Measuring the Impact of an Adolescent and Young Adult Program on Addressing Patient Care Needs

2018 ◽  
Vol 7 (5) ◽  
pp. 612-617 ◽  
Author(s):  
Laura Mitchell ◽  
Seline Tam ◽  
Jeremy Lewin ◽  
Amirrtha Srikanthan ◽  
Carol Heck ◽  
...  
Keyword(s):  
Young Adult ◽  
Patient Care ◽  
Adolescent And Young Adult ◽  
Care Needs ◽  
The Impact

Living beyond cancer: Adolescent and young adult perspectives on choice of and participation in meaningful occupational roles

2020 ◽  
pp. 030802262096067
Author(s):  
Amy Wallis ◽  
Pamela Meredith ◽  
Mandy Stanley
Keyword(s):  
Young Adult ◽  
Interpersonal Relationships ◽  
Young Person ◽  
Adolescent And Young Adult ◽  
Photo Elicitation ◽  
Structured Interviews ◽  
Occupational Roles ◽  
Subsequent Interview ◽  
Cancer Experience ◽  
The Impact

Introduction Whilst it is recognised that cancer may present numerous challenges for the adolescent or young adult during treatment, experiences after this stage as the young person transitions to life without cancer have received little attention. The purpose of this study is to understand the implications of having survived cancer for the young person’s choice of, and participation in, meaningful occupational roles. Method In this qualitative descriptive study, four participants were interviewed on two occasions using semi-structured interviews, with the subsequent interview supplemented with photo elicitation. Participants were male and female, aged 19 and 24 years, and medically cleared of (living beyond) cancer. Thematic analysis was used. Results Three main themes emerged: changes in relationships; moving beyond; and future perspectives. Adolescents and young adults identified the impact of the cancer experience on interpersonal relationships and related occupational roles (for example parenthood), and described how cancer affected their participation in, and the meaning of, occupational roles, and altered present and future occupational priorities. Conclusion Having cancer as an adolescent or young adult has lasting impacts on occupational roles. Understanding the opportunities and challenges this population may face when living beyond cancer can assist in providing enhanced age-aware occupational therapy, potentially optimising outcomes for young people.

scholarly journals Long-term issues and supportive care needs of adolescent and young adult childhood brain tumour survivors and their caregivers: A systematic review

2019 ◽  
Vol 28 (3) ◽  
pp. 477-487 ◽  
Author(s):  
Emma Nicklin ◽  
Galina Velikova ◽  
Claire Hulme ◽  
Rocio Rodriguez Lopez ◽  
Adam Glaser ◽  
...  
Keyword(s):  
Systematic Review ◽  
Young Adult ◽  
Supportive Care ◽  
Brain Tumour ◽  
Supportive Care Needs ◽  
Adolescent And Young Adult ◽  
Care Needs

Healthcare utilization and quality among survivors of adolescent and young adult cancer.

2016 ◽  
Vol 34 (3_suppl) ◽  
pp. 21-21
Author(s):  
Anne C. Kirchhoff ◽  
Sapna Kaul ◽  
Mark Fluchel ◽  
Christopher F Parmeter ◽  
Holly Lynn Spraker
Keyword(s):  
Health Care ◽  
Young Adult ◽  
Health Care Quality ◽  
Comparison Group ◽  
Care Quality ◽  
Health Care Use ◽  
Medical Expenditure ◽  
Adolescent And Young Adult ◽  
Care Needs ◽  
Targeted Interventions

21 Background: To evaluate perceived health care quality among a national sample of survivors of adolescent and young adult (AYA) cancer relative to individuals from the general population. Methods: Using the Medical Expenditure Panel Surveys from 2008-2012, we identified 1,163 survivors diagnosed with cancer ages 15-39 who were at least five years from diagnosis and currently ages of 20-64. A comparison group with no history of cancer was created via propensity score matching on sex, age at study, race/ethnicity, census-region, and survey year. Participants with one or more health care visit in the past 12 months were asked to rate health care quality from all providers (0 = worst to 10 = best), which we categorized as low (0-4), moderate (5-7) and high (8-10). Among survivors, we identified factors such insurance and health status associated with health care quality using ordinal logistic regression. Results: Mean time since diagnosis was 18.3 years. A total of 18% of survivors of AYA cancer reported no health care visits in the previous 12 months compared to 25% of the comparison group (p < 0.001). Survivors rated their health care quality lower than the comparison group (low/moderate: 30.8% vs. 22.5%, respectively, p = 0.003). Among survivors, those who were publicly insured (odds ratio (OR) = 0.62, 95% confidence interval (CI): 0.39-0.97, p = 0.04) and uninsured (OR = 0.25, 95% CI: 0.13-0.48, p < 0.001) were more likely to provide lower health care quality ratings than privately insured survivors. Survivors in fair/poor health also reported poorer quality compared to those in excellent/very good/good health (OR = 0.43, 95% CI, p < 0.001). Conclusions: Survivors of AYA cancer reported greater health care use and poorer health care quality compared to individuals without cancer. Our results call for targeted interventions to meet AYA cancer survivors’ health care needs and expectations.

Disparities between provider assessment and documentation of care needs in the care of adolescent and young adult patients with sarcoma.

2020 ◽  
Vol 38 (29_suppl) ◽  
pp. 218-218
Author(s):  
Grace Eileen McKay ◽  
Amanda Marie Parkes
Keyword(s):  
Young Adult ◽  
Chart Review ◽  
Retrospective Chart Review ◽  
Developmental Time ◽  
Adolescent And Young Adult ◽  
Psychosocial Needs ◽  
Care Needs ◽  
Improvement Project ◽  
Oncology Practice ◽  
Oncology Providers

218 Background: Given the occurrence of cancer during a complex developmental time, adolescent and young adult (AYA) patients have unique psychosocial needs, necessitating supportive care guidelines including National Comprehensive Cancer Network (NCCN) AYA guidelines. We sought to assess compliance with NCCN AYA guidelines and compare to oncology provider identified AYA care needs. Methods: Retrospective chart review was performed on AYA patients (15-39 years) with sarcoma seen at least once in 2019 at the University of Wisconsin (UW), identifying documentation of discussions deemed critical per NCCN AYA guidelines. As per ASCO’s Quality Oncology Practice Initiative certification, we considered a threshold of 75% or higher to be compliant. Compliance was compared with an electronic survey of UW oncology providers regarding AYA patient needs, with items determined to have adequate resources if noted sufficient by >75% of providers. Results: We identified 43 AYA patients with sarcoma. As seen in table, <75% of patients had documentation regarding contraception, fertility, finances, genetics, social work referral and clinical trials indicating non-compliance. Surveys, completed by 38 oncology providers, showed significant discordance between provider’s perception of adequate access to resources and compliance on chart review. Conclusions: Disparities between oncology provider assessment of AYA care needs and lack of documentation of critical components of AYA patient care demonstrates the need for novel tools to evaluate AYA care needs beyond provider assessments. Care needs identified in our study will serve as the basis of an ongoing quality improvement project to better support AYA patients at UW. [Table: see text]

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