Ask PCOS: Identifying Need to Inform Evidence-Based App Development for Polycystic Ovary Syndrome

2018 ◽  
Vol 36 (01) ◽  
pp. 059-065 ◽  
Author(s):  
Rebecca Xu ◽  
Emily Gilbert ◽  
Millicent Kuczynska-Burggraf ◽  
Bryan Tan ◽  
Helena Teede ◽  
...  

Background People are increasingly seeking health information and managing their health through electronic technologies. We aimed to determine if women with polycystic ovary syndrome (PCOS) identified a need for PCOS-related mobile health apps and to evaluate related apps currently available. Design A national survey of women and a review of apps available on the iOS and Android platforms. Setting Community recruitment in Australia in 2016 and review of mobile apps available in 2017. Sample The survey received 264 responses. Sixteen apps related to PCOS were evaluated. Main Outcome Measures Survey: Women's likeliness to use mobile health apps, specifically a PCOS-related app and preferred features of apps. App review: Mapping of available apps and evaluation using the Mobile Application Rating Scale (MARS). Results Of 264 respondents, almost all women had a smartphone (98%), 72% had previously used an app to manage their health, and most (91%) would use a PCOS-specific app if available. The most important feature was the availability of current, evidence-based information. Current apps on PCOS lack provision of quality information. Conclusion Women with PCOS would use a PCOS-specific app of good quality that responds to their needs and facilitates self-care; however, currently available apps are unlikely to meet their information needs.

2018 ◽  
Vol 36 (01) ◽  
pp. 066-072 ◽  
Author(s):  
Jue Xie ◽  
Frada Burstein ◽  
Helena Teede ◽  
Jacqueline Boyle ◽  
Rhonda Garad

AbstractDespite polycystic ovary syndrome (PCOS) being the most common endocrine condition affecting reproductive-aged women, studies have shown the information needs of PCOS consumers are not currently met. The expressed need by women with PCOS for accessible, evidence-based personalized PCOS information informed the design and development of the PCOS mobile tool—AskPCOS. The App provides a range of unique features such as: evidence-based PCOS health information, self-diagnostic function, a question prompt list to optimize health practitioner engagement, and a commonly asked questions list. A five-phase App development process involved extensive stakeholder consultation, system architecture design, development of the content repository, system prototyping, and evaluation. AskPCOS is the first evidence-based, consumer-driven mobile App developed by women and for women with PCOS and utilizes innovative technology to empower PCOS consumers and optimize health outcomes. The App content repository is enhanced by the best available evidence and expertise extracted from the International Evidence-Based Guideline in PCOS (2018). The AskPCOS App has extensive data capture capability through the usage of data gathering functions and backend analytics to optimize responsiveness to consumer needs. In addition, the multilingual content and not-for-profit cost model is designed to facilitate worldwide adoption of the tool, and address PCOS information inequities in developing countries.


2018 ◽  
Vol 89 (3) ◽  
pp. 251-268 ◽  
Author(s):  
Helena J. Teede ◽  
Marie L. Misso ◽  
Michael F. Costello ◽  
Anuja Dokras ◽  
Joop Laven ◽  
...  

Nutrients ◽  
2019 ◽  
Vol 11 (11) ◽  
pp. 2711 ◽  
Author(s):  
Annie W. Lin ◽  
Maryam Kazemi ◽  
Brittany Y. Jarrett ◽  
Heidi Vanden Brink ◽  
Kathleen M. Hoeger ◽  
...  

Lifestyle modifications are recommended as first-line therapy in polycystic ovary syndrome (PCOS). However, usual dietary and physical activity (PA) behaviors of women with PCOS remain uncertain, likely owing to controversy in diagnostic criteria. Our objective was to contrast the usual dietary and PA behaviors of women with PCOS (n = 80) diagnosed by the 2018 International Evidence-based Guideline for the Assessment and Management of PCOS to that of controls (n = 44). Study outcomes were dietary intake, diet quality (Healthy Eating Index-2015), and PA (questionnaire, waist-worn accelerometers). Women with PCOS met the acceptable macronutrient distribution ranges for carbohydrate, fat, and protein, but did not meet the recommended dietary reference intakes for vitamin D (mean (95% confidence interval); 6 (5–7) μg/d), vitamin B9 (275 (252–298) μg/d), total fiber (24 (22–26) g/d), or sodium (4.0 (3.6–4.4) g/d). Women with PCOS also met the US recommendations for PA. No differences were detected in dietary intake, diet quality, or PA levels between groups (p ≥ 0.11). In conclusion, women with and without PCOS have comparable dietary and PA behaviors. A lack of unique targets for dietary or PA interventions supports the position of the new guideline to foster healthy lifestyle recommendations for the management of PCOS.


2020 ◽  
Vol 13 (1) ◽  
Author(s):  
Fatemeh Pourteymour Fard Tabrizi ◽  
Fatemeh Hajizadeh-Sharafabad ◽  
Maryam Vaezi ◽  
Hamed Jafari-Vayghan ◽  
Mohammad Alizadeh ◽  
...  

2019 ◽  
Vol 4 ◽  
Author(s):  
Nick Noguez And Michael Gonzalez

  Despite the ubiquity of smartphone ownership and the increasing integration of social engagement features in smoking cessation apps to engage users, thesocial engagement features that exist in current smoking cessation apps and how effective these social features are in engaging users remain unclear. To fill the gap in the literature, a content analysis of free and paid smoking cessation mobile apps isconducted to examine a) the presence of socialengagement features(e.g., social support, social announcement, social referencing) and non-social engagement features (e.g., personal environmental changes, goal setting), and b) their relationship with user ratingsand engagement scores (e.g., Mobile App rating scale [MARS]). The findings will not only extend the mobile health apps engagement typology,but also inform smoking cessation mobile apps design.


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