scholarly journals P185 Psychosocial impact of the COVID-19 pandemic on patients with inflammatory bowel disease in Spain

2021 ◽  
Vol 15 (Supplement_1) ◽  
pp. S255-S256
Author(s):  
A Hernandez Camba ◽  
L Ramos ◽  
M B Madrid Álvarez ◽  
L Pérez-Méndez ◽  
P Nos ◽  
...  
Keyword(s):  
Mental Health ◽  
Inflammatory Bowel Disease ◽  
Bowel Disease ◽  
Online Survey ◽  
Psychosocial Impact ◽  
Self Report ◽  
Indeterminate Colitis ◽  
Sleep Habits ◽  
Cross Sectional ◽  
Inflammatory Bowel

Abstract Background Few studies have examined the effects of COVID-19 on the mental health of patients with inflammatory bowel disease (IBD), who are already at higher risk of depression, anxiety and stress than the general population. This cross-sectional study was conducted to assess the psychosocial impact of COVID-19 on patients with IBD in Spain during lockdown and the first wave of the pandemic. Methods A self-report questionnaire that integrated the Spanish version of the Depression, Anxiety and Stress Scale–21 items (DASS-21) and the Perceived Stress Questionnaire (PSS) was designed to gather sociodemographic data and information related to the effects of COVID-19 on the lives of IBD patients. Twelve IBD units invited their patients to answer the anonymous online survey via email or by using a QR code displayed at the unit. A link to the survey was also published on the GETECCU (Spanish IBD group) website and social media account. The survey was conducted between the 1st July and the 25th August 2020. Results Of the 693 survey participants with IBD, 67% were female, mean age 43 (12y SD). 61% had ulcerative colitis, 36% Crohn’s disease 3% indeterminate colitis. Only 15 participants were diagnosed with COVID-19: 3 of them required hospital admission and none required ICU admission. Physical activity levels and sleep habits were adversely affected for 79% and 67% of respondents, respectively. In addition, 39% reported a decrease in income due to the pandemic. 95% report having complied with IBD treatment during the COVID-19 pandemic, despite over 50% of them feeling that they were more at risk of infection due to their medication. DASS-21 scores indicate that during the lockdown the estimated prevalence of depression was 10.5% [95% CI 8.2–13%], anxiety 20% [95% CI –17–23%] and stress 18% [95% CI 8.2–13%]. Multivariate analysis is described in table 1. Conclusion In the short-term, lockdown during the COVID-19 pandemic seemed to have an impact on the mental health of our IBD patients in Spain. Further follow-up studies should be carried out to determine the real long-term impact, as it’s known that the wellbeing of this population might be affected because of IBD itself.

Modelling symptoms to suicide risk in individuals with inflammatory bowel disease

2020 ◽  
pp. 135910532090475
Author(s):  
Valentina Mihajlovic ◽  
Dean A Tripp ◽  
Jill A Jacobson
Keyword(s):  
Inflammatory Bowel Disease ◽  
Bowel Disease ◽  
Suicidal Behaviour ◽  
Suicide Risk ◽  
Self Report ◽  
Psychosocial Predictors ◽  
Cross Sectional ◽  
Downstream Effects ◽  
Inflammatory Bowel ◽  
Sectional Model

Given that suicidal behaviour is a pressing concern in inflammatory bowel disease populations, this study sought to model the sequence of variables that lead to its development. Participants ( n = 282) completed online self-report questionnaires regarding predictors of suicidal behaviour. A cross-sectional model of the progression from symptoms to suicide risk revealed that biomedical variables were significantly associated with psychosocial predictors of suicidal behaviour, which were significantly related to theory-driven predictors of suicidal behaviour, which were ultimately associated with suicide risk. Evidently, interventions need to target distal predictors of suicidal behaviour to mitigate harmful downstream effects.

scholarly journals P632 Is the gender or age of the physician key to a good physician-patient with Inflammatory Bowel Disease relationship?

2021 ◽  
Vol 15 (Supplement_1) ◽  
pp. S568-S569
Author(s):  
S García Mateo ◽  
S J Martínez-Domínguez ◽  
C J Gargallo-Puyuelo ◽  
F Gomollón García
Keyword(s):  
Inflammatory Bowel Disease ◽  
Bowel Disease ◽  
Online Survey ◽  
Univariate Analysis ◽  
Cross Sectional Study ◽  
Positive Influence ◽  
Cross Sectional ◽  
Good Patient ◽  
Inflammatory Bowel ◽  
Physician Relationship

Abstract Background The importance of good patient-physician relationship in chronic diseases, including Inflammatory Bowel Disease (IBD), is well stablished. Empathy has become one of the most important researches items in terms of patient-physician relationship because it is positive influence on the quality of care. The aim of the study was to assess the level of IBD specialist physician′s empathy as perceived by their patients and if it varies according to the age and gender of the patient and the physician. Methods This is a national cross-sectional study. Recruitment was conducted between July and November of 2020 by sending a voluntary online survey to IBD patients who take part of Spanish association of patients with IBD (ACCU España). The survey included CARE (Consultation and Relational Empathy) scale (maximum score 50 points and minimum 10 points). Results Five hundred sixty one responses to the survey were received. After applying exclusion criteria, 536 patients were included in the analysis. Total median score of CARE scale was 44.50 (IQR 31.25–50.00), that reflects a very good punctuation. Most of the patients (531 (99.1%)) considered the contents of the questionnaire to be an important issue. Analyzing CARE scale scores of cases in which the sex of patient and physician were the same compared who did not, no statistically significant differences were found. No differences were found either, comparing punctuation of CARE scale based on patient-physician age ranges as is shown in Table 1. n (%): Absolute frequency (percentage). *Median (IQR). **Univariate analysis performed with U Mann-Whitney test or Kruskal-Wallis Conclusion Spanish IBD patients have a great IBD specialist empathy perception, which is the key to a good patient-physician relationship, and this fact is not influenced by age or gender of patients or physicians.

scholarly journals N16 Inflammatory bowel disease (IBD) Nurses’ role and level of practice in Ireland: a National online survey

2020 ◽  
Vol 14 (Supplement_1) ◽  
pp. S665-S665
Author(s):  
A M Keogh ◽  
D Farrell
Keyword(s):  
Inflammatory Bowel Disease ◽  
Nurse Practitioners ◽  
Bowel Disease ◽  
Online Survey ◽  
Original Research ◽  
Cross Sectional ◽  
Clinical Nurse ◽  
Clinical Nurse Specialists ◽  
Highly Educated ◽  
Inflammatory Bowel

Abstract Background The role of the IBD nurse is evolving in Ireland. While Ireland has a sound base of expertise and infrastructure for providing IBD services, the lack of a dedicated specialist nurse was found to be the most significant barrier to delivering best care (ISG, 2016). There is currently no data on the role and level of practice of IBD nurse nationally. Methods A cross-sectional, descriptive online survey was undertaken. The 72-item survey was adapted from the tool used in the National UK IBD standards survey (Mason et al 2012) and underpinned by the Standards and Requirements for Clinical Nurse Specialists (NMBI, 2008). The survey was distributed to all members (n = 50) of the inflammatory bowel disease Nurses Association of Ireland (IBDNAI) and members were also invited to share the survey with colleagues not on the database. Results A total of 35 nurses working in IBD services across 22 hospitals nationally completed the survey, including IBD Clinical Nurse Specialists (CNS) (24%), IBD Clinical Nurse Managers II (CNM) (18%), IBD Nurses (12%), IBD Research Nurses (12%), Staff Nurses (9%); Infusion Nurses (6%), and IBD Advanced Nurse Practitioners (6%). The majority of respondents worked in adult IBD services (94%), with most working in their IBD role between 3 to 6 years and within gastroenterology up to 10 years. Only 44% of respondents work exclusively in IBD. The highest level of education reported was masters (40%), degree (40%); however, 75% of respondents have not completed a postgraduate diploma in gastroenterology. Services provided by nurses included patient education (94%), telephone advice line (81%), coordinating biologic service (69%), screening patients prior to administrating biologics (66%), email service for patients (59%), development of initiative for the IBD service (56%), coordinating care of inpatients (53%), follow-up (53%) and rapid access clinics (53%). Over half of respondents (61%) reported working unpaid overtime (typically 1–2 hours per week), with service suspended in their absence (45%). 36% of participants conducted original research and 48% conduct audits on their service. Conclusion IBD nurse’s role and level of practice varies greatly in Ireland. Many nurses are working in diverse roles with a wide variety of titles providing an extensive service to patients, often at a higher level than is recognised within their role title. IBD nurses are highly educated and well experienced; however the lack of specialist education has resulted in nearly as many IBD CNM’s as CNS’s which is causing variation in the title of the IBD nurse. There is a need for the development of a postgraduate programme in gastroenterology to include IBD and more IBD nurse specialists to deliver a quality, evidence-based service.

scholarly journals Treatment Adherence in Inflammatory Bowel Disease Patients from Argentina: A Multicenter Study

2020 ◽  
Vol 2020 ◽  
pp. 1-9 ◽  
Author(s):  
Juan Lasa ◽  
Gustavo Correa ◽  
Claudia Fuxman ◽  
Laura Garbi ◽  
Maria Eugenia Linares ◽  
...  
Keyword(s):  
Inflammatory Bowel Disease ◽  
Treatment Adherence ◽  
Bowel Disease ◽  
Subcutaneous Administration ◽  
Cross Sectional Study ◽  
Indeterminate Colitis ◽  
Cross Sectional ◽  
Oral Medications ◽  
Modifiable Factors ◽  
Inflammatory Bowel

Background and Aim. Treatment adherence is a frequent problem in inflammatory bowel disease (IBD). No study has assessed adherence in Argentinian patients with IBD. The aim of this study was to determine inadequate adherence to oral and parenteral therapies in patients with IBD from Argentina and to identify factors associated with it. Methods. A multicenter cross-sectional study involving seven referral centers from three cities of Argentina was undertaken. Patients with a diagnosis of ulcerative colitis (UC), Crohn’s disease (CD), or indeterminate colitis (IBDU/IC) were invited to answer an anonymous survey, which included a 5-point Likert scale to evaluate adherence to therapies. Independent variables associated with inadequate adherence were evaluated. Results. Overall, 447 UC/IBDU and 135 CD patients were enrolled. Median age was 37 years (range 21-72); 39.8% were male; median time from diagnosis was 6 years (0.5-35). 91.4% were under treatment with at least one oral medication; 50.3% of patients reported inadequate adherence to oral medications. Patients with UC/IBDU had a lower risk of inadequate adherence when compared to patients with CD (OR 0.57 (0.37-0.87)). 21.8% reported inadequate adherence to biologics; subcutaneous administration was significantly associated with inadequate adherence to biologics (OR 4.8 (1.57-14.66)). Conclusion. Inadequate treatment adherence is common among patients with IBD, and potentially modifiable factors were identified.

scholarly journals Shame and emotion regulation in inflammatory bowel disease: Effects on psychosocial functioning

2017 ◽  
Vol 25 (4) ◽  
pp. 511-521 ◽  
Author(s):  
Inês A Trindade ◽  
Cláudia Ferreira ◽  
José Pinto-Gouveia
Keyword(s):  
Inflammatory Bowel Disease ◽  
Chronic Illness ◽  
Psychological Health ◽  
Bowel Disease ◽  
Indirect Effects ◽  
Psychosocial Functioning ◽  
Online Survey ◽  
Self Report ◽  
Inflammatory Bowel ◽  
The Impact

Although patients with inflammatory bowel disease seem to be prone to high levels of shame, the mechanisms behind the impact of chronic illness–related shame on patients’ functioning have not been explored yet. This study aims to address these gaps using a sample of 161 patients with inflammatory bowel disease who completed self-report measures on an online survey. The results from path analyses showed that chronic illness–related shame presented direct and indirect effects on psychological health ( R2 = .66) and social relationships ( R2 = .46). The indirect effects were mediated by experiential avoidance and uncommitted living. Possible explanations to these findings and clinical implications are discussed.

scholarly journals The Inflammatory Bowel Disease Symptom Inventory: A Patient-report Scale for Research and Clinical Application

2019 ◽  
Vol 25 (8) ◽  
pp. 1277-1290 ◽  
Author(s):  
Kathryn A Sexton ◽  
John R Walker ◽  
Laura E Targownik ◽  
Lesley A Graff ◽  
Clove Haviva ◽  
...  
Keyword(s):  
Inflammatory Bowel Disease ◽  
Factor Analysis ◽  
Bowel Disease ◽  
Convergent Validity ◽  
Short Form ◽  
Self Report ◽  
Measurement Properties ◽  
Systemic Complications ◽  
Patient Reported ◽  
Inflammatory Bowel

Abstract Objectives Existing measures of inflammatory bowel disease (IBD) symptoms are not well suited to self-report, inadequate in measurement properties, insufficiently specific, or burdensome for brief or repeated administration. We aimed to develop a patient-reported outcome measure to assess a broader range of IBD symptoms. Methods The IBD Symptoms Inventory (IBDSI) was developed by adapting symptom items from existing clinician-rated or diary-format inventories; after factor analysis, 38 items were retained on 5 subscales: bowel symptoms, abdominal discomfort, fatigue, bowel complications, and systemic complications. Participants completed the IBDSI and other self-report measures during a clinic visit. A nurse administered the Harvey Bradshaw Index (HBI) for Crohn’s disease (CD) or the Powell-Tuck Index (PTI) for ulcerative colitis (UC), and a gastroenterologist completed a global assessment of disease severity (PGA). Results The 267 participants with CD (n = 142) or UC (n = 125), ages 18 to 81 (M = 43.4, SD = 14.6) were 58.1% female, with a mean disease duration of 13.9 (SD = 10.5) years. Confirmatory factor analysis supported the 5 subscales. The total scale and subscales showed good reliability and significant correlations with self-report symptom and IBD quality of life measures, the HBI, PTI, and PGA. Conclusions The IBDSI showed strong measurement properties: a supported factor structure, very good internal consistency, convergent validity, and excellent sensitivity and specificity to clinician-rated active disease. Self-report HBI and PTI items, when extracted from this measure, produced scores comparable to clinician-administered versions. The 38-item IBDSI, or 26-item short form, can be used as a brief survey of common IBD symptoms in clinic or research settings.

Sign in / Sign up

Export Citation Format

Share Document