collection efforts with the NAS-NRC registry include the National Heart, Lung, and Blood Institute (NHLBI) subsample, the Duke Twins Study of Memory in Aging and a clinically based study of Parkinson’s disease. Progress has been made on consolidating the various data holdings of the NAS-NRC Twin Registry. Data that had been available through the National Academy of Sciences are now freely available through National Archive of Computerized Data on Aging (NACDA).

scholarly journals The Western Australian Twin Register: A Population-Based Register of Adult and Child Multiples

2006 ◽  
Vol 9 (6) ◽  
pp. 712-717 ◽  
Author(s):  
Jessica D. Y. Lee ◽  
Lyle J. Palmer
Keyword(s):  
Medical Research ◽  
Genetic Epidemiology ◽  
Record Linkage ◽  
Collaborative Research ◽  
Data Linkage ◽  
Population Based ◽  
Multiple Births ◽  
Efficient Management ◽  
Twin Registry ◽  
Western Australian

AbstractThe Western Australian Twin Register (WATR) was established in 1997 to study the health of all child multiples born in Western Australia (WA). The Register has until recently consisted of all multiples born in WA between 1980 and 1997. Using unique record linkage capacities available through the WA data linkage system, we have subsequently been able to identify all multiple births born in WA since 1974. New affiliations with the Australian Twin Registry and the WA Institute for Medical Research are further enabled by the use of the WA Genetic Epidemiology Resource — a high-end bioinformatics infrastructure that allows efficient management of health datasets and facilitates collaborative research capabilities. In addition to this infrastructure, funding provided by these institutions has allowed the extension of the WATR to include a greater number of WA multiples, including those born between 1974 and 1979, and from 1998 onwards. These resources are in the process of being enabled for national and international access.

scholarly journals Hereditary and environmental factors causing total joint replacement due to hip and knee osteoarthritis – a twin registry based prospective cohort study

2016 ◽  
Vol 26 (1-2) ◽  
Author(s):  
Karin Magnusson ◽  
Kåre Birger Hagen
Keyword(s):  
Environmental Factors ◽  
Knee Joint ◽  
Joint Replacement ◽  
Total Joint Replacement ◽  
Population Based ◽  
Genetic Contribution ◽  
Questionnaire Response ◽  
Knee Oa ◽  
Relative Contribution ◽  
Twin Registry

The relative contribution of genetic factors and more modifiable environmental factors to a clinically<br />relevant osteoarthritis (OA) diagnosis is unkown. In this paper we present an ongoing study on the genetic<br />contribution to total joint replacement (TJR) due to hip and knee OA and effects of lifestyle and lifestyle<br />related conditions on TJR due to OA. We have linked data on incident OA from the Norwegian Arthroplasty<br />Registry were l with the Norwegian Twin Registry on the National ID number in 2014, thus obtaining a<br />population based cohort of same-sex twins born 1915-60. Data on height, weight and lifestyle were selfreporteded<br />in questionnaires conducted between 1978 and 1992. The monozygotic (MZ) and dizygotic<br />(DZ) concordances as well as the genetic contribution vs. contribution of more modifiable, environmental<br />factors to arthroplasty will be examined in separate analyses for the hip and the knee joint. The sample<br />comprised N=18058 twins (N=3803 MZ and N=5226 DZ pairs) including N=9650 (53.4%) females and a<br />mean (SD) age of 38 (12.3) years at questionnaire response. Some preliminary analyses have been performed<br />showing a higher concordance for TJR due to hip OA among MZ (0.36) than DZ twins (0.16), which may<br />be consistent with a genetic contribution to hip OA. TJR due to hip OA may be determined by genetic<br />factors. Results for the knee joint as well as final results from hereditary analyses and co-twin control<br />analyses of will be published consecutively from 2016.

The Chinese National Twin Registry: An Update

2013 ◽  
Vol 16 (1) ◽  
pp. 86-90 ◽  
Author(s):  
Liming Li ◽  
Wenjing Gao ◽  
Canqing Yu ◽  
Jun Lv ◽  
Weihua Cao ◽  
...  
Keyword(s):  
Risk Factors ◽  
Chronic Diseases ◽  
Environmental Risk ◽  
Population Based ◽  
Environmental Risk Factors ◽  
Twin Registry ◽  
The Relationship ◽  
Discordant Twin

The Chinese National Twin Registry (CNTR), established in 2001, is the first and largest population-based twin registry in China. Based on the CNTR, a new twin cohort was recruited from 2011 to study the relationship between environmental risk factors and chronic diseases. So far, 33,874 twin pairs from nine provinces have been recruited, in which hundreds of disease-discordant twin pairs and even thousands of exposure-discordant twin pairs were found in this cohort. The updates of the CNTR will be introduced in detail in this article.

Evaluation of an active population‐based surveillance system for major birth defects in South Carolina

2020 ◽  
Author(s):  
Marsha E. Samson ◽  
Vinita Leedom ◽  
Cara T. Mai ◽  
Brian Humphries ◽  
Lorraine F. Yeung
Keyword(s):  
South Carolina ◽  
Birth Defects ◽  
Surveillance System ◽  
Population Based ◽  
Active Population

scholarly journals Demographics and medical disorders associated with smoking: a population-based study

2020 ◽  
Vol 20 (1) ◽  
Author(s):  
Wei-Sheng Chung ◽  
Pei-Tseng Kung ◽  
Hui-Yun Chang ◽  
Wen-Chen Tsai
Keyword(s):  
National Health ◽  
Population Based ◽  
Chronic Obstructive ◽  
Research Database ◽  
Population Based Study ◽  
Factors Associated ◽  
Suburban Areas ◽  
Medical Disorders ◽  
Smoking Behaviors ◽  
Study Participants

Abstract Background Few studies have investigated factors associated with smoking behaviors. In this population-based study, we investigated demographics and medical comorbid diseases to establish a prediction model for smoking behaviors by using the National Health Interview Survey (NHIS) and National Health Insurance Research Database (NHIRD). Methods We enrolled individuals aged ≥40 years who had participated in the NHIS in 2001, 2005, and 2009. We identified the smoking behaviors of the study participants in the NHIS. Smoking behaviors were divided into ever smokers (current smokers and ex-smokers) and nonsmokers (never smokers).We defined medical comorbid disorders of the study participants by using medical claim data from the NHIRD. We used multivariable logistic regression models to calculate the adjusted odds ratio and 95% confidence interval for variables associated with smoking. The significant variables in the multivariable model were included in the receiver operating characteristic curves (ROC) to predict the sensitivity and specificity of the model. Results In total, 26,375 participants (12,779 men and 13,596 women) were included in the analysis. The prevalence of smoking was 39.29%. The mean ages of the 16,012 nonsmokers were higher than those of the 10,363 smokers (57.86 ± 12.92 years vs. 53.59 ± 10.82 years). Men outnumbered women among smokers (68.18% vs. 31.82%). Male sex, young age and middle age, being insured categories, residence in suburban areas, and chronic obstructive pulmonary disease (COPD) were independent factors associated with smoking. The area under the ROC curve of these significant factors to predict smoking behaviors was 71.63%. Conclusion Sex, age, insured categories, residence in suburban areas, and COPD were associated with smoking in people.

Update From Sri Lankan Twin Registry: Establishment of a Population-Based Twin Register and Ongoing Project on Common Mental Disorders, Alcohol Abuse and Suicidal Ideations

2006 ◽  
Vol 9 (6) ◽  
pp. 868-874 ◽  
Author(s):  
Sisira Hemananda Siribaddana ◽  
Waduthanthrige Danushki Siriwardane ◽  
Suwin Nilanga Hewage ◽  
Athukoralage Don Manjula Deshapriya Athukorale ◽  
Athula Sumathipala ◽  
...  
Keyword(s):  
Mental Disorders ◽  
Common Mental Disorders ◽  
Twin Studies ◽  
Feasibility Studies ◽  
Population Based ◽  
Sri Lankan ◽  
Twin Registry ◽  
Electoral Register ◽  
Adult Twins ◽  
Ongoing Project

AbstractThe Sri Lankan Twin Registry began as a volunteer register in 1997. Previously, we have shown door-to-door surveys as the best option to build a population-based twin register of older, adult twins. Our aim was to build a population-based twin register in the Colombo district and use it for twin studies on common mental disorders. We aimed to identify a random sample of 4000 twins ascertained through the twin census. The Colombo district is divided into 13 divisional secretariat divisions (DSDs) and each division is further divided into Grama Niladari divisions administratively. Grama niladaris (GNs) are civil servants and visit each household in order to update the electoral register. GNs were used to do a census of twins while they updated the electoral register. The correlation between population density and twin rate among DSDs was .81, and between twin rate and the percentage of returned forms (from each DSD) was .74. We received 9648 forms notifying about twins and multiples. After removing the duplicates and information about twins who live in other districts, there were 17,406 multiples remaining. After incorporating twins and multiples from various other feasibility studies we now have 19,040 multiples with 8.46 twins per 1000 people in the Colombo district.

Colorado Twin Registry

2006 ◽  
Vol 9 (6) ◽  
pp. 941-949 ◽  
Author(s):  
Sally-Ann Rhea ◽  
Andy A. Gross ◽  
Brett C. Haberstick ◽  
Robin P. Corley
Keyword(s):  
Reading Ability ◽  
Behavioral Genetics ◽  
Early Reading ◽  
Population Based ◽  
Demographic Information ◽  
Early Reading Development ◽  
University Of Colorado ◽  
Executive Cognitive Function ◽  
Twin Registry ◽  
Population Based Registry

AbstractThe Colorado Twin Registry (CTR) is a population-based registry housed at the Institute for Behavioral Genetics, University of Colorado. Recruited subjects' birth years date from 1968. Four samples comprise the CTR: the Community Twin Sample, Infant Twin Sample, Longitudinal Twin Sample, and the Early Reading Development Sample. Criteria for enrollment, recruitment strategies, demographic information and zygosity assignment are explained for each sample. In addition, 8 studies in which CTR twins have participated are highlighted. These include studies of early cognition, early reading ability, executive cognitive function, and vulnerability to substance abuse and antisocial behavior. Goals, measures, and brief results are provided for each study. The development of the CTR is an ongoing and evolving process, and it has proved to be a valuable resource, relatively representative of the population from which it was drawn.

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