Thoughts on the Future: The Perspectives of Elderly People with Early-Stage Alzheimer's Disease and the Implications for Advance Care Planning

2012 ◽  
Vol 3 (1) ◽  
pp. 14-22 ◽  
Author(s):  
Marike E. de Boer ◽  
Rose-Marie Dröes ◽  
Cees Jonker ◽  
Jan A. Eefsting ◽  
Cees M. P. M. Hertogh
Keyword(s):  
Alzheimer’S Disease ◽  
Alzheimer's Disease ◽  
Elderly People ◽  
Advance Care Planning ◽  
Early Stage ◽  
Care Planning ◽  
The Future ◽  
Advance Care

Attitudes and completion of advance care planning: Assessing the contribution of health beliefs about Alzheimer's disease among Israeli laypersons

2019 ◽  
Vol 17 (6) ◽  
pp. 655-661 ◽  
Author(s):  
Perla Werner ◽  
Ile Kermel Schiffman
Keyword(s):  
Alzheimer’S Disease ◽  
Alzheimer's Disease ◽  
Health Beliefs ◽  
Advance Care Planning ◽  
Sociodemographic Factors ◽  
Care Planning ◽  
Power Of Attorney ◽  
Cross Sectional ◽  
Subjective Knowledge ◽  
Advance Care

AbstractObjectivesThe purpose of this study was to assess laypersons’ attitudes and completion of advance care planning (ACP) and to examine associations with sociodemographic characteristics and health beliefs on Alzheimer's disease.MethodsA cross-sectional telephone survey was conducted during April and May 2017, with a sample of 514 Israeli adults, aged 18 years and above. A structured, pretested questionnaire assessing participants’ awareness, attitudes, and completion of ACP, as well as health beliefs on Alzheimer's disease (subjective knowledge, susceptibility, and worry), and sociodemographic factors, was used.ResultsTwo-fifths of the participants had heard of at least one of the terms: advance directives or durable power of attorney. Overall, participants expressed positive attitudes toward ACP. Results of regression models showed that gender, religiosity, and subjective knowledge of Alzheimer's disease were statistically significant correlates of attitudes toward ACP. Adding health beliefs on Alzheimer's disease doubled the amount of the variance explained, from 3% to 6%.Significance of resultsOur results support the use of cognitive models of health behavior by assessing intra-personal beliefs and knowledge to understand ACP attitudes and completion. Specifically, we demonstrated the importance of knowledge of Alzheimer's disease for ACP attitudes, suggesting the importance of including a module on the topic to ACP interventions.

DISCLOSURE OF DEMENTIA DIAGNOSIS AND THE NEED FOR ADVANCE CARE PLANNING IN INDIVIDUALS WITH ALZHEIMER'S DISEASE

2008 ◽  
Vol 56 (11) ◽  
pp. 2156-2157 ◽  
Author(s):  
Marja-Liisa Laakkonen ◽  
Minna M. Raivio ◽  
Ulla Eloniemi-Sulkava ◽  
Reijo S. Tilvis ◽  
Kaisu H. Pitkälä ◽  
...  
Keyword(s):  
Alzheimer’S Disease ◽  
Alzheimer's Disease ◽  
Advance Care Planning ◽  
Care Planning ◽  
Dementia Diagnosis ◽  
Advance Care

scholarly journals FORWARD TO THE FUTURE: INTRODUCTION OF ADVANCE CARE PLANNING IN A TERTIARY CANCER CENTRE

2014 ◽  
Vol 4 (Suppl 1) ◽  
pp. A79.3-A80
Author(s):  
Agnes Noble ◽  
Alison Coackley ◽  
Ann Griffiths ◽  
Susan Howarth
Keyword(s):  
Advance Care Planning ◽  
Care Planning ◽  
Cancer Centre ◽  
The Future ◽  
Advance Care

The effect of anxiety and depression on decline of memory function in Alzheimer's disease

2009 ◽  
Vol 21 (6) ◽  
pp. 1142-1147 ◽  
Author(s):  
E. J. M. Bierman ◽  
H. C. Comijs ◽  
C. Jonker ◽  
P. Scheltens ◽  
A. T. F. Beekman
Keyword(s):  
Alzheimer’S Disease ◽  
Alzheimer's Disease ◽  
Depressive Symptoms ◽  
Elderly People ◽  
Early Stage ◽  
Memory Function ◽  
Verbal Learning ◽  
Anxiety Symptoms ◽  
Anxiety And Depression ◽  
Dutch Version

ABSTRACTBackground: Patients with Alzheimer's disease (AD) and concomitant atrophy of the hippocampus may be extra vulnerable to the consequences of psychological distress, leading to greater decline in memory function. The present study investigated whether symptoms of anxiety and depression predict decline of memory function in elderly people diagnosed with early stage AD.Methods: A sample of 44 elderly people diagnosed with early stage AD was tested on their memory function, anxiety and depression and confounding variables with one year follow-up. Episodic memory was measured with a modified Dutch version of the Auditory Verbal Learning Test (AVLT) which measures learning and recall abilities. Linear regression analyses were used to investigate the association between anxiety and depressive symptoms and decline of memory function.Results: Anxiety symptoms predicted a smaller decline in learning on the AVLT. Anxiety symptoms did not predict decline on the recall of the AVLT. No association was found between depressive symptoms and decline in either learning or recall of the AVLT.Conclusions: In early AD, symptoms of anxiety and depression generally seem to be mild, and do not accelerate decline of memory function over time. On the contrary, anxiety symptoms were found to predict a smaller decline in memory function.

How Do Patients With Parkinson’s Disease Approach Advance Care Planning? A UK-Based Mixed Methods Study

2021 ◽  
pp. 089198872098891
Author(s):  
Deepta Churm ◽  
Claire Dickinson ◽  
Louise Robinson ◽  
Paul Paes ◽  
Thomas Cronin ◽  
...  
Keyword(s):  
Parkinson’S Disease ◽  
Parkinson's Disease ◽  
Mixed Methods ◽  
Advance Care Planning ◽  
Mixed Methods Study ◽  
Care Planning ◽  
Structured Interviews ◽  
The Future ◽  
Explanatory Mixed Methods ◽  
Advance Care

Background: Advance Care Planning (ACP) allows people the opportunity to plan for a time when they may lose capacity. The aim of this study was to determine the extent people with Parkinson’s disease (PD) were aware of ACP, existing plans they held and to explore their own views, as well as their relatives, on planning for the future. Methods: This was a sequential explanatory mixed methods study with a postal quantitative survey to establish awareness and engagement with planning for the future; and qualitative semi-structured interviews to explore the views of people with PD and their relatives on ACP and future plans. Results: 104 questionnaires were analyzed. 76% of respondents had not heard of ACP, while 69% expressed an interest in finding out more about ACP. 78% had a will, and 23% had appointed lasting power of attorneys. All interviewees acknowledged engaging in some aspect of planning. Plans were mostly practical as opposed to health-care related. Interviewees expressed a preference for ACP to be carried out by their PD team, at home, and at a time relevant to their condition. Conclusion: The awareness and understanding of ACP in people with PD is low. While there is desire to be better informed about ACP, this did not translate into desire to engage in ACP. Health professionals should identify people for whom ACP may serve a positive purpose, and proactively address ACP as a continuum with them, while ensuring awareness is raised about ACP, and there is access for who are interested.

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