Paying the Piper and Calling the Tune? The Relationship Between Parents and Direct Payments for People with Intellectual Disabilities

Author(s):  
Val Williams ◽  
Ken Simons ◽  
Stacey Gramlich ◽  
Gordon McBride ◽  
Natasha Snelham ◽  
...  
2004 ◽  
Vol 95 (2) ◽  
pp. 386-390 ◽  
Author(s):  
Auxiliadora Durán ◽  
Natalio Extremera ◽  
Lourdes Rey

This study examined the relationship among dimensions of self-reported Emotional Intelligence, Engagement and Burnout, using the Trait Meta-Mood Scale, Maslach Burnout Inventory and Utrecht Work Engagement Scale in a sample of Spanish professionals who work at institutions for people with intellectual disabilities. The results showed that Emotional Clarity was significantly associated with Personal Accomplishment ( r = .25) and Dedication ( r = .25). Further, Repair to moods was significantly correlated with all Engagement dimensions (.20 Vigor, .30 Dedication, .36 Absorption) and with Personal Accomplishment (.31). These findings extend previous research with college students in which Clarity and Repair to moods subscales were relevant predictors of well-being indexes and interpersonal functioning and suggest that the Trait Meta-Mood Scale subscales also show significant relationships with emotional functioning and work-related variables in a professional sample.


Author(s):  
Michael Brown ◽  
Edward McCann ◽  
Maria Truesdale ◽  
Mark Linden ◽  
Lynne Marsh

There is growing empirical evidence regarding the relationship and sexuality experiences and needs of children, young people and adults with intellectual disabilities. A total of twelve papers met the inclusion criteria regarding relationship and sexuality education (RSE) programmes specific to the needs of this population. The preferred reporting items for systematic reviews and meta-analyses (PRISMA) guidelines were followed and quality appraisal undertaken. The four themes identified were principles informing RSE programme development, design and content of RSE programmes, delivery of RSE programmes and evaluation of RSE programmes. The discussion presents areas that need to be addressed to ensure that people with intellectual disabilities, their families, carers and professionals are fully involved in the design and delivery of RSE programmes. Further research is required to identify the impact of the programmes and the sustained outcomes achieved. Recommendations are made regarding the activities required to enable the development of evidence-based and person-centred approaches to relationship and sexuality programmes.


2004 ◽  
Vol 4 ◽  
pp. 178-185 ◽  
Author(s):  
Eli Carmeli ◽  
Carmit Cahana ◽  
Joav Merrick

People with intellectual disability (ID) require special support in order to achieve independence in their daily life. Persons with ID are less exposed to assistive technology, although studies have shown that the availability of aids afford an opportunity to reach independence and cooperation. The aim of this study was to examine the nature of the relationship between involvement of the physiotherapy (PT) team and the degree to which assistive technology was used. A questionnaire was sent to all PTs employed at all 54 residential care centers for persons with ID of the Division for Mental Retardation at the Ministry of Social Affairs in Israel. A significantly positive correlation was found between the degree of involvement of the PT and the utilization of assistive technology. The study results may be summarized by stating that PTs demonstrated a great deal of involvement, particularly in relation to the extent of their work in the residential care centers. PT's awareness of the importance was indicated as the major reason to use assistive technology.


2008 ◽  
Vol 46 (6) ◽  
pp. 427-435 ◽  
Author(s):  
Helge Folkestad ◽  
Lone Folkestad

Abstract Caring for a person may result in emotions for that person. When Helen died, her staff experienced deep sorrow. The authors interviewed the staff, asking to what extent R. Bogdan and S. J. Taylor's (1987) sociology of acceptance could help them understand how accepting ties are made and maintained. Because R. Bogdan and S. J. Taylor mainly looked at relationships within foster families and friendships, the authors broaden the perspectives by examining a case where the relationship was between a resident and her staff in the now-typical Norwegian community-living setting for people with intellectual disabilities. After interviewing staff about how the resident interacted with these other, “typical” people, the authors maintain that acceptance is not only the doings of those without the intellectual disability. The authors acknowledge that a full understanding of accepting relationships requires the perspectives of both parties.


Author(s):  
Guyeol Jeong ◽  
Buongo Chun

Little is known about the relationship between health-related physical fitness factors and obesity-related factors in individuals with intellectual disabilities. We investigated the prevalence of obesity and the relationship between obesity-related factors and health-related physical fitness factors among people with intellectual disabilities in South Korea to identify the physical fitness factors that influence the degree of obesity. For obesity-related factors, we measured body composition (height, weight, body mass index—BMI, and body fat percentage) of 108 subjects with intellectual disabilities (mean ± standard deviation; age = 24.4 ± 8.45 years). For health-related physical fitness factors, we measured muscular strength, muscular endurance, and flexibility. There was a significant negative correlation between muscular endurance and obesity factors (BMI, r = −0.306, p < 0.01; body fat percentage, r = −0.402, p < 0.01). Further, the prevalence of obesity (34.3%) and being overweight (17.6%) among people with intellectual disabilities was high in South Korea. In addition, muscular endurance was found to have a significant effect on the obesity level (β = −0.239, p < 0.000). This suggests that a program that considers muscular endurance should be prioritized when implementing an exercise intervention strategy for the treatment of overweight and obesity among people with intellectual disabilities.


2015 ◽  
Vol 4 (3) ◽  
pp. 50
Author(s):  
Thomas McMorrow

Even though the notion of “disability” has received ongoing critical scrutiny and re-imagination within the field of disability studies, the concept of law has often been taken for granted. Although people with intellectual disabilities figure as subjects of legal discourse, seldom are they presented as participants in it. I argue that this owes to assumptions about law that fail to recognize the diversity of ways human beings exercise agency and experience normativity. I believe that research on the relationship between “law, religion, and disability” stands to benefit from imagining law as an interactional, symbolically plural human endeavour. I build on the theoretical framework of critical legal pluralism to highlight how law arises through interaction – informally and implicitly, as well as officially and explicitly. Drawing on fieldwork I carried out in L’Arche Montréal – a faith-based community serving people with intellectual disabilities – I illustrate the creative role that people with intellectual disabilities play in the construction of legal normativity. As important as it is to ask how law affects people with intellectual disabilities, is to ask about how their actions also shape law. When it comes to asking what law means for some of the most vulnerable members of society, it is not just a question of seeing how it may function either to prevent or to remedy harm. It is also a matter of seeing the ways in which law may facilitate (while being forged by) the cultivation of relationships and the liberation of human potential. 


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