scholarly journals Experiences From Healthcare and Community Organizations Delivering Evidence-Based Dementia Caregiving Programs

2021 ◽  
Vol 5 (Supplement_1) ◽  
pp. 8-8
Author(s):  
Rachel Schaffer ◽  
Alyssa Ciancibello ◽  
David Bass ◽  
Sara Powers
Keyword(s):  
Best Practice ◽  
Community Organizations ◽  
Evidence Based ◽  
Healthcare Organizations ◽  
Dementia Caregiving ◽  
Funding Sources ◽  
Perceived Impact ◽  
Strongly Agree ◽  
Evidence Based Programs ◽  
Successes And Challenges

Abstract Best Practice Caregiving surveyed 324 healthcare and community organizations that replicated one or more of the 44 evidence-based programs about delivery organization characteristics, delivery staff, caregivers and persons with dementia served, funding sources, delivery challenges, perceived impact, and satisfaction. 211 (65.1%) organizations completed surveys about 30 different evidence-based programs. The most common types of organizations that delivered programs were healthcare organizations (23.8%) and Area Agencies on Aging (23.8%). Results showed on average organizations delivered programs for 49 months and served 68 families/year. The most common program delivery challenges were marketing (69.8%) and engaging participants (66.3%). Organizations generally agreed that programs had positive impacts on caregivers (59.5% strongly agree) but were less positive about benefits for persons with dementia (25.1% strongly agree). Discussion provides insights into successes and challenges organizations face when adopting evidence-based dementia caregiving programs in their communities.

scholarly journals Analysis of Best Practice Caregiving: A New Online Database of Evidence-Based Dementia Caregiving Programs

2021 ◽  
Vol 5 (Supplement_1) ◽  
pp. 7-7
Author(s):  
Sara Powers ◽  
Sandy Markwood
Keyword(s):  
Best Practice ◽  
Service Use ◽  
Skills Training ◽  
Evidence Based ◽  
Online Database ◽  
Healthcare Organizations ◽  
Depressive Symptomology ◽  
Dementia Caregiving ◽  
Improved Outcomes ◽  
Monitoring Service

Abstract Best Practice Caregiving (BPC) is a free online database providing comprehensive information on research and implementation characteristics for 44 evidence-based dementia caregiving programs. Programs eligible for BPC have research-tested positive outcomes for family/friend caregivers and demonstrated feasibility in community implementations. This symposium presents results from analyses of the BPC database that includes surveys of 44 program developers and 324 healthcare or community delivery-organizations, and content analysis of 231 published studies. Findings show the most common of 19 types of assistance provided by programs were: Supporting Caregiver/Individual-with-Dementia (IWD) Communication, Encouraging Positive Caregiver-IWD Activities, and Strengthening Coping (93.2%). Least common were: Getting a Dementia Diagnosis (29.5%) and Monitoring Service Benefits (20.5%). Methods of delivering the types of assistance were: information/referral (M=11.1), skills training (M=7.5), and direct provision of care (M=3.8). The most common types of organizations that delivered programs were healthcare organizations (23.8%) and Area Agencies on Aging (23.8%). The greatest delivery-challenges were program marketing (69.8%) and caregiver engagement (66.3%). Most organizations ‘strongly agreed’ that programs had positive impacts on caregivers (59.5%) but were less certain about IWD benefits (25.1% ‘strongly agreed’). Published research studies found the most improved caregiver outcomes were: 1) Strain and/or burden (84.1%), 2) Depressive symptomology (79.5%), and 3) Caregiving efficacy (63.6%). Least common improved outcomes were 1) Access to support information/Community service use (9.1%); 2) Unmet needs (6.8%); and 3) Respite/break from care (2.3%). Overall, results highlight strengths of evidence-based dementia caregiving programs, along with gaps and challenges to be addressed by existing and new developing programs.

scholarly journals Outcome Priorities Among Evidence-Based Dementia Caregiving Programs: A Closer Look

2021 ◽  
Vol 5 (Supplement_1) ◽  
pp. 8-8
Author(s):  
Sara Powers ◽  
Alyssa Ciancibello ◽  
Rachel Schaffer ◽  
David Bass ◽  
Morgan Minyo
Keyword(s):  
Best Practice ◽  
Service Use ◽  
Current Evidence ◽  
Evidence Based ◽  
Program Outcomes ◽  
Dementia Caregivers ◽  
Depressive Symptomology ◽  
Dementia Caregiving ◽  
Cognitive Behavioral Theory ◽  
Evidence Based Programs

Abstract Currently, the Best Practice Caregiving website provides information on 231 published studies from 44 dementia caregiving evidence-based programs that have demonstrated beneficial outcomes for dementia caregivers within health care and community-based settings. Across all programs, a total of 34 biopsychosocial outcomes were identified. Supported by the commonly used stress-related frameworks (e.g., Stress-Health Process, Cognitive Behavioral Theory) for which the programs were developed, the most frequently utilized program outcomes included: 1) Caregiver stress, strain, and/or burden (84.1%); 2) Caregiver depressive symptomology (79.5%); and 3) Caregiving efficacy, skills, and/or confidence (63.6%). The least common programmatic outcomes included: 1) Access to support information/Community service use (9.1%); 2) Unmet needs (6.8%); and 3) Respite/break from care (2.3%). The lesser utilized outcomes provide critical insight into current evidence-based programmatic priorities and ways in which professionals can seek to fill gaps in dementia caregiving interventions. Discussion will also focus on future directions of caregiver-related outcome assessments.

scholarly journals Description and Demo of the Best Practice Caregiving Database on 44 Research Proven Dementia Caregiving Programs

2021 ◽  
Vol 5 (Supplement_1) ◽  
pp. 7-7
Author(s):  
David Bass ◽  
Alyssa Ciancibello ◽  
Rachel Schaffer ◽  
Sara Powers
Keyword(s):  
Family Caregiving ◽  
Best Practice ◽  
Service Organizations ◽  
Evidence Based ◽  
Major Advance ◽  
Dementia Caregiving ◽  
Online Resource ◽  
Service Portfolio ◽  
Research Findings ◽  
Evidence Based Programs

Abstract A major advance in family caregiving has been the development, testing, and community delivery of research-proven, evidence-based support programs for family or friend caregivers of persons living with dementia. This presentation showcases and demos Best Practice Caregiving (BPC), a new online resource with comprehensive profiles for 44 of the top evidence-based dementia caregiving programs that are ready for scaling in communities. For these 44 programs, BPC is a database that presents key research findings with links to all its published articles, comprehensive program descriptions including all implementation features, and survey data on program delivery experiences from 324 healthcare and community organizations that offered the program as a regular part of their service portfolio 2019. BPC enables professionals to make side-by-side comparisons of the 44 programs, with the goal of increasing implementations of these evidence-based programs by healthcare and community service organizations.

scholarly journals Types of Assistances of Evidence-Based Dementia Caregiving Programs: Data Results and Future Directions

2021 ◽  
Vol 5 (Supplement_1) ◽  
pp. 7-8
Author(s):  
Alyssa Ciancibello ◽  
David Bass ◽  
Rachel Schaffer ◽  
Sara Powers
Keyword(s):  
Factor Analysis ◽  
Best Practice ◽  
Skills Training ◽  
Evidence Based ◽  
Delivery Method ◽  
Dementia Diagnosis ◽  
Future Directions ◽  
Dementia Caregiving

Abstract A key feature displayed in Best Practice Caregiving are the types of assistances. Data on 54 areas of care were collected for all 44 programs. These were analyzed through factor analysis and grouped into 19 types of assistance. Types were analyzed by the number of assistances provided, delivery method, and recipient of assistance. On average, programs delivered 11.8 types of assistances, with the most common types being Supporting CG/Individual-with-Dementia (IWD) Communication, Encouraging Positive CG-IWD Activities, and Assisting with Coping (93.2%), with the least common being Getting a Dementia Diagnosis (29.5%) and Monitoring Benefits of Services (20.5%). Assistance was delivered most often through information/referral delivery (M=11.07, SD=5.41) than direct (M=3.77, SD=4.54) or skills training (M= 7.50, SD=4.54). Results of the data show the breadth and characteristics of assistances programs provide to support caregivers of persons with dementia, along with gaps in types of assistances and future directions for programs.

A Guide to Developing Evidence-based Programs in Rehabilitation Counseling Research

2015 ◽  
Vol 46 (1) ◽  
pp. 34-39 ◽  
Author(s):  
Gina R. Oswald ◽  
Mary J. Huber ◽  
Judson Workman
Keyword(s):  
Rehabilitation Counseling ◽  
Evaluation Process ◽  
Counseling Services ◽  
Evidence Based ◽  
Employment Services ◽  
Funding Sources ◽  
Efficiency And Effectiveness ◽  
The Status ◽  
Employment Programs ◽  
Evidence Based Programs

The development of evidence-based programs (EBPs) in rehabilitation counseling (RC) is rudimentary. The field, specifically EBPs related to employment-focused practices, is in need of a data-driven evaluation process to assure that evidence-based employment interventions are being disseminated and implemented in the field. This article reviews the status of evidence-based vocational rehabilitation (VR) programs; argues for the need of not only employment related EBPs in rehabilitation but for the development of a registry that contains successful employment approaches; provides the readers with a step-by-step process in the documentation of an EBP; and lastly, we discuss the lessons we learned from the process of accreditation. A registry containing evidence-based employment programs holds promise for helping rehabilitation organizations improve the quality of employment services and practices they provide to consumers with disabilities as well as promote the efficiency and effectiveness of rehabilitation counseling services to funding sources and legislators.

Implementation of Sexually Transmitted Infection Interventions

2016 ◽  
Vol 18 (2) ◽  
pp. 290-297 ◽  
Author(s):  
Melissa Tibbits ◽  
Mohammad Siahpush
Keyword(s):  
Best Practice ◽  
Intervention Development ◽  
After School Programs ◽  
After School ◽  
Evidence Based ◽  
Health Issues ◽  
Transmitted Infection ◽  
Sexually Transmitted ◽  
Evidence Based Programs ◽  
Multilevel Interventions

Although community-wide, multilevel interventions are widely regarded as the most effective method for addressing complex health issues such as sexually transmitted infections (STIs), there is a dearth of research about the implementation of interventions of this nature. The aim of this study was to determine the implementation of locally developed and evidence-based STI interventions across an urban community using the Institute of Medicine’s intervention spectrum as a framework, to highlight collaborations, and to identify barriers to the implementation of community-wide, multilevel interventions. Semistructured interviews were conducted ( N = 20) with staff from schools, after-school programs, community organizations, and clinics in a Midwestern metropolitan area. Results indicate that interventions were implemented at all levels of the Institute of Medicine’s intervention spectrum, although selective interventions that served a small number of youth were most common. Most interventions were locally developed or adapted from evidence-based programs. Despite reported collaboration between agencies, there was relatively little community-wide coordination of STI interventions due to factors such as community norms and competition for limited funding. These findings offer further insight into the gap between best practice recommendations and the implementation of community-wide, multilevel interventions. Implications for intervention development and implementation are discussed.

scholarly journals Exploring Well-Being Outcomes Among Persons Living with Dementia: Self-Reports Versus Caregiver Proxy Reports

2021 ◽  
Vol 5 (Supplement_1) ◽  
pp. 747-747
Author(s):  
Morgan Minyo ◽  
Sara Powers ◽  
Alyssa Ciancibello ◽  
Rachel Schaffer ◽  
David Bass
Keyword(s):  
Best Practice ◽  
Well Being ◽  
Self Report ◽  
Depth Information ◽  
Dementia Caregiving ◽  
Proxy Reports ◽  
Negative Impacts ◽  
Using Data ◽  
Evidence Based Programs ◽  
Report Measure

Abstract A vast amount of research has focused on the development of dementia caregiving evidence-based programs (EBPs) in order to mitigate the well-known negative impacts of providing care for persons living with dementia (PLWD). In order to support efficacious results, many programs utilize a variety of both objective and subjective outcomes as typically reported by the caregiver or collected via medical history and clinical assessments. However, more recent research has attempted to understand the subjective illness experience of PLWD through self-report measures. Using data obtained from an online database (i.e., Best Practice Caregiving), that currently provides in-depth information on 44 dementia caregiving EBPs, the current study aimed to examine the number of EBPs that incorporated PLWD self-report measures on a variety of well-being outcomes. Results indicate that out of the 44 EBPs included for analysis: 1) Four out of 19 programs evaluating PLWD symptom severity/difficulty/distress used a PLWD self-report measure; 2) Eight out of 10 programs evaluating PLWD symptoms of depression used a PLWD self-report measure; 3) Five out of 10 programs evaluating PLWD quality of life/care utilized a PLWD self-report measure; and 4) One out of 9 programs evaluating ADL/IADL dependencies utilized a PLWD self-report measure. Discussion will focus on potential gaps and limitations of primarily using caregiver proxy reports to collect personal well-being outcomes for PLWD and ways in which researchers can integrate more self-report measures into intervention and programmatic evaluations.

scholarly journals BEST PRACTICE CAREGIVING: DIFFERENCES AND GAPS AMONG DEMENTIA SUPPORT PROGRAMS FOR FAMILY & FRIEND CAREGIVERS

2019 ◽  
Vol 3 (Supplement_1) ◽  
pp. S957-S957
Author(s):  
Julie H Rentsch ◽  
David Bass ◽  
Kathy Kelly ◽  
Katie Maslow ◽  
Alyssa Ciancibello ◽  
...  
Keyword(s):  
End Of Life Care ◽  
Best Practice ◽  
Service Organizations ◽  
Evidence Based ◽  
Dementia Caregivers ◽  
Social Service Organizations ◽  
Evidence Based Programs ◽  
Coping With Illness ◽  
Relationship Of ◽  
The Relationship

Abstract Family members and friends are the main providers of care for persons living with dementia. However, dementia caregivers are at greater risk than other caregivers of experiencing negative caregiving consequences. Despite the development of evidence-based programs to support dementia caregivers, few health or social service organizations offer any of these programs due, in part, to a lack of knowledge about their availability. Best Practice Caregiving is a newly launched website where professionals can get detailed information about these programs. Data collected to develop Best Practice Caregiving are analyzed for a sample of 42 evidence-based dementia caregiving programs to describe similarities and differences among programs including gaps in assistance available from these programs. Results show 64% of programs are delivered to caregivers only while the remaining are delivered to the caregiver and/or persons with dementia. Nearly half (43%) of the 42 programs are delivered in-person, 38% by phone, with 17% delivered all or in part online. Most programs are delivered by professionals (86%) followed by trained lay leaders (40%) and self-guided (12%). Most programs (95%) provide assistance with coping with illness/caregiving and the relationship of the dyad. Fewer than half of the programs assist caregivers with issues regarding finances (45%), end-of-life care (43%), and medical care (40%). Data from 233 delivery organizations show the most common challenge was getting caregivers to accept and complete the program (86%). Delivery sites reported more success with funding the program (mean=8.2 on a scale of 1-10) than with marketing and recruiting participants (mean=6.7).

scholarly journals Workshop: Best practice portals for public health policies and interventions

2019 ◽  
Vol 29 (Supplement_4) ◽  
Author(s):  
Keyword(s):  
Public Health ◽  
Best Practices ◽  
Best Practice ◽  
Good Practice ◽  
Value Added ◽  
Added Value ◽  
Evidence Based ◽  
Policy And Practice ◽  
What Works ◽  
Successes And Challenges

Abstract Background To support policy and practice with evidence-based information, several countries have best practice portals for public health interventions. Some of the portals were started recently (France) and other portals exist already for several years now (Netherlands). All the countries face the same challenges, which relate to how to identify the relevant practices, the assessment of the practices (how to achieve an inclusive portal while maintaining high quality), and the implementation and the use of the practices by professionals and policymakers (integrity vs. adaptation of the best practices). In addition to best practice portals the organisations are also working on the development of What works approaches. Objective The organisers will share their experiences with the development and implementation of best practice portals, and discuss the successes and challenges with the workshop participants. Three countries (the Netherlands, France and Germany) will present the successes and challenges of their best practice portal, and, as an example of a joint European approach, EuroHealthNet will discuss both joint and independent approaches from a European perspective. At the end of the workshop we will discuss the challenges and invite other countries to share their experiences and successes with best practice portals and providing evidence for policy and practice. With the objective to: Present the procedure and the assessment criteria of evaluating practices for inclusion in the portalsPresent the implementation and the use of best practices as well as the acceptance of the portalsDiscuss the issues of integrity and adaptation and how to assess the core elements of effective interventionsDiscuss the development of what works approaches (description of evidence in a short and accessible way) and their added value to best practice portalsDiscuss the value added of best practice portals, including promotion of their use by professionals and policymakers Key messages This workshop will give participants insight into best practice portals developed across Europe. It will discuss how countries identify and select good practice and evidence-based preventive interventions as well as the successes and challenges of such portals.

Informing Best Practice With Community Practice: The Community Change Chronicle Method for Program Documentation and Evaluation

2009 ◽  
Vol 10 (1) ◽  
pp. 102-110 ◽  
Author(s):  
Sheryl A. Scott ◽  
Scott Proescholdbell
Keyword(s):  
Health Promotion ◽  
Best Practice ◽  
Community Change ◽  
Evidence Based ◽  
Youth Empowerment ◽  
Community Practice ◽  
Health Departments ◽  
Environmental Strategies ◽  
Empowerment Model ◽  
Evidence Based Programs

Health promotion professionals are increasingly encouraged to implement evidence-based programs in health departments, communities, and schools. Yet translating evidence-based research into practice is challenging, especially for complex initiatives that emphasize environmental strategies to create community change. The purpose of this article is to provide health promotion practitioners with a method to evaluate the community change process and document successful applications of environmental strategies. The community change chronicle method uses a five-step process: first, develop a logic model; second, select outcomes of interest; third, review programmatic data for these outcomes; fourth, collect and analyze relevant materials; and, fifth, disseminate stories. From 2001 to 2003, the authors validated the use of a youth empowerment model and developed eight community change chronicles that documented the creation of tobacco-free schools policies (n = 2), voluntary policies to reduce secondhand smoke in youth hangouts (n = 3), and policy and program changes in diverse communities (n = 3).

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