scholarly journals Advancing Dementia Care Interventions With Technology Solutions

2021 ◽  
Vol 5 (Supplement_1) ◽  
pp. 3-4
Author(s):  
Jinmyoung Cho ◽  
Elena Fazio
Keyword(s):  
Controlled Trial ◽  
Family Care ◽  
Dementia Care ◽  
Lessons Learned ◽  
Innovative Technology ◽  
Care Needs ◽  
Recruitment Challenges ◽  
In Situ Sensor ◽  
Technical Features ◽  
Care Support

Abstract Over the past two decades, a number of interventions have been developed and tested to help meet the complex care needs of persons living with dementia (PLWD) and the family care support system. Despite the large foundation of empirical evidence, they are often not readily available as part of dementia care support services. Interventions leveraging technology-based solutions have the potential to bolster their desirability, efficacy, and feasibility. While progress has been made, there is still a need to design and test new innovative solutions in real-world settings. This symposium will highlight three such innovative technology solutions for dementia care and explore lessons learned in their development and testing. Smith et al. demonstrate the feasibility of using a novel in-situ sensor system to assess daily functions for PLWD in home or assisted care settings. Results of detecting and classifying diverse forms of functional assessment and environmental conditions will be discussed in the presentation. Czaja et al. describe a randomized controlled trial evaluating the feasibility and efficacy of an innovative dyadic intervention (DT) delivered through an interactive technology. Recruitment challenges and lessons learned from the feasibility of implementing a dyadic intervention will be presented. Stevens et al. introduce an online approach to delivering REACH II, GamePlan4Care (GP4C). Qualitative thematic analyses from GP4C user test sessions related to both the content and technical features will be discussed. Discussant Dr. Elena Fazio will address the role of technology solutions as a strategy within dementia care interventions and unique challenges and contributions of each project.

scholarly journals Comparison of Recruitment Strategies for Engaging Older Minority Adults: Results From Take Heart

2021 ◽  
Vol 5 (Supplement_1) ◽  
pp. 344-344
Author(s):  
Cainnear Hogan ◽  
Mary Janevic ◽  
Rebecca Courser ◽  
Kristi Allgood ◽  
Cathleen Connell ◽  
...  
Keyword(s):  
Behavioral Interventions ◽  
Controlled Trial ◽  
Management Program ◽  
Lessons Learned ◽  
Low Ses ◽  
Community Based ◽  
Recruitment Methods ◽  
Face To Face ◽  
Recruitment Challenges ◽  
Trial Testing

Abstract Few studies report best practices for recruiting older adults from minority, low SES communities for behavioral interventions. In this presentation, we describe recruitment processes and numbers for Take Heart, a randomized controlled trial testing the effectiveness of an adapted heart disease self-management program for primarily African American, low SES adults 50 years or older in Detroit. Community-based (CB), electronic medical record (EMR), and in-person hospital clinic (HC) recruitment methods were implemented. Within 22 months, 453 participants were enrolled, with an overall recruitment yield of 37%. The CB method had the highest yield (49%), followed by HC (36%) and EMR (16%). The average cost of recruiting and enrolling one participant was $142. Face-to-face interactions and employing a community health worker were particularly useful in engaging this population. Further research is needed to confirm these findings in other minority and low SES populations and share lessons learned about recruitment challenges and successes.

Studying physician-adolescent patient communication in community-based practices: recruitment challenges and solutions

2015 ◽  
Vol 29 (4) ◽  
Author(s):  
Michael E. Bodner ◽  
Alicia Bilheimer ◽  
Xiaomei Gao ◽  
Pauline Lyna ◽  
Stewart C. Alexander ◽  
...  
Keyword(s):  
Financial Incentives ◽  
Primary Care Physicians ◽  
Controlled Trial ◽  
Lessons Learned ◽  
Obese Adolescent ◽  
Obese Adolescents ◽  
Clinic Staff ◽  
Recruitment Challenges ◽  
Advanced Planning ◽  
Adolescent Clinic

Abstract Background: Practice-based studies are needed to assess how physicians communicate health messages about weight to overweight/obese adolescent patients, but successful recruitment to such studies is challenging. This paper describes challenges, solutions, and lessons learned to recruit physicians and adolescents to the Teen Communicating Health Analyzing Talk (CHAT) study, a randomized controlled trial of a communication skills intervention for primary care physicians to enhance communication about weight with overweight/obese adolescents. Materials and methods: A “peer-to-peer” approach was used to recruit physicians, including the use of “clinic champions” who liaised between study leaders and physicians. Consistent rapport and cooperative working relationships with physicians and clinic staff were developed and maintained. Adolescent clinic files were reviewed (HIPAA waiver) to assess eligibility. Parents could elect to opt-out for their children. To encourage enrollment, confidentiality of audio recordings was emphasized, and financial incentives were offered to all participants. Results: We recruited 49 physicians and audio-recorded 391 of their overweight/obese adolescents’ visits. Recruitment challenges included 1) physician reticence to participate; 2) variability in clinic operating procedures; 3) variability in adolescent accrual rates; 4) clinic open access scheduling; and 5) establishing communication with parents and adolescents. Key solutions included the use of a “clinic champion” to help recruit physicians, pro-active, consistent communication with clinic staff, and adapting calling times to reach parents and adolescents. Conclusion: Recruiting physicians and adolescents to audio-recorded, practice-based health communication studies can be successful. Anticipated challenges to recruiting can be met with advanced planning; however, optimal solutions to challenges evolve as recruitment progresses.

scholarly journals Creating a Person- and Family-Centered Program of Research: Lessons Learned From Over 30 Years of Applied Research

2021 ◽  
Vol 5 (Supplement_1) ◽  
pp. 2-2
Author(s):  
Carol Whitlatch ◽  
Silvia Orsulic-Jeras
Keyword(s):  
Applied Research ◽  
Family Care ◽  
Well Being ◽  
Lessons Learned ◽  
Physical And Mental Health ◽  
Care Needs ◽  
Case Examples ◽  
Future Care ◽  
Services And Supports ◽  
Family Centered

Abstract Approximately 6 million Americans are living with Alzheimer’s Disease or related dementia. Due to these alarming statistics, there is an increased need for families to seek out services and supports to not only cope with these devastating diagnoses, but to plan effectively for their future care needs. A plethora of research has shown that both the family care partner and person living with dementia are at-risk for negative outcomes such as depression, anxiety, social isolation, and worsening physical and mental health. Moreover, further and encouraging research supports the development and implementation of empowerment-based, person- and family-centered interventions. When utilized effectively these interventions improve quality of care and well-being in persons living with dementia and their care partners. The purpose of this paper is to provide guidance for researchers interested in making their work more person- and family-centered. Strategies discussed are based on over 30 years of applied research and include: 1) placing individuals at the center of their own care, 2) including persons with dementia as co-investigators, 3) convening diverse professionals and individuals in advisory councils from the start, and 4) conducting focus groups to obtain participant and stakeholder feedback. Demonstrations of select person-and-family-centered, evidence-programs will be included and supplemented with case examples to illustrate person-centered principles in practice.

Promoting the Community's Ability to Detect and Respond to Suicide Risk Through an Online Bystander Intervention Model-Informed Tool

Crisis ◽  
2020 ◽  
pp. 1-7
Author(s):  
Karien Hill ◽  
Shawn Somerset ◽  
Ralf Schwarzer ◽  
Carina Chan
Keyword(s):  
Suicide Prevention ◽  
Suicide Risk ◽  
Controlled Trial ◽  
Intervention Group ◽  
Bystander Intervention ◽  
Self Report ◽  
Innovative Technology ◽  
Control Group ◽  
Intervention Model ◽  
Standard Material

Abstract. Background: The public health sector has advocated for more innovative, technology-based, suicide prevention education for the community, to improve their ability to detect and respond to suicide risk. Emerging evidence suggests addressing the bystander effect through the Bystander Intervention Model (BIM) in education material may have potential for suicide prevention. Aims: The current study aimed to assess whether BIM-informed tools can lead to improved readiness, confidence and intent in the community to detect and respond to suicide risk in others. Method: A sample of 281 adults recruited from the community participated in a randomized controlled trial comprising a factsheet designed according to the BIM (intervention group) and a standard factsheet about suicide and mental health (control group). Participants' self-reported detecting and responding to suicide risk readiness, confidence, and intent when presented with a suicidal peer was tested pre- and postintervention and compared across time and between groups. Results: The intervention group had significantly higher levels of detecting and responding to suicide risk readiness, confidence, and intent than the control group at postintervention (all p < .001) with moderate-to-large effect sizes. Limitations: The study was limited by a homogenous sample, too low numbers at follow-up to report, and self-report data only. Conclusion: This study demonstrates BIM-informed suicide prevention training may enhance the community's intervention readiness, confidence, and intent better than current standard material. Further testing in this area is recommended. While results were statistically significant, clinical significance requires further exploration.

scholarly journals Primary dementia care based on the individual needs of the patient: study protocol of the cluster randomized controlled trial, DemStepCare

2021 ◽  
Vol 21 (1) ◽  
Author(s):  
Isabella Bablok ◽  
◽  
Harald Binder ◽  
Dominikus Stelzer ◽  
Klaus Kaier ◽  
...  
Keyword(s):  
Randomized Controlled Trial ◽  
Controlled Trial ◽  
Dementia Care ◽  
Cluster Randomized Controlled Trial ◽  
Control Group ◽  
Care Model ◽  
Randomized Controlled ◽  
Individual Needs ◽  
Cluster Randomized ◽  
The Individual

Abstract Background Most people with dementia (PwD) are cared for at home, with general practitioners (GPs) playing a key part in the treatment. However, primary dementia care suffers from a number of shortcomings: Often, diagnoses are made too late and therapies by GPs do not follow the guidelines. In cases of acute crises, PwD are too often admitted to hospital with adverse effects on the further course of the disease. The aim of this study is to implement and evaluate a new GP-based, complex dementia care model, DemStepCare. DemStepCare aims to ensure demand-oriented, stepped care for PwD and their caregivers. Methods/design In a cluster randomized controlled trial, the care of PwD receiving a complex intervention, where the GP is supported by a multi-professional team, is compared to (slightly expanded) usual care. GPs are clustered by GP practice, with 120 GP practices participating in total. GP practices are randomized to an intervention or a control group. 800 PwD are to be included per group. Recruitment takes place in Rhineland-Palatinate, Germany. In addition, a second control group with at least 800 PwD will be formed using aggregated routine data from German health insurance companies. The intervention comprises the training of GPs, case management including repeated risk assessment of the patients’ care situation, the demand-oriented service of an outpatient clinic, an electronic case record, external medication analyses and a link to regional support services. The primary aims of the intervention are to positively influence the quality of life for PwD, to reduce the caregivers’ burden, and to reduce the days spent in hospital. Secondary endpoints address medication adequacy and GPs’ attitudes and sensitivity towards dementia, among others. Discussion The GP-based dementia care model DemStepCare is intended to combine a number of promising interventions to provide a complex, stepped intervention that follows the individual needs of PwD and their caregivers. Its effectiveness and feasibility will be assessed in a formative and a summative evaluation. Trial registration German Register of Clinical Trials (Deutsches Register Klinischer Studien, DRKS), DRKS00023560. Registered 13 November 2020 - Retrospectively registered. HTML&TRIAL_ID=DRKS00023560.

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