scholarly journals Creating a Person- and Family-Centered Program of Research: Lessons Learned From Over 30 Years of Applied Research

2021 ◽  
Vol 5 (Supplement_1) ◽  
pp. 2-2
Author(s):  
Carol Whitlatch ◽  
Silvia Orsulic-Jeras
Keyword(s):  
Applied Research ◽  
Family Care ◽  
Well Being ◽  
Lessons Learned ◽  
Physical And Mental Health ◽  
Care Needs ◽  
Case Examples ◽  
Future Care ◽  
Services And Supports ◽  
Family Centered

Abstract Approximately 6 million Americans are living with Alzheimer’s Disease or related dementia. Due to these alarming statistics, there is an increased need for families to seek out services and supports to not only cope with these devastating diagnoses, but to plan effectively for their future care needs. A plethora of research has shown that both the family care partner and person living with dementia are at-risk for negative outcomes such as depression, anxiety, social isolation, and worsening physical and mental health. Moreover, further and encouraging research supports the development and implementation of empowerment-based, person- and family-centered interventions. When utilized effectively these interventions improve quality of care and well-being in persons living with dementia and their care partners. The purpose of this paper is to provide guidance for researchers interested in making their work more person- and family-centered. Strategies discussed are based on over 30 years of applied research and include: 1) placing individuals at the center of their own care, 2) including persons with dementia as co-investigators, 3) convening diverse professionals and individuals in advisory councils from the start, and 4) conducting focus groups to obtain participant and stakeholder feedback. Demonstrations of select person-and-family-centered, evidence-programs will be included and supplemented with case examples to illustrate person-centered principles in practice.

Globalization and Transformation of Care in Japan

2014 ◽  
pp. 86-105
Author(s):  
Reiko Ogawa
Keyword(s):  
Family Care ◽  
Well Being ◽  
Welfare States ◽  
Care Work ◽  
Foreseeable Future ◽  
Care Needs ◽  
The People ◽  
Integration Policies ◽  
Dialectical Process ◽  
Paid And Unpaid Work

This chapter deals with the situation of family and care work in Japan, and, in particular, the Conjunction between Family, Care Work, and Immigration in Japan. The chapter is aimed to elucidate the complex interplay between family and care work from both paid and unpaid work. Furthermore, Japan currently does not have an immigration policy that would include social integration policies. Since the care needs cannot be met solely by the families or the domestic labor market, globalization of care will become a salient trend for a foreseeable future. Moreover, the chapter proceeds to analyze the globalization thesis within the Japanese context. According to the author, one should be able to see the convergence of welfare states in many countries, but as in the case of Japan, the process of globalization is not linear but contingent. Instead, what one has seen is a dialectical process of how the domestic factors are differently shaping the well-being of the people within their own institutional histories and strategies.

scholarly journals PLANNING FOR FUTURE CARE NEEDS: THE IMPORTANCE OF PERCEIVED NEED

2019 ◽  
Vol 3 (Supplement_1) ◽  
pp. S456-S456
Author(s):  
Julie A Gorenko ◽  
Calandra Speirs ◽  
Candace Konnert ◽  
Claire McGuinness ◽  
Camille Mori
Keyword(s):  
Well Being ◽  
Hierarchical Regression ◽  
Financial Security ◽  
Negative Consequences ◽  
Care Needs ◽  
Future Health ◽  
Perceived Need ◽  
Positive Attitudes ◽  
Future Care ◽  
The Individual

Abstract Despite the demonstrated need to plan for future care needs, many individuals fail to engage in planning, often with negative consequences for their future health and well-being (Lee, Mason, & Cotlear, 2010). Theoretically, the propensity to utilize planning resources may be related to the perceived need for care in the future, a demonstrated predictor of the utilization of health and mental health services (Andersen, 1995; Karlin, Duffy, & Greaves, 2008). The purpose of this study was to examine perceptions of need for future care in combination with predisposing (age, financial security, attitudes towards planning) and enabling (anticipated support, satisfaction with family discussions about future care needs) variables in predicting planning behavior. The sample was comprised of 385 adults, aged 50 years and older (M=66.5, SD=9.3, range=50-92). Hierarchical regression analyses entered two well-established predictors, age and financial security in step 1, and attitudes towards planning, anticipated support, satisfaction with family discussions, and perception of need in step 2. Age and financial security explained 17% of the variance in planning; the addition of step 2 variables explained 33% of the variance and R-squared was significant (p<.001). All predictors were significant at p<.001, with the exception of anticipatory support (p<.05). These results support both the individual (i.e. positive attitudes, perceived need) and contextual nature of planning, in particular the belief that support will be available when you need it and the benefits of family discussions in facilitating planning. Recommendations for enhancing successful planning among individuals and their families will be presented.

scholarly journals Promoting the health and well being of older carers: A proactive strategy

2003 ◽  
Vol 26 (2) ◽  
pp. 78 ◽  
Author(s):  
Bev O'Connell ◽  
Susan Bailey ◽  
Arlene Walker
Keyword(s):  
Health Care ◽  
Health Care Professionals ◽  
Well Being ◽  
Care Recipient ◽  
Health Care Needs ◽  
Physical And Mental Health ◽  
Care Needs ◽  
Health Related ◽  
Mental And Physical Health ◽  
Health And Well Being

Research has indicated that carers are concerned about their ageing status, their deteriorating health and their abilityto continue to care for their dependants. Given that the health care system will become increasingly reliant on carersthe health care needs of carers should be a concern for all health care professionals. This paper describes the first stageof a project designed to enhance older carers health promotion knowledge and skills and improve their healthpromoting behaviors. This stage investigated the mental and physical health status of older carers. It also soughtinformation on older carers' levels of participation in health related and social activities and identification of barriersto participation in these types of activities. The results highlighted that carers responding to the survey experiencedcompromised physical and mental health. Many carers reported being unable to participate in social and health-typeactivities as they were unable to leave the care recipient. Of note, is that carers identified their own mental fragilityand felt they needed further emotional support.

Hoping for the Best or Planning for the Future: Decision Making and Future Care Needs

2015 ◽  
Vol 36 (8) ◽  
pp. 953-970 ◽  
Author(s):  
Odette N. Gould ◽  
Suzanne Dupuis-Blanchard ◽  
Lita Villalon ◽  
Majella Simard ◽  
Sophie Ethier
Keyword(s):  
Older Adults ◽  
Decision Making ◽  
Well Being ◽  
Proactive Coping ◽  
Care Needs ◽  
The Future ◽  
Future Care ◽  
Thinking Processes ◽  
Living Circumstances ◽  
Do So

Research has shown that relatively few older adults make plans for future care needs. In this study, we explore the thinking processes involved in planning or failing to plan for the future. Interviews were carried out with 39 older adults ( M age = 81 years) who were experiencing disability and illness but who lived in their own home. Guiding questions for the interview focused on present living circumstances, but for the present qualitative analysis, all references to the future, and to future residence changes, were extracted. This approach allowed us to observe how older adults spontaneously address issues of future planning when not constrained to do so. Results supported the use of a positivity bias, as well as a risk-aversive decision-making style. These older adults seemed to be prioritizing present emotional well-being by avoiding thoughts of future risks and thereby eschewing proactive coping.

Longitudinal Associations Between Expectations of Receiving Care in the Future and Life Satisfaction Among Older Adults in Korea

2021 ◽  
Author(s):  
Jinho Kim ◽  
Heesoo Yoon
Keyword(s):  
Older Adults ◽  
Life Satisfaction ◽  
Family Caregivers ◽  
Fixed Effects ◽  
Family Care ◽  
Well Being ◽  
Conclusive Evidence ◽  
Subjective Well Being ◽  
The Future ◽  
Future Care

Abstract Objectives Uncertainty about receiving care and assistance in the future has been increasing among older adults in Korea. This study examines whether expectations about receiving care from various sources (i.e., formal and/or filial caregivers) are related to life satisfaction among older adults in Korea. Methods Using data from the Korean Longitudinal Study of Ageing (N = 3,607, aged 65 or older), this study estimated fixed effects regression models to investigate longitudinal within-person associations between future care expectations and life satisfaction. Results The results of this study revealed that developing expectations of care from family caregivers is positively associated with life satisfaction. Beginning to expect care from non-family caregivers, however, is not associated with life satisfaction. When disaggregating different sources of care by family member type, expecting care from a spouse or daughter(s), but not son(s), is associated with higher life satisfaction. Gender-specific analyses showed that expecting care from daughter(s) is positively associated with life satisfaction among both men and women, whereas expectations of spousal care are associated with only men’s life satisfaction. This study also found suggestive but not conclusive evidence that an association between care expectations from family caregivers and life satisfaction is stronger among older adults with lower education. Discussion Reducing uncertainty about future care may improve older adults’ subjective well-being. Policymakers may consider policies and programs that support family care of the aged, and more fundamentally, encourage family involvement in the lives of older people.

scholarly journals HEALTH IMPLICATIONS OF SOCIAL ROLES AND ROLE TRANSITIONS IN MIDLIFE AND LATER LIFE

2019 ◽  
Vol 3 (Supplement_1) ◽  
pp. S797-S797
Author(s):  
Kelly E Cichy ◽  
Athena Koumoutzis
Keyword(s):  
Racial Differences ◽  
Social Roles ◽  
Later Life ◽  
Well Being ◽  
Care Recipient ◽  
Physical And Mental Health ◽  
Care Needs ◽  
Social Trends ◽  
Care Recipients ◽  
Health And Well Being

Abstract Demographic and social trends shape the timing, nature, and implications of social roles and transitions. With increased life expectancy and a changing world, expectations for work and retirement and the need for informal and formal caregiving continue to evolve. Families are also more heterogeneous and the population is becoming increasingly more racially/ethnically diverse. These changes underscore the need for research that focuses on the varied social roles individuals occupy in midlife and later adulthood and the implications of these roles for health and well-being. The current symposium features research that explores multiple roles, including romantic partner, grandparent, and employee/retiree, caregiver/care recipient while attending to individual differences in how these roles and transitions are associated with physical and mental health outcomes. Garcia, Donnelly, and Umberson utilize dyadic diary data from midlife men and women in gay, lesbian, and heterosexual marriages to consider how exposure and reactivity to daily stress varies across union types. Rickenbach and colleagues examine longitudinal changes in health and well-being associated with being a caregiving and non-caregiving grandparent. Cichy and Koumoutzis examine racial differences in the associations between providing care to a spouse/parent and daily health and well-being among African Americans and European Americans. Savla, Roberto, and Sands classify community-living older adults based on their care needs while considering the type of care they receive, predictors of this care, and its implications for care recipients’ health. Finally, Stawski and colleagues examine how mental, physical, and cognitive health change as a function of the transition to and through retirement.

The Mind-Body Well-being Initiative: a better lifestyle for people with severe mental illness

2021 ◽  
pp. 103985622097886
Author(s):  
Nikela A Lalley ◽  
Sam H Manger ◽  
Felice Jacka ◽  
Tetyana Rocks ◽  
Anu Ruusunen ◽  
...  
Keyword(s):  
Mental Health ◽  
Mental Illness ◽  
Severe Mental Illness ◽  
Mental Health Treatment ◽  
Well Being ◽  
Physical And Mental Health ◽  
Care Needs ◽  
Capacity Model ◽  
Mind And Body ◽  
The Mind

Objective: This article aims to describe ‘The Mind-Body Well-being Initiative’, a residential mental health treatment model based on the Lifestyle Medicine paradigm, which comprises a mind and body well-being programme. In people with severe mental illness (SMI), particularly for those experiencing psychotic illness, the physical health and mortality gap is significant with greater presence of chronic disease and a 15–20-year life expectancy gap. Conclusions: Our AIM Self-Capacity model of care attempts to address the physical and mental health care needs for the promotion of our patients’ recovery.

scholarly journals The Rush Caregiver Initiative: A Model for Caregiver Health and Wellness in Age-Friendly Health Systems

2021 ◽  
Vol 5 (Supplement_1) ◽  
pp. 307-307
Author(s):  
Leslie Pelton ◽  
Ellen Carbonell ◽  
Robyn Golden
Keyword(s):  
Family Care ◽  
Well Being ◽  
Lessons Learned ◽  
System Level ◽  
Evidence Based ◽  
Health And Wellness ◽  
Evidence Based Practices ◽  
Caregiver Health ◽  
Clinically Significant

Abstract The Rush Caregiver Health and Well-Being Initiative (Caregiver Initiative) draws together evidence-based practices into a single framework to improve care for older adults and caregivers. The Caregiver Initiative has two components: system-level and caregiver level interventions. The complexities of system change take place within leadership, data management, and provider teams throughout the health care system, and solutions to resistance have been developed. Caregiver-level interventions start with an assessment using evidence-based tools, and offer an opportunity to participate in a Teach-Back Clinic, Family Care Planning sessions, and/or Goals of Medical Care meetings, all connected to the 4Ms of an Age-Friendly Health System. Contact and follow-up issues were addressed, and as of February 2021, 191 caregivers have enrolled. Outcomes to date show statistically and clinically significant reductions in depression, anxiety, and caregiver burden. This presentation will highlight lessons learned in the development of the model and caregiver outcomes to date.

scholarly journals Exploring Challenges and Opportunities of Biophilic Urban Design: Evidence from Research and Experimentation

2021 ◽  
Vol 13 (8) ◽  
pp. 4323
Author(s):  
Maria Beatrice Andreucci ◽  
Angela Loder ◽  
Martin Brown ◽  
Jelena Brajković
Keyword(s):  
Mental Health ◽  
Lived Experience ◽  
Sense Of Place ◽  
Design Theory ◽  
Natural Capital ◽  
Well Being ◽  
Lessons Learned ◽  
Physical And Mental Health ◽  
Biophilic Design ◽  
Regenerative Design

Global health emergencies such as Covid-19 have highlighted the importance of access to nature and open spaces in our cities for social, physical, and mental health. However, there continues to be a disconnect between our need for nature and our daily lived experience. Recent research indicates that our connectedness and relationship with nature, and in particular biophilic design, may be key for improving both health and quality of life. Rather than relying on abstract universal ideas of “nature”, using evidence-based biophilic design and policy at a building, neighborhood, and city scale, to link our daily lives with biodiversity, may encourage sense of place and make environmental action more meaningful. Then, improving our natural capital in the urban built environment might help address the current climate and disease crisis, as well as improving our physical and mental health. Drawing from emerging research and innovative practice, the paper describes key research and design paradigms that influence the way we understand the benefits of nature for different environments, including the workplace, neighborhood, and city, and explains where biophilic design theory sits in this field. Examples from recent research carried out in London and Chicago are provided, aiming at demonstrating what kind of research can be functional to what context, followed by a detailed analysis of its application supporting both human and ecological health. The study concludes indicating key policy and design lessons learned around regenerative design and biophilia as well as new directions for action, particularly with regard to climate change, sense of place, and well-being.

scholarly journals Advancing Dementia Care Interventions With Technology Solutions

2021 ◽  
Vol 5 (Supplement_1) ◽  
pp. 3-4
Author(s):  
Jinmyoung Cho ◽  
Elena Fazio
Keyword(s):  
Controlled Trial ◽  
Family Care ◽  
Dementia Care ◽  
Lessons Learned ◽  
Innovative Technology ◽  
Care Needs ◽  
Recruitment Challenges ◽  
In Situ Sensor ◽  
Technical Features ◽  
Care Support

Abstract Over the past two decades, a number of interventions have been developed and tested to help meet the complex care needs of persons living with dementia (PLWD) and the family care support system. Despite the large foundation of empirical evidence, they are often not readily available as part of dementia care support services. Interventions leveraging technology-based solutions have the potential to bolster their desirability, efficacy, and feasibility. While progress has been made, there is still a need to design and test new innovative solutions in real-world settings. This symposium will highlight three such innovative technology solutions for dementia care and explore lessons learned in their development and testing. Smith et al. demonstrate the feasibility of using a novel in-situ sensor system to assess daily functions for PLWD in home or assisted care settings. Results of detecting and classifying diverse forms of functional assessment and environmental conditions will be discussed in the presentation. Czaja et al. describe a randomized controlled trial evaluating the feasibility and efficacy of an innovative dyadic intervention (DT) delivered through an interactive technology. Recruitment challenges and lessons learned from the feasibility of implementing a dyadic intervention will be presented. Stevens et al. introduce an online approach to delivering REACH II, GamePlan4Care (GP4C). Qualitative thematic analyses from GP4C user test sessions related to both the content and technical features will be discussed. Discussant Dr. Elena Fazio will address the role of technology solutions as a strategy within dementia care interventions and unique challenges and contributions of each project.

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