scholarly journals The Intensive Cognitive-Communication Rehabilitation Program for Young Adults With Acquired Brain Injury

2019 ◽  
Vol 28 (1S) ◽  
pp. 341-358 ◽  
Author(s):  
Natalie Gilmore ◽  
Katrina Ross ◽  
Swathi Kiran
Keyword(s):  
Young Adults ◽  
Brain Injury ◽  
Classroom Behavior ◽  
Large Population ◽  
Acquired Brain Injury ◽  
Skills Training ◽  
Well Being ◽  
Individual Therapy ◽  
Cognitive Linguistic ◽  
Being There

PurposeThis study investigated the effects of an intensive cognitive-communication rehabilitation (ICCR) program for young individuals with chronic acquired brain injury.MethodICCR included classroom lectures; metacognitive instruction, modeling, and application; technology skills training; and individual cognitive–linguistic therapy. Four individuals participated in the intensive program (6 hr with 1-hr lunch break × 4 days × 12 weeks of treatment): 3 participants completed 3 consecutive semesters, and 1 participant completed 1 semester. Two controls did not receive treatment and completed assessments before and after the 12-week treatment interval only.ResultsAll 4 experimental participants demonstrated significant improvements on at least 1 standardized cognitive–linguistic measure, whereas controls did not. Furthermore, time point significantly predicted participants' scores on 2 of the 4 standardized outcome measures, indicating that as duration in ICCR increased, scores also increased. Participants who completed multiple semesters of ICCR also improved in their therapy and personal goals, classroom behavior, life participation, and quality of life.ConclusionAfter ICCR, participants showed gains in their cognitive–linguistic functioning, classroom participation, and individual therapy. They also demonstrated improvements outside the classroom and in their overall well-being. There is a gap between the large population of young adults with acquired brain injury who wish to return to higher education and a lack of rehabilitation programs supporting reentry into academic environments; ICCR is a first step in reducing that gap.

Grace Notes: feasibility of a manualized intervention to advance spiritual well-being for clients with acquired brain injury

2021 ◽  
pp. 1-13
Author(s):  
Margaret Thompson ◽  
Stacey Rabusch ◽  
Mary Vining Radomski ◽  
Valerie Marquardt ◽  
Kristina Kath ◽  
...  
Keyword(s):  
Brain Injury ◽  
Acquired Brain Injury ◽  
Well Being ◽  
Manualized Intervention ◽  
Spiritual Well Being

scholarly journals Participation Restrictions among Children and Young Adults with Acquired Brain Injury in a Pediatric Outpatient Rehabilitation Cohort: The Patients’ and Parents’ Perspective

2021 ◽  
Vol 18 (4) ◽  
pp. 1625
Author(s):  
Florian Allonsius ◽  
Arend de Kloet ◽  
Gary Bedell ◽  
Frederike van Markus-Doornbosch ◽  
Stefanie Rosema ◽  
...  
Keyword(s):  
Young Adults ◽  
Brain Injury ◽  
Acquired Brain Injury ◽  
Outpatient Rehabilitation ◽  
Rank Test ◽  
Limited Participation ◽  
Rehabilitation Treatment ◽  
Paired Samples ◽  
Participation Restrictions ◽  
Children And Young Adults

Improving participation is an important aim in outpatient rehabilitation treatment. Knowledge regarding participation restrictions in children and young adults with acquired brain injury (ABI) is scarce and little is known regarding the differences in perspectives between patients and parents in the outpatient rehabilitation setting. The aims are to describe participation restrictions among children/young adults (5–24 years) with ABI and investigating differences between patients’ and parents’ perspectives. At admission in 10 rehabilitation centers, patients and parents were asked to complete the Child and Adolescent Scale of Participation (CASP; score 0–100; lower score = more restrictions) and injury/patient/family-related questions. CASP scores were categorized (full/somewhat-limited/limited/very-limited participation). Patient/parent-reported outcomes were compared using the Wilcoxon signed-rank test. 223 patients and 245 parents participated (209 paired-samples). Median patients’ age was 14 years (IQR; 11–16), 135 were female (52%), 195 had traumatic brain injury (75%). The median CASP score reported by patients was 82.5 (IQR: 67.5–90) and by parents 91.3 (IQR: 80.0–97.5) (difference = p < 0.05). The score of 58 patients (26%) and 25 parents (10%) was classified as ‘very-limited’. Twenty-six percent of children and young adults referred for rehabilitation after ABI had “very-limited” participation. Overall, parents rated their child’s participation better than patients themselves. Quantifying participation restrictions after ABI and considering both perspectives is important for outpatient rehabilitation treatment.

Effect of Robot-Assisted Gait Training in a Large Population of Children With Motor Impairment Due to Cerebral Palsy or Acquired Brain Injury

2020 ◽  
Vol 101 (1) ◽  
pp. 106-112 ◽  
Author(s):  
Elena Beretta ◽  
Fabio Alexander Storm ◽  
Sandra Strazzer ◽  
Flaminia Frascarelli ◽  
Maurizio Petrarca ◽  
...  
Keyword(s):  
Cerebral Palsy ◽  
Brain Injury ◽  
Large Population ◽  
Motor Impairment ◽  
Acquired Brain Injury ◽  
Gait Training ◽  
Robot Assisted

scholarly journals Kinetic Gait Changes after Robotic Exoskeleton Training in Adolescents and Young Adults with Acquired Brain Injury

2020 ◽  
Vol 2020 ◽  
pp. 1-10
Author(s):  
Kiran K. Karunakaran ◽  
Naphtaly Ehrenberg ◽  
JenFu Cheng ◽  
Katherine Bentley ◽  
Karen J. Nolan
Keyword(s):  
Young Adults ◽  
Brain Injury ◽  
Therapeutic Effect ◽  
Acquired Brain Injury ◽  
Step Length ◽  
Gait Training ◽  
Adolescents And Young Adults ◽  
Motor Deficits ◽  
High Dose ◽  
Before And After

Background. Acquired brain injury (ABI) is one of the leading causes of motor deficits in children and adults and often results in motor control and balance impairments. Motor deficits include abnormal loading and unloading, increased double support time, decreased walking speed, control, and coordination. These deficits lead to diminished functional ambulation and reduced quality of life. Robotic exoskeletons (RE) for motor rehabilitation can provide the user with consistent, symmetrical, goal-directed repetition of movement, as well as balance and stability. Purpose. The goal of this preliminary prospective before and after study is to evaluate the therapeutic effect of RE training on the loading/unloading and spatial-temporal characteristics in adolescents and young adults with chronic ABI. Method. Seven participants diagnosed with ABI between the ages of 14 and 27 years participated in the study. All participants received twelve 45 minute sessions of RE gait training. The bilateral loading (linearity of loading and rate of loading), speed, step length, swing time, stance time, and total time were collected using Zeno™ walkway (ProtoKinetics, Havertown, PA, USA) before and after RE training. Results. Results from the study showed improved step length, speed, and an overall progression towards healthy bilateral loading, with linearity of loading showing a significant therapeutic effect ( p < 0.05 ). Conclusion. These preliminary results suggest that high dose, repetitive, consistent gait training using RE has the potential to induce recovery of function in adolescents and young adults diagnosed with ABI.

scholarly journals The BrainACT study: acceptance and commitment therapy for depressive and anxiety symptoms following acquired brain injury: study protocol for a randomized controlled trial

Trials ◽  
2019 ◽  
Vol 20 (1) ◽  
Author(s):  
Johanne Rauwenhoff ◽  
Frenk Peeters ◽  
Yvonne Bol ◽  
Caroline Van Heugten
Keyword(s):  
Depressive Symptoms ◽  
Brain Injury ◽  
Acceptance And Commitment Therapy ◽  
Depression Scale ◽  
Acquired Brain Injury ◽  
Well Being ◽  
Randomized Controlled ◽  
Commitment Therapy ◽  
Acceptance And Commitment ◽  
Number Of Patients

Abstract Background Following an acquired brain injury, individuals frequently experience anxiety and/or depressive symptoms. However, current treatments for these symptoms are not very effective. A promising treatment is acceptance and commitment therapy (ACT), which is a third-wave behavioural therapy. The primary goal of this therapy is not to reduce symptoms, but to improve psychological flexibility and general well-being, which may be accompanied by a reduction in symptom severity. The aim of this study is to investigate the effectiveness of an adapted ACT intervention (BrainACT) in people with acquired brain injury who experience anxiety and/or depressive symptoms. Methods The study is a multicenter, randomized, controlled, two-arm parallel trial. In total, 94 patients who survive a stroke or traumatic brain injury will be randomized into an ACT or control (i.e. psycho-education and relaxation) intervention. The primary outcome measures are the Hospital Anxiety and Depression Scale and the Depression Anxiety Stress Scale. Outcomes will be assessed by trained assessors, blinded to treatment condition, pre-treatment, during treatment, post-treatment, and at 7 and 12 months. Discussion This study will contribute to the existing knowledge on how to treat psychological distress following acquired brain injury. If effective, BrainACT could be implemented in clinical practice and potentially help a large number of patients with acquired brain injury. Trial registration Dutch Trial Register, NL691, NTR 7111. Registered on 26 March 2018. https://www.trialregister.nl/trial/6916.

scholarly journals Support for family members who are caregivers to relatives with acquired brain injury

2021 ◽  
Vol 8 (1) ◽  
pp. 76-85
Author(s):  
Janet Walker ◽  
Lourens Schlebusch ◽  
Bernhard Gaede
Keyword(s):  
Brain Injury ◽  
Suicidal Ideation ◽  
Family Caregivers ◽  
Qualitative Data ◽  
Family Members ◽  
Acquired Brain Injury ◽  
Well Being ◽  
Self Report ◽  
Cross Sectional ◽  
Significance Level

Objectives. Family members caring for a patient with acquired brain injury (ABI) are coping with inordinate levels of stress partially due to their lack of understanding of the neuropsychological effects of acquired brain injury in the patient. The objective of this research is to show that as the caregivers’ stress levels increase, there is an increase in suicidal ideation. This highlights the causal relationship between unhealthy stress and reduced psychological well-being in these caregivers. In addition, qualitative research evidence regarding the caregivers’ views of their main sources of stress are presented. Methods. The participants were a random sample of 80 family caregivers of patients with acquired brain injury, out of whom 72.5% (58) are primary caregivers and 27.5% (22) are secondary caregivers. A mixed methodology was utilized. It comprised cross-sectional descriptive and phenomenological approaches. Quantitative data were obtained from two standardized measures: The Stress Symptom Checklist (SSCL) and item 9 of the Beck Depression Inventory. The qualitative data were derived from self-report procedures that were part of a structured questionnaire administered individually during the interviews. Results. The Kruskal-Wallis test with a significance level of p = .05 was used to compare the stress and suicidal ideation scores, which revealed that increasing levels of stress led to increased suicidality. The analysis of the qualitative data revealed five themes which were identified as the triggers of the caregivers’ profound stress. Most caregivers felt that it was predominantly the patient’s neuropsychological deficits, such as emotions and/or moods, cognitive ability, behavior and personality, executive function, and social factors that caused them profound stress. Conclusions. Support and education are needed to help family caregivers understand the neuropsychological impact of acquired brain injury on the patient. Once caregivers have an improved understanding and receive better support from healthcare providers, they should experience less stress and be better prepared to provide the appropriate support to patients with acquired brain injury.

scholarly journals Case management after acquired brain injury compared to care as usual: study protocol for a two-year pragmatic randomized controlled trial

2020 ◽  
Author(s):  
Annemarie Stiekema ◽  
Christine Resch ◽  
Mireille Donkervoort ◽  
Natska Jansen ◽  
Kitty HM Jurrius ◽  
...  
Keyword(s):  
Cost Effectiveness ◽  
Brain Injury ◽  
Case Management ◽  
Self Efficacy ◽  
Unmet Needs ◽  
Acquired Brain Injury ◽  
Well Being ◽  
Family Needs ◽  
Randomized Controlled

Abstract Background: People with acquired brain injury may suffer from cognitive, emotional and behavioural changes in the long term. Continuity of care is often lacking, leading to a variety of unmet needs and hindering psychosocial functioning from the occurrence of brain injury up to years thereafter. Case management aims to prevent (escalation of) problems and to facilitate timely access to appropriate services. In other populations, case management has shown to improve psychosocial well-being. In this study, we aim to evaluate the feasibility of case management after acquired brain injury and its effectiveness and cost-effectiveness, compared to care as usual.Methods: This is a pragmatic randomized controlled study with repeated measures in adults with ABI and their family, taking place between November 2019 and December 2021 in three provinces in the Netherlands. Participants will be randomly allocated to either the case management group, receiving case management from hospital discharge up to two years thereafter, or the control group, receiving care as usual. Effectiveness will be evaluated every six months for 18-24 months by patient-reported psychosocial well-being (Hospital Anxiety and Depression Scale (HADS), Utrecht Scale for Evaluation of Rehabilitation-Participation (USER-P) restriction subscale and the Life Satisfaction Questionnaire (LiSat)), self-management (Patient Activation Measure (PAM)) and care needs (Longer-term Unmet Needs after Stroke (LUNS)). Family outcomes include self-efficacy (Carer Self-Efficacy Scale (CSES)), caregiver burden (Caregiver Strain Index (CSI)), psychosocial well-being (LiSat, HADS), family needs (Family Needs Questionnaire (FNQ)). Feasibility will be evaluated using qualitative methods, assessing fidelity, dose delivered, dose received, reach, recruitment and context. Cost-effectiveness will be determined by the EQ-5D-3L and service use.Discussion: At the moment there is no integrated health care service for people with acquired brain injury and their family members in the long-term. If case management is shown to be feasible and (cost)-effective, it could bridge the gap between patients’ and families’ needs and the available services.Trial registration: Netherlands Trial Register, NL8104. Registered 22 October 2019, https://www.trialregister.nl/trial/8104.

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