scholarly journals Outcome Priorities Among Evidence-Based Dementia Caregiving Programs: A Closer Look

2021 ◽  
Vol 5 (Supplement_1) ◽  
pp. 8-8
Author(s):  
Sara Powers ◽  
Alyssa Ciancibello ◽  
Rachel Schaffer ◽  
David Bass ◽  
Morgan Minyo

Abstract Currently, the Best Practice Caregiving website provides information on 231 published studies from 44 dementia caregiving evidence-based programs that have demonstrated beneficial outcomes for dementia caregivers within health care and community-based settings. Across all programs, a total of 34 biopsychosocial outcomes were identified. Supported by the commonly used stress-related frameworks (e.g., Stress-Health Process, Cognitive Behavioral Theory) for which the programs were developed, the most frequently utilized program outcomes included: 1) Caregiver stress, strain, and/or burden (84.1%); 2) Caregiver depressive symptomology (79.5%); and 3) Caregiving efficacy, skills, and/or confidence (63.6%). The least common programmatic outcomes included: 1) Access to support information/Community service use (9.1%); 2) Unmet needs (6.8%); and 3) Respite/break from care (2.3%). The lesser utilized outcomes provide critical insight into current evidence-based programmatic priorities and ways in which professionals can seek to fill gaps in dementia caregiving interventions. Discussion will also focus on future directions of caregiver-related outcome assessments.

2021 ◽  
Vol 5 (Supplement_1) ◽  
pp. 7-7
Author(s):  
Sara Powers ◽  
Sandy Markwood

Abstract Best Practice Caregiving (BPC) is a free online database providing comprehensive information on research and implementation characteristics for 44 evidence-based dementia caregiving programs. Programs eligible for BPC have research-tested positive outcomes for family/friend caregivers and demonstrated feasibility in community implementations. This symposium presents results from analyses of the BPC database that includes surveys of 44 program developers and 324 healthcare or community delivery-organizations, and content analysis of 231 published studies. Findings show the most common of 19 types of assistance provided by programs were: Supporting Caregiver/Individual-with-Dementia (IWD) Communication, Encouraging Positive Caregiver-IWD Activities, and Strengthening Coping (93.2%). Least common were: Getting a Dementia Diagnosis (29.5%) and Monitoring Service Benefits (20.5%). Methods of delivering the types of assistance were: information/referral (M=11.1), skills training (M=7.5), and direct provision of care (M=3.8). The most common types of organizations that delivered programs were healthcare organizations (23.8%) and Area Agencies on Aging (23.8%). The greatest delivery-challenges were program marketing (69.8%) and caregiver engagement (66.3%). Most organizations ‘strongly agreed’ that programs had positive impacts on caregivers (59.5%) but were less certain about IWD benefits (25.1% ‘strongly agreed’). Published research studies found the most improved caregiver outcomes were: 1) Strain and/or burden (84.1%), 2) Depressive symptomology (79.5%), and 3) Caregiving efficacy (63.6%). Least common improved outcomes were 1) Access to support information/Community service use (9.1%); 2) Unmet needs (6.8%); and 3) Respite/break from care (2.3%). Overall, results highlight strengths of evidence-based dementia caregiving programs, along with gaps and challenges to be addressed by existing and new developing programs.


2021 ◽  
Vol 5 (Supplement_1) ◽  
pp. 8-8
Author(s):  
Rachel Schaffer ◽  
Alyssa Ciancibello ◽  
David Bass ◽  
Sara Powers

Abstract Best Practice Caregiving surveyed 324 healthcare and community organizations that replicated one or more of the 44 evidence-based programs about delivery organization characteristics, delivery staff, caregivers and persons with dementia served, funding sources, delivery challenges, perceived impact, and satisfaction. 211 (65.1%) organizations completed surveys about 30 different evidence-based programs. The most common types of organizations that delivered programs were healthcare organizations (23.8%) and Area Agencies on Aging (23.8%). Results showed on average organizations delivered programs for 49 months and served 68 families/year. The most common program delivery challenges were marketing (69.8%) and engaging participants (66.3%). Organizations generally agreed that programs had positive impacts on caregivers (59.5% strongly agree) but were less positive about benefits for persons with dementia (25.1% strongly agree). Discussion provides insights into successes and challenges organizations face when adopting evidence-based dementia caregiving programs in their communities.


2019 ◽  
Vol 3 (Supplement_1) ◽  
pp. S957-S957
Author(s):  
Julie H Rentsch ◽  
David Bass ◽  
Kathy Kelly ◽  
Katie Maslow ◽  
Alyssa Ciancibello ◽  
...  

Abstract Family members and friends are the main providers of care for persons living with dementia. However, dementia caregivers are at greater risk than other caregivers of experiencing negative caregiving consequences. Despite the development of evidence-based programs to support dementia caregivers, few health or social service organizations offer any of these programs due, in part, to a lack of knowledge about their availability. Best Practice Caregiving is a newly launched website where professionals can get detailed information about these programs. Data collected to develop Best Practice Caregiving are analyzed for a sample of 42 evidence-based dementia caregiving programs to describe similarities and differences among programs including gaps in assistance available from these programs. Results show 64% of programs are delivered to caregivers only while the remaining are delivered to the caregiver and/or persons with dementia. Nearly half (43%) of the 42 programs are delivered in-person, 38% by phone, with 17% delivered all or in part online. Most programs are delivered by professionals (86%) followed by trained lay leaders (40%) and self-guided (12%). Most programs (95%) provide assistance with coping with illness/caregiving and the relationship of the dyad. Fewer than half of the programs assist caregivers with issues regarding finances (45%), end-of-life care (43%), and medical care (40%). Data from 233 delivery organizations show the most common challenge was getting caregivers to accept and complete the program (86%). Delivery sites reported more success with funding the program (mean=8.2 on a scale of 1-10) than with marketing and recruiting participants (mean=6.7).


2021 ◽  
Vol 5 (Supplement_1) ◽  
pp. 7-7
Author(s):  
David Bass ◽  
Alyssa Ciancibello ◽  
Rachel Schaffer ◽  
Sara Powers

Abstract A major advance in family caregiving has been the development, testing, and community delivery of research-proven, evidence-based support programs for family or friend caregivers of persons living with dementia. This presentation showcases and demos Best Practice Caregiving (BPC), a new online resource with comprehensive profiles for 44 of the top evidence-based dementia caregiving programs that are ready for scaling in communities. For these 44 programs, BPC is a database that presents key research findings with links to all its published articles, comprehensive program descriptions including all implementation features, and survey data on program delivery experiences from 324 healthcare and community organizations that offered the program as a regular part of their service portfolio 2019. BPC enables professionals to make side-by-side comparisons of the 44 programs, with the goal of increasing implementations of these evidence-based programs by healthcare and community service organizations.


2018 ◽  
Vol 33 (2) ◽  
pp. 87-92 ◽  
Author(s):  
P. Kay Nottingham Chaplin ◽  
Kira Baldonado ◽  
Geoffrey E. Bradford ◽  
Susan Cotter ◽  
Bruce Moore

Current evidence-based and best practice vision screening and eye health approaches, tools, and procedures are the result of revised national guidelines in the past 3 years and advances in research during the last 16 years. To help the busy school nurse with little time to keep up with changes in children’s vision practices and a growing body of literature, the National Center for Children’s Vision and Eye Health at Prevent Blindness is providing answers to 20 questions received most often from the field. Question topics are: (1) arranging the screening environment, (2) occluders to cover the eyes during vision screening, (3) optotype-based screening at distance, (4) optotype-based screening at near, (5) instrument-based screening, (6) muscle imbalance screening, (7) referrals, and (8) vision screening certification.


2018 ◽  
Vol 33 (5) ◽  
pp. 279-283 ◽  
Author(s):  
P. Kay Nottingham Chaplin ◽  
Kira Baldonado ◽  
Susan Cotter ◽  
Bruce Moore ◽  
Geoffrey E. Bradford

Current evidence-based and best practice vision screening and eye health approaches, tools, and procedures are the result of revised national guidelines in the past 3 years and advances in research during the past 18 years. To help the busy school nurse with little time to keep up with changes in children’s vision practices and a growing body of literature, the National Center for Children’s Vision and Eye Health at Prevent Blindness is providing answers to five questions that are often received from the field. Topical areas are: (1) instrument-based screening for children ages 6 years and older, (2) stereoacuity screening and Random Dot E, (3) binocular distance visual acuity screening, (4) a 2-line difference between the eyes as part of referral criteria, and (5) state vision screening guidelines excluding evidence-based tools.


Dental Update ◽  
2013 ◽  
Vol 40 (6) ◽  
pp. 442-450 ◽  
Author(s):  
Felicity R Borrie ◽  
David R Bearn

2018 ◽  
Vol 33 (6) ◽  
pp. 351-354
Author(s):  
P. Kay Nottingham Chaplin ◽  
Kira Baldonado ◽  
Susan Cotter ◽  
Bruce Moore ◽  
Geoffrey E. Bradford

Current evidence-based and best-practice vision screening and eye health approaches, tools, and procedures are the result of revised national guidelines in the past 3 years and advances in research during the past 18 years. To help the busy school nurse with little time to keep up with changes in children’s vision practices and a growing body of literature, the National Center for Children’s Vision and Eye Health at Prevent Blindness is providing answers to seven questions that are often received from the field. Topical areas are (1) instrument-based screening and stereopsis, (2) optotype-based screening if child is referred from instrument-based screening, (3) next steps if a student’s glasses are scratched or broken, (4) critical line screening with a threshold eye chart, (5) full threshold screening if student does not pass critical line screening, (6) holding a ruler beneath line of optotypes to identify, and (7) convergence insufficiency screening in the school setting.


2021 ◽  
Vol 5 (Supplement_1) ◽  
pp. 7-8
Author(s):  
Alyssa Ciancibello ◽  
David Bass ◽  
Rachel Schaffer ◽  
Sara Powers

Abstract A key feature displayed in Best Practice Caregiving are the types of assistances. Data on 54 areas of care were collected for all 44 programs. These were analyzed through factor analysis and grouped into 19 types of assistance. Types were analyzed by the number of assistances provided, delivery method, and recipient of assistance. On average, programs delivered 11.8 types of assistances, with the most common types being Supporting CG/Individual-with-Dementia (IWD) Communication, Encouraging Positive CG-IWD Activities, and Assisting with Coping (93.2%), with the least common being Getting a Dementia Diagnosis (29.5%) and Monitoring Benefits of Services (20.5%). Assistance was delivered most often through information/referral delivery (M=11.07, SD=5.41) than direct (M=3.77, SD=4.54) or skills training (M= 7.50, SD=4.54). Results of the data show the breadth and characteristics of assistances programs provide to support caregivers of persons with dementia, along with gaps in types of assistances and future directions for programs.


2016 ◽  
Vol 18 (2) ◽  
pp. 290-297 ◽  
Author(s):  
Melissa Tibbits ◽  
Mohammad Siahpush

Although community-wide, multilevel interventions are widely regarded as the most effective method for addressing complex health issues such as sexually transmitted infections (STIs), there is a dearth of research about the implementation of interventions of this nature. The aim of this study was to determine the implementation of locally developed and evidence-based STI interventions across an urban community using the Institute of Medicine’s intervention spectrum as a framework, to highlight collaborations, and to identify barriers to the implementation of community-wide, multilevel interventions. Semistructured interviews were conducted ( N = 20) with staff from schools, after-school programs, community organizations, and clinics in a Midwestern metropolitan area. Results indicate that interventions were implemented at all levels of the Institute of Medicine’s intervention spectrum, although selective interventions that served a small number of youth were most common. Most interventions were locally developed or adapted from evidence-based programs. Despite reported collaboration between agencies, there was relatively little community-wide coordination of STI interventions due to factors such as community norms and competition for limited funding. These findings offer further insight into the gap between best practice recommendations and the implementation of community-wide, multilevel interventions. Implications for intervention development and implementation are discussed.


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