An Epidemiological Survey of Hemiplegic Migraine

Cephalalgia ◽  
2002 ◽  
Vol 22 (5) ◽  
pp. 361-375 ◽  
Author(s):  
L Lykke Thomsen ◽  
M Kirchmann Eriksen ◽  
S Faerch Romer ◽  
I Andersen ◽  
E Ostergaard ◽  
...  
Keyword(s):  
Sex Ratio ◽  
Statistical Method ◽  
Epidemiological Survey ◽  
Case Finding ◽  
Danish Population ◽  
Hemiplegic Migraine ◽  
National Patient Register ◽  
National Patient ◽  
Capture Recapture ◽  
Finding Method

The objective of the present study was to use systematic nation-wide case-finding methods to establish the prevalence and sex ratio of hemiplegic migraine (HM) in the entire Danish population of 5.2 million inhabitants. Affected patients were identified from three different recruitment sources: the National Patient Register, case records from private practising neurologists and advertisements. Based on the observed number of affected patients from each case-finding method, it was attempted to estimate the total number of affected patients by means of the statistical method known as capture- recapture. Two hundred and ninety-one affected patients were identified; 147 were familial HM from 44 different families, 105 were sporadic HM and 39 were unclassifiable HM. The HM sex ratio (M: F) was 1: 3. Based on the identified number of affected patients the prevalence of HM at the end of 1999 was estimated to be 0.01% in Denmark, where the familial and sporadic form were equally frequent.

Evidence for a separate type of migraine with aura

Neurology ◽  
2003 ◽  
Vol 60 (4) ◽  
pp. 595-601 ◽  
Author(s):  
Lise L. Thomsen ◽  
Elsebet Ostergaard ◽  
Jes Olesen ◽  
Michael B. Russell
Keyword(s):  
Migraine With Aura ◽  
Telephone Interview ◽  
Clinical Symptoms ◽  
Familial Hemiplegic Migraine ◽  
Computer Search ◽  
Hemiplegic Migraine ◽  
Motor Weakness ◽  
National Patient Register ◽  
National Patient ◽  
Sequential Appearance

Objective: To compare clinical characteristics of patients with sporadic hemiplegic migraine (SHM) with those of patients with migraine with typical aura (MA) and patients with familial hemiplegic migraine (FHM).Methods: The authors used a computer search of Denmark’s National Patient Register to screen the population for patients with migraine with aura with motor weakness, and also examined case records from headache clinics and private practicing neurologists and placed advertisements. The authors screened patients and their relatives with a semi-structured validated telephone interview. All recruited patients were then interviewed by a physician and given a neurologic examination.Results: A total of 105 patients with SHM were identified. Seventy-two percent had four typical aura symptoms: visual, sensory, aphasic, and motor. All had at least two symptoms present during SHM attacks. A gradual progression and sequential appearance of aura symptoms was typical; compared with MA, the duration of each aura symptom was usually prolonged and bilateral motor symptoms were more frequent. Of the patients with SHM, 72% fulfilled the criteria for basilar migraine during SHM attacks. The aura was usually followed by headache, as is common in FHM but not MA.Conclusions: Patients with sporadic hemiplegic migraine had clinical symptoms identical to familial hemiplegic migraine and significantly different from migraine with typical aura. Sporadic hemiplegic migraine is a separate entity, and should be classified with familial hemiplegic migraine.

Epilepsy and non-organic non-affective psychosis

1998 ◽  
Vol 172 (3) ◽  
pp. 235-238 ◽  
Author(s):  
Søren Bredkjær ◽  
Pre Ben Bo Mort Ensen ◽  
Josef Parnas
Keyword(s):  
Record Linkage ◽  
Substance Misuse ◽  
Linkage Study ◽  
Danish Population ◽  
Affective Psychosis ◽  
Men And Women ◽  
National Patient Register ◽  
Functional Psychoses ◽  
National Patient ◽  
Epilepsy Diagnosis

BackgroundThis study tests the hypothesis that epilepsy increases the risk of developing schizophrenia and other non-affective functional psychoses using a nationwide sample of people with epilepsy.MethodA record linkage study between a sample from the National Patient Register, consisting of 67 116 people with epilepsy, and the Danish Psychiatric Register identified all people with non-affective psychoses with onset after the first epilepsy diagnosis. The relation between risk of psychiatric disorder in people with epilepsy and the general Danish population was estimated.ResultsThe incidences of the spectrum of non-organic non-affective psychosis, non-affective psychosis and schizophrenia were significantly increased both for men and women, even after exclusion of people diagnosed as suffering from a learning disability or substance misuse.ConclusionThis study supports the notion of an association between epilepsy and the risk of subsequent non-affective psychosis.

Gender differences in delays to diagnosis of acromegaly: data from the Swedish National Patient Register

2018 ◽  
Author(s):  
Daniel Granfeldt ◽  
AEse Bjorstad ◽  
Marlow Tom ◽  
Anthony Berthon ◽  
Jerome Dinet ◽  
...  
Keyword(s):  
Gender Differences ◽  
National Patient Register ◽  
Patient Register ◽  
National Patient

scholarly journals Validity and reliability of social anxiety disorder diagnoses in the Swedish National Patient Register

2020 ◽  
Vol 20 (1) ◽  
Author(s):  
Alba Vilaplana-Pérez ◽  
Josef Isung ◽  
Sonja Krig ◽  
Sarah Vigerland ◽  
Maral Jolstedt ◽  
...  
Keyword(s):  
Anxiety Disorder ◽  
Social Anxiety ◽  
Social Anxiety Disorder ◽  
Validity And Reliability ◽  
National Patient Register ◽  
Patient Register ◽  
National Patient

Development and evaluation of a patient self-report case-finding method for rheumatoid arthritis

2004 ◽  
Vol 34 (1) ◽  
pp. 484-499 ◽  
Author(s):  
Andrew L. Wong ◽  
Judith O. Harker ◽  
Brian S. Mittman ◽  
Gerald D. Levy ◽  
Ken J. Bulpitt ◽  
...  
Keyword(s):  
Rheumatoid Arthritis ◽  
Case Finding ◽  
Self Report ◽  
Finding Method

scholarly journals Increasing Readmission Rates for Hemorrhage after Tonsil Surgery: A Longitudinal (26 Years) National Study

2017 ◽  
Vol 158 (1) ◽  
pp. 167-176 ◽  
Author(s):  
Eirik Østvoll ◽  
Ola Sunnergren ◽  
Joacim Stalfors
Keyword(s):  
Postoperative Bleeding ◽  
Reoperation Rate ◽  
Population Based ◽  
Postoperative Hemorrhage ◽  
National Study ◽  
Readmission Rates ◽  
National Patient Register ◽  
National Patient ◽  
Tonsil Surgery

Objective To investigate the readmission rates due to postoperative hemorrhage in relation to tonsil surgery clinical practice in a national population. Study Design Retrospective longitudinal population-based cohort study. Setting Based on register data from the Swedish National Patient Register (NPR). Subjects and Methods All benign tonsil operations (256 053) performed in Sweden from 1987 to 2013 were identified through a search in the NPR. For all identified cases, data on gender, age, date of surgery, indication, type of surgery, level of care, length of stay (LOS) for inpatient surgery, readmission and reoperation because of postoperative bleeding (within 31 days) were collected. Results Overall frequency of readmission for hemorrhage was 2.61%, and the reoperation rate for hemostasis was 0.84%. The longitudinal analysis showed an increase from 1% (1987) to 5% (2013) in readmissions caused by hemorrhage. Tonsillectomies, surgery performed for infectious disease, and surgery on adult patients (age >18 years) showed readmission rates approaching 10% (2013). Male gender, increasing age, tonsillectomy, infectious indication, and recent year of surgery were identified as risk factors for readmission and reoperation due to hemorrhage. An increasing share of patients readmitted for hemorrhage underwent reoperation for hemostasis: 18% (1987) versus 43% (2013). Conclusion Readmissions for hemorrhage have increased by a factor of 5 in Sweden from 1987 to 2013. The design of the study and the data in NPR do not allow determination of the true reasons behind the alarming results.

scholarly journals Secular trends in the incidence and prevalence of gout in Denmark from 1995 to 2015: a nationwide register-based study

Rheumatology ◽  
2018 ◽  
Vol 58 (5) ◽  
pp. 836-839 ◽  
Author(s):  
Kristian Zobbe ◽  
Daniel Prieto-Alhambra ◽  
René Cordtz ◽  
Pil Højgaard ◽  
Jens Skøt Hindrup ◽  
...  
Keyword(s):  
Temporal Trends ◽  
Incidence Rates ◽  
Secular Trends ◽  
Annual Incidence Rate ◽  
Danish Population ◽  
Age And Gender ◽  
National Patient Registry ◽  
National Patient ◽  
And Gender ◽  
Gender Specific

Abstract Objective To investigate temporal trends in the incidence and prevalence of gout in the adult Danish population. Methods Using the nationwide Danish National Patient Registry, we calculated the number of incident gout patients (per 100 000 person-years) within each 1 year period from 1995 to 2015 and the prevalence of gout in 2000 and 2015. Further, we calculated age- and gender-specific incidence rates of gout from 1995 to 2015. Results We identified a total of 45 685 incident gout patients (72.9% males) with a mean age of 65 years (s.d. 16) at diagnosis. In both genders, an increase in age-standardized incidence rates was observed from 32.3/100 000 (95% CI 30.7, 33.9) in 1995 to 57.5/100 000 (95% CI 55.6, 59.5) in 2015 (P < 0.001). Similar trends were observed for 8950 cases diagnosed in rheumatology departments. We likewise observed an increase in the prevalence of gout from 0.29% (95% CI 0.29, 0.30) in 2000 to 0.68% (95% CI 0.68, 0.69) in 2015. Conclusions The annual incidence rate of gout increased by almost 80% in Denmark between 1995 and 2015. The prevalence increased by nearly 130% between 2000 and 2015. Reasons for this are unknown but may include an increase in risk factors (e.g. obesity, diabetes mellitus), longer life expectancy and increased awareness of the disease among patients and/or health professionals.

Malnutrition and Anaemia in Gilbertese Pre-school Children: A Case-finding and Epidemiological Survey

1981 ◽  
Vol 27 (2) ◽  
pp. 78-82 ◽  
Author(s):  
A. B. ROBERTS ◽  
P. ROBERTS ◽  
T. TIRA ◽  
K. TULIMANU
Keyword(s):  
School Children ◽  
Epidemiological Survey ◽  
Case Finding

scholarly journals Validating surgical procedure codes for inflammatory bowel disease in the Swedish National Patient Register

2019 ◽  
Author(s):  
Anders Forss ◽  
Pär Myrelid ◽  
Ola Olén ◽  
Åsa H Everhov ◽  
Caroline Nordenvall ◽  
...  
Keyword(s):  
Inflammatory Bowel Disease ◽  
Sensitivity And Specificity ◽  
Bowel Disease ◽  
Surgical Procedure ◽  
High Sensitivity ◽  
National Patient Register ◽  
Patient Register ◽  
National Patient ◽  
Inflammatory Bowel ◽  
Procedure Codes

Abstract Validating surgical procedure codes for inflammatory bowel disease in the Swedish National Patient Register Background: About 50% of patients with Crohn’s disease (CD) and about 20% of those with ulcerative colitis (UC) undergo surgery at some point during the course of the disease. The diagnostic validity of the Swedish National Patient Register (NPR) has previously been shown to be high for inflammatory bowel disease (IBD), but there are little data on the validity of IBD-related surgical procedure codes. Methods: Using patient chart data as the gold standard, surgical procedure codes registered between 1966 and 2014 in the NPR were abstracted and validated in 262 patients with a medical diagnosis of IBD. Of these, 53 patients had reliable data about IBD-related surgery. The positive predictive value (PPV), sensitivity and specificity of the surgical procedure codes were calculated. Results: In total, 158 codes were registered in the NPR. 155 of these, representing 60 different surgical procedure codes, were also present in the patient charts and validated using a standardized form. Of the validated codes 153/155 were concordant against the patient charts, corresponding to a PPV of 96.8% (95%CI=93.9-99.1). Stratified in abdominal, perianal and other surgery, the corresponding PPVs were 94.1% (95%CI=88.7-98.6), 100% (95%CI=100-100) and 98.1% (95%CI=93.1-100), respectively. Of 164 surgical procedure codes in the validated patient charts, 155 were registered in the NPR, corresponding to a sensitivity of the surgical procedure codes of 94.5% (95%CI=89.6-99.3). The specificity of the NPR was 98.5% (95%CI=97.6-100). Conclusions: Data on IBD-related surgical procedure codes are reliable, with the Swedish National Patient Register showing a high sensitivity and specificity for such surgery. Keywords: Epidemiology, Inflammatory bowel disease, Validation, National Patient Register, Procedure code

scholarly journals O23 SURGICAL REPAIR OF PARASTOMAL BULGING - A REGISTER-BASED STUDY

2021 ◽  
Vol 108 (Supplement_8) ◽  
Author(s):  
Marianne Krogsgaard ◽  
Ismail Gögenur ◽  
Frederik Helgstrand ◽  
Rune Martens Andersen ◽  
Anne Kjærgaard Danielsen ◽  
...  
Keyword(s):  
Surgical Treatment ◽  
Laparoscopic Repair ◽  
Cumulative Incidence ◽  
Surgical Repair ◽  
Primary Repair ◽  
Stoma Reversal ◽  
National Patient Register ◽  
National Patient ◽  
Surgical Data ◽  
Danish National Patient Register

Abstract Aim To examine the incidence of primary and recurrent repair and types of repair performed in patients with parastomal bulging. Material and Methods We linked prospectively collected data on parastomal bulging from the Danish Stoma Database to surgical data on repair of parastomal bulging from the Danish National Patient Register. Survival statistics provided cumulative incidences and time until primary and recurrent repair Results Of 1016 patients, registered from 2010-2017 with a permanent stoma and a parastomal bulge, 180 (18%) underwent surgical repair. The cumulative incidence of a primary repair was 9% (95% CI [8%; 11%]) within 1 year and 19% (95% CI [17%; 22%]) within 5 years after the occurrence of a parastomal bulge. For colostomies and ileostomies, we found similar probability of undergoing primary repair. For recurrent repair, the 5-year cumulative incidence was 5% (95% CI [3%; 7%]). The probability of undergoing further recurrent repair was 33% (95% CI [21%; 46%]) within 5 years. For primary repair, open or laparoscopic repair with mesh (43%) and stoma revision (39%) were performed almost equally frequent. Stoma revision and repair with mesh could precede and follow one another as primary and recurrent repair. Stoma reversal was performed in 17% of patients. Conclusions Our data offered a new and comprehensive view of the course of surgical treatment of parastomal bulging. Five years after the occurrence of a parastomal bulge the estimated probability of undergoing a repair was 19%. The probability of undergoing recurrent repair was high and stoma reversal more common than expected.

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