Keeping up with the codes; accounting for quality in cancer patient pathways (CPPs) in Norway
Abstract Background Standardised cancer patient pathways (CPPs) were introduced in Norway in 2015. CPPs are national standardised patient pathways which are discipline- and target-based (28 cancer diagnoses), aiming to minimize waiting times and make cancer care more predictable and secure for patients. One important part of the CPPs are different codes aimed at measuring time in the different phases of the pathway. These codes are reported to the Norwegian directorate for health and are made public on a national web site. On the basis of these reports hospitals across the country can be compared regarding compliance to timescales. From a political and bureaucratic level, the codes are seen as signs of quality, and hence very important. Methods In this paper, we present preliminary results from a project which is evaluating the introduction of CPPs. Based on interviews with administrative staff responsible for coding and with other health personnel (physicians, nurses, clerical workers and managers) in different hospitals, we present experiences with and perceptions of coding practices. Results We find that even though the coding manual is presented as a universal tool implying standardised coding practices, there is a multitude of coding practices (which makes comparison between hospitals challenging). The coding represents a massive bureaucratic workload for the dedicated staff, raising concerns if their time is spent on the most important issues. Conclusions The codes are seen as timescales set according to logistics and not according to what is medically safe - and some of the health personnel argue that these timescales have nothing to do with quality. However, they still recognize that keeping the timescales might be important for the patient experience. Key messages Standardised coding are often not standardised, but contains a multitude of practices. These practices need to be explored in order to understand if and how codes can be seen as signs of quality.