scholarly journals BEST PRACTICE CAREGIVING: DIFFERENCES AND GAPS AMONG DEMENTIA SUPPORT PROGRAMS FOR FAMILY & FRIEND CAREGIVERS

2019 ◽  
Vol 3 (Supplement_1) ◽  
pp. S957-S957
Author(s):  
Julie H Rentsch ◽  
David Bass ◽  
Kathy Kelly ◽  
Katie Maslow ◽  
Alyssa Ciancibello ◽  
...  

Abstract Family members and friends are the main providers of care for persons living with dementia. However, dementia caregivers are at greater risk than other caregivers of experiencing negative caregiving consequences. Despite the development of evidence-based programs to support dementia caregivers, few health or social service organizations offer any of these programs due, in part, to a lack of knowledge about their availability. Best Practice Caregiving is a newly launched website where professionals can get detailed information about these programs. Data collected to develop Best Practice Caregiving are analyzed for a sample of 42 evidence-based dementia caregiving programs to describe similarities and differences among programs including gaps in assistance available from these programs. Results show 64% of programs are delivered to caregivers only while the remaining are delivered to the caregiver and/or persons with dementia. Nearly half (43%) of the 42 programs are delivered in-person, 38% by phone, with 17% delivered all or in part online. Most programs are delivered by professionals (86%) followed by trained lay leaders (40%) and self-guided (12%). Most programs (95%) provide assistance with coping with illness/caregiving and the relationship of the dyad. Fewer than half of the programs assist caregivers with issues regarding finances (45%), end-of-life care (43%), and medical care (40%). Data from 233 delivery organizations show the most common challenge was getting caregivers to accept and complete the program (86%). Delivery sites reported more success with funding the program (mean=8.2 on a scale of 1-10) than with marketing and recruiting participants (mean=6.7).

2021 ◽  
Vol 5 (Supplement_1) ◽  
pp. 8-8
Author(s):  
Sara Powers ◽  
Alyssa Ciancibello ◽  
Rachel Schaffer ◽  
David Bass ◽  
Morgan Minyo

Abstract Currently, the Best Practice Caregiving website provides information on 231 published studies from 44 dementia caregiving evidence-based programs that have demonstrated beneficial outcomes for dementia caregivers within health care and community-based settings. Across all programs, a total of 34 biopsychosocial outcomes were identified. Supported by the commonly used stress-related frameworks (e.g., Stress-Health Process, Cognitive Behavioral Theory) for which the programs were developed, the most frequently utilized program outcomes included: 1) Caregiver stress, strain, and/or burden (84.1%); 2) Caregiver depressive symptomology (79.5%); and 3) Caregiving efficacy, skills, and/or confidence (63.6%). The least common programmatic outcomes included: 1) Access to support information/Community service use (9.1%); 2) Unmet needs (6.8%); and 3) Respite/break from care (2.3%). The lesser utilized outcomes provide critical insight into current evidence-based programmatic priorities and ways in which professionals can seek to fill gaps in dementia caregiving interventions. Discussion will also focus on future directions of caregiver-related outcome assessments.


2014 ◽  
Vol 222 (1) ◽  
pp. 30-36 ◽  
Author(s):  
Sihu K. Klest

Data for the present study were collected from Parent Management Training Oregon model (PMTO) therapists (n = 83) employed in Norwegian social service organizations. Survey data were analyzed using partial correlation, MANCOVA, and contrast tests. There were statistically significant positive relationships between the number of PMTO therapists working in an agency and respondents reports of: (1) how many families they had treated with PMTO in the past 6 months, (2) PMTO being well integrated in their organization, and (3) how much time they have to practice PMTO in their current position. In addition, practitioners in organizations with more PMTO colleagues were significantly less likely to report that they would stop using the program. Finally, there was a marginally significant positive relationship between the number of PMTO therapists in an agency and practitioners’ reports that they received a sufficient number of PMTO cases. The size of the organization, the number of years therapists had worked with PMTO, and therapist perception of agency leadership were controlled for. Contrast tests suggested that the most prominent differences were between agencies with three PMTO therapists versus agencies with one or two practitioners. There were exceptions to this result; for example, individual practitioners with four or more therapists in their agencies had treated significantly more families with PMTO in the past six months than those with three or fewer therapists. There were large effect sizes for the MANCOVA, F(20, 249) = 10.38, p < .01, η p 2 = .39, as well as the univariate tests. Implementation outcomes were not improved for PMTO therapists if there were practitioners within their agencies working with an evidence-based program other than PMTO. Results suggest that clustering practitioners using the same program within an organization, in groups of three or more, could contribute to successful implementation outcomes for evidence-based programs.


2021 ◽  
Vol 5 (Supplement_1) ◽  
pp. 7-7
Author(s):  
David Bass ◽  
Alyssa Ciancibello ◽  
Rachel Schaffer ◽  
Sara Powers

Abstract A major advance in family caregiving has been the development, testing, and community delivery of research-proven, evidence-based support programs for family or friend caregivers of persons living with dementia. This presentation showcases and demos Best Practice Caregiving (BPC), a new online resource with comprehensive profiles for 44 of the top evidence-based dementia caregiving programs that are ready for scaling in communities. For these 44 programs, BPC is a database that presents key research findings with links to all its published articles, comprehensive program descriptions including all implementation features, and survey data on program delivery experiences from 324 healthcare and community organizations that offered the program as a regular part of their service portfolio 2019. BPC enables professionals to make side-by-side comparisons of the 44 programs, with the goal of increasing implementations of these evidence-based programs by healthcare and community service organizations.


2010 ◽  
Vol 5 (2) ◽  
Author(s):  
Andrew Speers ◽  
Allen Gale ◽  
Nancy Penney

This paper describes an international biosolids management initiative, known as the Australian and New Zealand Biosolids Partnership (ANZBP). The ANZBP - known formerly as the Australasian Biosolids Partnership – comprises 33 members dedicated to promoting the sustainable management of biosolids across the two nations. Two critical research projects are described, each of which contributes to the ANZBP goal of promoting the sustainable management of biosolids. The first is a review of community attitudes to biosolids management, the outcomes of which will be used to refine communication tools and methods of community consultation and which will provide input to policy development over time. The second is a review of regulations in place in Australia and New Zealand carried out to identify inconsistencies and improvements that could be made. An outcome of this initiative is potentially the development of a best practice manual. The relationship of the two projects to a sustainability framework adopted by the ANZBP is also described, as is the relationship of the two projects to each other.


2020 ◽  
Vol 12 (10) ◽  
pp. 1-8
Author(s):  
Hamish Carver ◽  
Dominique Moritz ◽  
Phillip Ebbs

Decision-making is central to the everyday practice of paramedicine. Paramedics must deliver appropriate clinical care within the boundaries of the law, clinical guidelines and evidence-based standards. They must also deliver care that is consistent with ethical standards and respectful of the expectations, preferences and beliefs of the patient. Paramedics are required to make these decisions within settings that are often disordered, uncontrolled and unpredictable, where all the relevant information and circumstances are not fully known. Decision-making in this environment is intended to provide care and treatment in the best interests of the patient. However, what should paramedics do when their intended, evidence based course of treatment is different from the patient's own wishes? More speci∼cally, how should they navigate these situations in the presence of complexities such as diminished mental capacity and end-of-life care? This article addresses these questions by exploring the relationship between healthcare ethics, health law and evidence-based practice in paramedicine.


2022 ◽  
Vol 37 ◽  
pp. 153331752110647
Author(s):  
Guerry Peavy ◽  
Ann M. Mayo ◽  
Cynthia Avalos ◽  
Amanda Rodriguez ◽  
Benjamin Shifflett ◽  
...  

Coupled with aging, chronic stress experienced by dementia caregivers often leads to deteriorating health. Comparing caregivers and non-caregivers, we tested whether depression and loneliness mediate the relationship between caregiver status and a measure of chronic stress, the Perceived Stress Scale. Seventy-six cognitively normal older adults (mean age 72.7) were identified as caregivers or non-caregivers based on the functional independence of a paired family member. Caregivers reported more perceived stress, depression, and loneliness than non-caregivers. Using multiple mediation analyses, we found that loneliness and depression mediated the relationship of caregiver status with perceived stress. The loneliness effect on perceived stress was both direct and via its relationship with depressive symptoms. The findings suggest loneliness as a likely point of intervention to reduce caregiver stress. Initiatives to enable caregivers to maintain or develop social relationships apart from caregiver responsibilities may mitigate stress and its negative impact on mental and physical health.


2020 ◽  
Author(s):  
Frederik Feys ◽  
Abdallah Naser

BACKGROUND The nocebo effect is any harmful reaction following a negative suggestion. Anxiety can be seen as a manifestation of a nocebo context. The psychological stress of the COVID-19 pandemic led some people to experience COVID-19 symptoms, which were not actually related to a COVID-19 infection. A fundamental goal during the COVID-19 pandemic is to limit the COVID-19 related demand on healthcare systems and to minimize COVID-19 related deaths. This exploratory study aims to determine to what extent the anxiety in the population is related to the number of covid-19 related hospitalizations and deaths. METHODS We will quantify the magnitude of the relationship between population anxiety and hospitalizations / deaths. Anxiety will be assessed using the results of the most frequently used anxiety measuring scale. Official websites of governments will be screened to determine hospitalizations and deaths. Studies will be included if they had at least 100 respondents, used a validated anxiety scale, reported on the general population of a country, and were conducted during the Covid-19 pandemic. A search strategy will take into account the limited resources for this study and will be used to search Pubmed, MedRXiv and PsychRXiv. Screening will take place at two levels: abstracts and titles, followed by full text reports. One researcher will extract data which will be double checked by a second researcher. We will perform weighted OLS regression to quantify the relationship of anxiety and covid-19 related hospitalizations / deaths. DISCUSSION Covid-19 related measures can carry a significant social cost and risk of unwanted effects; it is therefore important to assess the extent to which anxiety in the population is related to covid-19 related hospitalizations or deaths. If anxiety can be properly reduced in the population, health care will be safeguarded. Thus, any strategy that reduces anxiety can then be included in evidence-based decision making.


2003 ◽  
Vol 17 (3) ◽  
pp. 3-22 ◽  
Author(s):  
Timothy Besley ◽  
Robin Burgess

The Millennium Development Goals—global targets that the world's leaders set at the Millennium Summit in September 2000—are an ambitious agenda for reducing poverty. As a central plank, these goals include halving the proportion of people living below a dollar a day from around 30 percent of the developing world’s population in 1990 to 15 percent by 2015—a reduction in the absolute number of poor of around one billion. This paper examines what economic research can tell us about how to fulfill these goals. It begins by discussing poverty trends on a global scale—where the poor are located in the world and how their numbers have been changing over time. It then discusses the relationship of economic growth and income distribution to poverty reduction. Finally, it suggests an evidence-based agenda for poverty reduction in the developing world.


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