scholarly journals The transition from paediatric to adult health care services for young adults with a disability: an ethical perspective

2003 ◽  
Vol 26 (1) ◽  
pp. 64 ◽  
Author(s):  
Susan Bailey ◽  
Bev O'Connell ◽  
Julian Pearce
Keyword(s):  
Health Care ◽  
Young Adults ◽  
Young People ◽  
Health Care Services ◽  
People With Disabilities ◽  
Well Being ◽  
Adult Health ◽  
Ethical Perspective ◽  
Adults With Disabilities ◽  
Care Services

Young children with disabilities and their carers or parents tend to form a long-term dependent relationship with a paediatrician throughout childhood. At some stage when the young person with a disability reaches early adulthood, the relationship is severed. This paper draws upon recent research undertaken by the authors that describes the difficulties experienced by young people with disabilities as they go through the transition from paediatric care to adult mainstream health care services. The purpose of this article is to present the argument that the dependent,paternalistic relationship that tends to exist between young people with disabilities (and/or their carers) and paediatricians throughout childhood does not facilitate the successful negotiation of adult mainstream health care services, nor optimally promote the well-being of these young people with disabilities. It is proposed that the promotion of autonomy (or self-determination) via a well planned transition program will increase the likelihood that young adults with disabilities and/or their carers will be empowered to successfully negotiate the current mainstream health care system in Australia, and will enhance the well-being of young adults with disabilities.

Transition and transfer of care

2017 ◽  
Author(s):  
Sara Thorne ◽  
Sarah Bowater
Keyword(s):  
Health Care ◽  
Young Adults ◽  
Cardiac Surgery ◽  
Congenital Heart Defects ◽  
Health Care Services ◽  
Congenital Heart ◽  
Heart Defects ◽  
Adult Health ◽  
Care Services ◽  
Adult Health Care

With the success of paediatric cardiac surgery and intervention over the last 30 years, more children are now surviving into adulthood, particularly those with complex congenital heart defects. Transition describes the process of addressing the specific needs of adolescents and young adults as they move from paediatric-based towards adult-based care. The end point is the transfer to adult health care services.

scholarly journals The transition of adolescents with juvenile idiopathic arthritis or epilepsy from paediatric health-care services to adult health-care services: A scoping review of the literature and a synthesis of the evidence

2018 ◽  
Vol 22 (3) ◽  
pp. 332-358 ◽  
Author(s):  
Lauren Burke ◽  
Jamie Kirkham ◽  
Janine Arnott ◽  
Victoria Gray ◽  
Matthew Peak ◽  
...  
Keyword(s):  
Health Care ◽  
Juvenile Idiopathic Arthritis ◽  
Young People ◽  
Health Services ◽  
Scoping Review ◽  
Health Care Services ◽  
Transitional Care ◽  
Adult Health ◽  
Review Of The Literature ◽  
Care Services

Young people with long-term health conditions (LTCs) can face challenges when making the transition to adult health services. This paper sought to identify studies that assess and explore transitional care for young people with LTCs. Two conditions were used as exemplars: juvenile idiopathic arthritis (JIA) and epilepsy. A scoping review of the literature was conducted by using search terms to search for papers in English between 2001 and 2016 concerning transitional care on four databases. Qualitative papers were reviewed and synthesized using thematic analysis. Quantitative papers using health outcomes were also synthesized. Twenty-eight papers were selected for review. Despite the wealth of literature concerning aspects of transitional care that are key to a successful transition for young people with JIA or epilepsy, there is a paucity of outcomes that define ‘successful’ transition and consequently a lack of reliable research evaluating the effectiveness of transitional care interventions to support young people moving to adult health services.

Trends in transition from pediatric to adult health care services for young adults with chronic conditions

1999 ◽  
Vol 24 (4) ◽  
pp. 259-264 ◽  
Author(s):  
Peter Scal ◽  
Theora Evans ◽  
Shelley Blozis ◽  
Nancy Okinow ◽  
Robert Blum
Keyword(s):  
Health Care ◽  
Young Adults ◽  
Chronic Conditions ◽  
Health Care Services ◽  
Adult Health ◽  
Care Services ◽  
Adult Health Care

Accessing primary health care services for transition-aged young adults with cerebral palsy; perspectives of young adults, parents, and physicians

2019 ◽  
Vol 1 (1) ◽  
Author(s):  
Erin Brandon ◽  
Marilyn Ballantyne ◽  
Melanie Penner ◽  
Andrea Lauzon ◽  
Erin McCarvill
Keyword(s):  
Primary Care ◽  
Health Care ◽  
Young Adults ◽  
Health Care Services ◽  
Adult Health ◽  
Care Needs ◽  
Medical Needs ◽  
Care Services ◽  
Primary Care Services ◽  
Primary Health Care Services

AbstractBackgroundYoung adults with childhood-onset disabilities experience challenges with accessing age appropriate primary health care services as they transition from pediatric to adult health care services. They often experience a negative impact on their health with associated long-term health and social concerns, disease complications and increased use of emergency services once transitioned to adult services. This is particularly challenging for youth with cerebral palsy (CP) due the complexity of their medical needs. The aim of this study was to explore experiences with accessing or providing primary care services for transitioned-aged young adults with CP from young adult, parent, pediatrician and primary care physician perspectives.MethodsA qualitative descriptive design was conducted to identify the challenges and facilitators for transitioned aged young adults with accessing primary, adult care services. Semi-structured interviews were conducted with 16 participants within the circle of care (4 adults with CP, 4 parents, 4 pediatricians and 4 primary healthcare physicians) for individuals with CP in Toronto, Canada. Interviews were audio-recorded and transcribed verbatim. Qualitative analysis guided both the data collection and the data analysis processes.ResultsData analysis revealed that all participant groups reported transition challenges with respect to accessibility, the suitability of some primary care environments for caring for individuals with complex care needs, gaps in seamless care, and limited time and funding when receiving or providing primary care services to young adults with CP.DiscussionThere is a greater demand for adult healthcare providers now to deliver services for adults with childhood onset disabilities. Transition-aged young adults with CP and complex medical needs have increased challenges with accessing primary care services. Considering the following would improve primary care services transition for this population with complex medical needs: ongoing partnering between pediatric and adult health care streams to promote seamless care; connection to team-based primary care services where family physicians, subspecialties and interprofessional practitioners work together to provide joint care planning; salary compensation for increased service needs due to medical complexity; accessible sites; and development of guidelines for transitioning youth/young adults with complex care needs.

scholarly journals Ethics challenges of transition from paediatric to adult health care services for young adults with neurodevelopmental disabilities

2014 ◽  
Vol 19 (2) ◽  
pp. 65-68 ◽  
Author(s):  
Eric Racine ◽  
Emily Bell ◽  
Allison Yan ◽  
Gail Andrew ◽  
Lorraine E Bell ◽  
...  
Keyword(s):  
Health Care ◽  
Young Adults ◽  
Health Care Services ◽  
Adult Health ◽  
Neurodevelopmental Disabilities ◽  
Care Services ◽  
Adult Health Care

Hypnotherapy as an Adjunct to Medical Treatment: Highlighting Effectiveness and Identifying Barriers to Further Integrative Treatment

2021 ◽  
pp. 097206342110115
Author(s):  
Feryad A. Hussain
Keyword(s):  
Health Care ◽  
Medical Treatment ◽  
Health Care Services ◽  
Well Being ◽  
Medical Treatments ◽  
Care Services ◽  
Secondary Health Care ◽  
History Of ◽  
Clinical Hypnosis ◽  
The Mind

Integrative models of health care have garnered increasing attention over the years and are currently being employed within acute and secondary health care services to support medical treatments in a range of specialities. Clinical hypnosis has a history of working in partnership with medical treatments quite apart from its psychiatric associations. It aims to mobilise the mind–body connection in order to identify and overcome obstacles to managing symptoms of ill health, resulting in overall improved emotional and physical well-being. This article aims to encourage the use of hypnotherapy in physical health care by highlighting the effectiveness of hypnosis as an adjunct to medical treatment and identifying barriers preventing further integrative treatments.

scholarly journals Access and participation: What factors influence the provision and utilisation of health care services by children with learning disabilities?

2017 ◽  
Vol 41 (S1) ◽  
pp. S452-S452
Author(s):  
A. Rebowska
Keyword(s):  
Health Care ◽  
Learning Disabilities ◽  
Young People ◽  
Intellectual Disabilities ◽  
Health Care Services ◽  
Healthcare Services ◽  
Children And Young People ◽  
Care Services ◽  
Healthcare Needs ◽  
Wide Range

AimsThe aim of this literature review is to explore the range of factors that influence the degree of access to health care services by children and young people with learning disabilities.BackgroundChildren with learning disabilities are at increased risk of a wide range of health conditions comparing with their peers. However, recent reports by UK government as well as independent charities working with children and young people with learning disabilities demonstrated that they are at risk of poor health outcomes as a result of barriers preventing them from accessing most appropriate services.MethodsComprehensive searches were conducted in six databases. Articles were also obtained through review of references, a search of the grey literature, and contacting experts in the field. The inclusion criteria were for studies evaluating access to healthcare services, identification and communication of health needs, organisational aspects impacting on access and utilisation, staff attitudes where they impacted on access, barriers, discrimination in patients with intellectual disabilities age 0–18. The literature search identified a sample of 36 papers. The marked heterogeneity of studies excluded conducting a meta-analysis.ResultsBarriers to access included problems with identification of healthcare needs by carers and healthcare professionals, communication difficulties, the inadequacy of facilities, geographical and physical barriers, organisational factors such as inflexible appointment times, attitudes and poor knowledge base of healthcare staff.ConclusionThe factors identified can serve as a guide for managers and clinicians aiming to improve access to their healthcare services for children and young people with intellectual disabilities.Disclosure of interestThe authors have not supplied their declaration of competing interest.

Supporting Young People at School With High Mental Health Needs

2005 ◽  
Vol 15 (2) ◽  
pp. 137-155 ◽  
Author(s):  
Debra Rickwood
Keyword(s):  
Mental Health ◽  
Health Care ◽  
Primary Health Care ◽  
Young People ◽  
School Environment ◽  
Health Care Services ◽  
Mental Health Problems ◽  
School Setting ◽  
Care Services ◽  
Primary Health

AbstractFor young people still at school, the school setting is vital to their mental health and wellbeing. Not only does the school environment have a direct and indirect impact on mental health, it provides an opportunistic setting in which to identify and respond to emerging mental health problems. To do this effectively, schools and school staff must work in collaboration with the young people themselves, their families, and other support services within the community, particularly primary health care services, including general practice. The importance of developing effective partnerships and care pathways between schools and the primary health care sector is being increasingly acknowledged, and initiatives such as MindMatters Plus GP have advanced our understanding in this area.

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