scholarly journals Who Cares for Whom and Is That important? A Typology of Dementia Care Dyads and Health-Related Support Measures

2020 ◽  
Vol 4 (Supplement_1) ◽  
pp. 757-758
Author(s):  
Karin Wolf-Ostermann ◽  
Henrik Wiegelmann ◽  
Liane Schirra-Weirich ◽  
Lisa-Marie Verhaert ◽  
Werner Brannath ◽  
...  
Keyword(s):  
Latent Class ◽  
Decisive Role ◽  
Dementia Care ◽  
Community Dwelling ◽  
Living Situation ◽  
Disease Characteristics ◽  
Home Based ◽  
Care And Support ◽  
Health Related ◽  
Person With Dementia

Abstract In Germany, about 70% of all care-dependent persons are community dwelling. In dementia care arrangements you will commonly find a primary informal caregiver (IC) taking on the decisive role in providing care and support for the person with dementia (PwD). This study aimed to develop a typology of dyads based on typical characteristics of the PwD, the IC and their relationship and to gain a better understanding of home-based dementia care arrangements. A latent class analysis was used to detect different dyad types based on personal, social, care and disease characteristics of 551 dyads of CGs and PwD living at home. A 6-class model was identified. The classes could be differentiated based on IC-PwD key characteristics (gender, age, relationship, living situation, occupation). There are significant differences with regard to observed outcomes. The verification of different types of dyads strengthens the need to develop tailored dyad-centred interventions in dementia care

scholarly journals BESI: Behavioral and Environmental Sensing and Intervention for Dementia Caregiver Empowerment—Phases 1 and 2

2020 ◽  
Vol 35 ◽  
pp. 153331752090668 ◽  
Author(s):  
Azziza Bankole ◽  
Martha S. Anderson ◽  
Nutta Homdee ◽  
Ridwan Alam ◽  
Ashley Lofton ◽  
...  
Keyword(s):  
Phase 1 ◽  
Care Facility ◽  
Community Dwelling ◽  
Ethnographic Study ◽  
Environmental Sensing ◽  
Dementia Caregiver ◽  
Home Based ◽  
Person With Dementia ◽  
Design And Methods ◽  
The Relationship

Background and Objectives: Caregiver burden associated with dementia-related agitation is one of the commonest reasons a community-dwelling person with dementia (PWD) transitions to a care facility. Behavioral and Environmental Sensing and Intervention for Dementia Caregiver Empowerment (BESI) is a system of body-worn and in-home sensors developed to provide continuous, noninvasive agitation assessment and environmental context monitoring to detect early signs of agitation and its environmental triggers. Research Design and Methods: This mixed methods, remote ethnographic study is explored in a 3-phase, multiyear plan. In Phase 1, we developed and refined the BESI system and completed usability studies. Validation of the system and the development of dyad-specific models of the relationship between agitation and the environment occurred in Phase 2. Results: Phases 1 and 2 results facilitated targeted changes in BESI, thus improving its overall usability for the final phase of the study, when real-time notifications and interventions will be implemented. Conclusion: Our results show a valid relationship between the presence of dementia related agitation and environmental factors and that persons with dementia and their caregivers prefer a home-based monitoring system like BESI.

scholarly journals A Pilot Study to Test the Feasibility of a Home Mobility Monitoring System in Community-Dwelling Older Adults

2019 ◽  
Vol 16 (9) ◽  
pp. 1512 ◽  
Author(s):  
Heesook Son ◽  
Hyerang Kim
Keyword(s):  
Older Adults ◽  
Monitoring System ◽  
Health Care Providers ◽  
Community Dwelling ◽  
Care Providers ◽  
Remote Communication ◽  
Baseline Activity ◽  
Home Based ◽  
Health Related ◽  
Community Dwelling Older Adults

Technology enables home-based personalized care through continuous, automated, real-time monitoring of a participant’s health condition and remote communication between health care providers and participants. Technology has been implemented in a variety of nursing practices. However, little is known about the use of home mobility monitoring systems in visiting nursing practice. Therefore, the current study tested the feasibility of a home mobility monitoring system as a supportive tool for monitoring daily activities in community-dwelling older adults. Daily mobility data were collected for 15 months via home-based mobility monitoring sensors among eight older adults living alone. Indoor sensor outputs were categorized into sleeping, indoor activities, and going out. Atypical patterns were identified with reference to baseline activity. Daily indoor activities were clearly differentiated by sensor outputs and sensor outputs discriminated atypical activity patterns. During the year of monitoring, a health-related issue was identified in a participant. Our findings indicate the feasibility of a home mobility monitoring system for remote, continuous, and automated assessment of a participant’s health-related mobility patterns. Such a system could be used as a supportive tool to detect and intervene in the case of problematic health issues.

scholarly journals Factors Associated with Participation of Community-Dwelling Older Adults in a Home-Based Falls Prevention Program

2019 ◽  
Vol 16 (6) ◽  
pp. 1087 ◽  
Author(s):  
Branko F. Olij ◽  
Lotte M. Barmentloo ◽  
Dini Smilde ◽  
Nathalie van der Velde ◽  
Suzanne Polinder ◽  
...  
Keyword(s):  
Logistic Regression ◽  
Exercise Program ◽  
Community Dwelling ◽  
Falls Prevention ◽  
Health Perceptions ◽  
Logistic Regression Models ◽  
Home Based ◽  
Health Related ◽  
Community Dwelling Older Adults ◽  
Over Time

This observational study was conducted to determine which factors are associated with frequent participation in a home-based exercise program. The effects of frequent participation on health-related outcomes over time are investigated, as well. Community-dwelling adults aged ≥65 years participated in a twelve-week home-based exercise program. The program consisted of an instruction book with exercises that were performed individually at home. Frequent participation was classified as performing exercises of the instruction book daily or a few days a week during the study period. A logistic regression analysis was performed to determine the association between factors (i.e., demographic and health-related characteristics) and frequent participation. Furthermore, to investigate the effects of frequent participation on health-related outcomes, generalized linear and logistic regression models were built. A total of 238 participants (mean age 81.1 years (SD ± 6.7), 71% female) were included in the study. Frequent participation during the study period was indicated by fifty-two percent of participants. Analyses showed that a higher degree of pain (OR: 1.02, 95% CI: 1.–1.04) was associated with frequent participation. In addition, the effect of frequent participation over time was a significant improvement in current health perceptions (B: 4.46, SE: 1.99).

Home-Based Walking Improves Cardiopulmonary Function and Health-Related QOL in Community-Dwelling Adults

2007 ◽  
Vol 28 (12) ◽  
pp. 1040-1045 ◽  
Author(s):  
N. Okamoto ◽  
T. Nakatani ◽  
N. Morita ◽  
K. Saeki ◽  
N. Kurumatani
Keyword(s):  
Community Dwelling ◽  
Cardiopulmonary Function ◽  
Home Based ◽  
Health Related Qol ◽  
Health Related

scholarly journals Voices of Caregivers: Key Demands Towards AI-driven Home Monitoring in Community-based Dementia Care

2021 ◽  
Vol 5 (Supplement_1) ◽  
pp. 664-664
Author(s):  
Christian Wrede ◽  
Annemarie Braakman-Jansen ◽  
Lisette van Gemert-Pijnen
Keyword(s):  
Ethical Issues ◽  
Qualitative Content Analysis ◽  
Home Monitoring ◽  
Dementia Care ◽  
Community Dwelling ◽  
Care Recipient ◽  
Informational Privacy ◽  
People With Dementia ◽  
Home Based ◽  
Monitoring Technologies

Abstract While most people with dementia prefer to live at home for as long as possible, this also puts more pressure on both their informal and formal care network. To provide support in home-based dementia care, there is growing interest in technology that allows caregivers to remotely monitor health and safety of people with dementia. Novel generations of these technologies are using non-wearable, pervasive sensors coupled with algorithms to continuously collect and model meaningful in-home information. However, while these self-learning monitoring systems develop rapidly, their target users’ views and demands are still insufficiently mapped out. To identify possible barriers to acceptance and ways to overcome these, we conducted a scenario-based study, including semi-structured interviews with informal caregivers (n=19) and focus groups with home care professionals (n=16) of community-dwelling people with dementia. Inductive qualitative content analysis revealed that both groups of caregivers were concerned about the informational privacy of their care recipient with dementia, information overload, and ethical issues related to dehumanizing care. Identified demands mainly centered around how to overcome these barriers. We identified several demands related to specific functionalities, user experience factors, services surrounding the technology, and integration into the existing work context. Most notably, caregivers highlighted the importance of introducing AI-driven in-home monitoring technologies in a way it prevents them from feeling undervalued. In conclusion, our findings can help to inform the development of more acceptable and unobtrusive in-home monitoring technologies to support home-based dementia care.

scholarly journals Sociodemographic aspects and health care-related outcomes: a latent class analysis of informal dementia care dyads

2021 ◽  
Vol 21 (1) ◽  
Author(s):  
Henrik Wiegelmann ◽  
Karin Wolf-Ostermann ◽  
Werner Brannath ◽  
Farhad Arzideh ◽  
Jan Dreyer ◽  
...  
Keyword(s):  
Health Care ◽  
Latent Class Analysis ◽  
Support Services ◽  
Latent Class ◽  
Informal Caregiver ◽  
Adult Child ◽  
Dementia Care ◽  
Class Analysis ◽  
Person With Dementia

Abstract Background Studies revealed the importance to assess dementia care dyads, composed of persons with dementia and their primary informal caregivers, in a differentiated way and to tailor support services to particular living and care circumstances. Therefore, this study aims first to identify classes of dementia care dyads that differ according to sociodemographic, care-related and dementia-specific characteristics and second, to compare these classes with regard to healthcare-related outcomes. Methods We used data from the cross-sectional German DemNet-D study (n = 551) and conducted a latent class analysis to investigate different classes of dementia care dyads. In addition, we compared these classes with regard to the use of health care services, caregiver burden (BIZA-D), general health of the informal caregiver (EQ-VAS) as well as quality of life (QoL-AD) and social participation (SACA) of the person with dementia. Furthermore, we compared the stability of the home-based care arrangements. Results Six different classes of dementia care dyads were identified, based on best Bayesian Information Criterion (BIC), significant likelihood ratio test (p <  0.001), high entropy (0.87) and substantive interpretability. Classes were labelled as “adult child parent relationship & younger informal caregiver”, “adult child parent relationship & middle aged informal caregiver”, “non family relationship & younger informal caregiver”, “couple & male informal caregiver of older age”, “couple & female informal caregiver of older age”, “couple & younger informal caregiver”. The classes showed significant differences regarding health care service use. Caregiver burden, quality of life of the person with dementia and stability of the care arrangement differed also significantly between the classes. Conclusion Based on a latent class analysis this study indicates differences between classes of informal dementia care dyads. The findings may give direction for better tailoring of support services to particular circumstances to improve healthcare-related outcomes of persons with dementia and informal caregivers.

scholarly journals The Role of the Home Environment in Dementia Care and Support: Systematic review of Qualitative Research

Dementia ◽  
2017 ◽  
Vol 18 (4) ◽  
pp. 1237-1272 ◽  
Author(s):  
Dia Soilemezi ◽  
Amy Drahota ◽  
John Crossland ◽  
Rebecca Stores
Keyword(s):  
Systematic Review ◽  
Home Environment ◽  
Physical Space ◽  
Dementia Care ◽  
Community Dwelling ◽  
Qualitative Studies ◽  
Family Carers ◽  
People With Dementia ◽  
Care And Support

Background The domestic home is the preferred site for care provision for people with dementia and their families, therefore creating a dementia and caring friendly home environment is crucial. This systematic review synthesised qualitative studies to explore the role of the home environment and identify potential barriers and facilitators in home dementia care and support to inform future practice and research. Methods A systematic search in 12 databases identified international qualitative literature on perceptions and experiences of community-dwelling people with dementia, family and formal carers regarding the role of the home environment and ways to tackle daily challenges. Results Forty qualitative studies were included and analysed using thematic synthesis. The main three themes were: ‘home as a paradox’, ‘there is no magic formula’ and ‘adapting the physical space, objects and behaviour’. Findings indicate that home is an important setting and is likely to change significantly responding to the changing nature of dementia. Themes were later validated by family carers of people with dementia. Conclusions The home environment is an important setting for care and needs to remain flexible to accommodate changes and challenges. Family carers and people with dementia implement and often improvise, various environmental strategies. Continuous and tailor-made support at home is required.

P1-442: Is There a Difference in Health-Related Quality of Life in Caregivers Based on The Living Situation of The Person with Dementia Over One Year?

2016 ◽  
Vol 12 ◽  
pp. P604-P604
Author(s):  
Janet MacNeil Vroomen ◽  
Jordi Hoeben ◽  
Carel F.W. Peeters ◽  
Judith Bosmans ◽  
Sophia De Rooij ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Health Related Quality ◽  
Living Situation ◽  
Related Quality ◽  
Health Related ◽  
One Year ◽  
Person With Dementia

scholarly journals Requirements for Unobtrusive Monitoring to Support Home-Based Dementia Care: A Qualitative Study among Formal and Informal Caregivers (Preprint)

2020 ◽  
Author(s):  
Christian Wrede ◽  
Annemarie Braakman-Jansen ◽  
Lisette van Gemert-Pijnen
Keyword(s):  
Focus Groups ◽  
Independent Living ◽  
Informal Caregivers ◽  
Home Monitoring ◽  
Dementia Care ◽  
Community Dwelling ◽  
Formal Caregivers ◽  
Home Based ◽  
Expected Benefits ◽  
Monitoring Technologies

BACKGROUND Due to a growing shortage in residential care, people with dementia (PwD) will increasingly be encouraged to live at home for longer. While extended independent living is preferred by PwD, it also puts more pressure on both the informal and formal care network. To support (in)formal caregivers of PwD, there is growing interest in unobtrusive contactless in-home monitoring technologies that allow caregivers to remotely monitor lifestyle, health and safety of PwD. These solutions will, despite their potential, only be viable if they meet the expectations and needs of formal and informal caregivers of PwD. OBJECTIVE The objective of this study was to explore expected benefits, barriers, needs and requirements towards unobtrusive in-home monitoring from the perspective of formal and informal caregivers of community-dwelling PwD. METHODS A combination of semi-structured interviews and focus groups was used to collect data among informal (N=19) and formal (N=16) caregivers of PwD. Both sets of participants were presented with examples of unobtrusive in-home monitoring followed by questions addressing expected benefits, barriers and needs. Relevant in-home monitoring goals were identified using a previously developed topic list. Interviews and focus groups were transcribed and inductively analyzed. Requirements for unobtrusive in-home monitoring were elicited based on the procedure of van Velsen and Bergvall-Kåreborn. RESULTS Results showed that formal and informal caregivers saw unobtrusive in-home monitoring as a support tool that should especially be used to monitor (the risk of) falls, day- and night rhythm, personal hygiene, nocturnal restlessness and eating and drinking behavior. Generally, (in)formal caregivers reported cross-checking selfcare information, extended independent living, objective communication, prevention and pro-active measures, emotional reassurance and personalized and optimized care as the key benefits of unobtrusive in-home monitoring. At the same time, main concerns centered around privacy, information overload, and ethical concerns related to dehumanizing care. Furthermore, 16 requirements for unobtrusive in-home monitoring were generated that specified desired functions, how the technology should communicate with the user, which services surrounding the technology were seen as needed and how the technology should be integrated into the existing work context. CONCLUSIONS Despite the presence of barriers, formal and informal caregivers of PwD generally saw value in unobtrusive in-home monitoring and felt that these systems could contribute to a shift from reactive to more proactive and less obtrusive care. However, the full potential of unobtrusive in-home monitoring can only unfold if relevant concerns are taken into account. Our requirements can inform the development of more acceptable and goal-directed in-home monitoring technologies to support home-based dementia care.

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