Personalized Mobile Tool AskPCOS Delivering Evidence-Based Quality Information about Polycystic Ovary Syndrome

2018 ◽  
Vol 36 (01) ◽  
pp. 066-072 ◽  
Author(s):  
Jue Xie ◽  
Frada Burstein ◽  
Helena Teede ◽  
Jacqueline Boyle ◽  
Rhonda Garad
Keyword(s):  
Polycystic Ovary Syndrome ◽  
Information Needs ◽  
Polycystic Ovary ◽  
Mobile App ◽  
Innovative Technology ◽  
Health Practitioner ◽  
Evidence Based ◽  
Design Development ◽  
Ovary Syndrome ◽  
Optimize Health

AbstractDespite polycystic ovary syndrome (PCOS) being the most common endocrine condition affecting reproductive-aged women, studies have shown the information needs of PCOS consumers are not currently met. The expressed need by women with PCOS for accessible, evidence-based personalized PCOS information informed the design and development of the PCOS mobile tool—AskPCOS. The App provides a range of unique features such as: evidence-based PCOS health information, self-diagnostic function, a question prompt list to optimize health practitioner engagement, and a commonly asked questions list. A five-phase App development process involved extensive stakeholder consultation, system architecture design, development of the content repository, system prototyping, and evaluation. AskPCOS is the first evidence-based, consumer-driven mobile App developed by women and for women with PCOS and utilizes innovative technology to empower PCOS consumers and optimize health outcomes. The App content repository is enhanced by the best available evidence and expertise extracted from the International Evidence-Based Guideline in PCOS (2018). The AskPCOS App has extensive data capture capability through the usage of data gathering functions and backend analytics to optimize responsiveness to consumer needs. In addition, the multilingual content and not-for-profit cost model is designed to facilitate worldwide adoption of the tool, and address PCOS information inequities in developing countries.

Ask PCOS: Identifying Need to Inform Evidence-Based App Development for Polycystic Ovary Syndrome

2018 ◽  
Vol 36 (01) ◽  
pp. 059-065 ◽  
Author(s):  
Rebecca Xu ◽  
Emily Gilbert ◽  
Millicent Kuczynska-Burggraf ◽  
Bryan Tan ◽  
Helena Teede ◽  
...  
Keyword(s):  
Polycystic Ovary Syndrome ◽  
Mobile Health ◽  
Information Needs ◽  
Rating Scale ◽  
Polycystic Ovary ◽  
Current Evidence ◽  
Evidence Based ◽  
Ovary Syndrome ◽  
Health Apps ◽  
Mobile Health Apps

Background People are increasingly seeking health information and managing their health through electronic technologies. We aimed to determine if women with polycystic ovary syndrome (PCOS) identified a need for PCOS-related mobile health apps and to evaluate related apps currently available. Design A national survey of women and a review of apps available on the iOS and Android platforms. Setting Community recruitment in Australia in 2016 and review of mobile apps available in 2017. Sample The survey received 264 responses. Sixteen apps related to PCOS were evaluated. Main Outcome Measures Survey: Women's likeliness to use mobile health apps, specifically a PCOS-related app and preferred features of apps. App review: Mapping of available apps and evaluation using the Mobile Application Rating Scale (MARS). Results Of 264 respondents, almost all women had a smartphone (98%), 72% had previously used an app to manage their health, and most (91%) would use a PCOS-specific app if available. The most important feature was the availability of current, evidence-based information. Current apps on PCOS lack provision of quality information. Conclusion Women with PCOS would use a PCOS-specific app of good quality that responds to their needs and facilitates self-care; however, currently available apps are unlikely to meet their information needs.

scholarly journals Recommendations from the international evidence-based guideline for the assessment and management of polycystic ovary syndrome

2018 ◽  
Vol 89 (3) ◽  
pp. 251-268 ◽  
Author(s):  
Helena J. Teede ◽  
Marie L. Misso ◽  
Michael F. Costello ◽  
Anuja Dokras ◽  
Joop Laven ◽  
...  
Keyword(s):  
Polycystic Ovary Syndrome ◽  
Polycystic Ovary ◽  
Evidence Based ◽  
Ovary Syndrome ◽  
International Evidence ◽  
Evidence Based Guideline

scholarly journals Dietary and Physical Activity Behaviors in Women with Polycystic Ovary Syndrome per the New International Evidence-Based Guideline

Nutrients ◽  
2019 ◽  
Vol 11 (11) ◽  
pp. 2711 ◽  
Author(s):  
Annie W. Lin ◽  
Maryam Kazemi ◽  
Brittany Y. Jarrett ◽  
Heidi Vanden Brink ◽  
Kathleen M. Hoeger ◽  
...  
Keyword(s):  
Physical Activity ◽  
Polycystic Ovary Syndrome ◽  
Dietary Intake ◽  
Diet Quality ◽  
Polycystic Ovary ◽  
Healthy Eating Index ◽  
Evidence Based ◽  
Ovary Syndrome ◽  
International Evidence ◽  
Evidence Based Guideline

Lifestyle modifications are recommended as first-line therapy in polycystic ovary syndrome (PCOS). However, usual dietary and physical activity (PA) behaviors of women with PCOS remain uncertain, likely owing to controversy in diagnostic criteria. Our objective was to contrast the usual dietary and PA behaviors of women with PCOS (n = 80) diagnosed by the 2018 International Evidence-based Guideline for the Assessment and Management of PCOS to that of controls (n = 44). Study outcomes were dietary intake, diet quality (Healthy Eating Index-2015), and PA (questionnaire, waist-worn accelerometers). Women with PCOS met the acceptable macronutrient distribution ranges for carbohydrate, fat, and protein, but did not meet the recommended dietary reference intakes for vitamin D (mean (95% confidence interval); 6 (5–7) μg/d), vitamin B9 (275 (252–298) μg/d), total fiber (24 (22–26) g/d), or sodium (4.0 (3.6–4.4) g/d). Women with PCOS also met the US recommendations for PA. No differences were detected in dietary intake, diet quality, or PA levels between groups (p ≥ 0.11). In conclusion, women with and without PCOS have comparable dietary and PA behaviors. A lack of unique targets for dietary or PA interventions supports the position of the new guideline to foster healthy lifestyle recommendations for the management of PCOS.

scholarly journals Criteria for Defining Polycystic Ovary Syndrome as a Predominantly Hyperandrogenic Syndrome: An Androgen Excess Society Guideline

2006 ◽  
Vol 91 (11) ◽  
pp. 4237-4245 ◽  
Author(s):  
Ricardo Azziz ◽  
Enrico Carmina ◽  
Didier Dewailly ◽  
Evanthia Diamanti-Kandarakis ◽  
Hector F. Escobar-Morreale ◽  
...  
Keyword(s):  
Polycystic Ovary Syndrome ◽  
Task Force ◽  
Polycystic Ovary ◽  
Future Research ◽  
Evidence Based ◽  
Consensus Process ◽  
Androgen Excess ◽  
Ovary Syndrome ◽  
Initial Report ◽  
New Research

Abstract Objective: The Androgen Excess Society (AES) charged a task force to review all available data and recommend an evidence-based definition for polycystic ovary syndrome (PCOS), whether already in use or not, to guide clinical diagnosis and future research. Participants: Participants included expert investigators in the field. Evidence: Based on a systematic review of the published peer-reviewed medical literature, by querying MEDLINE databases, we tried to identify studies evaluating the epidemiology or phenotypic aspects of PCOS. Consensus Process: The task force drafted the initial report, following a consensus process via electronic communication, which was then reviewed and critiqued by the AES Board of Directors. No section was finalized until all members were satisfied with the contents and minority opinions noted. Statements that were not supported by peer-reviewed evidence were not included. Conclusions: Based on the available data, it is the view of the AES Task Force on the Phenotype of PCOS that there should be acceptance of the original 1990 National Institutes of Health criteria with some modifications, taking into consideration the concerns expressed in the proceedings of the 2003 Rotterdam conference. A principal conclusion was that PCOS should be first considered a disorder of androgen excess or hyperandrogenism, although a minority considered the possibility that there may be forms of PCOS without overt evidence of hyperandrogenism but recognized that more data are required before validating this supposition. Finally, the task force recognized, and fully expects, that the definition of this syndrome will evolve over time to incorporate new research findings.

scholarly journals The Effect of Orlistat as an Adjuvant to Lifestyle Modification on Weight Loss in Polycystic Ovary Syndrome Patients:An Evidence-Based Case Report

2017 ◽  
Vol 07 (01) ◽  
pp. 15-20
Author(s):  
Nobian Andre ◽  
Kevin Aristyo ◽  
Aqila Sakina Zhafira ◽  
Riesta Hanjani ◽  
Diannisa Paramita Susantono ◽  
...  
Keyword(s):  
Weight Loss ◽  
Case Report ◽  
Polycystic Ovary Syndrome ◽  
Lifestyle Modification ◽  
Polycystic Ovary ◽  
Evidence Based ◽  
Ovary Syndrome
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