scholarly journals A preliminary investigation of genetic counselors’ information needs when receiving a variant of uncertain significance result: a mixed methods study

2015 ◽  
Vol 17 (9) ◽  
pp. 739-746 ◽  
Author(s):  
Courtney L. Scherr ◽  
Noralane M. Lindor ◽  
Teri L. Malo ◽  
Fergus J. Couch ◽  
Susan T. Vadaparampil
Keyword(s):  
Mixed Methods ◽  
Information Needs ◽  
Preliminary Investigation ◽  
Genetic Counselors ◽  
Mixed Methods Study ◽  
Variant Of Uncertain Significance ◽  
Uncertain Significance

Uncertainty about cellulitis and unmet patient information needs: a mixed methods study

2018 ◽  
Vol 68 (suppl 1) ◽  
pp. bjgp18X697349
Author(s):  
Anna Lalonde ◽  
Emma Teasdale ◽  
Ingrid Muller ◽  
Joanne Chalmers ◽  
Peter Smart ◽  
...  
Keyword(s):  
Mixed Methods ◽  
Information Needs ◽  
Qualitative Data ◽  
Information Provision ◽  
Mixed Methods Study ◽  
Cross Sectional Survey ◽  
Cross Sectional ◽  
Face To Face ◽  
Patient Information Needs ◽  
History Of

BackgroundCellulitis is a common painful infection of the skin and underlying tissues that recurs in approximately a third of cases. Patients’ ability to recover from cellulitis or prevent recurrence is likely to be influenced by their understanding of the condition.AimTo explore patients’ perceptions of cellulitis and their information needs.MethodMixed methods study comprising semi-structured, face-to-face interviews and cross-sectional survey, recruiting through primary care, secondary care and advertising. Adults aged 18 or over with a history of cellulitis (first or recurrent) were invited to complete a survey, take part in an interview or both. Qualitative data was analysed thematically.ResultsThirty interviews were conducted between August 2016 and July 2017. Qualitative data revealed low prior awareness of cellulitis, uncertainty around diagnosis, concern/surprise at the severity of cellulitis, and perceived insufficient information provision. People were surprised they had never heard of the condition and that they had not received advice or leaflets giving self-care information. Some sought information from the internet and found this bewildering. Two hundred and forty surveys were completed (response rate 17%). These showed that, while most people received information on the treatment of cellulitis (60.0%, n = 144), they reported receiving no information about causes (60.8%, n = 146) or prevention of recurrence (73.3%, n = 176).ConclusionThere is a need for provision of basic information for people with cellulitis, particularly being informed of the name of their condition, how to manage acute episodes, and how to reduce risk of recurrence.

scholarly journals Genetic counselors' practices and confidence regarding variant of uncertain significance results and reclassification fromBRCAtesting

2015 ◽  
Vol 88 (6) ◽  
pp. 523-529 ◽  
Author(s):  
C.L. Scherr ◽  
N.M. Lindor ◽  
T.L. Malo ◽  
F.J. Couch ◽  
S.T. Vadaparampil
Keyword(s):  
Genetic Counselors ◽  
Variant Of Uncertain Significance ◽  
Uncertain Significance

scholarly journals Patients’ understanding of cellulitis and their information needs: a mixed-methods study in primary and secondary care

2019 ◽  
Vol 69 (681) ◽  
pp. e279-e286 ◽  
Author(s):  
Emma Teasdale ◽  
Anna Lalonde ◽  
Ingrid Muller ◽  
Joanne Chalmers ◽  
Peter Smart ◽  
...  
Keyword(s):  
Mixed Methods ◽  
Secondary Care ◽  
Information Needs ◽  
Information Provision ◽  
Mixed Methods Study ◽  
First Episode ◽  
Cross Sectional Survey ◽  
Cross Sectional ◽  
Face To Face ◽  
History Of

BackgroundCellulitis is a painful infection of the skin and underlying tissues, commonly affecting the lower leg. Approximately one-third of people experience recurrence. Patients’ ability to recover from cellulitis or prevent recurrence is likely to be influenced by their understanding of the condition.AimTo explore patients’ perceptions of cellulitis, and their information needs.Design and settingMixed-methods study comprising semi-structured, face-to-face interviews and a cross-sectional survey, recruiting through primary and secondary care, and advertising.MethodAdults aged ≥18 years with a history of cellulitis were invited to take part in a survey, qualitative interview, or both.ResultsIn all, 30 interviews were conducted between August 2016 and July 2017. Qualitative data highlighted a low awareness of cellulitis before the first episode, uncertainty about when it had been diagnosed, concern/surprise at the severity of cellulitis, and a perceived insufficient information provision. People were surprised that they had never heard of cellulitis and that they had not received advice or leaflets giving self-care information. Some sought information from the internet and found this confusing.A total of 240 surveys were completed (response rate 17%). These showed that, although many participants had received information on the treatment of cellulitis (60.0%, n = 144), they often reported receiving no information about causes (60.8%, n = 146) or prevention of recurrence (73.3%, n = 176).ConclusionThere is a need to provide information for people with cellulitis, particularly in regard to naming their condition, the management of acute episodes, and how to reduce the risk of recurrences.

scholarly journals Genetics-related service and information needs of childhood cancer survivors and parents: a mixed-methods study

2019 ◽  
Vol 28 (1) ◽  
pp. 6-16 ◽  
Author(s):  
Janine Vetsch ◽  
◽  
Claire E. Wakefield ◽  
Katherine M. Tucker ◽  
Maria McCarthy ◽  
...  
Keyword(s):  
Mixed Methods ◽  
Cancer Survivors ◽  
Childhood Cancer ◽  
Information Needs ◽  
Childhood Cancer Survivors ◽  
Mixed Methods Study ◽  
Related Service

Information needs of Arab cancer survivors and caregivers: A mixed methods study

2019 ◽  
Vol 26 (1) ◽  
pp. 40-48 ◽  
Author(s):  
Ibrahim M. Alananzeh ◽  
Cannas Kwok ◽  
Lucie Ramjan ◽  
Janelle V. Levesque ◽  
Bronwyn Everett
Keyword(s):  
Mixed Methods ◽  
Cancer Survivors ◽  
Information Needs ◽  
Mixed Methods Study

Opportunities and Barriers of Telemedicine in Rheumatology: A Participatory Mixed-Methods-Study (Preprint)

2021 ◽  
Author(s):  
Felix Muehlensiepen ◽  
Johannes Knitza ◽  
Wenke Marquardt ◽  
Susann May ◽  
Martin Krusche ◽  
...  
Keyword(s):  
Mixed Methods ◽  
Focus Groups ◽  
Quantitative Research ◽  
Information Needs ◽  
Musculoskeletal Diseases ◽  
Mixed Methods Study ◽  
Personal Contact ◽  
Main Concern ◽  
Exact Integration ◽  
Survey Results

BACKGROUND The global burden of rheumatic and musculoskeletal diseases (RMDs) is rising. Professional ressources in rheumatology are scarce. The use of telemedicine could improve access to RMD care. Despite all its promises, telemedicine is still not widely implemented in RMD care. OBJECTIVE To investigate opportunities, barriers, acceptance, and preferences concerning telemedicine among RMD patients and professional stakeholders involved in RMD patient management. METHODS From November 2017 to December 2019 a participatory mixed-methods-study was conducted based on three parts: (1) qualitative expert interviews with RMD patients and professional stakeholders that were used to participatively design (2) a national paper-based patient survey. The survey results were hence discussed in (3) focus groups with patient representatives and rheumatologists. RESULTS Fifteen patients and 26 professional stakeholders participated in the qualitative and further 766 patients took part in the quantitative research. The qualitative interview data reveals opportunities and barriers from the patients' (n=5) and professional stakeholders’(n=23) perspectives: Patients appreciate the potentials of telemedicine to overcome space and time in health care. In contrast, the loss of personal patient-doctor contact is the main concern of patients regarding telemedicine use. Personal contact is equated with physical face-to-face contact, which could be reduced by implementing telemedicine, thus negatively influencing the patient-doctor relationship. Professional stakeholders expect telemedicine to contribute to effective allocation of scarce resources in rheumatology care. This is countered by the absence of physical examinations and organizational challenges as barriers of the use of telemedicine. Both, patients and professional stakeholders describe telemedicine as something broad and complex to define. These qualitative findings align with the survey results: 38% (264/690) of the surveyed patients refuse to try telemedicine, 32% (216/690) are not sure, and 30% (210/690) would like to try telemedicine. ‘No personal contact with the doctor’ (64%, 220/346) was most frequently chosen as a reason against telemedicine, followed by ‘Data security’ (28%, 96/346). Patients prefer to use the telephone (60%, 206/341) over video-consultations (35%, 118/341) as telemedicine use cases. Only 2 (0.3%, 2/714) survey participants indicated that they already had a video consultation with their physician. The focus groups revealed a homogeneous spectrum of opinions with participants confirming the survey results. Patients (n=10) emphasize the high relevance of physical doctor-patient contact. Rheumatologists (n=4) highlight the potential of telemedicine, as a support of existing care structures. However, the exact integration of telemedicine into medical routines remains unclear, especially in view of scarce time resources in rheumatology care. CONCLUSIONS As digital transformation of rheumatology care progresses, the desire for a close patient-doctor relationship persists. Many study participants fear that the use of telemedicine will have negative effects on patient-doctor relationship and therefore oppose the use of telemedicine. We identified further barriers and opportunities, such as information needs, digital infrastructure and equipment requirements, and patient preferences on the composition of digital services, to guide the design and implementation of telemedicine in rheumatology care.

scholarly journals A mixed methods study on medicines information needs and challenges in New Zealand general practice

2021 ◽  
Vol 22 (1) ◽  
Author(s):  
Chloë Campbell ◽  
Rhiannon Braund ◽  
Caroline Morris
Keyword(s):  
General Practice ◽  
Mixed Methods ◽  
New Zealand ◽  
Side Effects ◽  
General Practitioners ◽  
Information Needs ◽  
Qualitative Data ◽  
Mixed Methods Study ◽  
Information Support ◽  
Medicines Information

Abstract Background Medicines are central to healthcare in aging populations with chronic multi-morbidity. Their safe and effective use relies on a large and constantly increasing knowledge base. Despite the current era of unprecedented access to information, there is evidence that unmet information needs remain an issue in clinical practice. Unmet medicines information needs may contribute to sub-optimal use of medicines and patient harm. Little is known about medicines information needs in the primary care setting. The aim of this study was to investigate the nature of medicines information needs in routine general practice and understand the challenges and influences on the information-seeking behaviour of general practitioners. Methods A mixed methods study involving 18 New Zealand general practitioner participants was undertaken. Quantitative data were collected to characterize the medicines information needs arising during 642 consultations conducted by the participants. Qualitative data regarding participant views on their medicines information needs, resources used, challenges to meeting the needs and potential solutions were collected by semi-structured interview. Integration occurred by comparison of results from each method. Results Of 642 consultations, 11% (n = 73/642) featured at least one medicines information need. The needs spanned 14 different categories with dosing the most frequent (26%) followed by side effects (15%) and drug interactions (14%). Two main themes describing the nature of general practitioners’ medicines information needs were identified from the qualitative data: a ‘common core’ related to medicine dose, side effects and interactions and a ‘perplexing periphery’. Challenges in the perplexing periphery were the variation in information needs, complexity, ‘known unknowns’ and ‘unknown unknowns’. Key factors affecting general practitioners’ strategies for meeting medicines information needs were trust in a resource, presence of the patient, how the information was presented, scarcity of time, awareness of the existence of a resource, and its accessibility. Conclusions General practitioners face challenges in meeting wide-ranging medicines information needs in patients with increasingly complex care needs. Recognising the challenges and factors that influence resource use in practice can inform optimisation of medicines information support resources. Resources for general practitioners must take into account the complexity and time constraints of real-world practice. An individually responsive approach involving greater collaboration with pharmacists and specialist medicines information support services may provide a potential solution.

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