User engagement in the development of a home-based virtual multidisciplinary stroke care clinic for stroke survivors and caregivers: a qualitative descriptive study

Introduction: Stroke nurse is functioning as a vital member of the stroke team. She/he provides care to the stroke patients in acute as well as post-acute periods. She/he coordinates among other team members to facilitate the stroke care continuum. Post-stroke care is always a challenge for health care professional as well as caregivers. During current pandemic conditions, it is essential to provide quality care at their home. Purpose: To develop a mobile application to provide home based care for prevention and management of post stroke complications among survivors. Methods: Survey was carried out among 170 bedridden stroke survivors and their caregivers to assess problems faced like aspiration pneumonia, bedsore, urinary tract infection, deep vein thrombosis, frozen shoulder, contractures, and caregiver burden. On the basis of findings ‘Stroke home care’ a bilingual (in Hindi and English) mobile application was developed which contains step by step nursing-care-procedural videos to prevent bedsore, bedsore dressing, positioning change, Ryle’s tube feeding, Foley’s catheter care, active and passive range of motion exercises, hand washing with soap-water as well with sanitizer, psychological support to patients. Results: Through this intervention, caregivers of bedridden stroke patients get trained for care procedures so that they can provide best possible nursing care to their patients at home and can prevent post stroke complications and ultimately enhances quality of life of survivors and reduce caregivers’ burden. Conclusion: ‘Stroke Home Care’ is a novel intervention developed by a stroke nurse which has been developed and tested not just for its feasibility and acceptability but also proven for its clinical applicability through PROBE designed study. This web based intervention can provide rehabilitation services to bedridden stroke survivors at their home in this pandemic.

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Abstract WP451: “Development, Feasibility and Validation of “Stroke Home Care” Application in a Resource Limited Setting: A Proof of Concept Study”

Stroke ◽

10.1161/str.51.suppl_1.wp451 ◽

2020 ◽

Vol 51 (Suppl_1) ◽

Author(s):

Ashok Kumar ◽

Dheeraj Khurana ◽

Smita Pattanaik ◽

Mukesh Kumar ◽

Manish Modi ◽

...

Keyword(s):

Home Care ◽

Stroke Care ◽

Medical Application ◽

Mobile App ◽

Resource Limited Setting ◽

Stroke Survivors ◽

Post Stroke ◽

Resource Limited ◽

Home Based ◽

Limited Setting

Introduction: Stroke rehabilitation and caregivers training is central to improve post stroke care and reduce caregivers’ burden. Mobile applications(app) may provide a patient and caregiver centric modality to improve stroke care Aim: To develop and evaluate feasibility of a medical application for delivering post stroke care. Methods: A mobile app was developed on an android operating system following a preliminary assessment of post stroke complications to train caregivers. App consists of videos of home based care strategies for bedsore prevention, feeding, mouth care, ROM exercises, catheter care, psychological support to patients etc. App includes awareness videos on stroke, problems faced after stroke, follow up schedule, feedback option. App feasibility was assessed among 25 bedridden stroke survivors and their caregivers selected purposely. App validation was done by 16 stroke experts including neurologists, nurses, psychologists, physiotherapists using semi-structured-questionnaire for data collection. Following this, final "Stroke Home Care" app was developed. Results Feasibility: Mean age of patients and caregivers was 52.6±14.8 and 32.4±8.9years, respectively. 64% patients females, 75% caregivers males. 56% lived in rural. Median NIHSS 14 (IQR: 12-17). Complications were 56% Ryle’s tube, 72% Foley’s catheter, 12% bedsore. 64% caregivers were graduates. 52% sons. All caregivers responded that app contents, videos and language was understandable and appropriate. 92% preferred ‘Hindi’ language. All agreed to App enhancing their stroke knowledge. All were satisfied. Validation: Mean age of experts was 33.2±4years. 75% females. 56% nursing experts and postgraduates,19% MDs. 50% Nursing teachers, 19% Neurology fellows. None faced any app installation problem. 81.3% experts highly satisfied with app functions, its contents, voice clarity, video clarity and duration, contents’ sequence, understandability. Discussion/Conclusion: “Stroke Home Care” App is feasible, pragmatic and user-friendly for use by caregivers of stroke survivors in a resource limited setting/developing country. It should be tested by an RCT to evaluate its efficacy in reducing post stroke complications and reducing caregivers’ burden.

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Reflecting on experiences of care: an exploratory qualitative descriptive study of the perspectives of stroke survivors, families and staff

BMJ Open ◽

10.1136/bmjopen-2020-047559 ◽

2021 ◽

Vol 11 (12) ◽

pp. e047559

Author(s):

Caroline Bulsara ◽

Rosemary Saunders ◽

Laura Emery ◽

Christopher Etherton-Beer

Keyword(s):

Well Being ◽

Stroke Survivors ◽

Semistructured Interview ◽

Rehabilitation Unit ◽

Rehabilitation Care ◽

Home Based ◽

Qualitative Descriptive ◽

Staff Experiences ◽

Staff Engagement

ObjectiveThe aim of this study was to identify barriers and enablers from the perspectives of stroke survivors, carers and staff to understand the experiences of care.DesignThe study used a qualitative descriptive methodology and employed semistructured interview technique.SettingA metropolitan stroke rehabilitation unit in Western Australia providing rehabilitation services for inpatients and outpatients.ParticipantsOverall, 10 participants (four staff, four stroke survivors and two primary carers) were interviewed. Transcripts were analysed using thematic analysis.ResultsExperiences of care focused on lack of time, urgency to regain mobility, postshock recovery, uncertainty about the future and the importance of accepting help once home. There was a degree of mismatch between staff experiences of the reality of what can be provided and the experiences and expectations of stroke survivors and families. However, the benefits of a specialised rehabilitation unit were found to contribute to a positive patient experience overall. The specialised unit demonstrated that services must optimise staff time with patients and carers in the poststroke rehabilitation journey to ensure benefits for the long-term well-being for both.ConclusionSeeking patient, family and staff experiences of care can provide valuable insights into facilitating better patient, family and staff engagement for preparation for home-based rehabilitation for stroke survivors and their caregivers. Further research with a larger sample across diverse hospital settings would provide even greater insight into strategies to best address the reality of rehabilitation care and readiness of patients when returning home to the community.

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Primary care practitioners’ perspectives of discharge communication and continuity of care for stroke survivors in Australia: A qualitative descriptive study

Health & Social Care in the Community ◽

10.1111/hsc.13696 ◽

2021 ◽

Author(s):

Jacinta Sheehan ◽

Natasha A. Lannin ◽

Kate Laver ◽

Sandra Reeder ◽

Anoo Bhopti

Keyword(s):

Primary Care ◽

Continuity Of Care ◽

Descriptive Study ◽

Stroke Survivors ◽

Qualitative Descriptive ◽

Primary Care Practitioners ◽

Discharge Communication

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Failure to rescue : is the phenomenon present in long term care? : a qualitative descriptive study

10.32469/10355/37838 ◽

2013 ◽

Author(s):

Luann M. Tandy

Keyword(s):

Long Term Care ◽

Descriptive Study ◽

Failure To Rescue ◽

Term Care ◽

Qualitative Descriptive

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KHALIFAH FI AL-’ARD UNTUK MEWUJUDKAN KESADARAN ENERGI

JURNAL PENELITIAN ◽

10.28918/jupe.v13i2.717 ◽

1970 ◽

Vol 13 (2) ◽

Author(s):

Muhamad Iqbal

Keyword(s):

Natural Resources ◽

Descriptive Study ◽

Research Library ◽

Energy Awareness ◽

Library Research ◽

Comprehensive Knowledge ◽

Qualitative Descriptive

Tulisan ini menjelaskan konsep khalifah fil’ardi sebagai wakil Tuhan dalam melestarikan alam. Penelitian ini bertujuan untuk menanamkan kesadaran energi yang berasal dari sumber daya alam. Jenis penelitian ini adalah penelitian kepustakaan (Library Research) dan penelitian ini merupakan penelitian deskriptif kualitatif. Berdasarkan analisis dan data yang penulis teliti, penulis menyimpulkan bahwa pengetahuan yang komprehensif tentang kesadaran energi menjadi dasar mengenai khalifah fil’ardi. Mewujudkan kesadaran energi di tengah masyarakat menjadi konsep termutakhir dari “khalifah fil ‘ardi” This paper describes the concept of khalifah fil’ardi as representatives of God in conserving nature. This study aims to instill awareness of energy derived from natural resources. This type of research is the research library (Library Research) and this research is a qualitative descriptive study. Based on the analysis and the data that I researched, the author concludes that a comprehensive knowledge about energy awareness is the basis of the khalifah fil’ardi. Realizing energy awareness in society becomes the latest concept of khalifah fil’ardi.

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KUALITAS LAYANAN KETERBUKAAN INFORMASI PUBLIK BERBASIS WEBPORTAL PADA PEJABAT PENGELOLA INFORMASI DAN DOKUMENTASI (PPID) KABUPATEN SLEMAN TAHUN 2019

Kybernan: Jurnal Studi Kepemerintahan ◽

10.35326/kybernan.v3i1.513 ◽

2020 ◽

Vol 3 (1) ◽

pp. 55-66

Author(s):

Coni Wanprala ◽

Isnaini Muallidin ◽

Dewi Sekar Kencono

Keyword(s):

Information Disclosure ◽

Central Government ◽

Public Information ◽

Descriptive Study ◽

Field Observations ◽

Public Agencies ◽

The Public ◽

Qualitative Descriptive ◽

The Government ◽

Data Collection Technique

At present the development of technology and information has reached a very rapid level. Technology and information are used as a service media in the government environment which is also known as e-Government, one of which is the service of public information disclosure. The central government through Law No. 14 of 2008 concerning Openness of Public Information, encourages all Public Agencies including the Sleman Regency Government to make transparency in the administration of the state by utilizing information technology. This research is a qualitative descriptive study which aims to describe the reality that occurs. The object of research in this study is the official website of the Information and Documentation Management Officer (PPID) of Sleman Regency with the domain https://ppid.slemankab.go.id then the Sleman Regency Communication and Informatics Office as the organizer of the public information disclosure program. The data collection technique itself is carried out by means of interviews, documentation studies, and field observations (observations). After collecting and presenting data, then the data will be reduced first then analyzed and concluded. From the results of the study, in general the researchers concluded that the Sleman Regency PPID website had reached the level of qualification to become a quality website, however there were still some improvements and evaluations that had to be done by the relevant agencies in order to be better, namely (i) the website was still being assessed as a one-way service (ii) There are still many OPDs that are not ready to implement PPID (iii) data and information are still not updated (iv) lack of responsiveness of services in requests for information.

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She “didn’t see my weight; she saw me, a mom who needed help breastfeeding”: Perceptions of perinatal weight stigma and its relationship with breastfeeding experiences

Journal of Health Psychology ◽

10.1177/1359105320988325 ◽

2021 ◽

pp. 135910532098832

Author(s):

Rachel Dieterich ◽

Judy Chang ◽

Cynthia Danford ◽

Paul W Scott ◽

Caroline Wend ◽

...

Keyword(s):

Social Support ◽

Healthcare Professionals ◽

Body Image Dissatisfaction ◽

Descriptive Study ◽

Self Esteem ◽

Weight Stigma ◽

Depression And Anxiety ◽

Self Confidence ◽

Qualitative Descriptive ◽

Suboptimal Breastfeeding

Weight stigmatization is related to emotional and psychological distress including low self-esteem, body image dissatisfaction, depression, and anxiety; all linked with suboptimal breastfeeding outcomes. This qualitative descriptive study explored postpartum individuals’ recalled experiences of weight stigma during interactions with perinatal healthcare professionals and its perceived influence on their breastfeeding experiences. Semi-structured phone interviews were conducted with (n= 18) participants. Three themes emerged: (1) “Size Doesn’t Matter: They Looked Beyond the Scale,” (2) “My Self-Confidence and Desire to Breastfeed is More Important than Weight,” and (3) “I Was on My Own”— Limited Social Support not Weight Stigma Influenced Breastfeeding.

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