scholarly journals Support for family members who are caregivers to relatives with acquired brain injury

2021 ◽  
Vol 8 (1) ◽  
pp. 76-85
Author(s):  
Janet Walker ◽  
Lourens Schlebusch ◽  
Bernhard Gaede

Objectives. Family members caring for a patient with acquired brain injury (ABI) are coping with inordinate levels of stress partially due to their lack of understanding of the neuropsychological effects of acquired brain injury in the patient. The objective of this research is to show that as the caregivers’ stress levels increase, there is an increase in suicidal ideation. This highlights the causal relationship between unhealthy stress and reduced psychological well-being in these caregivers. In addition, qualitative research evidence regarding the caregivers’ views of their main sources of stress are presented. Methods. The participants were a random sample of 80 family caregivers of patients with acquired brain injury, out of whom 72.5% (58) are primary caregivers and 27.5% (22) are secondary caregivers. A mixed methodology was utilized. It comprised cross-sectional descriptive and phenomenological approaches. Quantitative data were obtained from two standardized measures: The Stress Symptom Checklist (SSCL) and item 9 of the Beck Depression Inventory. The qualitative data were derived from self-report procedures that were part of a structured questionnaire administered individually during the interviews. Results. The Kruskal-Wallis test with a significance level of p = .05 was used to compare the stress and suicidal ideation scores, which revealed that increasing levels of stress led to increased suicidality. The analysis of the qualitative data revealed five themes which were identified as the triggers of the caregivers’ profound stress. Most caregivers felt that it was predominantly the patient’s neuropsychological deficits, such as emotions and/or moods, cognitive ability, behavior and personality, executive function, and social factors that caused them profound stress. Conclusions. Support and education are needed to help family caregivers understand the neuropsychological impact of acquired brain injury on the patient. Once caregivers have an improved understanding and receive better support from healthcare providers, they should experience less stress and be better prepared to provide the appropriate support to patients with acquired brain injury.

2019 ◽  
Vol 21 (3) ◽  
pp. 181-189 ◽  
Author(s):  
Candice A. Wray ◽  
Sharlene Beckford Jarrett

Jamaican police officers often encounter organizational and societal stressors through their work in high-crime and low-resource settings. Repeated exposure to stressors, with limited opportunities for support, can compromise emotional well-being and increase the risk of experiencing burnout and suicidal ideation. This cross-sectional study examines the relationship between burnout (emotional exhaustion, depersonalization and personal accomplishment) and suicidal ideations among Jamaican police officers surveyed in 2017. Jamaican police officers ( N = 305) from five major urban divisions completed two self-report questionnaires. The results revealed significant relationships between emotional exhaustion and suicidal ideations ( r = .17, p < .01) and depersonalization and suicidal ideations ( r = .18, p < .01). However, there was no significant relationship between personal accomplishment and suicidal ideations ( p > .01). Implementing programmes that offer access to adaptive coping or stress management skills and social support systems may reduce burnout and decrease risk for suicidal ideation.


2017 ◽  
Vol 29 (11) ◽  
pp. 1899-1907 ◽  
Author(s):  
Laxman Cetty ◽  
Edimansyah Abdin ◽  
Janhavi Ajit Vaingankar ◽  
Anitha Jeyagurunathan ◽  
Boon Yiang Chua ◽  
...  

ABSTRACTBackground:Older adults are among the most susceptible to sustain traumatic brain injury (TBI). The study aimed to determine the (1) prevalence of TBI among older adults in Singapore, and (2) socio-demographic, lifestyle, and clinical correlates of TBI.Methods:Data were extracted from the cross-sectional, Well-being of the Singapore Elderly (WiSE) study. The study included 2,565 participants aged 60 years and above (Mean = 72.75, SD = 9.54). Information on TBI, socio-demographic, and lifestyle factors were collected using participant self-report and verified with the informant report where necessary. Disability was measured using the World Health Organization – Disability Assessment Schedule 2.0 (WHO-DAS 2.0). Data were analyzed using logistic regression analysis.Results:The prevalence of TBI was 3.6%. Being female (vs. male) was found to be associated with decreased odds of having TBI. Having completed secondary education or lower (vs. tertiary education) was found to be associated with increased odds of having TBI. A history of fainting and diabetes were associated with the presence of TBI. Those with TBI were associated with higher disability scores on the WHO-DAS 2.0 than those without TBI.Conclusions:The current study provides information on the prevalence and associated factors of TBI in the older adult population in Singapore. Since TBI was associated with older adults with diabetes, they must be cautioned about fall risk. Also, given the association with disability, older adults with TBI are likely to require support and rehabilitative care to ensure good quality of life.


2021 ◽  
pp. 000-000
Author(s):  
Esther Calvete ◽  
Mª Angustias Roldan Franco ◽  
Lucia Oñate ◽  
Macarena Sánchez-Izquierdo Alonso ◽  
Laura Bermejo-Toro

2020 ◽  
Vol 62 (1) ◽  
Author(s):  
Janet Walker ◽  
Lourens Schlebusch ◽  
Bernhard Gaede

Background: This study investigated the impact of stress on levels of depression and ill health as an indication of psychological coping. The research sample consisted of 80 family caregivers (who are members of Headway Gauteng, located in Johannesburg, South Africa) of patients with acquired brain injury.Methods: A mixed method design of data collection was utilised that included self-report procedures (structured questionnaires and interviews) and post-interview content analyses. In addition, two individually administered measures that have been widely used in clinical practice and research were administered (a stress symptom checklist and the Beck Depression Inventory).Results: The majority of the research participants experienced high levels of stress along with an inordinate physical and mental health impact indicating that they were not able to cope up with the ongoing chronic stress of caregiving.Conclusion: Findings provide compelling evidence of the value of psychological screening for elevated stress and poor coping in family members caring for a patient with acquired brain injury in a resource-limited healthcare society. We recommend a collaborative effort between medical and psychological health practitioners in order to ensure a holistic and inclusive approach towards treatment procedures and interventions to improve coping skills in family members caring for a patient with acquired brain injury.


2021 ◽  
Vol 5 (Supplement_1) ◽  
pp. 816-817
Author(s):  
Aimee Fox ◽  
Julia Sharp ◽  
Christine Fruhauf

Abstract Family caregivers are vulnerable to emotional, psychological, physical, and financial stress during their care receiver’s end-of-life (EOL), and often do not have the knowledge or skills to provide the care needed at EOL. Yet, few studies have examined how prepared caregivers feel for making the transition to EOL care. The purpose of this exploratory study was to investigate how family caregivers perceive their preparedness for the transition to providing EOL care, and factors that may be associated with feelings of preparedness. Family caregivers (N = 252) providing care to an adult family member for more than six months were recruited to complete an online, self-report survey. An exploratory factor analysis was conducted to break down the construct of caregiver preparedness. One-way ANOVAs and a multiple regression were conducted to examine factors associated with preparedness. Most caregivers feel less prepared for the transition to EOL care (M = 2.67, SD = 1.17) than for general caregiving responsibilities (M = 3.42, SD = 0.90). Factors associated with preparedness for EOL caregiving included the familial relationship between the family caregiver and care receiver, hours per week providing care, perceived burden of caregiving, and family conversations completed about advance care planning, legal and financial matters, and EOL wishes. Future studies should explore how to help family caregivers recognize the importance of seeking support from family members and community services and discussing EOL care wishes and plans with aging family members so they can provide effective care and protect their own well-being.


2020 ◽  
Vol 9 (1) ◽  
pp. 17
Author(s):  
Purwaningsih Purwaningsih ◽  
Elida Ulfiana ◽  
Trias Isrichawati

Introduction: Caring for family members with cancer takes a long time. Various problems that arise during treatment will have an impact on the physical condition and psychological care giver so that this will have an impact on family adaptation. The purpose of this study was to analyze the factors that influence the adaptation ability of family caregivers who care for families with terminal condition cancer in the Oncology Poly RSUD Dr. Soetomo Surabaya. Methods: A cross-sectional study design. The population in this study are families who care for family members with terminal condition cancer in the Oncology Polyclinic Dr. Soetomo as many as 138 respondents were obtained by purposive sampling. The independent variables are attitude, trust, family support, coping mechanisms, and role functions while the dependent variable is the adaptability of family caregiver who care for families with terminal condition cancer. The research instrument used questionnaire attitudes, beliefs, family support, coping mechanisms, role functions and adaptability. Data analysis using Spearman Rho with significance level p ≤ 0.05. Results: Attitudes, family support, coping mechanisms, role functions are related to family caregiver's adaptability, while trust is not related to family caregiver's adaptability. Conclusion: Adaptability is needed for family caregivers in caring for families with terminal condition cancer. Future researchers are expected to intervene further to improve family support and adaptive coping mechanisms to help overcome problems that arise during the treatment of patients with cancer. Keywords: Attitude, Trust, Family Support, Coping Mechanisms, Role Function, Terminal Condition Cancer 


Author(s):  
Nikos L. D. Chatzisarantis ◽  
Sviatlana Kamarova ◽  
Chris Twomey ◽  
Graham Hansen ◽  
Mark Harris ◽  
...  

Abstract. Background: Previous research has documented that unemployed individuals who engage in recreational activities, either alone or with others, experience higher levels of mental health and psychological well-being relative to those who do not engage in recreational activities. Aims: In this study, we examined whether engagement in health promoting activities, alone or with other family members, is associated with reduced levels of depression and enhanced levels of life satisfaction in unemployed individuals. Method: We employed a cross-sectional design in which we measured life satisfaction, depressive symptoms, consumption of healthy meals and engagement in physical activities in 203 unemployed individuals (male = 90, female = 113, age= 33.79, SD = 11.16). Results: Independent of age, gender, and partner employment status, hierarchical regression analyses revealed statistically significant effects for social forms of healthy eating (consumption of healthy meals with others) and solitary forms of physical activity (exercising alone) on depressive symptoms and life satisfaction. Limitations: The research design was cross-sectional using self-report questionnaires. The present study does not to explain why and how health promoting activities enhance well-being outcomes among the unemployed. Conclusions: These findings highlight the importance of measuring engagement in health promoting activities through separate constructs that capture engagement in social and solitary health promoting activities and suggest that unemployed individuals are likely to experience optimal levels of psychological well-being if they exercise alone and consume healthy meals with other family members.


Crisis ◽  
2019 ◽  
Vol 40 (2) ◽  
pp. 134-140 ◽  
Author(s):  
Christopher R. DeCou ◽  
Stephanie P. Kaplan ◽  
Julie Spencer ◽  
Shannon M. Lynch

Abstract. Background and Aim: This study evaluated trauma-related shame as a mediator of the association between sexual assault severity and perceived burdensomeness and thwarted belongingness. Method: A total of 164 female undergraduates who reported attempted or completed sexual assault completed self-report measures of sexual assault, trauma-related shame, perceived burdensomeness, and thwarted belongingness. Results: Using path analysis, trauma-related shame mediated the association between sexual assault severity and perceived burdensomeness, and between sexual assault severity and thwarted belongingness. Limitations: The findings of this study are limited by the retrospective, self-report, and cross-sectional nature of these data, and do not allow for causal inference. Conclusion: Trauma-related shame warrants additional investigation as a mechanism that explains the association between sexual assault and psychosocial risk factors for suicidal ideation and behavior.


2017 ◽  
Vol 8 (1) ◽  
pp. 10
Author(s):  
Narendra Kumar Singh ◽  
Nishant Goyal

Background: Schizophrenia is associated with a high familial, social and economic burden. Schizophrenia is also associated with a high level of disability which may create impediments on the social and economic areas of the patients as well as on their respective family networks. Families with schizophrenia may encounter problems such as impairment of health and well being of other family members, restriction of social activities of the family members and shrinking of support from the social network. Aims: The present study examined the difference in perceived social support and burden of care between the male and female caregivers of patients with schizophrenia. Methods: This was a cross-sectional study examining the difference in perceived social support and burden of care between the male and female caregivers of patients with schizophrenia. The sample consisted of 60 (30 male and 30 female) caregivers of the patients with the diagnosis of schizophrenia as per ICD-10-DCR. Results and Conclusion: This study revealed that male caregivers perceived more social support and less burden of care as compared to female caregivers. Key words: Gender, social support, burden


Author(s):  
Margaret Thompson ◽  
Stacey Rabusch ◽  
Mary Vining Radomski ◽  
Valerie Marquardt ◽  
Kristina Kath ◽  
...  

Sign in / Sign up

Export Citation Format

Share Document