Exploring group dynamics for integrating scientific and experiential knowledge in Community Advisory Boards for HIV research

Although many successful Community Advisory Boards (CABs) are discussed in the literature, some articles report that community members feel they are treated as token participants, or that their voices are not heard. This article describes the initial steps we took in designing an effective and empowered CAB, the underlying group dynamics principles we employed to formulate this CAB, and the structure and processes we instituted. We focused on how to build decision-making procedures that support and enhance the group’s function and effectiveness over the long term. Additionally, we considered how we might intervene when these features become out of balance. Though the literature on CABs often talks about power dynamics, explanations of what is meant by this label are rare. We resolved to explore these dynamics and to design a CAB that would operate successfully in full recognition of power dynamics.

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Exploitation and community engagement: Can Community Advisory Boards successfully assume a role minimising exploitation in international research?

Developing World Bioethics ◽

10.1111/dewb.12031 ◽

2013 ◽

Vol 15 (1) ◽

pp. 18-26 ◽

Cited By ~ 24

Author(s):

Bridget Pratt ◽

Khin Maung Lwin ◽

Deborah Zion ◽

Francois Nosten ◽

Bebe Loff ◽

...

Keyword(s):

Community Engagement ◽

International Research ◽

Advisory Boards ◽

Community Advisory Boards

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How do community advisory boards fulfil their ethical role in HIV clinical trials? A protocol for a systematic review of qualitative evidence

BMJ Open ◽

10.1136/bmjopen-2019-035368 ◽

2020 ◽

Vol 10 (4) ◽

pp. e035368

Author(s):

Godwin Pancras ◽

Maryam Amour ◽

Tosi Mwakyandile ◽

Baraka Morris ◽

Bruno F Sunguya ◽

...

Keyword(s):

Systematic Review ◽

Clinical Trials ◽

Grey Literature ◽

Cochrane Library ◽

Global Health Research ◽

Advisory Boards ◽

Qualitative Evidence ◽

Ethical Role ◽

Hiv Clinical Trials ◽

Community Advisory Boards

IntroductionCommunity advisory boards (CABs) continue to gain wide use and acceptance in global health research including in HIV clinical trials. They provide means through which community concerns regarding the trial can be considered by the research team, and provide an important platform of communication between the researchers and the community about study goals. Therefore, this systematic review protocol will guide the review of qualitative evidence on the ethical roles of CABs in HIV clinical trials based on the three fundamental ethical principles: respect for the person, beneficence and justice.Methods and analysisThis systematic review of qualitative evidence will involve searching four medical databases: PubMed, ScienceDirect, CINAHL and Cochrane Library. Additionally, other relevant evidence will be obtained through hand searching and grey literature. Searches will be limited to studies published in the English language from 1989 (the year that CABs were first established in HIV clinical trials) to 2019. Articles searched will be screened by two independent authors based on inclusion and exclusion criteria. Included articles will be appraised for quality using the Critical Appraisal Skills Programme checklist and followed by qualitative data extraction. Findings will be analysed based on the meta-aggregative approach with the aid of EPPI-Reviewer 4 web-based software.Ethics and disseminationEthical approval does not apply to this review. Data will be disseminated through scientific conferences and peer-reviewed journals to inform policies and stake-holders about the ethical role of CABs.PROSPERO registration numberCRD42019133787.

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The use of community advisory boards in pragmatic clinical trials: The case of the adult day services plus project

Home Health Care Services Quarterly ◽

10.1080/01621424.2020.1816522 ◽

2020 ◽

pp. 1-11

Author(s):

Keith A. Anderson ◽

Holly Dabelko-Schoeny ◽

Sokha Koeuth ◽

Katherine Marx ◽

Laura N. Gitlin ◽

...

Keyword(s):

Clinical Trials ◽

Adult Day Services ◽

Advisory Boards ◽

Pragmatic Clinical Trials ◽

Day Services ◽

Community Advisory Boards

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Community advisory boards and research ethics in low-income and middle-income countries: a scoping review

The Lancet ◽

10.1016/s0140-6736(18)32671-0 ◽

2018 ◽

Vol 392 ◽

pp. S42 ◽

Cited By ~ 1

Author(s):

Yang Zhao ◽

Thomas Fitzpatrick ◽

Bin Wan ◽

Suzanne Day ◽

Allison Mathews ◽

...

Keyword(s):

Research Ethics ◽

Scoping Review ◽

Low Income ◽

Middle Income ◽

Middle Income Countries ◽

Advisory Boards ◽

Community Advisory Boards

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Motivations and perceptions of community advisory boards in the ethics of medical research: the case of the Thai-Myanmar border

BMC Medical Ethics ◽

10.1186/1472-6939-15-12 ◽

2014 ◽

Vol 15 (1) ◽

Cited By ~ 18

Author(s):

Khin Maung Lwin ◽

Phaik Yeong Cheah ◽

Phaik Kin Cheah ◽

Nicholas J White ◽

Nicholas P J Day ◽

...

Keyword(s):

Medical Research ◽

Advisory Boards ◽

Community Advisory Boards

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Implementation Process and Impacts of a Participatory HIV Research Project with Key Populations

BioMed Research International ◽

10.1155/2018/5845218 ◽

2018 ◽

Vol 2018 ◽

pp. 1-9 ◽

Cited By ~ 3

Author(s):

Sónia Dias ◽

Ana Gama ◽

Daniel Simões ◽

Luís Mendão

Keyword(s):

Participatory Research ◽

Sex Workers ◽

Implementation Process ◽

Vulnerable Groups ◽

Complex Nature ◽

Research Project ◽

Advisory Boards ◽

Participatory Health Research ◽

Hiv Research ◽

The Impact

A participatory HIV research project was conducted with sex workers (SW) and men who have sex with men (MSM) to understand epidemiological HIV dynamics and associated sociobehavioural factors among these vulnerable groups. We examine the impact of this project, critically analysing the processes undertaken and focusing on the advantages and the challenges faced. A partnership was built through two Community Advisory Boards (CABs) and a Scientific Commission (SC). Regular meetings, workshops, and focus groups were conducted with CABs, SC, and partners to assess the processes and outcomes of the project implementation. This participatory research produced change processes with impacts at different levels: individuals, community organizations, health professionals, academics, and policy-makers. Advantages of the participatory process were encountered but also challenges, evidencing the dynamic and complex nature of each project’s stage. This project showed that participatory research can work as an intervention. Indeed, it triggered a dynamic and interactive process of knowledge coproduction and translation into effective community-oriented health actions and policies. The participatory research reproduced an innovative alliance for HIV prevention and sexual health promotion responsive to local needs and priorities. Further efforts are needed to systematize and evaluate the processes and impacts of participatory health research.

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Using Community Advisory Boards to Build Partnerships and Develop Peer-Led Services for Rural Student Veterans

Progress in Community Health Partnerships Research Education and Action ◽

10.1353/cpr.2016.0042 ◽

2016 ◽

Vol 10 (3) ◽

pp. 355-364

Author(s):

Ann M. Cheney ◽

Traci H. Abraham ◽

Steve Sullivan ◽

Shane Russell ◽

Dianne Swaim ◽

...

Keyword(s):

Student Veterans ◽

Advisory Boards ◽

Community Advisory Boards ◽

Rural Student

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Onderzoek naar praktijkkennis met behulp van psychodrama

KWALON ◽

10.5117/2013.018.001.022 ◽

2013 ◽

Vol 18 (1) ◽

Author(s):

Michiel de Ronde ◽

Pierre de Laat ◽

Jac Geurts

Keyword(s):

Qualitative Research ◽

Tacit Knowledge ◽

Group Dynamics ◽

Virtual World ◽

Research Method ◽

Experiential Knowledge ◽

Qualitative Research Method ◽

Onderzoek Naar ◽

Insight Into ◽

Gaining Insight

Studying tacit knowledge with psychodrama. Design of a qualitative research method Studying tacit knowledge with psychodrama. Design of a qualitative research method Play and playful methods are used frequently in coaching and in consultancy. This paper answers the question how to study the tacit knowledge of professionals when they use play as a method with their clients or client systems.According to Schön (1983) the practitioner creates in a learning process a virtual world to explore different actions and interventions. In this article it is described how psychodrama can be seen as a virtual world, in which an ‘as if’-world can be created that professionals can use to express, verbalize and explore their ‘embodied cognition’ (Damasio, 2010) about feelings in communication with their clients. It is argued that psychodrama can be conceived of as a research method, that enables to obtain insights into the pre-reflective experiences or tacit knowledge of the interactions between the professional, the client and the play method. It is assumed that this research method could also be used in the study of gaining insight into experiential knowledge in the production of arts and in group dynamics.

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